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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Encouraging my brother to disclose his diagnosis

54 replies

SugarPosy · 09/09/2023 20:27

This could be a long and perhaps upsetting post so sorry in advance, also I'm sorry if it sounds like I am bragging about my niece as I have been told in the past I do that!!

For background, I have one brother, he has one daughter, she is 18. He and his wife struggled to have children in their late 20s despite fertility treatment. They gave up, went to teach abroad (were both teachers) and somehow ended up pregnant, they were over the moon with their daughter. Sadly 7 years ago, my sister-in-law passed away, she battled cancer for over two years (breast cancer which spread) but passed despite putting one of the strongest and bravest fights I'd ever seen, just a few days before her daughters 11th birthday.
My brother has put his all into raising his daughter, she is smart, beautiful, kind, loving, funny and talented all rolled into one. Truly a young woman to be proud of despite everything thrown at her. Her mums family live in Norway, so she has little to do with them. My mum passed away 2 years ago which was a terrible loss for us all. Really myself, my husband, my two boys, my brother, my niece and my dad function like one big core family split between 3 houses.
My niece is leaving for uni, she paid for an early check-in at her accommodation for Tuesday as she already has a job lined up and is so excited. She worked so hard for this and I couldn't be more excited for her if I tried!!

To the point, today my brother informed that he has been diagnosed with a malignant brain tumour. He kept any suspicions about this to himself. Luckily they believe it is treatable, surgery, chemo and potentially radiotherapy, so certainly not an easy journey ahead. He said he would have waited until niece had left for uni to tell anyone, but wants me to drive her on Tuesday as he has been having vision problems and doesn't feel comfortable making the 6+ hour drive, He is going to tell her he can't get out of work, but really he has already told work he needs time out sick.
He doesn't want to tell his daughter, he thinks it will make her rethink going to uni or certainly one so far away and he doesn't want her to throw away the amazing opportunity she has created for herself. He feels bad that so much of her childhood was spent caring for sick parents (her mums cancer, he has arthritis which at times had him bed bound, her mum had various surgeries before cancer diagnosis, from a stomach ulcer to hernia and more). He is adamant she will not give up her young adult years to care for him. He has said he will tell her once he has had the surgery, as he thinks that will be the part which scares her the most.
I now only work on Monday and Friday so can do a fair amount of caring for my brother and in reality I could give this up if need be, we are mortgage free and comfortable so I do it more for my sanity than money. My brother is also mortgage free, has some savings from his late wives estate etc. so financially there are few concerns. This means during chemo and radiotherapy he could brand it to her as I'm looking after him, she just needs to do what makes her happy and not stress.
I'm beyond devastated and as much as it really isn't my place, my niece is like a daughter to me and I'm thinking she should be told. Maybe deferring for a year if she feels it would be necessary would be good for her and if not at least she got to make the choice, not have it made for her.

I know it isn't my decision to make and will absolutely support my brother no matter what, but would it be unreasonable of me to encourage my brother to reconsider telling his daughter before she moves away for uni?

OP posts:
Fallingthroughclouds · 09/09/2023 22:00

I think he should tell her. If something happened during surgery it would be devastating to know she hadn't had this time with him.

Ivebeentogeorgia · 09/09/2023 22:02

It doesn’t matter what any of us think really though. It is his decision and needs to be respected

southernlife55 · 09/09/2023 22:04

He absolutely should not tell her. Please please don't change his mind.

southernlife55 · 09/09/2023 22:05

SeenYourArse · 09/09/2023 21:41

Absolutely don’t tell her, it will completely ruin and tarnish her experience of Uni, she’s been through enough let her enjoy the next couple of months wait until she has to know. The longer time she gets to enjoy a normal uni experience the better she deserves it.

This

daisypond · 09/09/2023 22:07

My DH had cancer twice when our DDs were mid-late teens. We told them, but downplayed it - it was caught early and he’d have surgery. I myself then had cancer twice in the next year -same cancer that returned. Both DDs were away at university then. One had just started. I asked DH to tell them, as I couldn’t. He just said I’d have surgery and I’d be fine. We waited until I had a confirmed diagnosis but once it was confirmed, we did tell them straight away. I think that was the right thing to do for us.

neilyoungismyhero · 09/09/2023 22:08

I would speak to your brother again about this. I would worry that even with the obvious best intentions of you and your brother you might end up getting the blow back for keeping this from her. It may be something she could never forgive which would be a tragedy for you both. As a PP mentioned trust will be gone and whilst she would never blame her dad you could end up being the scapegoat here.
So sorry you're family is going through this.

Daddylonglegs123 · 09/09/2023 22:12

Really sorry to hear this OP.

We were in a similar position last year with a stage 4 cancer diagnosis in the family. We were advised to tell DS and DD. We kept it to ourselves for a few weeks and told them after DS had sat his A levels (before results and before going to Uni). It was awful. We also quickly added that we wanted them to still go to Uni as we didn’t want them sitting at home feeling sad, missing out and not getting on with their lives and putting them on hold for however long etc.

DS went off to Uni had a fab first year, kept in touch with us regularly via phone and FT (much more so than he would have done had things been different). DH is still here thankfully and still relatively well. It could be months or a few years we just don’t know but we made it easy for them to go which was what we wanted but things would have been even worse had they stayed at home in our eyes (but then they haven’t lost a mother). We told them both we would be honest with them and if/when the time comes we would let them know if DH really deteriorates and they could then decide to come home or consider suspending their studies at the time.

Ultimately it is entirely up to your DB what he decides in this awful situation. I agree your niece does sound amazing OP as does your whole family unit. I think your brother could be encouraged to write a letter at the very least. But also as said up thread you also need to take care of yourself at this time.

Take care xx

RedDoughnut · 09/09/2023 22:17

Please don't tell her.

I've sent kids to Uni and it wouldn't be fair. Let her go and settle, help your brother get treatment and keep it from her.

You can revisit this decision but once the car is out of the bag there is no going back.

Please keep it to yourself for now

Chippy4me · 09/09/2023 22:20

YABU

You are not her mum and do not get to decide what’s best for her.

Her dad has made a decision and you have no right to put any doubts in his head.

I would not tell my DD something like this unless it was terminal because there is nothing she can do, why what’s the point in her worrying and putting her life on hold.

Stay out of their business and just be there to support your brother because he needs you right now.

Spinninggyro · 09/09/2023 22:27

I think he should tell her so she can decide what to do. Hopefully uni would defer her place for a year so she can be with her dad if she wants to. He wants to tell her, she won’t thank any one for hiding the truth.
My thoughts are with you all

continentallentil · 09/09/2023 22:35

Given that he has a good chance of recovery I can see no reason to tell her immediately, and can’t think why a year out just to be with him would be a good thing - she’s already been through enough sickness. If she can be told once he’s had a successful op, and she is settled into uni, that would seem to make sense.

This is off the point if the thread (sorry) but most people prefer to avoid terms like battle or fight when it comes to cancer.

ActDottie · 09/09/2023 22:41

I get why he’s made this decision and I think you need to respect it

Buggysleeper · 09/09/2023 22:49

He is going to have brain surgery which has risks associated. I would be devastated if something happened to my dad during surgery and no one had told me. That said I understand there are a lot of emotions caught up for his daughter with cancer and operations. I would contact somewhere like Maggies for advice and potentially support for your brother and niece. And you xx

ShyMaryEllen · 09/09/2023 23:00

Ivebeentogeorgia · 09/09/2023 22:02

It doesn’t matter what any of us think really though. It is his decision and needs to be respected

Absolutely 100% this.

If I had confided something like that in you, and expressly said that I didn't want my daughter to know, I'd struggle to forgive you if you decided you knew better and told her.

LiesDoNotBecomeUs · 10/09/2023 10:14

There are arguments on both sides. He will have gone through them knowing her and knowing himself.

Respect his decision.

His decision means that he will be able to hear about her having new exciting experiences while he endures treatment. Knowing she is happy and moving on in life will be a boost to him.

He knows exactly how horrible it can be to watch and wait as someone is treated for cancer. He knows the worry and about feeling useless! He doesn't want that for her.

He is choice means that he won't have to worry about and watch her suffering while he is dealing with his own. He will know that he is protecting her for as long as possible.

Frazzledatfifty · 10/09/2023 14:24

If she isn’t told…. How is it going to be kept from her… My kids at uni facetime DH and I all the time… they would know if something was up (and would be really cross and hurt if something so important was kept from them…)… They are both 5 hours away from home, but still come home occasionally during term time, and often at the drop of a hat… How is she going to feel if she decides to come home for a weekend and finds her Dad mid treatment… or how is she going to feel if she comes home at Xmas but he is recovering and she realises that he’s been through a brain operation and other treatment and she knew nothing about it. I don’t think she’ll understand why it was kept from her… mine certainly wouldn’t… DH was very ill with cancer 3 years ago… told DCs as soon as we had full diagnosis and treatment plan. DS was on his gap year… he decided he wanted to stay at home whilst DH had massive operation… it was a v dangerous op, DS just didn’t want to be far away so he just changed his plans a bit, stayed at home, got a job and boosted his savings, but once the dangerous bit was over, and DH was on the way to recovery, DS then went off for nearly 6 months of travel which he loved. Main thing was that he was fully informed and could make his own decisions on how he wanted to play it. He would have absolutely hated it if we hadn’t been honest and I think it would have really damaged the trust that we have always had…

readingismycardio · 10/09/2023 17:13

Oh. I have no advice, but what a heartbreaking story, OP. I am so sorry. He sounds like a kind and amazing guy and so do you!

Zebedee55 · 10/09/2023 17:16

It isn't your decision, or anyone else's to make, so back off and just support him.🙂

RampantIvy · 10/09/2023 17:20

I have no advice. I just wanted to wish you and your family well, and that your brother's treatment is successful Flowers

YakChewCrumbs · 10/09/2023 17:22

I would be devastated if my dad kept something like this from me. Uni will always be there and he may not. She can't get him back when he's gone or ill but she can always work or study. I'd also be upset that he decided what was best for me without involving me in the discussion. She's a young adult and deserves to be part of the discussion.

ladeluge · 10/09/2023 17:23

Yes I think you need to step away and respect his decision. He may get through things better if he feels he doesn't have to worry about daughter's reaction, and dealing with that as well as the surgery.

OP you sound quite a bit invested in your brother's life, which I can understand given the bereavement he has had, but he knows himself what is best for him. I'd leave him to it.

FOJN · 10/09/2023 17:26

My heartbreak for all of you. I have no doubt that your brother would take huge comfort from having his daughter around during his treatment but he loves her so much he does not want his diagnosis get in the way of her uni experience. Please respect his wishes.

Wishing all of you all the best. Your brother is lucky to have you.

Ohthatsabitshit · 10/09/2023 17:28

Would he have told you if he didn’t need your help? Help him don’t muscle in on his parenting. How could you do anything else?

BellaVita · 10/09/2023 17:36

As someone who is living in this very nightmare (my son who is 26, dx 15 months ago with a glioblastoma), I would say I think your brother’s wishes need to be respected.

As someone else said upthread, he should not be driving. DS’s licence was taken off him.

LarryStylinson · 10/09/2023 17:45

It may also be part of his coping mechanism in not telling her. Respect his wishes.