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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Epley maneuver - just done it and feel SO MUCH WORSE any advice?

76 replies

Laiste · 04/04/2023 11:26

Posting here for traffic.

Had mild vertigo for 3 days.
Doc said do Epley. Said google it and do it at home - i don't want you to do it here in my surgery ...

Did it half an hour ago here at home and i feel like i'm about 300 percent worse!

It's taken me ages to type this

I feel like i can't move my head at all without wanting to throw up. Is this right??? Is it going to go away?

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massivenamechnage · 04/04/2023 12:57

Ireallycantthinkofagoodone · 04/04/2023 12:50

Of course you can! I have had three bouts of BPPV over the past 20 or so years, and have always managed by myself. You have been conned!

The point is that i do treat it myself but that doesnt always work quickly. 100% fixed in 20 mins at the hospital . £250 very well spent.

the consultant is amazing. They also did vision hearing and brain scans initially. It is frequently misdiagnosed including a friend who actually had a brain tumour but was fobbed off with bppv for ages

Villagetoraiseachild · 04/04/2023 13:10

This is so interesting, thanks for posting Op.
I had a weird dizzy sensation on and off over a few days recently and wondered if I had labyrinthitis, based on friends symptoms years ago.
As I was home alone I googled this and if any pressure point would help.
Apparently there is a point at/by the back of the ear lobe that you press for two minutes then release. I tried it, made me salivate quite a bit and the problem was gone.
So, just wondering here if acupuncture/ shiatsu/self shiatsu could be useful for these conditions.
(Not a doctor or acupuncturist.)

Laiste · 04/04/2023 13:12

Agree with the falling worry massivenamechnage. I felt as if i was going to fall down the stairs earlier after doing it.

Just been up and about making DDs sandwiches and taking washing out of the machine and i've managed with a bit of swerving about and clipping door frames. Nausea gone now.

I've chickened out of doing any more maneuvers as it's taken me 2 hours to get to here.

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QueenBeaver · 04/04/2023 13:12

That’s such a shame, it worked for my husband.

Laiste · 04/04/2023 13:14

Villagetoraiseachild · 04/04/2023 13:10

This is so interesting, thanks for posting Op.
I had a weird dizzy sensation on and off over a few days recently and wondered if I had labyrinthitis, based on friends symptoms years ago.
As I was home alone I googled this and if any pressure point would help.
Apparently there is a point at/by the back of the ear lobe that you press for two minutes then release. I tried it, made me salivate quite a bit and the problem was gone.
So, just wondering here if acupuncture/ shiatsu/self shiatsu could be useful for these conditions.
(Not a doctor or acupuncturist.)

Googling ....

i would believe this as i can ease even a bad headache by pressing a point on your hand.

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Viviennemary · 04/04/2023 13:14

That manoeuvre made me vilently sick. GP should have given you tablets. Cured my vertjgo quite quickly.,

MuddledMindy · 04/04/2023 13:19

Completely normal to feel weird / worse after Epley
Your symptoms should settle soon, just relax as much as you can.
If not then it may need repeating, get someone to help you though.

massivenamechnage · 04/04/2023 13:21

Viviennemary · 04/04/2023 13:14

That manoeuvre made me vilently sick. GP should have given you tablets. Cured my vertjgo quite quickly.,

Bppv?

Laiste · 04/04/2023 13:23

MuddledMindy · 04/04/2023 13:19

Completely normal to feel weird / worse after Epley
Your symptoms should settle soon, just relax as much as you can.
If not then it may need repeating, get someone to help you though.

Thank you :)

My 8 year old was 'helping' Hmm

ie: laughing at my flicky eyes and saying - can you do this? can you do this! While standing on one leg ect. as i was shuffling along using the wall to keep me straight ...

No DD, i bloody can't! 😂

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Laiste · 04/04/2023 13:25

The press behind the ear thing:

It's helped a little i think! With the left to right head movement dizziness (which i didn't have before Epley).

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AveragePerson5 · 04/04/2023 13:27

I can never work out which side I have it on so I do the manoeuvre very carefully and thoroughly for both sides. Always works for me. Get up slowly after doing it.

Nimbostratus100 · 04/04/2023 13:28

Laiste · 04/04/2023 13:23

Thank you :)

My 8 year old was 'helping' Hmm

ie: laughing at my flicky eyes and saying - can you do this? can you do this! While standing on one leg ect. as i was shuffling along using the wall to keep me straight ...

No DD, i bloody can't! 😂

can your child describe to you which eye is flicking most? reliabley?

christmascalypso · 04/04/2023 13:28

I have labyrinthitis according to GP - given tablets and a printout showing this manoeuvre to do at home! I felt so bad doing it I had to stop half way through. Slowly feeling better on the tablets. Told ear drums were a bit 'bulging' also and this meant viral labyrinthitis. Should I have been told to do the Epley manoeuvre with viral labyrinthitis?

AveragePerson5 · 04/04/2023 13:28

That’s not medically qualified advice of course but I have to do it every couple of years and it’s never not worked yet.

GidgetGirl · 04/04/2023 14:34

Ireallycantthinkofagoodone · 04/04/2023 12:50

Of course you can! I have had three bouts of BPPV over the past 20 or so years, and have always managed by myself. You have been conned!

Ridiculous thing to say. Do you not understand that there are huge variations in type and severity of any illness? With a bit of luck very simple and relatively mild single-sided BPPV can sometimes be cured at home if you know which side it’s on (or just guess correctly). But that’s always going to be a gamble.

I had complex double-sided BPPV that needed very careful treatment. The problem is if it’s done incorrectly, there’s a distinct possibility you will inadvertently move the crystals into a narrower portion of the inner ear, where they’ll get stuck. That’s exactly what happened to a friend of mine when she tried the DIY approach. When that happens it causes a massive and severe increase in symptoms and is much, much harder to correct. There isn’t enough fluid in the smaller section of your inner ear so without treatment you’re stuck with it for a long time - the vertigo is extremely intense and is triggered by only the most minute of head movements.

My otherwise young and fit pal had it so bad she had to be wheeled in to see the consultant in a wheelchair because she couldn’t even stand.

Laiste · 04/04/2023 15:15

Sorry - been being Harry Potter with DD and her dolls. (vertigo hasn't got me out of the dreaded roll playing)

GidgetGirl making it worse is exactly what i'm afraid of yes. That and the feeling worse aftermath. Awful. I can see that over the last 4 days i have quite a mild version of it having read some of the posts here and from how bad i felt after Epley. ''A bit dizzy'' doesn't cover the awful nauseous room spinning staggering level of it about at all.

Nimbostratus100 DD probably would be able to tell which eye was flicking more, but i'm very reluctant to do it again 😳

OP posts:
Kissedbyfire1 · 04/04/2023 15:20

BatsHaveButtcheeks · 04/04/2023 12:46

Another option is to see an osteopath (structural) who can perform the epley.
I've also seen many patients with BPPV respond well to cranial osteopathy.

Was coming on to say this. An osteopath will be able to fix it for you and likely in a single visit. Where we are, osteopath fees are around £60 per session.

comeondover · 04/04/2023 15:47

@massivenamechnage Yikes, so how do you know for sure it's BPPV and not a brain tumour, without a scan? Are there symptom differences?

Sunnysunbun · 04/04/2023 15:56

Where are you based? The Hearing and Balance centre in London is brilliant. I saw a specialist physio.
You need a specialist.

Chooksnroses · 04/04/2023 16:28

The consultant told me that the best way to stop an attack was to lie flat on your back, no pillow, looking directly upward until the spinning stops. Now works in less than two minutes.

massivenamechnage · 04/04/2023 16:34

comeondover · 04/04/2023 15:47

@massivenamechnage Yikes, so how do you know for sure it's BPPV and not a brain tumour, without a scan? Are there symptom differences?

Well i kept saying to my friend that her symptoms were nothing like mine as she had headaches.

we were out with a go friend who insisted that she must insist on a referral

oddly the same gp also ‘diagnosed ‘ a dad on the playground with a brain tumour based largely on how he moved, his speech and him saying he felt a bit shit

massivenamechnage · 04/04/2023 16:35

Gp friend

Therandomtrekker1 · 04/04/2023 17:00

I had eplay from my nhs doctor about three years ago.
Had to sleep in a chair for three nights afterwards or it doesn’t work properly apparently.
It didn’t cure it but improved it from months at a time where I couldn’t even go for a walk without nearly falling over ,
to days and with the tablets ( steric 16 or something similar) as well it really helped.
I recently had another ear abscess in the same ear that causes the problem ( originally an ear abscess 20 years ago) and was considering doing it again as I couldn’t lie down without it affecting me but got through the worst so leaving it for now.
hopefully it will improve for you too.

dew141 · 04/04/2023 17:23

I feel for you, it's hideous. I went to see a consultant who tried that manoeuvre but it didn't work (he did say beforehand that it might or might not).

The manoeuvres look doable until you actually have vertigo and any quick movement makes you want to chuck up. Mine did diminish over a fortnight or so, but lingered for a bit longer when I first laid down in bed.

The driving ban is news to me, I drove once I felt able (and it wasn't mentioned by my consultant either). Vertigo is quite common so I suspect not many people know about, or comply with, a six month driving ban.

Laiste · 05/04/2023 07:58

Thanks to you all Flowers

Update and for info - i woke up in the night for a wee and was half way back to bed before i realised i hadn't bumped into any door frames or felt like i was going to pitch head first down the loo when i lifted the lid!

This morning there's still a bit of woolly headedness and slippage when i look up or down too quick, like when you're just a tad hung over, but <fingers crossed> i think i'm on the mend.

Sooooo weather or not it was the Maneuver (which would have been roughly 12 hours before than the feeling better night time wee) i don't know.

I didn't do anything else other than the ear pressure point.

This has been 5 days from when it started.

Good luck to anyone struggling with this right now or who finds this thread in the future x

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