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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be frightened about the Government’s plans for benefits reform?

1000 replies

PilgorTheGoat · 21/04/2024 11:39

I am one of the millions of people currently on long term sickness benefits. I receive the LCWRA element of UC and PIP due to poor mental health and autism. I have severe anxiety and depression and I am awaiting an appointment to see if I also have PTSD due to sexual abuse in my childhood.

I have tried every element of support offered to me. I’m maxed out on 2 different types of antidepressants. I have had back-to-back (excluding the 6 month wait in between) 12 week sessions of counselling offered via the NHS. I am on a waiting list for intensive CBT due to my possible PTSD. I am currently having twice weekly private, video counselling appointments.

I can’t leave my house alone due to panic attacks. I struggle to meet my own care needs and my husband has to do a lot of the work for us both (although he works full time). I have a very understanding friend whom I force myself to go for a short walk with twice a week in order to stop myself becoming completely imprisoned at home but I find this very distressing and we have to take the same route each time.

I am so, so scared about the government’s plans to end sickness benefits for people like me. We don’t have a load of spare cash, we’re just about getting by. There is no support available. I’ve taken everything offered and my husband has been very proactive in seeking out other services for me to be involved with. I’d love to be better, I’d love not to live in fear but there is no help.

OP posts:
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11
KittyCollar · 23/04/2024 16:20

WiseKhakiGoose · 23/04/2024 16:16

I totally agree with you. The main problem with people like Nicetobenice7 is they hide their lack of empathy in real life and it's hard to spot and cut them off. Especially if this is one of the close family members and society tell us that our family loves us, no matter who they are.

Glad she’s nothing to do with me. Shudder. Spiteful rants and resorting to swearing doesn’t validate her opinions

KittyCollar · 23/04/2024 16:21

Babyroobs · 23/04/2024 15:45

There's loads of these benefit threads running on MN at the moment. Same people spending literally all day ( for days on end ) arguing with each other, it's baffling how they have the time and energy for it. Do people really have nothing else to do, no jobs to go to ?

The irony 🤣

LakieLady · 23/04/2024 17:46

BIossomtoes · 21/04/2024 19:33

if all those who were actually capable of working were in work then there would be more in the pot for genuine claimants like you OP

This is actually nonsense. There’s millions in unclaimed benefits, it doesn’t get divvied up among existing claimants at the year end.

You're right there, @BIossomtoes .

I work in welfare rights. Our team is tiny (less than 3FTE posts). Our annual report includes all the unclaimed benefits we help clients to get.

In 22/23, the total came to over £680k.

Nicetobenice7 · 23/04/2024 17:47

KittyCollar · 23/04/2024 15:13

Why have you resorted to swearing at me? Hit a nerve have I?

No you haven't..I'm just disgusted with your warped reply my partner is disabled

WiseKhakiGoose · 23/04/2024 17:47

GoodnightAdeline · 23/04/2024 12:37

There’s benefit fraud proper where somebody makes completely false statements about their abilities, then there’s ’massaging the facts’ which probably happens a lot more often. You can’t say it doesn’t because on all of these benefit support Facebook pages they’re egging each other on to stretch the truth and swapping tips on how to check the right boxes. That’s probably a much bigger issue than outright fraud, and not quantifiable really.

I think realistically there are a lot of people who could be doing more, but are either ingrained into the benefit lifestyle and change is too daunting, or they just don’t want to.

Being on benefits, it's not a LIFESTYLE! How dare you accuse people with health issues that it's a LIFESTYLE for them to be on benefits?

You either never experienced serious health issues, be it physical issues or mental health issues, or there's something else wrong with your life values. But it's fundamentally wrong to think there's "benefit LIFESTYLE".
It's the same as saying there's a "homeless LIFESTYLE" - we all read about it a while ago in the press.

Only because there's a few unhinged people who committed benefit frauds, it doesn't mean the rest of genuine claimants should suffer as a result. I'm not telling the government shouldn't go after those unhinged people, but they shouldn't do it at the expense of other genuine claimants and put them under more stress.

Why wouldn't you read about benefit tribunals where most of the claimants win it as a result? Why someone with serious health issues should go through a tribunal in order to prove that they are unhealthy? There's plenty of people who are in wheelchairs or with chronic diseases who had to go through it. Can you imagine how hard it is to receive benefits if even a wheelchair person can't always receive it from the first application and need to go through a tribunal to prove that they can't work?

I'm not sure about what kind of Facebook support pages you are referring regarding the benefit frauds. But, let's not forget that there's plenty of websites and support groups with unhinged people who share how to do illegal stuff about a lot of different things. You can watch plenty of documentaries about it. Of course the government should go after those people, but it shouldn’t be at the expense of other normal people. Same with the benefits, it shouldn't be at the expense of genuine claimants.

Also, the way press talks about it, is also a big question.... I'm not sure why so many journalists have no empathy towards people who can't work because of their health issues and receive benefits.

Nicetobenice7 · 23/04/2024 17:49

KittyCollar · 23/04/2024 16:20

Glad she’s nothing to do with me. Shudder. Spiteful rants and resorting to swearing doesn’t validate her opinions

Your comments ate vile

Willyoujustbequiet · 23/04/2024 17:50

SabreIsMyFave · 23/04/2024 11:03

Yes, I know several people who filled in PIP forms in the last six to twelve months. They received the form to fill in on say the 15th of June 2023, and it was sent on the 1st of June! They filled it in as quickly as they possibly could, and posted it back on the 16th or 17th of June.

Then on the 24th of June, they got a letter from the PIP department (sent on 19th June,) saying 'we've still not received your form - you only have another 14 days to get it in or your payments will stop.'

So even though they thought 'well surely they must have got it,' they were still worried about that letter. They thought 'well what if they haven't got it?' Sad So they spent some 50 minutes on the phone waiting to get through, and the person who answered said 'oh yes we've received it ... Looks like your form, and the reminder letter crossed! It's all good. These 'reminder' letters always go out to everyone just ignore them!'

What the actual living fuck? Why do they do that? They should give people six weeks after the form is sent, if the bloody thing is taking 2 full weeks to get to people. So they have got a full 4 weeks after they get it, to get it back to the PIP department. (Or rather, 3 weeks - as you need to allow an extra week for it to get there.)

It's farcical. It's virtually impossible to get the form to them before the reminder is sent out!

It's a complete farce I agree.

At best the DWP is completely useless and at worst I suspect its done deliberately so people fail. Nevermind the anxiety and stress it can cause the most vulnerable.

Nicetobenice7 · 23/04/2024 17:53

WiseKhakiGoose · 23/04/2024 15:54

Lol, there's definitely something wrong with your life values and the way you talk makes no sense. Are you trying now to gaslight all of us and make us believe that we didn't understand what you meant?

Read one more time what you wrote and have a look in the mirror:

"Nicetobenice7 · 21/04/2024 17:50
It's a fact there are ppl on benefits that shouldn't be on them like it or not"

"Nicetobenice7 · Today 11:39
I know someone on pip and uc and they get more than I get for working 50 hrs a week ...and do presume anything about me I never said ppl enjoy living on benefits"

The only good thing about people like you is that sooner or later you'll find yourself in the same position as all people who struggle with health issues and can't work because of it. One day you'll get old and unable to work because of your health! Let's see how you'll feel then!

There are ppl on benefits that shouldn't be on them ....my partner is disabled so your very wrong ...I personally think you could have an argument in a phone box

TigerRag · 23/04/2024 17:56

Nicetobenice7 · 23/04/2024 17:47

No you haven't..I'm just disgusted with your warped reply my partner is disabled

Doesn't mean you're not ableist.

Nicetobenice7 · 23/04/2024 17:57

TigerRag · 23/04/2024 17:56

Doesn't mean you're not ableist.

Grow up

LakieLady · 23/04/2024 18:23

Hermittrismegistus · 21/04/2024 21:53

Well, I have bipolar and work full time, claim no benefits. I can tell you that my job does nothing to prevent me suffering crushing periods of depression or manic highs. When I'm that unwell the only thing I can do is be signed off sick and burn through my savings untill I'm well enough to return back.

It's funny how each illness and how it affects a person is different for everyone, isn't it?

My DB is bipolar and has had massive struggles with his mental health for pver 30 years. The only medication that keeps it under control is a monthly depot injection.

For the first 7-10 days after his injection, his speech is slurred and he can barely string a sentence together, and he shuffles like an old man. That gradually ears off, and he has a few days of sounding and acting relatively "normal", before the depression starts to take over, he starts to neglect every aspect of his self-care and hardly gets out of bed, never mind leaving the house or speaking to another person.

While some bipolar people may be able to work much of the time, it's certainly not the case for all, or possibly even most, of them.

WiseKhakiGoose · 23/04/2024 18:35

Universalsnail · 22/04/2024 17:41

So here is what happened to me today as I think it's very relevant to this thread.

This afternoon I turned up to an online course for an area I think I may be able to find a job in that could be sustainable for me with the skills taught in the course. This course is similar to the one I wanted to do in person but wasn't allowed to do by the job centre, however I am allowed to do this as it's through the job centre so I have agreed to give it a try remotely. I found this course off my own back using my initiative.

I had a panic attack before the call but forced myself to log on. I was then told it was a requirement to have my video on. Tutor was rude when I tried to explain I had contacted the course provider a out reasonable accomodations around video. They said that I had to have it on.

So I put It on. I was then so overwhelmed I went mute and couldnt ask for anything. I started crying and had to sit in a video call crying infront of strangers. I haven't learnt anything. I've been told I have to screenshot my completed work tonight to pass to the next day.

Except I had a meltdown when the call was done and smacked my head hard against the wall. I now feel completely exhausted. Have a bad headache and have had to get the kids dad's to have the kids tonight as I don't feel able to care for my children

All for a course I have found off my own back to try and get a job and off benefits. Putting myself through this is apparently me not compromising and I should just get a job. Despite the fact this is what happens to me when I try..every time. ATM it seems unlikely I'll finish this course I've spent ages asking to do as I'm already crying over the anxiety about having to attend remotely. It's humiliating

It's really not as easy as people in this thread try to make it out to be to get job and keep one with autism and MH issues.

I'm sorry you've been through it. I can't even imagine how hard it was for you to go through it.

The tutor had no right to be rude to you and to tell you to turn the camera on. You did great for not giving up and emailing the course provider. I hope you'll receive an adequate answer from them and you'll be able to carry on with the course and your camera off.

I hope you feel better today. 💐

WiseKhakiGoose · 23/04/2024 18:50

Nicetobenice7 · 23/04/2024 17:53

There are ppl on benefits that shouldn't be on them ....my partner is disabled so your very wrong ...I personally think you could have an argument in a phone box

Only because your partner is disabled, it doesn't mean you are a nice person or you have any kind of empathy towards disabled people. Stop finding yourself excuses, look in the mirror and ask yourself who you really are? Because you definitely have some serious issues with your life values and aren't a nice person to be around.

LakieLady · 23/04/2024 18:53

Alwaysalwayscold · 22/04/2024 08:22

I'm sorry @Universalsnail but hardly anyone has the perfect job. Sacrifices have to be made.

When someone has been on benefits for decades and probably had hundreds of thousands of pounds worth of treatment, then refuses to even entertain trying to work then I think they are taking the piss.

Isn't it funny how these people can sit and type out responses on MN perfectly fine, but claim they couldn't do a job where they sit and reply to emails?

It's not "funny" at all, @Alwaysalwayscold , it's sad and entirely understandable.

They may be posting on MN because they're feeling well today, and because there's no pressure. They can do it for as long as they feel ok, and then stop. That's very different from having to do it for an 8-hour shift.

If they get distressed or have a meltdown, they can simply stop, and there are no consequences;, if they get annoyed and tell someone to fuck off or call them an obnoxious cunt they can still carry on posting.

My DP's niece is diagnosed with EUPD and ADHD. Half the time, she's so distracted that she can scarcely get to the end of a sentence when she's talking, let alone complete a piece of work, and she's always doing stuff that's unsafe, like leaving food on the hob or under the grill, or a bath running, or stepping out into the road without looking (I have no idea how she hasn't been run over).

Her EUPD makes her really impulsive and she has no filter whatsoever. She could never work in a role that involved dealing with customers or colleagues, and would be an utter nightmare to manage. She can burst into tears at the slightest thing, angers easily and finds it impossible to exercise self-control. But she's very bright, and can interview well. She's had at least 5 jobs that I can think of, probably more, and has been fired from every one of them because her responses are so volatile and she has no self-control.

I struggle to think of a job that could accommodate her needs.

Hermittrismegistus · 23/04/2024 19:02

LakieLady · 23/04/2024 18:23

My DB is bipolar and has had massive struggles with his mental health for pver 30 years. The only medication that keeps it under control is a monthly depot injection.

For the first 7-10 days after his injection, his speech is slurred and he can barely string a sentence together, and he shuffles like an old man. That gradually ears off, and he has a few days of sounding and acting relatively "normal", before the depression starts to take over, he starts to neglect every aspect of his self-care and hardly gets out of bed, never mind leaving the house or speaking to another person.

While some bipolar people may be able to work much of the time, it's certainly not the case for all, or possibly even most, of them.

I’m aware that I am lucky that I can work, even if it is incredibly difficult to maintain at times.

Like I said earlier, mental illness is a spectrum and we’re all affected differently.

LakieLady · 23/04/2024 19:04

Rosscameasdoody · 22/04/2024 09:24

They don’t. But it’s fashionable to call out ADHD as somehow fake isn’t it? And as I pointed out upthread ADHD and indeed any level of mental health condition has to be severe and treated at secondary care level to qualify for PIP. The level of ignorance around what an actual mental health condition is, and what disability benefits are designed for is quite breathtaking.

I've been working with vulnerable clients since 2000, and I find those with an ADHD diagnosis by far the most challenging.

LadyKenya · 23/04/2024 19:32

I think realistically there are a lot of people who could be doing more, but are either ingrained into the benefit lifestyle and change is too daunting, or they just don’t want to.

Or, just maybe, they are unable to, because of barriers, that you could not possibly fathom.

TheFunHasGone · 23/04/2024 19:49

LadyKenya · 23/04/2024 19:32

I think realistically there are a lot of people who could be doing more, but are either ingrained into the benefit lifestyle and change is too daunting, or they just don’t want to.

Or, just maybe, they are unable to, because of barriers, that you could not possibly fathom.

Yep this

Universalsnail · 23/04/2024 19:56

WiseKhakiGoose · 23/04/2024 18:35

I'm sorry you've been through it. I can't even imagine how hard it was for you to go through it.

The tutor had no right to be rude to you and to tell you to turn the camera on. You did great for not giving up and emailing the course provider. I hope you'll receive an adequate answer from them and you'll be able to carry on with the course and your camera off.

I hope you feel better today. 💐

Thanks. They are letting me restart the course in two weeks with some formal adjustments in place such as not having the camera turned on and having the videos of previous recordings of the lessons im advance so I don't get so overwhelmed. 🙂 The manager for involved about my complaint so hopefully this will allow me to do the course..

Nicetobenice7 · 23/04/2024 19:57

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Tahinii · 23/04/2024 20:02

There are nasty people on here. It is nice to be nice, surely?! I don’t ascribe to the “be kind” movement but I do try not to be a complete arsehole and if I am, I will try to look at myself and reflect upon it.

GoodnightAdeline · 23/04/2024 20:02

LadyKenya · 23/04/2024 19:32

I think realistically there are a lot of people who could be doing more, but are either ingrained into the benefit lifestyle and change is too daunting, or they just don’t want to.

Or, just maybe, they are unable to, because of barriers, that you could not possibly fathom.

What could I ‘not possibly fathom’? I was kicked out of home when I was 18 with a few hundred quid to my name, my dad and his wife moved abroad and my mum left when I was 13 and I haven’t seen her for many years. I worked as a cleaner and sofa surfed, saved and moved into a house share and eventually got an admin job in a business where I’ve slogged away for 11 years to get to where I am now. A year after starting that job I became seriously ill and almost died, I’d been losing weight and had infections all over the place which I ignored because I didn’t want to lose my job. When I left hospital with a lifelong diagnosis I went back to my house share and dealt with my recovery alone. I’ve also had mental health struggles probably because my home life was harrowing (alcoholism, domestic violence, different house every year, violent step sibling). I’ve been on sertraline for 6 years.

What do I not fathom? The fact is despite the sad things that have happened to me, I still have to buck up and play my part in being a productive adult in society. If everyone with a sad story or struggles opted out then we would be in a total mess.

ilovesooty · 23/04/2024 20:05

Universalsnail · 23/04/2024 19:56

Thanks. They are letting me restart the course in two weeks with some formal adjustments in place such as not having the camera turned on and having the videos of previous recordings of the lessons im advance so I don't get so overwhelmed. 🙂 The manager for involved about my complaint so hopefully this will allow me to do the course..

I'm pleased to hear that.

ilovesooty · 23/04/2024 20:08

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Says the person whose idea of debate is becoming aggressive with other people and swearing at them.

Nicetobenice7 · 23/04/2024 20:10

ilovesooty · 23/04/2024 20:08

Says the person whose idea of debate is becoming aggressive with other people and swearing at them.

Have a nice evening

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