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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to hope that able bodied people will support disabled people against the tory attack on PIP?

331 replies

Blackcats7 · 02/05/2024 10:13

I have just been reading posts from many terrified disabled people on a facebook group I belong to.
People are afraid for their lives after the government's recent announcement to stop huge numbers of people with mental health issues qualifying for PIP anymore.
This attempt to scapegoat disabled people has a long history in the tory party and is popular with their traditional core but the attack on PIP is a new low.
Even those claiming PIP for other reasons think they will be the next target and that the tory aim is to pretty much eradicate any support for us with the half hearted usual disguise of "concentrating help on those who need it most" when they know they can't get away with saying what they actually are doing.
Disabled people have votes too (being housebound I thank goodness for postal votes) and I think this current tactic will have a big influence on how those votes are used but my question is how many able bodied people will take this attack on us into account when it comes to the election?
Should this nightmare come to pass there will be blood on government hands because I have no doubt people will die bearing in mind the targets are people with mental health problems and the tory propaganda that they are removing a right to benefit from those who feel a little bit depressed and anxious about life as most people will at some point or another is utter nonsense. Claiming PIP is extremely hard and requires a very high bar to succeed, especially for mental health. Popping to your gp for some anti depressants would not cut it.
So we need your support.
YABU we aren't that bothered or think the govenment is quite right to stop you scrounging bastards
YANBU this is disgusting ableism and we have your back

OP posts:
IClaudine · 02/05/2024 13:34

I have had enough and have asked MNHQ to step in. This is getting out of control now.

https://www.mumsnet.com/talk/site_stuff/5066800-disability-hate-on-mn

Boomer55 · 02/05/2024 13:35

MistressoftheDarkSide · 02/05/2024 13:29

Because getting people seen, monitored and their issues documented reliably by professionals does not happen.

My disabilities are physical, but I do get seen, medicated and monitored, so I suppose it’s easier for me to have evidence.

Desecratedcoconut · 02/05/2024 13:41

I'd be amazed if mnhq cared about the persistent denigration of the disabled now after the covid years when threads about how disabled people should stay indoors or else go to the back of the NHS queue if they got sick, and that any caution about sending their children to school should be met with the loss of their school place, etc, etc were ten a penny.

Such was the appetite for punishing those with disabilities that it completely reframed my regard for the general public more widely and I have to admit that I am relieved that my disabilities, for now, are typically invisible and I don't have to carry this social stigma day-to-day.

IClaudine · 02/05/2024 13:49

I know what you are saying, dessicated. But still thought I would try!

Megifer · 02/05/2024 13:57

I'd agree partially in that there are far too many people claiming they have mental health issues and getting signed off/medication when it's normal stresses of life that everyone has, but I think that's a different issue.

I can't actively support as I have no intention to vote for any party but I do speak up when people lump in those on PIP (which I know is a bastard to get in the first place) with those who have a number of normal setbacks in life and label that as "mental health issues".

Nearly happened to me recently, an offhand comment about work being stressful to my gp and I was offered a 2 week fit note for work related stress immediately. I'd only mentioned that it was a bit busy!! That's what they should be tackling imo.

Tbh, mental health, depression, anxiety etc .....the meaning of these is completely diluted for me now.

frankentall · 02/05/2024 15:00

there are far too many people claiming they have mental health issues and getting signed off/medication when it's normal stresses of life that everyone has,

How do you know this, have you reviewed every case personally?

jigglywigglyhungryhippo · 02/05/2024 15:01

SublimeLemonHead · 02/05/2024 10:44

I can't vote either YABU or YANBU because the truth is somewhere in the middle.

Do I blindly support ALL people claiming PIP, as it is now? No.

Do I think ALL people claiming PIP are scroungers who need it immediately removed? No.

PIP is a shit show and the current system is unsustainable. It needs urgent review and some kind of means testing on top imo. Which yes, will see some removed from it.

This.

Welovecrumpets · 02/05/2024 15:03

Fireandflames · 02/05/2024 11:02

Why do people think it’s easy to get pip?. It bloody isn’t and the amount of hoops you have to jump through is absolutely ridiculous.

I receive pip for fibromyalgia, anxiety, depression, joint problems, ibs, possible endo and autism/adhd (under assessment). It seems people like me will be pushed in to work despite the fact I can’t stand or sit for too long, I’m a nervous wreck and constantly need the toilet. Employers will not make adjustments for the disabled, they’ll just figure I way around it. That goes for “vouchers” too.

I think it’s basically all the conditions you listed that have transformed the benefit system over the last 10 years. Where it used to be to be used for people with clear and pathological disabilities, now it seems a lot of claims are for conditions which rely on self reporting. This means more cynicism has come in to play.

TigerRag · 02/05/2024 15:07

Welovecrumpets · 02/05/2024 15:03

I think it’s basically all the conditions you listed that have transformed the benefit system over the last 10 years. Where it used to be to be used for people with clear and pathological disabilities, now it seems a lot of claims are for conditions which rely on self reporting. This means more cynicism has come in to play.

How does self reporting work when you need evidence? Even then they'll tell you it's untrue

(Source: letter from consultant plus doctors letter and told there's no medical reason why I can't drive and I don't need hearing therapy)

Welovecrumpets · 02/05/2024 15:10

TigerRag · 02/05/2024 15:07

How does self reporting work when you need evidence? Even then they'll tell you it's untrue

(Source: letter from consultant plus doctors letter and told there's no medical reason why I can't drive and I don't need hearing therapy)

The evidence is self reported. What test is there for fibromyalgia?

Bignanna · 02/05/2024 15:17

peacocksuite · 02/05/2024 12:43

This will be taken by many to be inflammatory but it isn't meant to be.

A long time ago I used to have a job that supported people with disabilities (mainly ASD and learning disabilities) in to work.

From what I have been told this is now impossible as why would a company (eg let's say a supermarket) take someone with a disability and need to make various reasonable adjustments when they can take a young, fit immigrant who will do the job instead?

This is not meant to be disparaging to either immigrants or disabled people, neither of whom this is at fault here.

But disabled people may need reasonable adjustments in work and companies just don't have the incentive to do so anymore as they have 'easier' labour on tap.

If companies had to make reasonable adjustments to fill roles and were incentivised to do so (which they used to be) it would be a lot easier for people to access work.

Having supported some pretty severely disabled people in to work in the past my belief is that most people can do some level of work (not all people and certainly not full time, and they still may need benefits as well). But the system needs to be there to support those people.

I think what annoys working people, including working disabled people, is that some who are receiving disability benefits adamantly state that they can’t do any work of any kind, and are not open to trying. They may not have worked for years, and don’t accept that times have changed and there are more opportunities available, training courses etc. They don’t know that they can’t do anything if they haven’t tried! It causes resentment in people who are very disabled and do work.,

vivainsomnia · 02/05/2024 15:19

The. System. Is. Broken. And. Not. Fit. For. purpose. By. Design
Exactly that. The system is broken. We totally agree. But to say that this poor man died just because he wasn't recieving PIP is disingenuous and won't help the cause.

I’ve got no experience of claiming for mental health, but I would (seriously) imagine that it still requires more than anecdotal evidence
And again...I've never said ONLY anecdotal evidence.

What's the point of writing a post about what someone else wrote if it is to misquote what they've said?

WishIMite · 02/05/2024 15:19

I think PIP should be replaced with an out-of-work benefit, and support for people to work should be increased.

I applied for PIP for mobility issues (but got just under the threshold as my condition is not consistent each day) but I am able to work as long as it is from home, and not full-time. But do I spend money on my disability? Well, yes: mobility aids, taxis, shopping being delivered, private physiotherapy, counselling for my children who are my carers.

However, I don't need PIP because I earn enough working for myself. (I applied because charities relating to my condition had a campaign for more people to apply, as it's one of the government's main measures of how much the condition is affecting people.)

So no, I don't think PIP should be available to people like me, even though I am housebound most of the time.

YouveGotAFastCar · 02/05/2024 15:22

@IClaudine Shouldn't Access to Work cover those costs? They used to cover taxis to the train station for me, as I wasn't allowed to drive due to my disability.

That said, like most people have said, I think the truth is somewhere in the middle but it's evident that any change will be on a very wide level, and that some people will be failed because of that. Any attempt to make criteria tighter will risk ending support for someone who does really need and deserve it, on a great scale.

It is a sad state of society when people vote purely on what effects them personally right now than having any responsibility for the greater good.

But it's naive to think that this hasn't been the case for years and years. Decision making around Covid is a brilliant example; and the fact that research since then has found that people who DID stick to the advised guidelines wouldn't do so again. It's a culmination of societal issues and the climate at the moment, but most people are out for themselves, whether that's through necessity or choice.

Bignanna · 02/05/2024 15:23

I think people resent ,others getting PIP, apparently without difficulty , which is supposed to be hard to get, when they don’t appear to need it

Bignanna · 02/05/2024 15:25

Welovecrumpets · 02/05/2024 15:03

I think it’s basically all the conditions you listed that have transformed the benefit system over the last 10 years. Where it used to be to be used for people with clear and pathological disabilities, now it seems a lot of claims are for conditions which rely on self reporting. This means more cynicism has come in to play.

Completely agree.

vivainsomnia · 02/05/2024 15:26

How does self reporting work when you need evidence? Even then they'll tell you it's untrue
Self reporting works by using the correct jargon, with help now available to that aim.

Help is and should be available for those who indeed struggle to put their experience into words, who are illiterate, whose prospect of writing any such report sends them in panic attacks.

It shouldn't be used to ensure it is written in a way to put the anecdotal account into what would be a medical report.

Megifer · 02/05/2024 15:26

frankentall · 02/05/2024 15:00

there are far too many people claiming they have mental health issues and getting signed off/medication when it's normal stresses of life that everyone has,

How do you know this, have you reviewed every case personally?

Did I say everyone?

MistressoftheDarkSide · 02/05/2024 15:26

Megifer · 02/05/2024 13:57

I'd agree partially in that there are far too many people claiming they have mental health issues and getting signed off/medication when it's normal stresses of life that everyone has, but I think that's a different issue.

I can't actively support as I have no intention to vote for any party but I do speak up when people lump in those on PIP (which I know is a bastard to get in the first place) with those who have a number of normal setbacks in life and label that as "mental health issues".

Nearly happened to me recently, an offhand comment about work being stressful to my gp and I was offered a 2 week fit note for work related stress immediately. I'd only mentioned that it was a bit busy!! That's what they should be tackling imo.

Tbh, mental health, depression, anxiety etc .....the meaning of these is completely diluted for me now.

Please define normal every day stresses of life. Because currently I'm dealing with fallout from two bereavements, fighting homelessness and have lost my business and I'm currently supporting my elderly Dad who is staying with me due to fleeing DV from my elderly SM which is in no small part due to failings in the NHS. Those sorts of normal every day stresses? Because these are the things that can undermine mental health severely, I'm finding.

I've just spent two hours with my Dad on hold to Pension Credit before the call dropped out. He needs to report his change if circumstances (10days so far and no resolution in sight). Failure to report changes in circumstances is a bad thing. The office hours are 8am to 3pm week days. The claim is joint and in her name, her current mental state means she can't be relied upon to give him his half by cheque because he has been advised not to return to the property until they have stabilised her. Which renders him technically homeless as I can't house him when I hopefully move into a tiny flat in a few weeks time if the council pulls it finger out to support the move. Tough luck eh?

Now if it's this difficult to do something like this how difficult is it for all benefit recipients to keep up their commitments and complete admin tasks mandated by law? It's a massive shitshow and my patience is wearing thin.

GerminateMyParsnips · 02/05/2024 15:28

I don't trust this lot not to come up with the voucher scheme and then have a load of family and 'mates' that quickly get into the voucher supply business so they can sweep up lucrative government contracts and make a killing, providing a substandard service for money they get for a contract that was never properly tendered to start with. Like PPE.

That aside, I actually don't think this is a genuine Tory policy anyway. I think it is a trap for Labour - because it leaves them in a bit of a 'damned (by some) if you, damned (by others) if you don't scenario when they get into government later this year.

Plus, the only card the Torys have to play now is a culture war card. Hence the uplift in news about immigration, sick note culture and now this.

It's not like they can point to a stellar 14 year record of achievements, not like they can point to exemplary standards of behaviour, not like they can point to their excellent selection of party leadership, not like they can refer to their prudent control of public finances, or even to the great success they've made of Brexit. What actually could they come out with to win an election that doesn't leave them open to the accusation that the probelm they are trying to fix is either

a) a new one, suggesting it started on their watch
or
b) an old one that they haven't been arsed to fix in 14 years

Nothing. So all they can do is try to convince people that the reason they are all struggled for a quality of life is because the family next door is their enemy.

Flapearedknave · 02/05/2024 15:29

MistressoftheDarkSide · 02/05/2024 11:49

There are three or four threads running on this subject at the moment. Posters with debilitating physical and mental conditions beside themselves with fear at the possibility of being thrust into penury and other posters nitpicking their experiences and banging on about the unsustainable costs of supporting them.

Numbers of actual claims for PIP have gone down since the last benefits revision. Data has been found to corroborate that. The amount if money being spent has gone up because the costs of living and support (such as is available) have risen because of "the economy" which is focused solely on profiteering and funnelling those profits into the hands of the entitled few at the top of the capitalist pyramid scheme.

It's no coincidence that since Covid the biggest transfer of wealth from those at the bottom of the pyramid to those at the top in decades has occurred. The number of billionaires in the UK has tripled. Disaster capitalism is a thing and we currently have no end of global disasters affecting everything economic.

Weeding out the "lead swingers" and "grifters" from the small number of people who have managed to navigate the process of getting PIp, which is a non means tested benefit that helps people work around their challenges is a smoke and mirrors diversion aimed at dividing the populous and getting people at each others throats because a larger and larger number of people cannot manage financially and the job market is precarious at best especially at the lower end of the socio-economic scale.

Yes, I hope able bodied/minded people will see this debacle for what it is because it takes one moment, one unfortunate event, or a series to tip a person from the former group into needing support and services which are being decimated while MPs claim expenses for breakfasts that cost the same as some people's entire food budget for a family for a week.

Reposting this in the hope that people read.

Thank you for this post.

Beezknees · 02/05/2024 15:31

Flapearedknave · 02/05/2024 15:29

Reposting this in the hope that people read.

Thank you for this post.

Don't worry, those of us with common sense understand. I'm an able bodied person with a full time job and this is something that I am happy to pay for via my tax.

vivainsomnia · 02/05/2024 15:32

Numbers of actual claims for PIP have gone down since the last benefits revision. Data has been found to corroborate that
NO IT HAS NOT!

MistressoftheDarkSide · 02/05/2024 15:33

vivainsomnia · 02/05/2024 15:32

Numbers of actual claims for PIP have gone down since the last benefits revision. Data has been found to corroborate that
NO IT HAS NOT!

YES IT HAS.

Overthebow · 02/05/2024 15:34

I support Pip getting an overhaul, it’s not fit for purpose and we cant afford to pay for everything for everyone. The limited money we have needs to be targeted at those who genuinely can’t work even part time, and enable them to have a decent standard of living, and not giving money to those who could work and help them in to work instead for example widening the access to work scheme.