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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Family crisis, what to do?

39 replies

DontWorryMrsBird · 10/08/2023 08:47

Don’t even know where to start, it’s long to avoid drip feeding. If you can’t read it all, the short version is my dad is completely incapable of managing and I don’t know how to support him and my mum anymore.

My dad is in his 80s, for as long as I’ve known him, he’s always had something wrong with him. His leg hurts, he’s hurt his hip, he’s had a headache for a week etc, he’s a complete hypochondriac and I don’t think I’ve ever asked how he is without a complaint about something being wrong. He’s also been on antidepressants my entire life. Over the last ten years, his mental health has really declined. I’m guessing it’s dementia, but he spends half his life at the GPs for his many ailments so I’m not sure how seriously they take him anymore (he has an appointment most weeks). It started with an obsession with bugs, he could see them and feel them on his skin constantly, he bought hundreds of hoovers, he scrubbed the carpets and rubbed his skin until it bled. Any mark he found anywhere on his body was evidence of bites. He would collect the ‘bugs’ in jars to show people and used to visit the local government offices regularly with his evidence. He was eventually diagnosed with dillusionary parasitosis but nothing can be done about it.

He had an operation a few years ago and refused to do any rehab so now can barely walk. My mother does everything around the house, including changing him and striping the sheets most nights as he is doubly incontinent. He is either in his chair or in his bed. He won’t even try to walk or do anything for himself. The only thing he does do, is play on his computer. He has online banking and regularly locks himself out. He likes to change electricity providers, supermarket deliveries, changes his tv package every few months which signs him up to hugely expensive package deals that I have to argue to get him out of (sky and virgin turned up to install on the same day once, he already had virgin so who knows what they were coming to do).
he refuses to consider moving or allowing any ‘old people’ aids in his house, so has to sit on a step and shuffle up or down (he can’t stand and climb the stairs). My mother lowers him onto the toilet And helps him into the shower where she’s placed a chair (won’t allow a proper seat to be installed). The problem is she won’t go against him, and he won’t allow any support at all. We arranged for carers to go in and offer support, but he refused to allow them to come back despite the fact they were helping my mum more than him.

I end up visiting multiple times a week because they need the help, but work/kids/life is making this exhausting for me. I wouldn’t mind if they would accept some changes that would make things easier, but he completely refuses, so she agrees with him. They have hundreds of thousands of pounds in the bank, but he’s the only one who has access to the accounts and I’m worried he loses it or sends it to someone and forgets what he’s done with it. Some days he seems ok, some days he can’t even remember who he banks with. I considered removing/hiding his computer, but it felt wrong to do that. Especially since it’s the only thing he likes to do.

so, if you’ve managed to read all that, what do I do? I’m so tried and frustrated but can’t work out a way out of it at all. Can I force them to accept support or just watch him decline until he is forced into care against his wishes?

OP posts:
RoseBucket · 10/08/2023 08:51

Can you put parental controls on his computer? Sounds really tough especially for your mum, if she won’t accept help I’m not sure what you can do? Will your mum join something like to give her break such as u3a, Wi or age concern to gain confidence to stand up for herself?

DontWorryMrsBird · 10/08/2023 09:03

@RoseBucket thansk for the suggestion. We did consider that, but he orders all the food deliveries, and does all the online banking etc on the computer. He’s the only one able to do these things, so if we restricted it then there’d be no food and they couldn’t pay bills etc

OP posts:
Hoppinggreen · 10/08/2023 09:06

Havi g been in a similar situation I find the only thing that works is stepping back and waiting for the inevitable crisis.
Its very hard to do that but by supporting you are just delaying what ultimately needs to happen

SerenityNowInsanityLater · 10/08/2023 09:06

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

Wowokthanks · 10/08/2023 09:06

Contact adult social services. See what support can be put into place.

We're in a not too dissimilar situation with FIL 76, who thinks my teenage daughter is my 1yo sons daughter, and his grandson is his nephew, and some days he thinks that MIL is the brother he never got on with. Other days its like none of this has ever happened.

FIL is too always with an ailment. Many of which he genuinely has, others he gains after hearing other people speak of their ills.

I'm going to take MIL to age UK to see what support there is for her as living with FIL is depressing her. She fulfills a lot of caring duties for him. He doesn't really want outside help, or even her help, and he's started to get quite aggressive.

I'm sorry your reality is what it is, Has he had formal dementia testing? I'm unsure what its called...FIL had his quite a while ago when I was less involved in helping to keep him and MILs needs met.

LittleOwl153 · 10/08/2023 09:12

Try and get a lasting power of attorney over both of them. It's dangerous that your mother has no access to money.

Beyond that as early pp said there Is nothing you can do until crisis hits - other than maybe help your mum.

TallulahBetty · 10/08/2023 09:14

LittleOwl153 · 10/08/2023 09:12

Try and get a lasting power of attorney over both of them. It's dangerous that your mother has no access to money.

Beyond that as early pp said there Is nothing you can do until crisis hits - other than maybe help your mum.

Too late for the dad, but get one in place for the mum

Justcallmebebes · 10/08/2023 09:20

TallulahBetty · 10/08/2023 09:14

Too late for the dad, but get one in place for the mum

If dad has capacity, it's not too late and if he handles his own bank accounts etc, then he does

Nevermind31 · 10/08/2023 09:21

Your mum will need to stop doing everything for him and let him know that she now needs support.
and she really needs to have access to the joint money

Heronwatcher · 10/08/2023 09:23

What do you think would happen if your mum developed an ailment and needed to go into respite care for a couple of weeks? Surely he’d need to get help in then. I sort of think that you and your mum might need to stop facilitating him quite so much so he realises his limits. It’d be Sod’s Law that your mum might suddenly pass away before him after having such a miserable time. She shouldn’t have to be doing all of this at her age, it’s completely unfair.

It’s obvious that he has very serious mental health problems and needs help for them though so I appreciate it’s difficult- has he had any help in that respect, like either psychiatric help or medication?

vdbfamily · 10/08/2023 09:23

Can you try and get your mum on board with being honest with him about how things are. She is likely to break first if having to already change sheets at night. She must be exhausted. Explain to her that you are going to have to be boundaried about the support you can give going forward. Explain that she needs to do the same to get him to accept help. She needs to talk to him about how she will access their money if anything happens to him. Have you got a local Carers Support type organisation? Most areas do. They offer advice and emotional support and would be good for you and your mum.

MikeRafone · 10/08/2023 09:30

Get your mum some respite by putting her in a home for a couple of weeks?

Im not sure you'd be able to convince her to do this but sounds like she needs it

Which would then enable your dad to have carers come in and take care of him.

Obviously POA should be sought but whether he would let you is a different matter

TallulahBetty · 10/08/2023 09:31

Justcallmebebes · 10/08/2023 09:20

If dad has capacity, it's not too late and if he handles his own bank accounts etc, then he does

Doesn't read like he has capacity to me.. and sounds like he would refuse to sign a POA anyway. I hope I am wrong.

PollyPut · 10/08/2023 09:32

@DontWorryMrsBird I'm no expert but if you are concerned he's going to lock himself out of his finances then I would think that good advice is to help him get a Power of Attorney form filled out https://www.gov.uk/power-of-attorney if he will agree to it

Make, register or end a lasting power of attorney

How to make a lasting power of attorney (LPA): starting an application online, choosing an attorney, certifying a copy, changing an LPA.

https://www.gov.uk/power-of-attorney

Aquamarine1029 · 10/08/2023 09:33

Have you talked to your father about the fact your mother doesn't have access to money? Is her name on the accounts? Can you be firm and tell him she/you need access to the accounts for when he's not able to manage, in the hopes he might agree?

Marwoodsbigbreak · 10/08/2023 09:35

Honestly I think you have to take a huge step back here.

Your father already has your mother run ragged, and now you are in danger of falling into the same trap. If you back off, eventually your mother will reach the point where she will go against your dad and will accept help.

It's a horrible situation and I really feel for you, but in a way, you are enabling him to continue his reign of terror.

Blossomtoes · 10/08/2023 09:42

Hoppinggreen · 10/08/2023 09:06

Havi g been in a similar situation I find the only thing that works is stepping back and waiting for the inevitable crisis.
Its very hard to do that but by supporting you are just delaying what ultimately needs to happen

This. I’ve been where you are. I just gave the support that would be accepted.

calmcoco · 10/08/2023 09:47

I think you need to take a step back and think what you'd do if they were not your relative, what is objectively right. This is very hard but by keeping helping the situation is not actually improving for any of the three people affected.

Can you speak to adult social services?

He needs proper intervention by the sounds of things.

Elieenmorrigan · 10/08/2023 09:52

You need to seek advice from Social Services OP and hopefully get your dad assessed by a Mental Health Professional.

Notamum12345577 · 10/08/2023 09:56

As others have said, maybe look into power of attorney

noctu · 10/08/2023 10:06

Hoppinggreen · 10/08/2023 09:06

Havi g been in a similar situation I find the only thing that works is stepping back and waiting for the inevitable crisis.
Its very hard to do that but by supporting you are just delaying what ultimately needs to happen

Exactly this. Sounds awful but I found it was the only way that worked

bananaboats · 10/08/2023 10:14

Lots of people mentioning power of attorney but reading your post it doesn't sound like he would be agreeable to that at all. A very difficult situation but try and take a big step back if they don't want to engage with any help I don't think there's much else you can do.

Whataretheodds · 10/08/2023 10:48

Isn't he technically financially abusing your mother by denying her acces to their joint account?

The bank could help with him as a vulnerable customer - extra flags to stop him making large transfers to unknown parties, for example, and extra fraud checks. But you do need to be careful about access for your mother too. If she is a joint account holder the bank can ensure that she can get set up on Internet banking/mobile banking, get a card etc.

Woahtherehoney · 10/08/2023 10:53

I think you need to speak to social services - yes your parents might be angry that you’ve gone behind their backs but I do think it’s your only solution. Or speak to Age UK for advice and see what they recommend - they’re a fab charity and might know of ways to help.

Your Mum and Dad both need help before it is too late and it isn’t fair you have to carry the burden.

Also if you are worried about dementia I recommend the Admiral Nurses from Dementia UK - you can call or email them and they can help provide advice or help you get on the road of setting up practical support.