To be annoyed my mum doesn't have any of my 'proof' of Dyslexia

[dyslexi]

I think I am being unreasonable.

But I am really annoyed with my mum for not keeping any of my dyslexic reports from when I was diagnosed in yr 7.

She has given me most of my other important documents which thankfully she did keep. Other bits I now have would also be nearly impossible to replace.

I'm in my 30s and looking to do some professional exams. I could use the extra exam support but I can't prove I deserve it.

More of a rant.

AIBU? She should have kept it right? She has secretary course certs she did in circa 1986 so she does keep things

Medical records that are held with GP, will be in a paper format, not recorded digitally, from that long ago. But you could start by asking GP surgery of they have your old paper file, for starters.

Yes @Oblomov24 they will be apart. But the actual
Diagnosis should be coded to the digital record now and show up in a printed summary

@WorriedMumOfThree83 @Oblomov24 I don't live in the area I grew up in anymore. We used to go to sort of drop in/ drop out medical centre if needed. I don't really remember going very much around that time. I didn't have a specific doctor and doubt I ever saw the same one.

Would they still have paper records from 20 years ago?

It's not a university, it's a professional exams board.

@Davros the career guidenace teacher at the school I did my A Levels told me to never mention that to anyone else ever again, I don't remember the convo word for word but she made it out like getting into uni and having a good job would be out of my reach.

I got my 2.1 at uni and did well, so far I have pass most of my professional exams just this final stage has gotten a LOT harder. I have been told that spelling/ grammer doesn't matter in the exam so long as the marker can understand what I mean. Also thankfully the exams are now on a computer so my illegible scrawl doesn't hold me back!

I didn't know that the diagnosis would expire. I might look into being assessed again.

@WorriedMumOfThree83 it wasn't through the GP I was diagnosed either. The school organised the whole thing AFAIK so unless my mum contacted the GP to give them a copy of the reports would they even have one?

Well certainly now if you're diagnosed anywhere with anything they write to your GP and the diagnosis would be added to a list of all the conditions you have. And this list should be able to be printed off for you.

I can't speak for how it worked years back.

You can do an official online test for dyslexia. DH did this to apply for extra time from the Driving theory test. he had to pay around £25 for certification and then he had to send it to them. Can't remember who it is but should be easy to find

Surely your GP and/or hospital will have a record?

I suspect you’d need an up-to-date diagnosis anyway. When I worked in FE, DSA applications for HE had to have evidence from age 16+

It doesn't seem to be there now - it was this - https://doitprofiler.com/personal-profilers/

Look at it from their point of view.

No evidence of diagnosis.
No evidence of help required during state exams.
No evidence of college support provided.
No evidence assistance required for earlier professional exams.

There's 4 ways that you could have proven it but can't. I can see where they are coming from. They have to be fair to everyone and it's on you to provide the evidence.

It might be beat get updated diagnosis, especially if you intend to do further study.

@dyslexi @Davros the career guidenace teacher at the school I did my A Levels told me to never mention that to anyone else ever again, I don't remember the convo word for word but she made it out like getting into uni and having a good job would be out of my reach.
That is appalling. My DNiece had a reader and scribe at one time, I don't know for how long or at what stage, and she did a Masters at UCL with support for her dyslexia. How frustrating for you 😡

Echoing others in that my niece was screened at university and found to be dyslexic - nothing from school prior to this. She got loads of support and got a first!

Ask the additional needs department at your university for an assessment.

The DO-IT profiler is helpful but is not a formal diagnosis of dyslexia. You will need either an Ed Psych, or a Specialist Teacher assessor who has an Assessment Practising Certificate (APC). You can find assessors on the PATOSS website assessor list. This is a professional association and they do not charge a "finder's fee". Patoss Tutor Index (patoss-dyslexia.org)

You can also go via the BDA (British Dyslexia Association) although I understand that there is often an additional £100 finder's fee on top of the assessor's fee.

Many assessors now work online, so location need not be a barrier.

You've clearly done well in spite of your barriers, wishing you all the best for the future.

I am training to be a dyslexia assessor. Your careers guidance teacher gave you terrible advice because universities provide a lot of support for dyslexic students and are not allowed to discriminate.

I think the assessment from when you are 7 is no longer valid as it doesn’t tell us anything about your abilities as a 30 year old graduate. Until recently you needed a post 16 assessment done by someone who holds a current assessment practicing certificate to get any support in higher education. Now assessors are encouraged to consider the longevity of their reports but this really means that someone who was diagnosed at 14 can use the report for university. 7 is the youngest age you can have an assessment.

Speak to your professional body to see what proof they require. Do they need a full assessment or an exam arrangement’s assessment? Do they have any funds to pay for it? If you are at a university you could get it paid for.

the career guidenace teacher at the school I did my A Levels told me to never mention that to anyone else ever again, I don't remember the convo word for word but she made it out like getting into uni and having a good job would be out of my reach.

That was absolutely awful advice from your career guidance teacher. I am quite a bit older then you, went to university and had extra time and a reader in my exams, they where very helpful. I have a copy of my diagnosis your mum should have been sent one (my Dad keeps everything, until he decided I needed to have it). It's a copy of the full report as well, I hadn't read it until my Dad gave it to me as an adult.

I would ask your GP if they have a record as I do know my GP had a record of mine especially as at the time I had some medical tests to rule out other issues like speech and hearing problems.

I got diagnosed at a similar age… I have kept my own report.

No, it's not unreasonable to be annoyed your Mum didn't keep your paperwork. Anything that old won't still be held by your school or education authority. You can get a diagnostic assessment done from around £500. If your professional body will accept a screening you can get a good one for £35 here: https://qsdyslexiatest.com/online-dyslexia-testing-and-self-screening/quickscreen-for-individuals
I'm not sure about the dyslexia screening on the do-it profiler but their neurodiversity screening is expensive and useless.
If you are pregnant are they allowing rest breaks?

Your a grown woman and up set that your mother as not kept stuff for nearly 20 years.
Really?
Is this what some have become is this entitlement.

It could be on your GP records.

@ThirtyThrillionThreeTrees I completely understand where the board are coming from. Because any one could say anything.

I am allowed to take extra breaks due to being pregnant but the exam time doesn't stop. But that is helpful anyway because normally you only get 1 loo break.

@childlessandfree no, but she could have given it to me if she was getting rid of it. Anyway I did say I thought I was BU.

The advice from the career teacher was terrible I can see that now but it did make me try to pretend I didn't have it.

I'll try and see if the screening is enough. They are impossible to contact though. I got the rejection email this morning and I can't actually respond it's a '[email protected] . I contacted their main help centre to ask for a contact and they don't have one you just need to apply again

These is what they list as proof:

• Headed letter signed and dated by your medical practitioner.
• Certificate of registration on your local council’s Register of Blind or Partially Sighted people.
• A psychological or a Diagnostic Assessment Report.

My GP now had nothing to do with the diagnosis but I could maybe ask her when I am in next if there is anything in my records that she'd be able to do a letter from.

Sorry which poster said a diagnosis expire? Says who? How does a diagnosis expire. I've never heard that before.

@Cantonet and @Spirallingdownwards both said you'd need a more up-to-date report. @Spirallingdownwards says unis won't accept a diagnoses from aged 7. Is that really true?

No one has ever said to me that my type 1 diagnosis at aged 1, 50 years ago, had ever expired. How could it expire? And not apply anymore? Really?

My SIL needed a more up to date dyslexia assessment when she started a teaching course in her 30's after having a diagnosis from school. So I think a new one would be a good idea.

I wasn't 7 years old, I was in year 7, I was 12 years old

Have you checked your medical record? A patient summary will be available free from GP. Mine has my dyspraxia diagnosis on it.

I had to dig out my 1997 diagnosis papers recently. It's a bit ridiculous, but thankfully my mother keeps everything.

Diagnosis shouldn't change, but the testing proccess does and my DC have a very specific, detailed, diagnosis document compared to my 3 pages which are rather vague in comparison.