Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Random mum said she thinks my ds has SEN

64 replies

Loudippity · 03/03/2024 16:41

At soft play today my ds 4 got playing with another boy. I got chatting to their mum who went on to tell me her ds had ASD. My ds always pulls up his sleeves and trousers and is very friendly/forward she said her DS does and is like this too. My ds has great vocab which she commented on. She said things like her DS loves his sleep and is specific about his cutlery etc and I said oh my ds too. She then basically said she thinks my son probably has ASD.

My first question is AIBU that this not appropriate to say especially if you don't know someone.

My second question is should I be taking notice? My ds was observed at nursery for SEN when he was younger as he used to play alone but this sorted itself out and he has lots of friends now and nursery said no concerns or referrals needed.

Just feel a little confused.

OP posts:
falalalalalalalallama · 04/03/2024 08:40

In answer to your questions:

My first question is AIBU that this not appropriate to say especially if you don't know someone.

It's a tricky question. On the one hand we shouldn't treat SEN as if it's something shameful, to be hidden away and never discussed. And if it's socially unacceptable to ever speculate on if someone might be on the spectrum then it's basically saying it's a taboo subject.

On the other hand, I remember telling a mum that my DS had been diagnosed with ADHD and she was very forceful in her opinion that the entire family was ND. I was angry and indignant what I felt was intrusive and not true, so I do empathise, I remember that feeling well. FWIW, many years later I suspect she was right, though.

My second question is should I be taking notice? My ds was observed at nursery for SEN when he was younger as he used to play alone but this sorted itself out and he has lots of friends now and nursery said no concerns or referrals needed.

I'm sorry to say I wouldn't take the nursery's lack of concern to mean your child isn't ND. What they mean is, he behaves well and gets on at nursery well enough that they don't need any interventions in order to be able to cope with him. They are not experts, however, and a lack of concern is not the same thing as going for a diagnosis and being told by a suitably qualified medical professional that he is NT.

I delayed pursuing diagnosis for my DS because teachers in years 1 & 2 AND the SENCO told me they had no concerns, that I had nothing to worry about, even though my gut was telling me something was up, and we have ASD in the family. I trusted them. They had met lots of DC and I assumed they knew what they were talking about. But they didn't.

When we eventually did pursue diagnosis - with the support of his year 3 teacher, he was indeed diagnosed with ASD. It was a stranger, however, who spurred my to get a diagnosis - a nurse at a hearing test appointment. She asked if he has SEN, and was surprised when I said no, and suggested I get him checked.

None of us can say if your DS is on the spectrum or not. I would suggest keeping it in the back of your mind, it may be that the mum did recognise something that indicates ASD, annoying though her approach may have been from your point of view, just in case. He either is, or he isn't, you'll find out in time.

FWIW, my DS is now doing his GCSEs. He's a bright, friendly, academic, quirky child with a big personality and a strong sense of fairness. I am so proud of him. I suspect he will struggle with some aspects of personal relationships, but I also expect he'll find a job that uses his neuro diversity to his advantage, just as my ASD mum did. She's crap with small talk and lots of aspects of our relationship are tricky, but professionally she was very successful in her field (science related).

Alalalalalongalalalalalonglonglilong · 04/03/2024 08:45

Good advice @Love51

there are many behaviours typical of many children that are also typical autism traits. She may be associating all her DS behaviours as autism rather than personality or a typical phase for that age.

Do ask the school though. They are used to seeing this and will be able to guide you. Don't entirely dismiss her either. I work with this age group and sadly many parents don't see signs and NT children struggle more as a result of not having early intervention. Try not to worry OP.

Marblessolveeverything · 04/03/2024 08:51

Firstly I would assume she was trying to be helpful. I am from a family where there are a lot of successful ND people through to one person who requires 2-1 assistance.

One thing is common between us we can spot ND quite quickly, and depending on who a comment would be made. This is because they believe a lot of the time ND is not recognised and later there are issues as social interactions become more complex.

I would ask adults in your ds life if they notice anything in particular. It is such a long road to diagnoses and identification of resources that an early eye out is beneficial.

Fly3344 · 04/03/2024 09:07

@falalalalalalalallama do you mind me asking what signs you noticed in your child that the school dismissed, I’m assuming your child was masking? I’m having the same problem.

drumbeats · 04/03/2024 12:51

@motherofdilemmas Why is it a social mistake? Her ds has ASD. She obviously wasn’t saying this as an insult! More her observation.
Because it's not appropriate to diagnose people you don't know. With anything. Deciding someone's dc has ADHD or is ASD or has BPD or any other diagnosis is just not appropriate social behaviour. Especially with someone you don't even know.
Psychiatrists study for years to be qualified to make diagnoses. Random mum observing your dc for 30 mins making a diagnosis is just not reasonable social behaviour.

cakewench · 04/03/2024 13:15

"She then basically said my son has ASD"

Just curious, how did she 'basically' but not actually say this? Is it possible you misinterpreted?

Also I agree with PP above who suggested that if her DS is ASD, she very well could be as well. Perhaps she's just being matter of fact about it.

I wouldn't take it personally or be upset about it, but then both my DH and DS are on the spectrum. It's just a fact of life.

UnbeatenMum · 04/03/2024 13:30

I don't think it's appropriate to share your observations with a total stranger but as she has I probably would give it some consideration. I have an autistic child and have correctly recognised autism in lots of other children (I didn't actually ever say anything to any of the parents except to one who was a very close friend).

ManchesterGirl2 · 04/03/2024 17:42

drumbeats · 04/03/2024 12:51

@motherofdilemmas Why is it a social mistake? Her ds has ASD. She obviously wasn’t saying this as an insult! More her observation.
Because it's not appropriate to diagnose people you don't know. With anything. Deciding someone's dc has ADHD or is ASD or has BPD or any other diagnosis is just not appropriate social behaviour. Especially with someone you don't even know.
Psychiatrists study for years to be qualified to make diagnoses. Random mum observing your dc for 30 mins making a diagnosis is just not reasonable social behaviour.

Such an NT comment. Who gets to decide reasonable social behaviour?

MushMonster · 04/03/2024 18:14

I would not take it as a negative criticism. She just points out similarities between her son and yours. She can see that and she thinks your son could be as hers.
You had your son assessed at nursery before. This is a gradient, not a black or white matter. Your son could be borderline, just oitside the spectrum. Or not.
You just take note, watch him.
What matters is that he is happy and that if he ever needs support, he gets it.

Pardonnezmoimadame · 04/03/2024 19:05

@choccytime im not doubting your story about this parent, but I can’t say I see a common problem with people wanting their kids to be diagnosed with autism.

i know lots of people with kids who are ND, most diagnosed, and a few where I’d guess it was most certainly an issue. By contrast, I know nobody personally who Id suspect of making it up. In my wider circle I’ve heard of one friend of a friend whose SIL is like the parent you describe. A second friend of mine thinks one of the parents at her kids primary school is pushing one of her kids to be trans.

That’s 2 cases out of a pool of easily 1000 people ( am thinking of the number of Facebook friends I have)

I’d also say that autism/ ADHD are fairly common- it’s just that we never noticed it before. about 10% of kids have ADHD- that’s 3 in every primary class. If there’s two classes in each year group, that’s 42 kids per primary school.

falalalalalalalallama · 04/03/2024 19:11

Fly3344 · 04/03/2024 09:07

@falalalalalalalallama do you mind me asking what signs you noticed in your child that the school dismissed, I’m assuming your child was masking? I’m having the same problem.

He was very, very strong willed / on his own path. Not just a little bit, but an outlier compared to other DC.

This would manifest at things like football.clubs when he was very little, when all the other DC would be taking part, within the programme that had been explained to them. DS, meanwhile, was tearing round the corridors, with no interest in joining in.

He could be very oppositional at times.

I'd meet other mothers. Their DC would be playing reasonably near them. Mine would be the only one running out of the park in the direction of the road (had I not stopped him) every bloody time.

We ended up getting hearing tests for him twice over the years as he wasn't responding to us. Turns out his hearing was fine, he was just choosing to ignore us!

However, he was (and is) very academically bright.

He found joining in games with other DC hard. e.g. instead of actually playing the game, he wanted to spend a lot of time talking about the rules first.

In general he found it difficult to relate to DC his own age. He's always found it easier to talk to adults.

His year 1 teacher told me he had no innate respect for authority at all. Not in a bad behaviour way, but simply that he spoke to her as if she was an equal, not a teacher. He's always done this with adults. Some teachers find it very unnerving!

I don't know what he said or did to the nurse, but I think he was in an oppositional mood. She suggested we look at SEN.

There will be lots of other things but I can't remember now. If it's useful I expect I could find my Mumsnet posts from the time?

I'm not sure if he was masking as such, perhaps he would disagree. But it seemed to me it was more that he didn't tick the boxes for some of the classic ASD symptoms - e.g. the SENCO told me he couldn't be on the spectrum as he makes eye contact (which is just bollocks) and the year 1 teacher told me not to worry about him being ND as she'd taught kids with SEN, and the DC with ADHD for example "just couldn't sit still".

She told me that my DS was "just emotionally immature, like his best friend" and not to worry as he'd catch up. Both him and his then-best friend now have an ASD diagnosis.

We eventually went for diagnosis via the GP, not the school.

Poppinjay · 05/03/2024 20:56

JJathome · 04/03/2024 07:56

Confirmation bias, I notice this happening a lot, if someone does something similar to themselves or someone they know with a diagnosis, they immediately diagnose that person with the same. It happens on here a lot.

just let it go.

They really don't you know.

They may make a suggestion or express an opinion but diagnosing is a completely different process that is carried out by qualified and experienced professionals, who consider a wide range of information from a variety of people and then record their decision in a report.

So many people on MN seem to struggle to grasp this.

CandiCaneicles · 05/03/2024 22:26

@falalalalalalalallama
That is like a combination of my 2 dc.
dc2 used to run off when she got bored.
Dc1 definitely doesnt respect any authority. Dc2 does at school but not at home its 'i dont have to listen, youre not in charge of me!'
And at toddler sport group dc2 would be swinging on the stage steps or running up on the stage.
I would say dc2 is masking at school as she is incredibly worn out and coke bottle.
Also im notiving now people are having parties at home that tpshes coming out crying about whatever. As 4+ hrs is too much for her.

They still at 9 and 12 dont show any signs its too much. Once we came out of visiting dc2 friend and got in the car, i hadnt even turned car round before one had hit the other. They were fine in the house!

Abby212 · 20/03/2024 10:04

@Ijustneedaanswer hit the nail on the head. Thank you

New posts on this thread. Refresh page