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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be frightened about the Government’s plans for benefits reform?

1000 replies

PilgorTheGoat · 21/04/2024 11:39

I am one of the millions of people currently on long term sickness benefits. I receive the LCWRA element of UC and PIP due to poor mental health and autism. I have severe anxiety and depression and I am awaiting an appointment to see if I also have PTSD due to sexual abuse in my childhood.

I have tried every element of support offered to me. I’m maxed out on 2 different types of antidepressants. I have had back-to-back (excluding the 6 month wait in between) 12 week sessions of counselling offered via the NHS. I am on a waiting list for intensive CBT due to my possible PTSD. I am currently having twice weekly private, video counselling appointments.

I can’t leave my house alone due to panic attacks. I struggle to meet my own care needs and my husband has to do a lot of the work for us both (although he works full time). I have a very understanding friend whom I force myself to go for a short walk with twice a week in order to stop myself becoming completely imprisoned at home but I find this very distressing and we have to take the same route each time.

I am so, so scared about the government’s plans to end sickness benefits for people like me. We don’t have a load of spare cash, we’re just about getting by. There is no support available. I’ve taken everything offered and my husband has been very proactive in seeking out other services for me to be involved with. I’d love to be better, I’d love not to live in fear but there is no help.

OP posts:
Thread gallery
11
ilovesooty · 24/04/2024 23:38

BIossomtoes · 24/04/2024 23:30

For the love of God will you two please, please give over. This is turning into wholesale goadiness now. Just stop.

Agreed. It's disgusting. These people who claim to be making helpful suggestions need to be thankful they're not experiencing that level of distress and should step away.

Universalsnail · 24/04/2024 23:38

ThisOldThang · 24/04/2024 22:33

I'm not sure those comments were aimed at the OP.

I've read the whole thread and there seems to be a suggestion that any type of assessment of somebody's fitness to work is inherently cruel. I think it is an essential part of the system.

I think it is unreasonable for people to consider themselves entitled to a lifetime of financial support without any safeguards/checks to see if they still require/qualify for assistance.

You've said yourself that you'd probably like to work, but you're scared of admitting it because you might lose your benefits.

Would it be genuinely unreasonable for you to be assessed as fit for work? Just because you might find it hard to find work due to your 15 year employment gap and criminal record, it doesn't mean you have the right to just opt out of ever working again.

How many people are there with ongoing claims who are in a basic, but comfortable life, who are simply afraid of change? Why shouldn't they be assessed as fit to work?

Edited

It isn't assessing someone's health for benefits that is cruel, it is the way the assessments are currently done that are cruel. The assessors manipulate and out right lie and the system is set up to make as many people give up trying to claim. The whole process made me more unwell. That is what is cruel. Not the concept of an assessment. Nothing wrong with assessing someone's health, there is something wrong with lieing about them in an official report though.

ilovesooty · 24/04/2024 23:40

Universalsnail · 24/04/2024 23:35

You are not alone.

I wouldn't be getting a "job I can manage" if someone halved my benefits because I would be so stressed financially I would be in crisis and not even able to look for an adequate job, and then I would fatigue crash because my fatigue condition always flares in times of stress.

You, @XenoBitch and the OP don't have to justify yourself to people who are ignorant enough to think you'd be well if you tried a bit harder.

GoodnightAdeline · 24/04/2024 23:43

Universalsnail · 24/04/2024 23:38

It isn't assessing someone's health for benefits that is cruel, it is the way the assessments are currently done that are cruel. The assessors manipulate and out right lie and the system is set up to make as many people give up trying to claim. The whole process made me more unwell. That is what is cruel. Not the concept of an assessment. Nothing wrong with assessing someone's health, there is something wrong with lieing about them in an official report though.

What did they outright lie about? I’m curious to know if you wouldn’t mind sharing

XenoBitch · 24/04/2024 23:48

ThisOldThang · 24/04/2024 23:03

Just the threat of poverty like some sort of sick incentive.

That's life, I'm afraid. If I couldn't find work, our house would be repossessed. Very few people are rich enough to never work again.

If I was found fit for work, my benefits would be halved to the point I would not be able to pay bills or feed myself.

Again, that's just the reality of unemployment benefits. If you could live comfortably on them without working, why would anybody bother doing low paid work?

I would end up spiralling to the point I would be found unfit for work again.

Or you might surprise yourself and get a job that you can manage.

The truth is, I would be taking my life long before then

That would be a very silly thing to do.

I guess that would save the taxpayer a tiny bit of money in the long run. I wont be alone feeling like that.

Probably millions when you factor in healthcare and retirement costs, but please don't consider that to be an endorsement of the idea. If the government can get you back into employment, it would also save a large amount of money, so I can see why they'd want to try.

I did low paid work. When I worked, that was all I could get. I am used to living on fuck all.

Like I have said I have not worked for 14 years. I have a huge gap on my CV that can only be explained away by me being too fucking bonkers. Who is going to employ me? My own MUM wont employ me, and has has to sack me from the family business.

XenoBitch · 24/04/2024 23:49

GoodnightAdeline · 24/04/2024 23:20

Can you not support yourself? You’re very eloquent, lucid, you write well, you have good critical thinking skills. Are you not able to think outside the box? What about a small business which you can pick up and put down such as a coffee van? A lady near me does this, she has a small child so will work around that and can just sack it off for the day if her child is unwell for example.

Did you try the Facebook idea? Again, a few people have done that here, and were met with a lot of replies.

At the risk of being told I’m overstepping it feels a little like you’ve written yourself off, when I think you have plenty of room for optimism.

A coffee van? Are you for real?

XenoBitch · 24/04/2024 23:52

ThisOldThang · 24/04/2024 23:32

There are millions claiming tens of thousands a year, plus their healthcare, policing, infrastructure, etc.

There is only a finite amount of money. Overall taxes are at their highest since the Second World War and the government still doesn't have enough cash.

The government has a duty to try and get people back into work and I, personally, think it would really help a lot of them to be in work.

My UC claim is about £9k a year. That is all I get.
So I am not costing the tens of thousands per year. My fault for being a single middle aged women with no kids. Oops, I forgot to reproduce.

Thelnebriati · 25/04/2024 00:01

The problem with most if the unhelpful suggestions is not just that they come from a place of ignorance but that they rely on punitive measures, which don't work. Because disabled people are not choosing to be in that situation. Its not a lifestyle choice.

There used to be schemes to help disabled people back into work but voters decided they wanted more stick and less carrot instead.

You could insist that large employers have some fixed hour and pay contracts and make them available to single parents, the disabled, and carers. If you run a business you could even do that yourself.
It wouldn't cost you anything. Why don't you all do that?

Universalsnail · 25/04/2024 00:05

GoodnightAdeline · 24/04/2024 23:43

What did they outright lie about? I’m curious to know if you wouldn’t mind sharing

They said I had no history of anxiety. They literally had doctors reports showing I have been under psychiatric care since my early teens and generalised anxiety disorder is frequently listed on my diagnosis.

They said I said I could prepare and cook healthy cooked dinners and that I did so several nights a week. I said that I used to be able to do that but since getting unwell no longer could. I had told them I used to be able to because they asked me directly if I used to be able to when I said I couldn't do it. They asked me if I used to be able to do it.

They said I was laughing during the assessment (was COVID times so was over phone) and seemed bright and cheerful. I actually cried through out of the assessment and had to keep stopping the assessment because I said I couldn't breathe with anxiety and needed a few mins.

They said I walked the dog. I didn't say that. They asked if I had pets. I said we owned a dog and that my partner walked it.

Also not a lie as such but demonstrated a lack of knowledge. They said that I "claimed to have auditory processing delay however this can't be true as I have no hearing loss" auditory processing is not the same as hearing.

There were some other lies but I can't remember off the top of my head now. The report was upsetting to read and didn't reflect my health at all. At the time I applied I was bed bound 90% of the time with long Covid and under crisis intervention. I scored 0 in all areas. When we went to appeal it was over turned before appeal. Luckily I had insisted that the assessment be recorded. They were able to listen to the recording and I had the whole thing over turned without needing to go to court because they agreed there were lots of things in the report that could be proven to be false with the recording.

XenoBitch · 25/04/2024 00:06

Universalsnail · 24/04/2024 23:35

You are not alone.

I wouldn't be getting a "job I can manage" if someone halved my benefits because I would be so stressed financially I would be in crisis and not even able to look for an adequate job, and then I would fatigue crash because my fatigue condition always flares in times of stress.

Yep, so many people on this thread just not getting it.
Probably have no experience in claiming any benefit whatsoever... so really concerned about where their tax money is going.

XenoBitch · 25/04/2024 00:11

BTW, my UC WCA assessment form was filled in my by CPN. Both times. I don't have much of idea of what was actually in it.

ThisOldThang · 25/04/2024 06:24

JenniferBooth · 24/04/2024 23:34

@ThisOldThang so you are against disabled people getting healthcare now Your mask has well and truly slipped Eugenics much! You are fucking shit scared that your taxes are going to go up to tackle the NHS waiting lists.

When you say such ridiculous things to try and discredit people and shut them up, it just makes me (and probably others) think that you're hiding something.

Is that your intention?

GoodnightAdeline · 25/04/2024 06:31

XenoBitch · 24/04/2024 23:49

A coffee van? Are you for real?

Yes. Why wouldn’t I be?

ThisOldThang · 25/04/2024 06:35

Universalsnail · 25/04/2024 00:05

They said I had no history of anxiety. They literally had doctors reports showing I have been under psychiatric care since my early teens and generalised anxiety disorder is frequently listed on my diagnosis.

They said I said I could prepare and cook healthy cooked dinners and that I did so several nights a week. I said that I used to be able to do that but since getting unwell no longer could. I had told them I used to be able to because they asked me directly if I used to be able to when I said I couldn't do it. They asked me if I used to be able to do it.

They said I was laughing during the assessment (was COVID times so was over phone) and seemed bright and cheerful. I actually cried through out of the assessment and had to keep stopping the assessment because I said I couldn't breathe with anxiety and needed a few mins.

They said I walked the dog. I didn't say that. They asked if I had pets. I said we owned a dog and that my partner walked it.

Also not a lie as such but demonstrated a lack of knowledge. They said that I "claimed to have auditory processing delay however this can't be true as I have no hearing loss" auditory processing is not the same as hearing.

There were some other lies but I can't remember off the top of my head now. The report was upsetting to read and didn't reflect my health at all. At the time I applied I was bed bound 90% of the time with long Covid and under crisis intervention. I scored 0 in all areas. When we went to appeal it was over turned before appeal. Luckily I had insisted that the assessment be recorded. They were able to listen to the recording and I had the whole thing over turned without needing to go to court because they agreed there were lots of things in the report that could be proven to be false with the recording.

Edited

If what you've said is accurate, I i hope that the people that lied were held accountable. It's clearly unacceptable to have lied.

It does, however, highlight a problem facing the government - i.e. claims are based upon people self-reporting their limitations. If people lie about what they can or can't do, how can those lies be detected?

Given the explosion in the number of people claiming, I think it's natural for the wider public to be somewhat concerned/skeptical that a proportion of people are exaggerating/lying to make a successful claim. When there are websites coaching people on what they need to say to make a successful claim, such as the ADHD website that I linked to previously, it just heightens suspicions that something isn't right.

Ohgollymolly · 25/04/2024 06:38

Why are we now blaming NHS waiting lists? Oh this post is hilarious! Yes the NHS isn’t perfect, but my recent experience is that they see you on a clinical need basis. If you’re waiting it’s because you are able.

Maybe private healthcare wouldn’t be a bad thing, if everyone paid in to the system based on how much they used, I reckon there would be a lot less people too sick to work!

Heartoverhead1 · 25/04/2024 07:23

Ohgollymolly · 25/04/2024 06:38

Why are we now blaming NHS waiting lists? Oh this post is hilarious! Yes the NHS isn’t perfect, but my recent experience is that they see you on a clinical need basis. If you’re waiting it’s because you are able.

Maybe private healthcare wouldn’t be a bad thing, if everyone paid in to the system based on how much they used, I reckon there would be a lot less people too sick to work!

It's alright everyone, based on this one poster's experience, the NHS is fine and everyone's moaning about nothing.

TigerRag · 25/04/2024 07:47

" not a lie as such but demonstrated a lack of knowledge. They said that I "claimed to have auditory processing delay however this can't be true as I have no hearing loss" auditory processing is not the same as hearing."

They said the same at my pip assessment. They also said I don't need to see a hearing therapist. Did they really think the NHS would refer for something that's not needed? But she had to ask what one of my diagnoses related to my hearing was.

Rosscameasdoody · 25/04/2024 08:44

Ohgollymolly · 25/04/2024 06:38

Why are we now blaming NHS waiting lists? Oh this post is hilarious! Yes the NHS isn’t perfect, but my recent experience is that they see you on a clinical need basis. If you’re waiting it’s because you are able.

Maybe private healthcare wouldn’t be a bad thing, if everyone paid in to the system based on how much they used, I reckon there would be a lot less people too sick to work!

I’ve just been diagnosed with breast cancer and have had the clinic appointment with the surgeon to discuss treatment cancelled twice. I’m now waiting to see if another consultant can take my case as the original surgeon to whom I was assigned has gone off on long term sick. Do you think I’m able to wait ? Would you like to be in the position of knowing you have cancer and having to wait until the NHS can provide you with a suitable doctor - not knowing how long that will be ? No ? Didn’t think so.

Of course the NHS waiting lists feed into how many people are claiming sickness benefits. Even simple conditions can affect your ability to work. My late husband lost his job in IT because he was waiting too long between cataract operations. He would no sooner receive an appointment than it would be cancelled. That went on for over six months and in the end his sight deteriorated so much that he couldn’t do his job. Unless you’ve been there and experienced it maybe think before you post.

KittyCollar · 25/04/2024 08:47

@Universalsnail You don’t have to justify yourself to a goady nobody who, let’s face it, probably has no real interest in the social security system other than to use it to beat down those less fortunate. Your health problems are none of her business. That’s between you and your health care professionals. She doesn’t have the intelligence to distinguish between genuine need for help and benefit fraud. She’s enjoying you explaining your situation and your discomfort and no doubt she gets her ridiculous soundbites from The Daily Mail or The Sun.

KittyCollar · 25/04/2024 08:53

The reason the NHS is up the shit is because this Tory government hasn’t invested fuck all in it. Why would they? Their ultimate goal is to privatise. Where is the £350m a week that was promised after we left the European Union? If corporations paid the correct tax we wouldn’t be in this mess. Do you think little Rishi’s wife pays tax on her billions? Course not because although she lives here her company is listed as non domiciliary for tax avoidance purposes. All wrong but let’s all pick on the most vulnerable in society

GoodnightAdeline · 25/04/2024 08:55

If their goal was to privatise don’t you think they’ve left it until the very last minute after 15+ years of being in power…?

GoodnightAdeline · 25/04/2024 08:56

KittyCollar · 25/04/2024 08:53

The reason the NHS is up the shit is because this Tory government hasn’t invested fuck all in it. Why would they? Their ultimate goal is to privatise. Where is the £350m a week that was promised after we left the European Union? If corporations paid the correct tax we wouldn’t be in this mess. Do you think little Rishi’s wife pays tax on her billions? Course not because although she lives here her company is listed as non domiciliary for tax avoidance purposes. All wrong but let’s all pick on the most vulnerable in society

Ending non dom status would raise 3 billion in tax.

The annual NHS budget is 163 billion

It would barely make a dent.

KittyCollar · 25/04/2024 08:56

Ohgollymolly · 25/04/2024 06:38

Why are we now blaming NHS waiting lists? Oh this post is hilarious! Yes the NHS isn’t perfect, but my recent experience is that they see you on a clinical need basis. If you’re waiting it’s because you are able.

Maybe private healthcare wouldn’t be a bad thing, if everyone paid in to the system based on how much they used, I reckon there would be a lot less people too sick to work!

And lots would simply suffer and die because they couldn’t afford to access it. The lack of NHS dentists is causing people to attempt to remove painful teeth themselves.

BIossomtoes · 25/04/2024 08:59

GoodnightAdeline · 25/04/2024 08:55

If their goal was to privatise don’t you think they’ve left it until the very last minute after 15+ years of being in power…?

They’ve been privatising it by stealth since 2013. Look at the compulsion to open services to competitive tendering the Lansley bill introduced. The cost of tendering is so high the NHS can’t afford the time or money to go through the process. Branson is currently running big chunks of healthcare under the NHS logo.

GoodnightAdeline · 25/04/2024 09:01

BIossomtoes · 25/04/2024 08:59

They’ve been privatising it by stealth since 2013. Look at the compulsion to open services to competitive tendering the Lansley bill introduced. The cost of tendering is so high the NHS can’t afford the time or money to go through the process. Branson is currently running big chunks of healthcare under the NHS logo.

Edited

We can’t nationalise everything. The NHS is now so enormous and serves so many more functions than when it began that we can’t source everything for it via nationalised services. Either we pare it down and keep it purely taxpayer funded or we keep expanding in which case adaptation is necessary

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