Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think Carer's Allowance is a fucking disgrace?

339 replies

BoobsOnTheMoon · 27/06/2023 09:03

Not only is it an absolute pittance of £76 a week considering you need to be providing care to a disabled person for at least 35 hours a week to claim it in the first place.

BUT you also can't claim if you earn more than £139 a week.

AND if you claim low income benefits (ie UC), the Carer's Allowance is counted as income and taken off your entitlement £ for £.

It's just so insulting. People giving up their lives and careers to care for a disabled family member deserve better than this.

(Just feeling a bit down about the fact I will probably be poor until I die, even if my disabled child manages to leave home one day I'll be at least 50 by then with no prospects for earning decent money or building any sort of security for my own old age)

OP posts:
SchoolQuestionnaire · 02/07/2023 14:04

nokidshere · 30/06/2023 20:24

Oh and whilst I am ranting, just think about the thousands of children caring for adults before, after, and sometimes instead of, going to school. It's a fucking disgrace.

It is a disgrace. What kind of civilised society allows this?

Cornettoninja · 02/07/2023 14:08

@Babyroobs i bet that attitude is positively an attribute in the kind of role you claim to have.

IClaudine · 02/07/2023 14:09

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

I have never once said people aren't claiming CA fraudulently.

I don't think your clients would be happy to know you are sharing details about them, even anonymously. The detail you gave would be enough for someone to recognise themselves if they were reading this thread.

Babyroobs · 02/07/2023 14:15

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

IClaudine · 02/07/2023 14:21

You can insult me as much as you like @babyroobs. I stand by everything I have said.

Gerrataere · 02/07/2023 15:07

IClaudine · 02/07/2023 14:21

You can insult me as much as you like @babyroobs. I stand by everything I have said.

Could you please answer the post I tagged you in, I’m interested in your reply. Honestly even those who claim CA simply ‘not to look for work’ are in a very small minority. Not just for the reasons I gave in my own post (mostly that it is a non profitable benefit in monetary sense) but the fact that living from CA in itself leaves you in a financially poor position. UC as a system doesn’t work for those who simply refuse to have a job, that’s why the old benefits system was overhauled in the last few years. It makes little sense to claim UC just to add caring to your claim, carers allowance would be wholly deducted and you ‘make’ no money whilst also losing other UC Back to Work initiatives.

JudgeRudy · 02/07/2023 15:26

SchoolQuestionnaire · 02/07/2023 14:00

I'm not against paying Carers Allowance, I just think the cash should go to the patient/service user.

You sound just like those men who seem to think that they can support their dc without actually paying anything to their mother, even though she’s the one who who houses, heats and feeds them.

Carers aren’t trying to scam anyone. They can work a few hours a week, that’s it. They are already struggling to get by and now you are saying that they should be funded from the paltry amount the person they care for receives to live on?

£690 would buy approximately 66 hours of care at minimum wage (that’s just for care, I’m not sure how you expect them to actually live). Carers receive just over £150 for 70 hours. How the fuck can you sit there and argue that they shouldn’t even receive that?

You've not understood. I'm not saying carers shouldn't he paid for the work they do, I'm saying the 'allowance' should be allocated to the person who needs the care. If it was a child it probably would be a parent. I get caring for a disabled child is hard. I'm pretty sure I wouldn't be able or willing to do it, but I don't necessarily think you should be paid to care 24/7...not for sure child however if eg grandma needed 24hr care I would expect someone to be paid to do it. If it was social care then it would be means tested and the recipient would pay. If they can't, (or their partner cant) the state steps in and offers bare minimum. If it's healthcare it hould be free, however i don't think you should becable to choose exactly what you want.

IClaudine · 02/07/2023 15:28

Gerrataere · 02/07/2023 15:07

Could you please answer the post I tagged you in, I’m interested in your reply. Honestly even those who claim CA simply ‘not to look for work’ are in a very small minority. Not just for the reasons I gave in my own post (mostly that it is a non profitable benefit in monetary sense) but the fact that living from CA in itself leaves you in a financially poor position. UC as a system doesn’t work for those who simply refuse to have a job, that’s why the old benefits system was overhauled in the last few years. It makes little sense to claim UC just to add caring to your claim, carers allowance would be wholly deducted and you ‘make’ no money whilst also losing other UC Back to Work initiatives.

Do you mean you want Babyroobs to respond rather than me?

Gerrataere · 02/07/2023 15:32

IClaudine · 02/07/2023 15:28

Do you mean you want Babyroobs to respond rather than me?

No I’m referring to the poor excuse of an apology that I responded to a few posts back.

Gerrataere · 02/07/2023 15:33

Gerrataere · 02/07/2023 15:32

No I’m referring to the poor excuse of an apology that I responded to a few posts back.

@IClaudine ot was meant to tag @Concernedneighbour21 not you, sorry about that, I mixed the two usernames!

IClaudine · 02/07/2023 15:36

JudgeRudy · 02/07/2023 15:26

You've not understood. I'm not saying carers shouldn't he paid for the work they do, I'm saying the 'allowance' should be allocated to the person who needs the care. If it was a child it probably would be a parent. I get caring for a disabled child is hard. I'm pretty sure I wouldn't be able or willing to do it, but I don't necessarily think you should be paid to care 24/7...not for sure child however if eg grandma needed 24hr care I would expect someone to be paid to do it. If it was social care then it would be means tested and the recipient would pay. If they can't, (or their partner cant) the state steps in and offers bare minimum. If it's healthcare it hould be free, however i don't think you should becable to choose exactly what you want.

Paying the allowance to the cared for person, who then pays it to the person who is the carer would be hugely complicated. Not least because the carer would then be employed by the cared for person and all the legal, financial and practical issues that involves would kick in, including paying the minimum wage.

IClaudine · 02/07/2023 15:38

JudgeRudy have you ever been a carer?

IClaudine · 02/07/2023 15:43

if eg grandma needed 24hr care I would expect someone to be paid to do it. If it was social care then it would be means tested and the recipient would pay. If they can't, (or their partner cant) the state steps in and offers bare minimum. If it's healthcare it hould be free, however i don't think you should becable to choose exactly what you want

There is a massive shortage of carers right now. My local council recruit carers from abroad and there still aren't enough. Care homes are closing down too, so the aim is to keep people in their own homes for as long as possible. Unpaid carers are saving the day right now.

JudgeRudy · 02/07/2023 15:49

IClaudine · 02/07/2023 15:38

JudgeRudy have you ever been a carer?

Not fulltime no. I've been an unpaid carer for 2 elderly relatives, a physically disabled friend and a mentally disabled neighbour. I have a relative who's a fulltime carer to an autistic child. She seems to love him but her life revolves around his needs. I'd never be up for that. I know my limitations but she seems to love him very much.

SchoolQuestionnaire · 02/07/2023 15:52

JudgeRudy · 02/07/2023 15:26

You've not understood. I'm not saying carers shouldn't he paid for the work they do, I'm saying the 'allowance' should be allocated to the person who needs the care. If it was a child it probably would be a parent. I get caring for a disabled child is hard. I'm pretty sure I wouldn't be able or willing to do it, but I don't necessarily think you should be paid to care 24/7...not for sure child however if eg grandma needed 24hr care I would expect someone to be paid to do it. If it was social care then it would be means tested and the recipient would pay. If they can't, (or their partner cant) the state steps in and offers bare minimum. If it's healthcare it hould be free, however i don't think you should becable to choose exactly what you want.

Actually I don’t think you have understood.

Carers are not being paid to care 24/7 (although in reality that is what many of them do). Carers allowance is only £76.75 per week. Just to be clear that would only fund under 7.5 hours of care at minimum wage. Tell me again why that already pitiful sum shouldn’t be paid directly to the carer?

To add insult to injury, anyone anyone earning more than £139 a week is exempt from receiving carers allowance, even if they are still providing that care for the required 35 hours as well as working (and saving the taxpayer a fortune to boot).

And who the fuck is choosing ‘exactly what they want’ in this situation? It’s not as though people are refusing exceptional fully funded state care in favour of giving up paid employment and working themselves to death caring for their loved ones with no respite so they can claim the massive sum of £76 a week. It’s a matter of circumstance.

The whole system is an utter disgrace.

JudgeRudy · 02/07/2023 16:07

SchoolQuestionnaire · 02/07/2023 15:52

Actually I don’t think you have understood.

Carers are not being paid to care 24/7 (although in reality that is what many of them do). Carers allowance is only £76.75 per week. Just to be clear that would only fund under 7.5 hours of care at minimum wage. Tell me again why that already pitiful sum shouldn’t be paid directly to the carer?

To add insult to injury, anyone anyone earning more than £139 a week is exempt from receiving carers allowance, even if they are still providing that care for the required 35 hours as well as working (and saving the taxpayer a fortune to boot).

And who the fuck is choosing ‘exactly what they want’ in this situation? It’s not as though people are refusing exceptional fully funded state care in favour of giving up paid employment and working themselves to death caring for their loved ones with no respite so they can claim the massive sum of £76 a week. It’s a matter of circumstance.

The whole system is an utter disgrace.

I don't think carers get paid to do 24/7 care. I don't think most do that. I mean, you'll have to eat and sleep. Yes I know many parents to disabled kids continue to be responsible 24/7 for far longer than parents of normal kids...often until they are 18.
I know how much CA is. I've already said why it shouldn't be paid directly to a carer with no auditing...because you would be effectively employed by the statecand should be accountable. A carer should be an employee of the cared for person or of the state, the same as a nurse or teacher.
I think if you become a parent there's an expectation that you will be responsible for your child till adulthood. If they're disabled that will require more input. It's tough, yes.
I don't think the majority of cared for people 'chose' their care package. I never implied they did. I was considering eg someone wanting carers to bath them rather than assist them to shower, or wanting their home adapted a specific way because they don't want to move, that sort of thing. Again, for clarification, I don't believe the majority of disabled people get this at all.

IClaudine · 02/07/2023 16:47

This reply has been withdrawn

This message has been withdrawn at the poster's request

SchoolQuestionnaire · 02/07/2023 17:07

JudgeRudy · 02/07/2023 16:07

I don't think carers get paid to do 24/7 care. I don't think most do that. I mean, you'll have to eat and sleep. Yes I know many parents to disabled kids continue to be responsible 24/7 for far longer than parents of normal kids...often until they are 18.
I know how much CA is. I've already said why it shouldn't be paid directly to a carer with no auditing...because you would be effectively employed by the statecand should be accountable. A carer should be an employee of the cared for person or of the state, the same as a nurse or teacher.
I think if you become a parent there's an expectation that you will be responsible for your child till adulthood. If they're disabled that will require more input. It's tough, yes.
I don't think the majority of cared for people 'chose' their care package. I never implied they did. I was considering eg someone wanting carers to bath them rather than assist them to shower, or wanting their home adapted a specific way because they don't want to move, that sort of thing. Again, for clarification, I don't believe the majority of disabled people get this at all.

I have to disagree. Caring is not a part time role, in spite of the fact that some people manage to fit paid employment around it. Of course parents should be and are responsible for their dc until adulthood, but having a child with a disability, illness or other additional needs is far more demanding than just parenting. I would argue that it’s very unfair to conflate the two. I’m a parent and I can’t imagine how difficult it most be to be a carer as well as a mum.

I know how much CA is. I've already said why it shouldn't be paid directly to a carer with no auditing...because you would be effectively employed by the statecand should be accountable. A carer should be an employee of the cared for person or of the state, the same as a nurse or teacher.

I mean, carers allowance is currently paid directly to the carer and I don’t know if carers are accountable as you put it or not. In fairness, if carers were seen as ‘employees’ of either the state or the person they care for then we would actually have to pay them the minimum wage. We’d also have to look at the legalities of having children ‘employed’ as carers within their own families. Perhaps your idea isn’t the worst as it might mean the government actually has to invest some proper funding into this rather the pitiful token amount they give to carers now.

Alltheclogs · 02/07/2023 17:13

Babyroobs · 02/07/2023 13:30

I have had a client ask me recently if her daughter could claim carers allowance for her so that she didn't have to look for work on UC. Daughter did not provide 35 hours of care a week because client's husband was her main carer but couldn't claim carers allowance because of being state pension age. daughter wanted to claim it and in fact could do because no-one checks up how much caring is being done, and it would have got her out of any work commitments on UC. Of course it would have been a fraudulent claim, but anyone could say they were checking up on relatives etc frequently. I'm not saying it happens frequently but it does happen.

Did they live in the same house? Is she provide any care? My dad and I share my mums care, I claim CA because he is pensionable age.

This issue should be solved by the dad being able to get ca as well as his pension. The state should be paying CA to someone for caring for this woman.

Sirzy · 02/07/2023 17:15

For a child to be in a position where a parent can claim carers allowance they have been shown to need care above and beyond that of a typically developing (I hate that phrase) peer.

ds is 13, because of his needs a full nights sleep is impossible. He is tube fed so that means getting up at least once (realistically 3-5 times) a night, add to that his struggles to sleep. That is way above the norm for his age. I sleep with one ear open all the time.

that’s just one example, and Ds needs are nowhere near as significant as many are dealing with.

sadly when you become a parent carer it often becomes more about the carer side and the “normal” parenting stuff becomes a thing of the past.

Alltheclogs · 02/07/2023 17:17

IClaudine · 02/07/2023 13:45

Alltheclogs I thought you could still get CA if you or the person you care for goes on a short holiday?

You can once you have been getting caters allowence for a certain amount of time- I think you build up one week of paid holiday per year you have been claiming, up to a maximum of 5 weeks. So I could now (after 10 years) have 5 weeks of paid CA while she was away. The fine happened when I’d only been caring for a few months.

IClaudine · 02/07/2023 17:20

Thanks Alltheclogs, that is useful to know.

Alltheclogs · 02/07/2023 17:34

@JudgeRudy

I know how much CA is. I've already said why it shouldn't be paid directly to a carer with no auditing...because you would be effectively employed by the statecand should be accountable.

… by this logic all parents who get child benefit are effectively employees of the state- they all get a benefit paid directly to them for doing and providing things you could argue they should do and provide anyway.

Also, carers are accountable in the same way parents are- doctors/day centres/police/neighbours/friends can all refer people they feel are being neglected or abused by their carer in the same way they can about children.

Sirzy · 02/07/2023 17:41

If I was paid minimum wage for the 35 hours (ha!) care a week then I would be willing to be accountable for those hours, assuming it also came with the normal employment rights including holidays. Until that point I will report to nobody!

HerVagestyTheQueef · 03/07/2023 01:41

Sirzy · 02/07/2023 17:41

If I was paid minimum wage for the 35 hours (ha!) care a week then I would be willing to be accountable for those hours, assuming it also came with the normal employment rights including holidays. Until that point I will report to nobody!

So much this ^^

Along with this:

In fairness, if carers were seen as ‘employees’ of either the state or the person they care for then we would actually have to pay them the minimum wage.