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Every parent's worst nightmare - please help

383 replies

Rosieted · 02/04/2023 11:36

Twelve weeks ago my cousin's daughter was a healthy and happy 10 year old, enjoying a sleepover for her birthday and dancing with her friends way past her bedtime. Then all of a sudden, just after Christmas, her parents noticed strange bruising on her body. They didn't think it was anything serious but took her to her GP who ran her bloods. When the results came back everyone was in shock - they showed that her bone marrow had suddenly stopped working and after various tests she was diagnosed with a very rare and incredibly serious blood condition called aplastic anemia.

She is now in hospital having regular transfusions of red blood cells and platelets which are keeping her alive. In order to be cured she needs a stem cell transplant, and fast.

Her brother sadly isn't a match. Nor is anyone currently on the stem cell donor registry. My beautiful relative is now very poorly in hospital and is reliant on a total stranger to do something amazing and donate some of their stem cells to save her life.

I had no idea, but 90% of stem cell donations are taken from a donor's blood in much the same way as giving blood - it's pretty simple, yet it could save someone's life.

If you are reading this, please could you consider joining the donor stem cell registry. You could be the match that my god daughter needs. A group of her friends have set up a campaign called #swabyourgob and you can sign up to join the registry by ordering your free mouth swab kit from www.dkms.org.uk/swabyourgob

Even if you are not a match for her, you could be for the many people each year who need the kindness of a total stranger to save their lives.

Thank you so much for reading x

Register as a potential donor

To become a potential blood stem cell donor, just check your eligibility and request a swab kit.

http://www.dkms.org.uk/swabyourgob

OP posts:
RandomMess · 21/04/2023 19:32

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T1Dmama · 21/04/2023 20:58

Rollerboots · 16/04/2023 00:19

I’ve been on the DKMS register for 8 years. Had pretty much forgotten about it, but I got a call to say I was a match. I was one of three possibilities, after some more blood tests I wasn’t the best match, so another donor got to donate instead. Sad I couldn’t help, but happy another was a good match .
My sons 10 year old friend is recovering from Aplastic Anaemia, after initially not having a match available, they were able to find one . He is doing great. Wishing your god daughter a similar outcome.

❤️

RandomMess · 21/04/2023 21:33

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Workinghardeveryday · 22/04/2023 08:49

We haven’t received our pack either, ordered about 2 weeks ago

CoffeeLover90 · 22/04/2023 09:10

Workinghardeveryday · 22/04/2023 08:49

We haven’t received our pack either, ordered about 2 weeks ago

It take a little while for mine to arrive, maybe give it a week before contacting them to chase it up?
It also took a few days for them to confirm they'd received my swabs.

SphincterSaysWhat · 22/04/2023 09:12

My friend has just gone through the same thing with her DD. Her brother is a match, but after lots of treatment, she seems to be making red blood cells herself now (I forget the extract term, but she's mending herself). So there is hope, even without a donor.

Sending my very best wishes for her safe recovery, no matter how it happens. X

RandomMess · 22/04/2023 10:04

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Ukrainebaby23 · 22/04/2023 12:01

This is important, for everyone who needs a donor.
Great news about the recent post where DC us starting recovery on her uwn.

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