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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think I’m dying? Any doctors around? šŸ™

372 replies

Garret · 17/09/2023 16:12

Got worse over a couple of weeks. Tiredness. Squishy tummy and no appetite. Aches and pains. Buzzing sensations all over. Back and neck pain. Joints hurting and clicking. Muscles twitching and hurting. Feeling wobbly. Now struggling to walk because of muscle burning pains. Anxiety and panic.

GP is totally unconcerned. Checked me over and said I haven’t lost muscle strength, range of movement, tone or sensation. Took some blood to test for vitamin deficiencies (I often have these but never felt like this before). Told me to address my anxiety and referred me to the psychiatric nurse.

I’m hysterical. Imagining I have some awful disease. How can the GP not be worried when I have such severe symptoms? Please help me if you can.

OP posts:
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Highdaysandholidays1 · 17/09/2023 19:52

I thought it took quite a while for iron stores to build back up again, I found mine didn't rise much at all after a few weeks, definitely sort out more supplementation/wait to see what the blood test reveals as v low iron makes you feel awful.

Lessstressedhemum · 17/09/2023 19:55

I have ME and fibromyalgia. This is how I feel most of the time. There are no tests for either of them. They are diagnoses of elimination. Try taking magnesium and cutting out caffeine and alcohol to begin with. That helps a bit.

Arniesleftleg · 17/09/2023 19:58

Whilst I don't think YABU, I do think you have health anxiety. It can make any symptoms feel much worse and can actually cause real issues such as pain etc. Ask your GP for anti anxiety medication. To be fair, your GP should have recognised this on the receipt of your normal results.

katepilar · 17/09/2023 19:58

Could it possibly be a side effect of Propranolol? Any changes in dosage? Or perhaps combination of Propranolol and somemthing else you are taking?

Lourdes12 · 17/09/2023 20:00

Could very likely be a virus

Pamspeople · 17/09/2023 20:04

Peri and health anxiety. Definitely seek some therapy for the health anxiety because it will rule your life

Garret · 17/09/2023 20:04

The doctor wants me to chill and take vitamins before progressing to MRI or anything. I suggested peri multiple times but she was adamant that’s not the issue.

Vit D was 24 but went up to 80 by May, maybe it’s dropped again I don’t know.

Yes I know I have health anxiety. These symptoms are scaring me.

OP posts:
Crikeyalmighty · 17/09/2023 20:05

How long have you been taking propanolol?? I was put on Bisoprolol late last year for high Bp but also headaches and weird buzzing etc which all came on post my 4th covid vaccine. within 6 weeks I developed a sore aching neck , weak leg muscles- particularly on one side and

Willmafrockfit · 17/09/2023 20:05

can you step away from teh computer,
find something else to occupy your mind op - yoga, exercise

Willmafrockfit · 17/09/2023 20:06

if you want a doctor though you need to call 111

Garret · 17/09/2023 20:07

Crikeyalmighty · 17/09/2023 20:05

How long have you been taking propanolol?? I was put on Bisoprolol late last year for high Bp but also headaches and weird buzzing etc which all came on post my 4th covid vaccine. within 6 weeks I developed a sore aching neck , weak leg muscles- particularly on one side and

The scary symptoms started before they gave me the propanalol. In fact they gave me it because I was freaking out about symptoms.

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Deathbyfluffy · 17/09/2023 20:10

If you were dying you’d throw yourself at A&E - not posting about it on the Internet.
Anxiety can cause a huge range of physical symptoms - I think it’s probably all manifested from that personally.

If you’re worried, ring 111 or visit A&E.

Crikeyalmighty · 17/09/2023 20:10

Sorry- cut myself off there. !! Beta blockers have significant side effects for many and weak muscles are one of them, as can be weird twitches , muscle weakness etc. same goes for statins- which I was also on. Once my BP was under control I gradually tapered off Bisoprolol and the muscle weakness and buzzing and pins and needles all rapidly improved - ive still got the headaches (which ironically the beta blockers helped) but I do feel far less weird without the beta blockers. Were your symptoms fully there without propanolol ?

Garret · 17/09/2023 20:11

Were your symptoms fully there without propanolol ?
Yes unfortunately. Not caused by propanalol. Thanks though.

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Aggado · 17/09/2023 20:13

It sounds a little bit like ME/CFS (Chronic fatigue syndrome) or Fibromyalgia. Are your joints inflammed or just hurt? I have ME and it's debilitating. Are you tired after just simple walk? Do you nap during the day? After rest do you still feel tired? Do you sleep well? Do you go to toilet a lot at night and when sleeping?Have you had Covid at all? Check online if you have any of the symptoms.

Pebbles16 · 17/09/2023 20:15

Bless you OP. I spent a lot of my early 40s convinced I was about to die.
Admittedly I did/do have some long-standing issues: colitis, pernicious anaemia, GERD. But actually the health anxiety was crippling and made everything so much worse.
I tackled the health anxiety and now just deal with the bloody annoying conditions which are managed by drugs and lifestyle.
Menopause or peri - push further, GPs have little idea (and, in my experience, female doctors are the least sympathetic)

Garret · 17/09/2023 20:16

I’ve literally only had the aching and pins since the start of Sept. Last weekend I could walk a mile or two with some discomfort, now it’s 100m and my legs hurt debilitatingly.

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Crikeyalmighty · 17/09/2023 20:17

Ah I see I cross posted - Mm- your symptoms sound very much like mine were though before I started them, the only difference for me was it brought on muscle weakness much stronger, I did however weirdly have one sided leg weakness before I started Bisoprolol , just not as strong . Felt like my leg was encased in concrete but it was intermittent. The buzzing thing though was definitely there before. Internal vibrations and pins and needles were dominant for me as was feeling very light headed and odd . Mine was definitely post covid and post vaccine ( which were quite close together in my case) lots of things for me gradually improved at about 7 months but the neck def hasn't - it's like whatever it was has given me neck arthritis - I'm going to have to pay I think for MRI- been waiting 6 months now

VaccineSticker · 17/09/2023 20:18

What did your doctor say about the result in your blood test with regards to your high inflammation?

newusern1 · 17/09/2023 20:18

I’ve sent you a pm.

Ninini · 17/09/2023 20:18

Obviously your doctor is the best port of call, but given you mentioned psoriaris and are suffering from tiredness, painful joints with high inflammation in your blood test, you could ask them to consider psoriatic arthritis.

Garret · 17/09/2023 20:20

VaccineSticker · 17/09/2023 20:18

What did your doctor say about the result in your blood test with regards to your high inflammation?

Just that it’s probably caused by other unrelated conditions they already know I have.

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AutumnSalad · 17/09/2023 20:22

So it's probably not Vit D then.

Just to say again then that those neurological symptoms are more common than you think, and often they don't know why. If your muscles are not weak then that rules out a lot of scary diagnoses. So that's probably why an MRI isn't advised yet.

I get it, I have had a lot of weird symptoms these past few years, and actually was sent for MRIs even though I wanted to bury my head in the sand. Lots of tests. Like you for bloods, they did find some things skewed, but on the whole I'm still none the wiser. You've had the main screening tests it sounds like so health anxiety is probably a big factor now.

That's not to say to keep an eye and monitor your symptoms, but what you have is very different from a medical emergency like sepsis, yet you are on high alert as if they are. You did the right thing, you checked it all out, and got the tests. So now if I were you I'd focus on being healthy in mind and body - as that will be bound to help your symptoms in some way anyway so it's a win win. It doesn't matter also if you feel panicked, just allow yourself some time of the day to feel worried - but then make your day structured to get on with things like a walk, regular eating etc as the lack of appetite will all be feeding into a downward spiral.

You will feel more in control if you start with 3 healthy meals a day, even if you can't eat them all just start, make nice things, get a project or get into work. It's not something that lifts in a day, these feelings, but believe me they really do shift after just a few weeks if you manage your overall wellbeing.

Garret · 17/09/2023 20:27

Thanks. Yes I know they’re quite generic symptoms. Doctor said I’m not weak, I just feel wobbly and have pain. They won’t do MRI until I chill out and give it time to resolve with iron etc. I’m doing my best to relax.

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Crikeyalmighty · 17/09/2023 20:27

@Garret it's all very well doctors saying about anxiety- but I was never an anxious person at all- suddenly having legs feeling like concrete, feeling spaced out and getting buzzing in your legs and feet 4 or 5 times a day is enough to make anyone anxious.

I knew I wasn't peri or menopausal as I'm 61 and past that. I did however have high BP and pre diabetic and low folic acid - but those are sorted now -

Your bloods might show something up OP. If not, they need to start tests to rule out certain things but yes fibromyalgia can present like this. My GP wouldn't rule that in or out till I had the MRI -