Or is there a solution I can't see?

[Emeraldiisland]

Two weeks ago my 16 year old DD had an unexplained seizure. She is okay now but the hospital advised she is not to be left alone until she sees neurological team (5 month wait).
Admi we don't stick to this all the time, as she obviously doesn't sleep in our room or anything but in the day either me, DH or eldest are with her.
She wants to go to college in September and DH said to me I will have to take her and pick her up every day but I don't think I can. To start with it's a round trip of 90 minutes so 3 hours a day and second what do I do with my son?
He's starting school on a very reduced timetable but I can't get him in for 8:45 and get my daughter to college for 9. I mean l could drop her off early but I'd probably have to leave at 7 and drag my son along (totally ready for school) to make sure I'm back in time for school.
DS will be shattered and that leads to huge meltdowns (he's severely autistic)..
I will then have to take him with me to pick her up. I can't leave him at home as DD1 and DH will be at work.
The only solution I can see is to defer DS until January and pray she's seen by then but I fought so hard to get him starting in September and tbh he needs some routine and since leaving nursery he's become quite clingy so I was hoping school would help in that way. He's going to be at a disadvantage when he starts school due to addional needs but think he'll be at an even bigger disadvantage if he starts when the class is established, they all know the routine and have friends and he is new and on his own.
Uber isn't going to be practical until January as the cost will be too much and obviously going by bus could be a risk if she has another seizure.
At the moment options seems to be
Take her to college super early
Risk her getting the bus
Defer DS (which is easiest but I really really want to avoid).
I don't think there's an answer but if anyone can think of something please let me know.

You can't be in 2 places at once. DH needs to step up.

Stupid advice.

Embellishing seizures to queue jump so everyone else gets pushed further back is shitty and ridiculous behaviour and will impact people who are genuinely having multiple seizures, it's could also impact ops dd, a one off seizure and multiple seizures are different things.

There's loads of good advice on here op, hope you manage to get things sorted soon.

I agree with those saying DH needs to help more.
A SAHM you might be but that doesn't give you magic powers to be in two places at once.

What's his current suggestion of getting DS and DD where they need to be? If you take DD, could he reasonably drop off DS at school?
Doesn't help with picking up but that might have to involve taking DS with you if DH can't alter his hours more than accommodating morning drop off.

Not even buccolam? Not UK so maybe different but after 1 seizure DS carried it everywhere with him prior to the neurology appointment and before even being diagnosed with epilepsy and then being put onto Keppra. Interesting that it is done differently in the UK.

I’d just have her get the bus. She won’t be alone as there’s other passengers/driver, if she had a seizure someone would phone an ambulance. Get a medic alert bracelet with your contact details in or at least make sure the ICE details are up to date in her phone. She might never have a seizure again in which case all these delayed entries to school would be a waste of time.

DHs work are quite good at allowing employees alter their hours but they don't allow it on a temporary basis. So if he started work at 9 that would always be the case and he'd lose money as they don't work past 4:45.
Medic braclet and paper copy of what happened and contact details is a good idea along with everything on her phone. She is rubbish at putting credit on her phone so will have to keep reminding her about that but at least she does keep it charged and I can track her location.
She was perfectly happy getting the bus until this happened but I think it's knocked her confidence and left her shaken up
As I said meeting with college beginning of September and going to see what they say. Eldest has said she will be able to take DS to school half of the week and I will have to see as if DD isn't in college every day or morning then I'll be able to do that.
My main worry is DS is only supposed to be doing 90 minutes to start off with, making timing tight but will have to see what I can work out once everything is confirmed school /college wise.
If it comes to it and she has to get the bus then that's what will happen and I can pick up just to ease her in.
Thanks all for helping make sense of things. I think I was just so stressed I couldn't think of a solution.
I will call the GP on Tuesday and see if they can do anything. Might just have to bite the bullet and go private but that depends on cost.

Hope you manage to get a plan together everyone is comfortable with. I think I would get her a mobile contract rather than a top up. My teens have an ID mobile one which is only £8 a month and gives unlimited texts and calls and 20gb of data.

I had my first seizure at her age. I still walked to school or got the bus on my own, went out in public alone etc. The advice means don't lock the door in the bath etc, not don't get on a public bus! If anything were to happen, arguably she would be better off on a bus where other passengers can assist, space to lie her down etc than in the car with just you driving and unable to do anything.
It will have been a confidence knock, so get her a medic alert bracelet, print out a card with information including your contact details to tuck in her mobile phone case (paramedics will look there) and tell DH to take a couple of days annual leave so he can take her on the bus the first two days so she is familiar with the route before she does it all alone to boost her confidence.
The advice you have been given is either ridiculous or you have misinterpreted it! DH also needs to be part of the solution. Your DS needs not to be.

Can you husband start later and take your son each day?

I was more meaning prevention medication rather than as required to terminate - but the latter really depends on the context of whatever happened etc, but not all will get it for a single one off short seizure (esp if its fever related)

I get more involved with the extremes though in anaesthetics (status or those needing intubating)

Look into assistive tech. There's a company called telecare in my are that do it, not sure if it's the same everywhere. There are falls watches/pendants/bracelets to alert a call centre of a fall/seizure and bed mats that can detect seizures during the night. With something like this in place you may all be more comfortable with her getting the bus alone.

I have issues with my balance and was initially scared to go out alone. It's very understandable she's feeling unsure. I'd recommend talking to your daughter and seeing what you can put in place to help her build her confidence back eg her practising doing the bus trip before she starts college, maybe with you or alone when you're available to get her if there's an issue (or her doing it one way and you meeting her, or her doing a few stops), her going into a shop or cafe or somewhere she wants to practise being 'alone' again, getting her a contract phone so she never runs out of top up or you putting £5-10 emergency on there that she doesn't dip into, making sure she has emergency info on her phone, going through what she should do if she feels ill in various places. Anything that she thinks will help until it feels second nature again.