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Every parent's worst nightmare - please help

383 replies

Rosieted · 02/04/2023 11:36

Twelve weeks ago my cousin's daughter was a healthy and happy 10 year old, enjoying a sleepover for her birthday and dancing with her friends way past her bedtime. Then all of a sudden, just after Christmas, her parents noticed strange bruising on her body. They didn't think it was anything serious but took her to her GP who ran her bloods. When the results came back everyone was in shock - they showed that her bone marrow had suddenly stopped working and after various tests she was diagnosed with a very rare and incredibly serious blood condition called aplastic anemia.

She is now in hospital having regular transfusions of red blood cells and platelets which are keeping her alive. In order to be cured she needs a stem cell transplant, and fast.

Her brother sadly isn't a match. Nor is anyone currently on the stem cell donor registry. My beautiful relative is now very poorly in hospital and is reliant on a total stranger to do something amazing and donate some of their stem cells to save her life.

I had no idea, but 90% of stem cell donations are taken from a donor's blood in much the same way as giving blood - it's pretty simple, yet it could save someone's life.

If you are reading this, please could you consider joining the donor stem cell registry. You could be the match that my god daughter needs. A group of her friends have set up a campaign called #swabyourgob and you can sign up to join the registry by ordering your free mouth swab kit from www.dkms.org.uk/swabyourgob

Even if you are not a match for her, you could be for the many people each year who need the kindness of a total stranger to save their lives.

Thank you so much for reading x

Register as a potential donor

To become a potential blood stem cell donor, just check your eligibility and request a swab kit.

http://www.dkms.org.uk/swabyourgob

OP posts:
OrchardBlack · 02/04/2023 11:39

I'm already a donor (never had 'the call up' though) but I'm sending all my love and thoughts to your family and hoping for a positive outcome for you all. 💐

Coxspurplepippin · 02/04/2023 11:42

Too old, sadly but bumping for the spring chickens and wishing your relative a speedy, successful outcome.

goldenotter · 02/04/2023 11:44

i've just signed up for a swab pack!

Handsnotwands · 02/04/2023 11:52

We did this years back when another mnetter highlighted the register

wishing your relative all the best. And I hope lots of other people see this and sign up

thismeansnothing · 02/04/2023 11:53

I've registered.

I thought having had a blood transfusion I wouldn't be eligible (like blood donation which I used to do regularly) but apparently this isnt the case.

Jellycatspyjamas · 02/04/2023 11:59

I’ve just registered I hope your god daughter gets the donor and treatment she needs.

granddadtumble · 02/04/2023 12:00

I've experienced first hand seeing your children suffer and it's awful.

I've registered.

I really hope she finds a match

NewLifter · 02/04/2023 12:01

I registered many years ago, but haven't been contacted for donation as yet. I hope you find a match soon Flowers

Sosbanfachtheresatellyinmybath · 02/04/2023 12:02

I'm already a donor but your post has just prompted me to change my address and phone number with them. I hope a donor is found soon 🙏

WildAloofRebel · 02/04/2023 12:04

Oh I’m sorry. How stressful.

Im already on the register and I can’t donate blood. So it’s a really good and much needed alternative for those who would like to donate blood but can’t.

WildAloofRebel · 02/04/2023 12:04

(Obviously I don’t mean it’s an alternative to a blood transfusion)

whiteroseredrose · 02/04/2023 12:07

I'm already registered. Really hope they find a match quickly

fuckwhatshouldido · 02/04/2023 12:08

I’ve just signed up for a swab pack. I’m so sorry for your cousin’s little girl and I hope she gets her stem cell match soon. My (nearly) 5yo was diagnosed with leukaemia when she was 3; thankfully frontline chemo worked but if it hadn’t or if she relapses, a bone marrow transplant using bone marrow stem cells is the next step of treatment. It’s such an important thing and I’m glad you’ve brought it into people’s awareness OP 💐

Toddlerteaplease · 02/04/2023 12:08

They won't have me on the register. I've tried. Really hope a match is found quickly.

Lolacat1234 · 02/04/2023 12:11

I've been on the register for about 10 years but never had a call up - I'd be too old to join now but does anyone know if I can still be called up or do you have to be under a certain age?

I'm so sorry to hear about your cousins daughter, wishing her a suitable donor to appear xxx

ChristmasSirens · 02/04/2023 12:16

Signed up.

Eatentoomanyroses · 02/04/2023 12:16

I’ve just registered for a pack

GettingStuffed · 02/04/2023 12:16

I'm too old

Penfold1635 · 02/04/2023 12:19

Just registered. So sorry to hear what your cousins daughter is going through

ohsuzannah · 02/04/2023 12:25

Too old 😐

FfeminyddCymraeg · 02/04/2023 12:27

I’m already on the register and would always be happy to donate if ever called upon.

I hope a match is found soon for her ❤️

BellePeppa · 02/04/2023 12:33

Fingers crossed your god daughter gets a match. I’ve looked up the requirements and I don’t qualify but hopefully you will get lots more signed up. 🤞

CiderJolly · 02/04/2023 12:36

Already on the register but bumping and I hope they find a match soon.

Twinedpeaks · 02/04/2023 12:36

I had no idea it was so easy to give stem cells, thanks for spreading awareness!

Justme10 · 02/04/2023 12:37

I just registered for a pack, I assumed because I can't give blood (blood transfusion) I wouldn't be able to. Very happy to see that's not the case.