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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Personal thoughts on assisted dying.

102 replies

Widowtobeat40 · 21/11/2024 00:02

AIBU to find the assisted dying Bill debate really hard?
My husband is 47 he's terminally ill. Best case he has close to 12 months worse case a couple of months. He's in significant pain, is currently going through the process of serious ill Health retirement which has had a huge impact on his self worth.
He has gone through some of the most brutal treatment I've seen in the last 3 1/2 years making every attempt to survive but where he is now is that he wants to be able to chose when enough is enough.
I appreciate that it's a hugely personal vote but what I see is most people against it are those that have no experience of a terminal illness or those that are disabled rather than terminally ill.
I absolutely understand the concern about the possibility of expanding the safeguards but that isn't what MPs are voting on. The Mental health act has changed minimally over the years despite huge suggested changes.
My husband could get the best palliative care in the world but truth is he is likely to die a pretty awful, painful death. Should he not be allowed to decide when enough is enough???
Whatever the vote it will be too late for him but I would like to think that others will get that choice.

OP posts:
ConfusedBear · 21/11/2024 06:59

rwalker · 21/11/2024 06:23

I just don’t get why people with no understanding or experience of the situation think they have they right to limit the options of other people

Everyone gets an opinion because we live in a democracy with freedom of speech.

And actually, for this debate, nobody can have first hand experience of dying and being certified dead as they then wouldn't be able to take part in the discussion. The "understanding of" is more subjective but does a disservice to the complexity of the debate. This issue is too important to not let someone voice their opinion through silencing arguments such as "they've never seen someone die" or "they're clouded by grief".

Explaining how you've reached your view can be powerful and persuasive. I'm genuinely sorry for the losses that people on this thread have experienced. It doesn't mean that others aren't allowed their own opinion.

bringthecactusin · 21/11/2024 06:59

autienotnoughty · 21/11/2024 06:08

I believe we should have the right to end suffering in a dignified way and the ability to appoint someone else to do it in the case of loss of brain function.

It's inhumane to ale people suffer inthe interest of preserving life. What life?

So sorry for your suffering Flowers

Exactly. It's not 'life' is it? It's just existance.

Bobbie12345 · 21/11/2024 07:17

TheSandgroper · 21/11/2024 00:30

We have assisted dying in most of Australia now (state laws) and people are now agitating to expand the criteria.

I think your husbands criteria should be allowed.

But, it’s proving to be the thin edge of the wedge. The stories coming out of Canada are of a law that has just gone too far. MAID is now offered as a first option rather than treatment for serious but now routine conditions. A twelve year old child admitted to hospital for mental health problems and left alone after admission for an hour while her parents run an errand, is approached, signs the forms and is dead within two days and parents are powerless (anecdotal). I am now very scared about where our world is coming to.

To a certain extent, your husbands and others deeply distressing situations aside, I wonder if it is now a “be careful what you wish for” scenario.

I am no help, I am sure.

As someone in the medical field working in Canada I can assure you this is absolutely false.
The laws are well written in my opinion. There are good procedures in place.
What you have described is not happening.

ConfusedBear · 21/11/2024 08:52

Bobbie12345 · 21/11/2024 07:17

As someone in the medical field working in Canada I can assure you this is absolutely false.
The laws are well written in my opinion. There are good procedures in place.
What you have described is not happening.

You can say that you haven't seen it. But you can't say it is absolutely false.

In fact somethings, like statistical overrepresentation of a group, an individual would not be able to see.

SharpOpalNewt · 21/11/2024 08:58

I can't really come out strongly either way. I can understand people with a painful terminal illness wanting to have the option. But I'm worried about the consequences. I think it's such a difficult issue.

Onlyvisiting · 21/11/2024 09:04

I am fully in favour. And honestly, this probably makes me a horrible person but if anyone who is against it and thinks they should get to decide for OTHER PEOPLE doesn't end up with a lingering painful death at the end of their life then there's truly no justice in the world.
Absolutely it needs to be regulated and it won't be perfect, i expect primarily ir would be too restricted for a lot of people. But they idea that their personal doubts should supersede another person's right to not die in excruciating agony is despicable.

curious79 · 21/11/2024 09:10

I haven’t read any other comments But what I have experienced is the following. Being in a position where my mother was bedbound. I don’t want to give too much detail as it will out me. We reached a point where she could either go home or be sent to an old peoples home but she couldn’t stay in the facility she was in. We wanted her home, and in fact she said wanted to go home as a first instinct , but a particular doctor really took against this idea and tried to persuade her very specifically that she would be a burden on us. The doctor did this in a very sneaky and underhand way which I uncovered just prior to the decision so I was able to persuade mum she wouldn’t be a burden.

I am 100% against this bill. There have been cases in Canada where people who are homeless decide to end their lives where had they had the money to afford an apartment they wouldn’t have done so. The abuses are horrendous. The coercion is very real. And it removes the burden on the state to actually provide alternatives for people who are at the edge of their lives.

dare I say it too, I feel seeing my mother suffer was both a blessing and a curse. It was a time of great love and pulling together.

The law will be eroded, as it has in every other country. Already there’s a murkiness to it. Two medical practitioners, not even doctors, are required to sign this off.

It’s not difficult to imagine a future where a government uses that law if it comes into power to enact harsh sentences against people who somehow offend the state.

Slippery slope all the way

SharpOpalNewt · 21/11/2024 09:11

Onlyvisiting · 21/11/2024 09:04

I am fully in favour. And honestly, this probably makes me a horrible person but if anyone who is against it and thinks they should get to decide for OTHER PEOPLE doesn't end up with a lingering painful death at the end of their life then there's truly no justice in the world.
Absolutely it needs to be regulated and it won't be perfect, i expect primarily ir would be too restricted for a lot of people. But they idea that their personal doubts should supersede another person's right to not die in excruciating agony is despicable.

That's not a very pleasant post. And a very simplistic way of looking at the issue, which is definitely not simple.

curious79 · 21/11/2024 09:12

Onlyvisiting · 21/11/2024 09:04

I am fully in favour. And honestly, this probably makes me a horrible person but if anyone who is against it and thinks they should get to decide for OTHER PEOPLE doesn't end up with a lingering painful death at the end of their life then there's truly no justice in the world.
Absolutely it needs to be regulated and it won't be perfect, i expect primarily ir would be too restricted for a lot of people. But they idea that their personal doubts should supersede another person's right to not die in excruciating agony is despicable.

Well, that’s a mature well thought out response isn’t it? I would suggest you went into politics if the third Reich still existed.

Boomer55 · 21/11/2024 09:18

People should have the choice, over their own lives.

We wouldn’t be allowed to keep a pet alive and in pain and suffering, so why should it be inflicted on humans who just want a peaceful, dignified end?

Obviously, there needs to be robust safeguards built into this.

KimberleyClark · 21/11/2024 09:21

I’m so sorry about your husband OP. 💐

I do support the right to assisted dying. But I also worry that we’ll end up with a societal expectation that anyone with a terminal diagnosis kills themself to spare their loved ones watching them suffer.

SharpOpalNewt · 21/11/2024 09:21

iloveeverykindofcat · 21/11/2024 05:51

I find it really tough. Basically, I'm for it in principle - I saw my grandmother die a terrible extended death in pain and confusion, and I've also held my old cat with heart failure in my arms as she peacefully slipped away with a little injection, being stroked and told how she loved she was, and what a lovely time we had together. Seems like it should be a simple decision.

But. In my day job, I'm a sociologist. Here's my big concern: if euthanasia becomes a potential end treatment, that fundamentally changes the culture of hospitals. I don't believe that power corrupts. I do believe - and its extremely well evidenced - that 'dehumanizing systems dehumanize'. And being in hospital is already dehumanizing, inevitably, to an extent. Whilst there are individual cases where euthanasia seems like it would absolutely be the best option and many cases where I would want it myself, at the level of work and organizational structures, I have a horrible feeling it might be a case of the road to hell being paved with good intentions.

It cuts to the heart of the question of what medicine is, and what its for. Which is obviously a huge question. I have another thought - say it becomes law that a potential treatment is euthanize someone, presumably by giving a massive overdose, in order to relieve suffering. Well say the next person comes along and says doctor, I am also suffering, and what would relieve my suffering is a shitload of benzodiazapines or opiates. The doctor will say no, because that would be extremely bad for you. But if they've just ODed someone, this throws up a pretty glaring inconsistency.

I've got a couple of friends who are doctors, one of whom is an oncologist, and she pretty much thinks the same as me - in principle, she supports it, but has massive reservations and concerns about its implementation. I think perhaps what we should do first is pull back on agressive treatment of the very old/very sick, when quality of life is poor. My grandmother wouldn't have died in fear, pain and confusion with advanced dementia if the hospital hadn't aggressively treated every infection with IV antibiotics, she would have died sooner. Eventually my mother had to actually tell them to stop, for the love of God, just make her comfortable and let her die. No-one broached this conversation with the family, they just kept treating.

Fantastic post.

Tiker · 21/11/2024 09:23

My mum is from a country where euthanasia is legal (Netherlands). We have a relative who was euthanised when dying of liver cancer, a few days from probable death but suffering greatly. In those circumstances, of course I support it.

I have a friend whose mother died of the same cancer in the UK and her last days were excruciating and very difficult for my friend and her family to witness.

WhisperGold · 21/11/2024 09:24

TheSandgroper · 21/11/2024 00:30

We have assisted dying in most of Australia now (state laws) and people are now agitating to expand the criteria.

I think your husbands criteria should be allowed.

But, it’s proving to be the thin edge of the wedge. The stories coming out of Canada are of a law that has just gone too far. MAID is now offered as a first option rather than treatment for serious but now routine conditions. A twelve year old child admitted to hospital for mental health problems and left alone after admission for an hour while her parents run an errand, is approached, signs the forms and is dead within two days and parents are powerless (anecdotal). I am now very scared about where our world is coming to.

To a certain extent, your husbands and others deeply distressing situations aside, I wonder if it is now a “be careful what you wish for” scenario.

I am no help, I am sure.

Evidence please.

SleepFinally · 21/11/2024 09:26

I am one of the most opinionated people I know! (though I'm quite polite so keep my opinions to myself except online usually! 😉) and in the case of assisted dying I am honestly opinion-less.

For every argument on one side, I find another on the other. I also don't have direct experience of terminal illness in this timeframe (my mother died a few years ago, but we only knew her condition was 'terminal' a few days before, so there wouldn't have been time for all the checks and processes etc... required in an assisted dying bill. She was very pro assisted dying though, throughout her life).

I think this question is just so hard and so many different ethical and moral questions, some of which humans will never have the answer to, simply have immobilised me on this one. I just simply don't know, which is just not like me.

But sending you and your DH and family big hugs and all my thoughts. I am so sorry for everything you and he have been through and are going through. In his shoes I understand his decision, whatever that may be💐💐💐

ByQuaintAzureWasp · 21/11/2024 09:35

You are correct. I've cared for two terminally ill people so I get everything you say. I feel.its not going to get voted in which is appalling in my view.

WhisperGold · 21/11/2024 09:41

LoremIpsumCici · 21/11/2024 01:11

I wouldn’t be surprised if it were true. Enough abuses have happened in Canada- read this for examples.

https://www.nationalreview.com/corner/canadas-euthanasia-horrors-are-accelerating/

Disturbingly, the law altered Canadians views on whether the poor and homeless should be euthanised simply for being poor or homeless.

”At this point, it is worth recalling that euthanasia legalization changes the general morality of society and its respect for life in very disturbing ways. For example, a poll taken last year in Canada found that 27 percent of Canadians strongly or moderately agree that euthanasia is acceptable for suffering caused by “poverty” and 28 percent strongly or moderately agree that killing by doctors is acceptable for suffering caused by homelessness.”

These things are not equivalent.

Being entitled to euthanasia for the suffering caused by homelessness is not the same as being euthanised simply for being homeless.
Not even fucking close.

MissyB1 · 21/11/2024 09:44

I did 26 years as a nurse and I'm married to a Dr. Sadly between us we have seen many many long drawn out unpleasant deaths. You think because someone dies in hospital it will be dignified, peaceful and pain free? Think again! And thats not because staff aren't doing their best, it's because palliative care can only do so much. Hospices are very wonderful places, but we don't have enough, and even they can't guarantee it won't be unpleasant. None of us ever know when we might need to take advantage of assisted dying, it could be us suffering and desperate for release.

People need to read the bill, it has good safeguarding built in.

user1471538283 · 21/11/2024 09:49

I'm so sorry OP.

I agree with it. I think people should have the choice to die with as much dignity as possible. I don't want to slowly die in enormous pain with no quality of life and like your DH I want agency over my life.

Abra1t · 21/11/2024 09:58

Having recently been through a parent dying of aggressive leukaemia I have mixed feelings. Palliative care services are already so patchy I'm worried that even less funding will go their way if assisted dying is used as an excuse by trusts to further reduce resources. Perhaps I'm cynical, but I can just imagine it. I had some grim days with my mother when it became clear that 'dying at home' would not be what it was supposed to be and would involve frantic calls to district nurses who didn't appear for a long, long time. I worry that people who might have wanted to keep on going might hear even more horror stories about lack of palliative services and ask for AD, when better funded palliative care might have made them feel very differently.

That said, I would like the AD option for myself.

Tessasays · 21/11/2024 10:00

I'm absolutely for it! When my time comes I want to be able to end my suffering rather than a long drawn out painful enviable death

sleepwouldbenice · 21/11/2024 10:04

I am very torn over it

Of course I feel that in many cases it is the right, and basically humane, thing to support

But I have also watched the Better off Dead documentary and understand the fears of it becoming a slippery slope.

I think on balance I would support it, but be very very wary

iloveeverykindofcat · 21/11/2024 10:29

@sleepwouldbenice I think everyone who has thought seriously about it finds it extremely difficult. When people come on these threads and give a baldly one-sided statement and declare that anyone who disagrees with them must be morally deficient in some way, its a sure sign they haven't thought about it very much or very carefully. Its not about 'taking people's options away' - suicide is not illegal. If someone does not have the means or ability to complete suicide, I haven't taken that option away from them, something else has. If there was a vote tomorrow - with the NHS as it is, I think I would vote no. It would trouble me greatly and I'd find it difficult, but I think the current situation is just too perilous.

sleepwouldbenice · 21/11/2024 20:02

I wouldn't want to be an MP!
As I say I think I would support it, but I would urge people to watch the documentary to understandthe concerns.
They did interview a suicidal homeless man who also was in some physical pain so he couldn't work. He was approved for assisted dying due to the latter but got it cancelled. They are also considering for children and also for adults with mental health issues....

Although I am sure everyone who is on this thread would be vehemently opposed to these examples, it also clearly shows that the idea of a slippery slope is not absurd.

For those who have been or are facing these circumstances I send my heartfelt sympathy.

Interlaken · 21/11/2024 20:10

XChrome · 21/11/2024 00:16

🩷 I am so very sorry for your husband and for you. That's heartbreaking.

Yes, we absolutely should be able to decide that for ourselves. The slippery slope arguments about where it could lead are silly. It's been around for quite some time in many areas and has not lead to any of the dire outcomes opponents are predicting.

I am a chronic pain sufferer, so naturally I want to be able to decide for myself how much suffering I can bear. Nobody should get to decide that for other people. That's authoritarian and cruel.
I have come to tte conclusion that anyone who can't empathize with suffering people wanting the right to end their misery just isn't a good person.

I don’t think the slippery slope arguments are silly at all.

Presumably you wouldn’t see homelessness as a sufficiently terminal illness to qualify and yet…https://amp.theguardian.com/world/2024/oct/17/canada-nonterminal-maid-assisted-death

That’s where they have slippery slopes too in Canada.

It’s really complex - I want OP’s husband to have the right to choose, but if his right to choose enables other vulnerable people being pressured then that’s not OK with me.

But a patronizing “silly” won’t suffice.

Canadians with nonterminal conditions sought assisted dying for social reasons | Canada | The Guardian

Some people have asked to be killed due to non-medical reasons – including isolation and homelessness

https://amp.theguardian.com/world/2024/oct/17/canada-nonterminal-maid-assisted-death

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