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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To have found my first mammogram really upsetting?

711 replies

YompingJo · 28/04/2024 07:11

Got a letter through with very basic details if an appointment. Turned up and found the whole thing demeaning. Tiny room, intimidating machine taking up most of it. The radiologist was monosyllabic and bossy and manhandled me into the right position including grabbing each breast and shoving it into position, pushing other bits of my body out of the way, not once asking first. I know it's a necessary procedure, but a bit of sensitivity would have gone a long way, and having the respect to ask for consent before grabbing a breast is a basic consideration. I'm autistic and needed to know much more what to expect beforehand. The letter gave a way to request assistance in the case of SEN, but I don't consider myself to have SEN and didn't know what I'd need until I was right there, so that wasn't any help. There was a QR code for feedback, which I gave but I just feel... invaded and demeaned. AIBU?

OP posts:
greengreyblue · 30/04/2024 19:29

@JenniferBooth its really ok. I’ve had two. One was routine- no pain. The other was with a lump which was a cyst and that breast was slightly painful when in the machine but it’s seconds. Really wouldn’t put me off. However i don’t have SEN. If you have then flag it up!! That’s why they ask!

Rosscameasdoody · 30/04/2024 19:39

Politygal · 30/04/2024 13:47

Agree jumpingthruhoops. And being told that you have cancer (if you do) is usually two weeks after the biopsy, not at the biopsy as far as I am aware. Also, lumps and bumps can be one of many things, and only 20% of biopsies show cancer. So the chances are you will be fine.

1 in 7 women are likely to develop breast cancer though, so that means we must take care of ourselves.

https://breastcancernow.org/about-us/why-we-do-it/breast-cancer-facts-and-statistics/

I went for a mammogram at the end of march and was called back within a few days. I had a 3D scan, an ultrasound and a biopsy, all in that same appointment and at the end of it was given a diagnosis of breast cancer. I was advised by the consultant radiographer who arranged the call back that I had been recalled because it was obvious from the initial scan that l had a malignant tumour and the follow up tests and biopsies were to confirm her diagnosis and identify the type, size and stage of the cancer. She was right on all counts.

BigAnne · 30/04/2024 19:46

Jumpingthruhoops · 30/04/2024 18:12

Is that your only takeaway from that entire post?

I absolutely hate this term! It's just become a stick with which to beat people daring to exercise bodily autonomy.

So what if she is one?
So what if she doesn't want her breasts clamped between two metal plates?
So what if she doesn't want a plastic speculum inserted into her vagina?
So what if she doesn't want something injected into her?
What the hell has what she does - or not -with her own body got to do with you or anybody else!?

Exactly, she doesn't have to. Let's hope she's made the right decision for herself and her family.

Rosscameasdoody · 30/04/2024 19:47

Unleashthehordes · 30/04/2024 13:06

To clarify OP, I wasn’t asking you to explain because I didn’t believe you, it just struck me as “off” that you were expected to walk around topless. Where I am, I’m always given a gown/top so it struck me as strange that you weren’t.

I’d be interested to know from others if the provision of a hospital type gown is usual or not. It’s never occurred to me one wouldn’t be provided and given it’s your first, you wouldn’t know it was routine to get one.

BUT I’m very surprised that no one else has pointed out you didn’t get a modesty gown, so now I’m wondering whether a gown is usual or unusual for this procedure within the NHS.

If it is usual, and you weren’t provided one, then this should be added to your complaint (if you decide to complain). It demonstrates a particular lack of care or interest in preserving your dignity.

In didn’t have a gown. Undressed in a cubicle leading straight into the exam room and went in topless. Two radiographers, minimal conversation and a quiet professional attitude towards handling said body parts and adjusting positioning. No complaints whatsoever, just glad that their skill in what they do found a type of breast cancer which is notoriously difficult to identify using mammogram.

Rosscameasdoody · 30/04/2024 19:51

Jumpingthruhoops · 30/04/2024 00:28

Firstly, telling someone to 'stop being a baby' is not OK. Also:

The discomfort and vulnerability you feel at the mammogram pales into comparison when you’re called back for biopsy and find yourself sitting across the room from someone telling you that you have cancer.

You're assuming they ARE going to be told they have cancer? When there's every chance (fingers crossed!), they might not.

Regardless, women ARE allowed to feel uncomfortable about a procedure involving an intimate part of their body.

That so many posters seem unable to grasp this, is frankly mind-blowing.

I wrote the quote you highlighted and it was based on my own experience of being told l had breast cancer after a mammogram. What’s mind blowing is how you could misinterpret that.

Politygal · 30/04/2024 20:14

To Rosscameasdoody - I'm glad you were dealt with so quickly and presumably underwent treatment quickly. Was this on the NHS too? My treatment was private and within 2 weeks, so not as good as that even. I hope all is well with you now, and have recovered.

Ineffable23 · 30/04/2024 20:21

Rosscameasdoody · 30/04/2024 19:20

Informed consent isn’t specifically required for mammograms. Leaflets explaining the procedures in detail are sent with appointments. Why would you turn up for an appointment for an examination of a specific part of your body and then be surprised when that examination involves handling the part of the body involved ?

Sorry to be dense, but what do you mean by this?

I'm pretty sure informed consent is required for literally every medical procedure. From vaccines to operations to smear tests to mammograms to breast examinations to any other procedure.

What would make you think you don't need informed consent?

For example this NHS web page says every examination, procedure etc needs appropriate consent and that for consent to be appropriate it must be informed:

https://www.nhs.uk/conditions/consent-to-treatment/

nhs.uk

Consent to treatment

Find out what consent is, how it can be given, when it's needed, as well as situations when it's not needed.

https://www.nhs.uk/conditions/consent-to-treatment

Unleashthehordes · 30/04/2024 20:29

Rosscameasdoody · 30/04/2024 19:47

In didn’t have a gown. Undressed in a cubicle leading straight into the exam room and went in topless. Two radiographers, minimal conversation and a quiet professional attitude towards handling said body parts and adjusting positioning. No complaints whatsoever, just glad that their skill in what they do found a type of breast cancer which is notoriously difficult to identify using mammogram.

@Rosscameasdoody I’m genuinely pleased for you that you don’t have any complaints whatsoever surrounding your screening/diagnosis and the attitudes of those caring for you was quietly professional. It’s nice to know we aren’t chasing unicorns in terms of respectful care.

@ everyone else who replied about the gowns. I’m gobsmacked they aren’t provided As routine. Even as a veteran, I’m still learning about this process.

Chin up @YompingJo I hope you’re finding this helpful.

EBearhug · 30/04/2024 20:37

Mine was in a portable lorry thing, and I had to walk about 3 steps from where I took my top off to the machine - a gown would have been overkill there. Obviously in other locations, it might be a totally different arrangement.

Jumpingthruhoops · 30/04/2024 21:07

goldenretrievermum5 · 30/04/2024 18:30

If OP didn’t want her breasts clamped between two metal plates then why on earth would she go for a mammogram? The radiographers don’t have X-ray vision for goodness sake, anyone could take a good guess at what the procedure requires

For the umpteenth time:

OP KNEW her breasts would be touched to some degree.
OP simply didn't LIKE the way she was touched/handled by the mammographer.

Why is that so hard for people to understand?

Jumpingthruhoops · 30/04/2024 21:09

BigAnne · 30/04/2024 19:46

Exactly, she doesn't have to. Let's hope she's made the right decision for herself and her family.

Well, yes. Presumably, she has. Since she knows herself and her family better than some random on the internet...

Jumpingthruhoops · 30/04/2024 21:19

Rosscameasdoody · 30/04/2024 19:51

I wrote the quote you highlighted and it was based on my own experience of being told l had breast cancer after a mammogram. What’s mind blowing is how you could misinterpret that.

Not misinterpreted at all. I understand totally what you're saying and sorry for your experience.

I also understand what OP is saying and empathise with that. As I'd assume someone who knows how vital mammograms are would, too.

Both feelings are valid - this isn't medical Top Trumps!

CameltoeParkerBowles · 30/04/2024 21:24

YompingJo · 28/04/2024 07:11

Got a letter through with very basic details if an appointment. Turned up and found the whole thing demeaning. Tiny room, intimidating machine taking up most of it. The radiologist was monosyllabic and bossy and manhandled me into the right position including grabbing each breast and shoving it into position, pushing other bits of my body out of the way, not once asking first. I know it's a necessary procedure, but a bit of sensitivity would have gone a long way, and having the respect to ask for consent before grabbing a breast is a basic consideration. I'm autistic and needed to know much more what to expect beforehand. The letter gave a way to request assistance in the case of SEN, but I don't consider myself to have SEN and didn't know what I'd need until I was right there, so that wasn't any help. There was a QR code for feedback, which I gave but I just feel... invaded and demeaned. AIBU?

I had the same experience. The nurse was a horrible cow, pushing, grabbing and prodding me about without asking or giving any warning. Mind you, I also had a breast ultrasound about 10 years ago, and the sonographer was so unutterably rude I told her to fuck herself and walked out. Eventually, another one was found to continue the appointment, and she was lovely.

goldenretrievermum5 · 30/04/2024 21:37

CameltoeParkerBowles · 30/04/2024 21:24

I had the same experience. The nurse was a horrible cow, pushing, grabbing and prodding me about without asking or giving any warning. Mind you, I also had a breast ultrasound about 10 years ago, and the sonographer was so unutterably rude I told her to fuck herself and walked out. Eventually, another one was found to continue the appointment, and she was lovely.

What an absolute delight you are! By the sound of your behaviour the sonographer was simply reciprocating the attitude that you gave her. Very classy - not.

BurnoutGP · 30/04/2024 21:40

This country has actually gone completely mad. The degree of entitlement and complaining is frankly ridiculous. We are so privileged in this country and some bloody ungrateful. And so quick to moan and complain and take offence.

XenoBitch · 30/04/2024 21:46

goldenretrievermum5 · 30/04/2024 21:37

What an absolute delight you are! By the sound of your behaviour the sonographer was simply reciprocating the attitude that you gave her. Very classy - not.

When someone is stripped off with boobs exposed, they are feeling vulnerable.
If the HCP is not doing their job properly ( as in basic human kindness and explaining everything), then @CameltoeParkerBowles was well within her rights to walk out, and I hope she complained.

BigAnne · 30/04/2024 22:19

XenoBitch · 30/04/2024 21:46

When someone is stripped off with boobs exposed, they are feeling vulnerable.
If the HCP is not doing their job properly ( as in basic human kindness and explaining everything), then @CameltoeParkerBowles was well within her rights to walk out, and I hope she complained.

Vulnerable to what? She's not standing in the middle of a shopping centre.

Deludamol · 30/04/2024 22:20

CameltoeParkerBowles · 30/04/2024 21:24

I had the same experience. The nurse was a horrible cow, pushing, grabbing and prodding me about without asking or giving any warning. Mind you, I also had a breast ultrasound about 10 years ago, and the sonographer was so unutterably rude I told her to fuck herself and walked out. Eventually, another one was found to continue the appointment, and she was lovely.

Well done for standing up for yourself!

XenoBitch · 30/04/2024 22:23

BigAnne · 30/04/2024 22:19

Vulnerable to what? She's not standing in the middle of a shopping centre.

Are you for real?
Do you regularly flash your boobs at people?
For the vast majority of women, they only expose their boobs to their partner. So to get them out for someone else makes them feel exposed and vulnerable. Breasts are an intimate part of the female body.

TriesNotToBeCynical · 30/04/2024 22:28

JenniferBooth · 30/04/2024 19:23

I havent had my first one yet but these are the things putting me off.
a. foot pedal
b. squashed like a car at a scrapyard.
c. some of the attitudes from some of the health workers on here.

My impression is that all the health workers who have contributed have sympathised with the OP, and said that courtesy, explanation, consent and kindness is compulsory. It is some of her fellow customers who seem to think the NHS should be run like a cattle market.

NotEnoughRoom · 30/04/2024 22:52

Op there are some bloody horrible responses on this thread.

I am ND, as is my DH and my DD, and I don’t actually see this as a SEN issue or not - just a basic human issue! No-one should need to request an adjustment to be spoken to politely!

regardless of how much research you may or may not have done into the process, etc. the way in which you describe being spoken would not have been covered! And I don’t blame you for questioning whether that was usual.

Yes, mammograms can be very painful for some women, and yes, your boobs are out, and need to be manipulated to get the best possible image - no one needs to be a twat about it though, and it wouldn’t have taken that much longer to say “I need you to do x” or “just turning you round/tucking this in/moving that there” etc. they are basic courtesies and should be part of how they speak to any patient.

In fact, if anything if there are videos etc online the people in them are probably going out of their way to make the process as respectful as possible. Because it’s so important for these screenings to take place, they wouldn’t want to put people off!

its one thing to go in with a limited expectation/understanding and question whether what happened to you was “usual”, but if you’d done load of research and were expecting a lovely, kind radiographer who was a gentle as possible etc, and then got what you got - I think that would have been even worse, if you see what I mean.

im glad you have given feedback. Maybe that person was having a difficult day/it was out of character, but if not, then I hope they are given your feedback and encourage to change their approach.

neilyoungismyhero · 30/04/2024 22:59

I've had many and had one a couple of days ago. Each time she positioned my breast she asked if it was okay likewise the rest of my body positioning. It doesn't sound like your medical person had much of a bedside manner and was insensitive. Sorry this happened to you. Please Don let it put you off next time. It's a necessary procedure.

babyelephantwalk · 01/05/2024 00:42

goldenretrievermum5 · 30/04/2024 15:46

You went for a mammogram as it said on the appointment letter and so you had a mammogram - kindly, what else did you expect? The letter didn’t hide anything. If you felt the need to research things further in order to see exactly what was going to happen at the appointment then you should’ve done so beforehand

She went for her very first mammogram. I have had more than 10 and would have been left stunned by that treatment.

How could she know what to expect? She'd never had a mammogram, and so she doesn't know there can be different levels of deftness, kindness, and care from the radiographer. As with smears, there is a degree of unpleasantness and pain that is not related to the procedure itself, but to operator error - or in this instance a distinct lack of care emanating from the operator.

At my last mammogram, the radiographer was so warm and friendly and kind, and as she repositioned my flesh said why she was doing it. If that was a first mammo, it would have been ideal for the OP.

Engaea · 01/05/2024 01:35

@daisychain01 misandry is not a real thing, HTH.

OP, no you don't have to be grateful and accept any kind or rude treatment in exchange for the privilege of a mammogram, as has been suggested. We can acknowledge our healthcare privilege without requesting women accept bad care in silence.

Engaea · 01/05/2024 01:39

@BigAnne hard of thinking?