To think people with eupd are badly treated

[Nownow8]

Like people say we enjoy being in hospital and our illness isn’t a real mental health issue etc. we are also often left under the Gide of positive risk taking it’s just awful.

What is eupd?

Emotionally Unstable Personality Disorder

Also yes, they are treated awfully and frequently considered 'untreatable'.

It's also often misdiagnosed ASD.

I guess it is possible to have EUPD and also e.g. depression or another mental health condition?

Does that then get treated worse as well?

Yes, I’m a ex mental health nurse and they do get treated terribly. It’s very hard because services aren’t set up to help them which leave the professionals feeling helpless and frustrated and the patients know this. People with EUPD often get worse on general mental health wards which can be very difficult to manage. Whereas clients with schizophrenia etc generally improve.

My dd has ASD, ADHD and EuPD. She also has Anorexia. The ED team want her EUPD treated but CMHT just keep pointing her back saying it’s an ED so needs to be treated by the ED team. The lack of EIPD treatment makes the ED harder to treat and so it goes on. She’s made countless attempts on her life.

Are there any effective treatments for EUPD? What do you feel that the health service should be providing for your condition? What are the barriers to achieving this?

DBT is what I want for my dd but apparantly you can’t be under 2 services at once which isn’t great if you don’t fit into a tidy package.

I don’t even know what it is. I don’t think it’s well known enough for people to actively discriminate tbh

Absolutely. I'd recommend anyone diagnosed with EUPD to get assessed for ASD

It’s the new name for BPD which is well known enough for discrimination.

Absolutely this - it’s a very common misdiagnosis

YES. Especially by professionals. My best friend in my 20's had it, she comitted suicide in hospital. They were horrid about her, even after death. No compassion whatsoever towards her family who lost her. Just insulting and how it was bound to happen and i quote "a nightmare". I reported them.

I never wish that diagnosis on anyone..too much risk in getting abused or neglected in the system..which no doubt would make them "incurable" as your adding trauma on trauma

I think the term Personality Disorder is just awful as it sounds like it is blaming the person and that there is something wrong with them. Mostly EUPD is due to abuse as a child IME but doesn't seem to be treated as trauma. It's usually a label for women with men more likely diagnosed with antisocial PD. There is a lot of frustration in CMHTs as proper treatment can't usually be accessed. I only saw it once in the time I was in one and that was for an 18 year old as it was cost effective for the time she would spend in the system. I think it is absolutely awful there is not more support and research as well and especially due to the cause.

A better website to understand psychological conditions is the Royal College of Psychiatrists https://www.rcpsych.ac.uk/mental-health/mental-illnesses-and-mental-health-problems/personality-disorder Unfortunately it is being updated at the moment, but they tend to give a very balanced view.

That post is my opinion as I am by no means massively experienced but have, rather, just come across it alot in various roles.

A construct created by male psychiatrists.

I say this as a mental health nurse. The stigma towards people with an EUPD diagnosis and the lack of compassion is really depressing.

@LoudSnoringDog what would you have it described / categorised as instead?

Absolutely agree @LoudSnoringDog I think it further victimises people and dismisses them. There is something wrong with their personality. @roarrfeckingroar I don't know what wording I would use but probably something to indicate the trauma that caused it. The behaviours tend to be what enabled that person to survive what was happening to them as a child but sadly they don't work so well as an adult.

I think that all these pathologising labels are either due to trauma or being ND. So there's too much misunderstanding.

DS (21) is diagnosed. He's been waiting 2.5 years so far for NHS dialectical behaviour therapy. He has been told he should have his 1st appointment by mid 2025. He took 6 overdoses last year.

I have EUPD, CPTSD, AHDH, GAD and psychosis 🙄 all diagnosed and I'm medicated.

I was so happy to have the EUPD and ADHD diagnoses because everything suddenly made sense. Life has been shit until I was properly told what's wrong with me.
And I'm 52!

I don’t agree with that. No abuse happened to my dd as a child. She has an autism , adhd and ptsd from hospital stays from 15 and has been given EUPD too by the adult ED team.

My dd is getting on for that amount this year but still CMHT punt her back to the ED team with nothing . It’s continuous HTT sticking plaster provision that does very little.

That's interesting. I have a niece with an EUPD diagnosis, her sister and half-brother both have ASD diagnoses.

I had wondered if there might be a connection, but misdiagnosis hadn't occurred to me.

I agree. The help available in my area is terrible as well. My partner was diagnosed last year and is currently in and out of epsiodes daily for 9 weeks now, he's the worst he's ever been. I called his mental health team crying and begging for help. The response I got.... ' he's acting like a child so just treat him like one. Obviously don't tell him I said that though as he won't be happy to hear it.'
I've not bothered to call them since. He had his routine appintment a few weeks ago and mentioned he'd been to the pub the week previous. He went for one pint after work with an old friend, then drove home half hour later. His mental health team called the DVLA and reported him as a drink driver, so he now has a marker on his car and he keeps being pulled over, and his work have retracted their offer to put him through his HGV license. The spiral this has sent him on is like nothing I've ever seen before, and I've no clue how to help him anymore