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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if you've ever successfully challenged a GP refusal to prescribe under a shared care agreement

217 replies

OptimismvsRealism · 31/07/2024 17:23

Debilitating illness - NHS consultant waiting list 5 years - used up significant savings and went to a private doctor who set up a plan - GP says no it's got to come from the NHS and no they won't take your diagnosis and adopt it you go back to day 1 on a 5 year waiting list. The same private consultant btw works on the NHS team that would make the diagnosis.

Cost of the medication to NHS is actually not that much but cost to an ordinary individual on private prescription isn't within realms of possibility.

Is there any alternative?

Oh and the aibu, aibu to despair that the NHS seems to actively want people to suffer?

OP posts:
ColdinNovember · 01/08/2024 06:48

Sometimes the diagnosis is not the same as it would be on the NHS. ADHD for example would be diagnosed by a paediatrician or psychiatrist on nhs but private providers it could be an AHP (nurse, pharmacist for example) this has caused issue with’right to choose’ diagnosis. As SCG usually stipulates diagnosis by consultant and with that person available for escalation if required. If the diagnosis bit does not ‘match’ then you can’t really progress anywhere.

WaitingForMojo · 01/08/2024 07:17

nocoolnamesleft · 31/07/2024 19:24

Surely the problem is that is isn't under a shared care agreement, as GPs only have those with NHS teams?

I have a shared care agreement between a private Consultant and NHS GP

WaitingForMojo · 01/08/2024 07:18

ColdinNovember · 01/08/2024 06:48

Sometimes the diagnosis is not the same as it would be on the NHS. ADHD for example would be diagnosed by a paediatrician or psychiatrist on nhs but private providers it could be an AHP (nurse, pharmacist for example) this has caused issue with’right to choose’ diagnosis. As SCG usually stipulates diagnosis by consultant and with that person available for escalation if required. If the diagnosis bit does not ‘match’ then you can’t really progress anywhere.

I’m not sure this is true. ADHD requires a Consultant Psychiatrist to diagnose regardless of nhs or private?

WaitingForMojo · 01/08/2024 07:20

ThePure · 31/07/2024 23:51

That makes a lot of sense from the GP perspective that it's about the ongoing back up

As an NHS specialist who does not do private work I am afraid to say that there are a number of Wild West private sector providers whose diagnoses and treatment plans I would not recognise.

NHS Drs largely have to prescribe with governance frameworks and agreed guidelines which private Drs don't have to. Some of my patients have absolutely been harmed by paying for dodgy opinions and treatments in the private sector.

There is obviously a financial incentive to make the diagnosis and prescribe the treatment that patient who are paying privately want. Whoever heard of anyone coming away from a private clinic without the ADHD or ASD diagnosis they were looking for?

People absolutely do come away without diagnosis. I know of several.

WaitingForMojo · 01/08/2024 07:24

RocketMummy86 · 31/07/2024 23:17

GP's are not allowed to prescribe under Shared Care Agreements from Private Consultant's. This is standard across all ICB's who set the guidelines for this, so is not a case of GPs choosing to not prescribe. It is in their contracts not to accept private SCA's. There are many reasons, but essentially this is to stop GPs being left prescribing medications which need monitoring but the patient stops seeing a private consultant especially when a patient moves areas.

I have a shared care agreement with a private provider. If I’m not reviewed by the Consultant, the shared care agreement will cease.

HollyKnight · 01/08/2024 07:26

WaitingForMojo · 01/08/2024 07:18

I’m not sure this is true. ADHD requires a Consultant Psychiatrist to diagnose regardless of nhs or private?

Nope. A range of professionals with the appropriate training can diagnose ADHD. But only a doctor can prescribe medication.

ColdinNovember · 01/08/2024 07:30

HollyKnight · 01/08/2024 07:26

Nope. A range of professionals with the appropriate training can diagnose ADHD. But only a doctor can prescribe medication.

Yes and no. It can be diagnosed by a range of HCP. Many other HCP can also prescribe if qualified to.
The issue can come into play if they want to slot in to a NHS SCA agreement which states diagnosis by consultan paed/psychiatrist.

HollyKnight · 01/08/2024 07:43

ColdinNovember · 01/08/2024 07:30

Yes and no. It can be diagnosed by a range of HCP. Many other HCP can also prescribe if qualified to.
The issue can come into play if they want to slot in to a NHS SCA agreement which states diagnosis by consultan paed/psychiatrist.

Sorry, I meant for GP/shared care medication needs to be prescribed by a doctor i.e. consultant psychiatrist. I was just confirming that it's not only psychiatrists who can diagnose ADHD.

Ottervision · 01/08/2024 08:00

RosaRoja · 01/08/2024 00:41

Private companies have performance related pay 😄 I truly have no idea if this is the case in private healthcare, just joking.

It would be completely illegal to pay someone based on the amount of positive diagnoses they make.

OptimismvsRealism · 01/08/2024 08:00

RosaRoja · 01/08/2024 00:22

If you take the emotion out of it, the GPs job is to keep you safe (including proper safe monitoring via specialist) and themselves safe (not losing their job, or being subject to demoralising complaints when things go wrong and they’ve prescribed above their knowledge level, or L eaving family without the main earner etc). Don’t look at this in an adversarial way.

They aren't keeping me safe. They're hurting me.

OP posts:
OptimismvsRealism · 01/08/2024 08:01

And @RosaRoja if I can't work they are exactly denying my household my earning.

I am tbh thinking if I died it would at least cause them the headache of the paperwork.

OP posts:
Ottervision · 01/08/2024 08:02

HollyKnight · 01/08/2024 07:26

Nope. A range of professionals with the appropriate training can diagnose ADHD. But only a doctor can prescribe medication.

That's not true either. A Dr or an registered prescriber (so could be a nurse prescriber) can prescribe as long as they're experienced in the field.

Which is why a gp can't prescribe off their own back. They're controlled drugs.

vivainsomnia · 01/08/2024 08:04

Is it for ADHD? If so, there have been concerns about private psychiatrists (or even other professionals) being quick at diagnosing it. Considering how expensive it is to go through the assessment privately, how many patients would be really pissed off to then be told that they don't have it!

Privately, those consultants don't have to follow any specific guidelines and are not being regulated on their rate of diagnosis. They can diagnoses what they want to all their patients.

It is sad to say, but they are clinicians out there who are really in it for the money.

This is why policies have been introduced and GPs have to adhere to them.

I agree that it is a real pity for those who are genuinely seriously affected by the disorder and cannot function without medication. Don't blame the NHS though, blame the new cultural trend that sees everyone wanting a diagnosis, ie. excuse to justify their poor behaviours.

Ottervision · 01/08/2024 08:04

ColdinNovember · 01/08/2024 07:30

Yes and no. It can be diagnosed by a range of HCP. Many other HCP can also prescribe if qualified to.
The issue can come into play if they want to slot in to a NHS SCA agreement which states diagnosis by consultan paed/psychiatrist.

Nhs can agree sca's with someone diagnosed by another hcp that isn't a psychiatrist. The problem is they can do what they like so even if it's a perfectly legit diagnosis, the sca is watertight, your GP can still say no because they simply don't want to.

Causing issues for the patient, a waste of resource for the nhs service by reassessing someone who already has a diagnosis.

LaurieFairyCake · 01/08/2024 08:05

Plan of action:

  1. Complain to pals
  2. Go through GP complaint process
  3. Meet with your MP
  4. Ask your consultant to prescribe and put you on her NHS list
  5. Don't kill yourself Flowers
Ottervision · 01/08/2024 08:05

vivainsomnia · 01/08/2024 08:04

Is it for ADHD? If so, there have been concerns about private psychiatrists (or even other professionals) being quick at diagnosing it. Considering how expensive it is to go through the assessment privately, how many patients would be really pissed off to then be told that they don't have it!

Privately, those consultants don't have to follow any specific guidelines and are not being regulated on their rate of diagnosis. They can diagnoses what they want to all their patients.

It is sad to say, but they are clinicians out there who are really in it for the money.

This is why policies have been introduced and GPs have to adhere to them.

I agree that it is a real pity for those who are genuinely seriously affected by the disorder and cannot function without medication. Don't blame the NHS though, blame the new cultural trend that sees everyone wanting a diagnosis, ie. excuse to justify their poor behaviours.

Really? To justify their poor behaviours?

Wow. I mean just wow.

CasaBianca · 01/08/2024 08:09

Waynettaaa · 31/07/2024 17:39

I had to wait to see the same consultant on the nhs, as they wouldn't accept that I'd seen them privately first. Such a waste of nhs time and money.

Instead of understanding that people going private are saving the NHS time and money, the default reaction is to want to penalise them for it.

TBF this is similar to the hatred against private school parents, even though they save the country £££.

Doggymummar · 01/08/2024 08:12

I saw a private doctor about a month ago as I had a free checkup under my partner's HCA plan with work. She wanted me seen immediately by breast care and gynalogical team as found abnormal lumps. She emailed my GP and I am going in a few weeks, the two week pathway is about six where I live. I also saw a private menopause GP who prescribed everything as my surgery was always giving me antidepressants instead and I paid for the first prescription and my NHS GP prescribes them now.

It depends whether your practice usually prescribes those drugs I was told ( postcode lottery ) as I also was prescribed weight loss medication and GP won't prescribe that as it's not protocol in my area.

RosaRoja · 01/08/2024 08:14

Ottervision · 01/08/2024 08:00

It would be completely illegal to pay someone based on the amount of positive diagnoses they make.

I agree 💯 It would be unethical and scandalous and I don’t think that’s something we need to worry in the UK about yet. I say ‘yet’ because I saw a documentary about the opioid prescriptions in the USA. I’m not equating ADHD prescriptions with that, if this is even what the thread is about, it’s an example of people prescribing in good faith and a little incentive.

vivainsomnia · 01/08/2024 08:14

Really? To justify their poor behaviours
I have ADHD. I am not disputing many do need medication to function but yes, I also believe that others just want a diagnosis for sympathy.

ADHD has not suddenly massively increased, not to the level of people looking for a diagnosis. This is exactly why a policy had to be introduced.

Ottervision · 01/08/2024 08:16

RosaRoja · 01/08/2024 08:14

I agree 💯 It would be unethical and scandalous and I don’t think that’s something we need to worry in the UK about yet. I say ‘yet’ because I saw a documentary about the opioid prescriptions in the USA. I’m not equating ADHD prescriptions with that, if this is even what the thread is about, it’s an example of people prescribing in good faith and a little incentive.

The us is very different in that people do earn money out of the more drugs they flog. I really don't think we gave that issue here because its never been allowed in recent history anyway.

Adhd drugs are a controlled drug so I see the concern but they're not comparable to an opioid in the way that they get you hooked and you can't stop they're have a really short half life and we'll, they're not opioids!

vivainsomnia · 01/08/2024 08:17

Instead of understanding that people going private are saving the NHS time and money, the default reaction is to want to penalise them for it
People are so naive not to think that a number of consultants are in private business for the £££. As said, would you recommend a private psychiatrist who you've paid £3k for a diagnosis to be told 'good news, you don't have ADHD. Isn't it wonderful! Good luck with getting on with your life'

vivainsomnia · 01/08/2024 08:18

The us is very different in that people do earn money out of the more drugs they flog
As do private consultants in the UK!

Ottervision · 01/08/2024 08:20

vivainsomnia · 01/08/2024 08:18

The us is very different in that people do earn money out of the more drugs they flog
As do private consultants in the UK!

Not in the same way at all. They're not on commission from drug companies. They'll get paid a fee to see someone, yes. But as I explained up thread, many people get adhd diagnosis through big companies where they WONT get paid directly like that. So if anyone's looking for a good option privately maybe it's that? Idk! I went through RTC.

Ottervision · 01/08/2024 08:21

vivainsomnia · 01/08/2024 08:17

Instead of understanding that people going private are saving the NHS time and money, the default reaction is to want to penalise them for it
People are so naive not to think that a number of consultants are in private business for the £££. As said, would you recommend a private psychiatrist who you've paid £3k for a diagnosis to be told 'good news, you don't have ADHD. Isn't it wonderful! Good luck with getting on with your life'

So you think no private consultant should be trusted about anything then presumably? Or is it just adhd you think people shouldn't have?