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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

That the hospital appointment I have been waiting for since January, set for end of November has now been cancelled and is now

59 replies

Maggiesgirl · 20/09/2022 10:32

AUGUST 2023!

I've phoned to try and get it changed to be told its not possible.

So that will be 20 months since my Dr decided I needed to see a Neurologist before I actually will see one

OP posts:
Pinkpeony2 · 20/09/2022 15:00

Generally if you live in the SE you will get seen quicker. More people, more crowding but far more resources which is why so many choose to live here.
I have at least 6 large hospitals within an hours drive of me. Probably more if I looked it up.
Can you not travel further afield and see if there is any appointments to be had nearer London / SE by contacting your MP?

jane1956 · 20/09/2022 15:00

think they want us all to go private!!!!

ThisisCollie2022 · 20/09/2022 15:01

DH wants to move away so we have more access to more hospitals and have more choice regarding our care and needs 😞

We're contemplating SE.

SleeplessInEngland · 20/09/2022 15:02

12 years of tories. Boring answer, I know, but the NHS is political whether we like it or not.

Original poster
Maggiesgirl · 20/09/2022 15:56

@ThisisCollie2022 no Salisbury. I have asked for Bristol or Southampton but have been told the wait will be even longer as I will have to start at the back ofvthe queue.

OP posts:
TheWitchersWife · 20/09/2022 15:57

DS has been waiting to see a paediatrician for 3 years.
We have managed 2 phone calls in that time, 1 who has now left the profession and was unhelpful, then a massive wait while a new paediatrician was appointed to him.
New paediatrician spent 10 minutes on the phone last September talking over me and telling me not to rush toilet training, which isn't even what the problem is.
I have chased up new appointments or if anyone is actually going to meet him in person to get emails and phone calls telling me there are thousands of people in the same position in the Borough and I've just got to wait as long as it takes.
There's not even an estimated wait time.

aldilemonade · 20/09/2022 16:22

My son was waiting 2 and a half years to see an orthopaedic surgeon and when we got to see him we were told he needed to see a paediatric orthopaedic surgeon
so now we are waiting again.

IncessantNameChanger · 20/09/2022 16:32

My mum was told she's got 9 month wait to see a neurologist about likely parkinsons. I think if you can, it worth thinking about private. Totally unfair. My gp service has really deteriorated as well. If its urgent you end up in A&E, but you avoid having a crisis in A&E I have no idea

Nidan2Sandan · 20/09/2022 16:45

My son waited 18 months for an "urgent" ENT appt. We were supposed to be seen again 3 months later, it's been almost a year............I'm told I'll get a letter.

MrsCarson · 20/09/2022 16:53

I'm waiting for a Neurologist appointment. I got a letter saying they will send me an appointment. I'm not urgent as I did see a Neurologist back in the year 2000 and have medication that is working I just need to use it too often apparently. So I doubt I'll get an appointment any time soon. I won't hold my breath.

nellytheelephant1980 · 20/09/2022 16:55

This is appalling. But don't forget we have to clap for the NHS and say how lucky we are to have it. I work for it and I'm disgusted by the way we treat people these days

polmnlj · 20/09/2022 16:56

I guess you need to end up so bad that you are hospitalised. Mil ended up hospital and had all sorts of scans and medication started within two weeks.

BlindGirlMcSqueaky · 20/09/2022 16:57

PastMyBestBeforeDate · 20/09/2022 14:50

I had a phone call with my gastro consultant last week. Three years after my urgent referral was made.

I've finally got a telephone appointment for next month, although I predict that to be useless. Been waiting over two years with D&V every single day. Been in hospital with severe dehydration a few times. No one cares. Literally had doctors step over me while I'm puking on the floor of A&E.

Hoppinggreen · 20/09/2022 16:58

IncessantNameChanger · 20/09/2022 16:32

My mum was told she's got 9 month wait to see a neurologist about likely parkinsons. I think if you can, it worth thinking about private. Totally unfair. My gp service has really deteriorated as well. If its urgent you end up in A&E, but you avoid having a crisis in A&E I have no idea

My Mum also has Parkinson’s.
She really needs her meds checked and probably adjusted but nobody will do it until she’s seen a Neuro. She has been trying to see one for 2 years but appointments keep getting cancelled. We looked into going Private but couldn’t find one close enough as she’s 80 and not well enough for a long journey.
I actually think she will die before she sees one

BeyondApproach · 20/09/2022 17:01

BlindGirlMcSqueaky · 20/09/2022 16:57

I've finally got a telephone appointment for next month, although I predict that to be useless. Been waiting over two years with D&V every single day. Been in hospital with severe dehydration a few times. No one cares. Literally had doctors step over me while I'm puking on the floor of A&E.

Show quote history

Oh my God that's fucking awful. I don't know what the hell is going on in hospitals or GP practices. It's like GPs don't fucking treat anything anymore? They're triage! My first physio appointment last year was on the telephone. 😁

KermitlovesKeyLimePie · 20/09/2022 17:05

I saw my GP on Tuesday. Had an appointment with a Consultant on Saturday afternoon.

I am having an ultra-sound scan this week and the operation next week.

In my case my NHS trust have been brilliant.

NursieBernard · 20/09/2022 17:06

I don't want to appear insensitive but I just wanted to give the other side. My DH was referred by his GP to see a neurologist and was seen within 3 weeks, it was sent as an urgent referral by his GP. Can you get your GP to chase your referral with an urgent referral?

carefullycourageous · 20/09/2022 17:07

Fucking hell! Sorry OP Flowers

What a shit government we have. At least they are prioritising bankers' bonuses, that's the main thing Angry

BruceHellerAlmighty · 20/09/2022 17:12

It's a fucking joke.

UghNoTime · 20/09/2022 17:16

I was originally told I'd have to wait well over a year but I said I was happy to travel and got the appointment down to 3 months. It was a cancellation and it was just luck that I got it. On route to the appointment I got a phone call saying it was cancelled but luckily the nurse calling me took pity on me as I'd driven over an hour and a half to get there and gave me another appointment that had just popped up while she was on the phone to me. Someone had cancelled their appointment as they had Covid. It was only an hour later than my original one.

Then I saw a private neurologist and that took almost three months and even then it was a last minute cancellation.

I think there is just a shortage of neurologists.

ILoveAllRainbowsx · 20/09/2022 17:25

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

ThisisCollie2022 · 20/09/2022 17:30

Thank you @ILoveAllRainbowsx such great advice. I might do that!

Re: my GP - he's a bit odd at times. He told me he won't refer me to a private neurologist because we have to use the NHS or lose it.

WeKnowFrogsGoShaLaLaLaLa · 20/09/2022 17:31

I had my 'urgent' neurosurgeon appointment today - it was requested in July 2021 following a brain scan.....

He didn't have access to my scans so couldn't proceed.

An absolute wasteful mess.

IncessantNameChanger · 20/09/2022 17:31

Hoppinggreen · 20/09/2022 16:58

My Mum also has Parkinson’s.
She really needs her meds checked and probably adjusted but nobody will do it until she’s seen a Neuro. She has been trying to see one for 2 years but appointments keep getting cancelled. We looked into going Private but couldn’t find one close enough as she’s 80 and not well enough for a long journey.
I actually think she will die before she sees one

Show quote history

I have asked my mum.if she will consider going private, she won't. I'm sure she could complain. I have complained on my mum's behalf before when she had a MRI and no one checked the images. I was told that she would get the results and it was in a 'in tray' to be looked at, but she told me recently she never got them. Mum is the kind of person who needs LPA but she's never agree to it.

My mum will have another fall before she gets a diagnosis. I have told mum but it falls on deaf ears. Not sure my mum wants to know what's going on.

I however saw a neurologist and had two mris with about a six week wait

hamustro · 20/09/2022 18:03

I'm not really sure what the situation is with neurologists but they seem a bit thin on the ground at the moment. We finally got one an appointment after a year, including cancellation and rescheduling. I called a few private hospitals and was told it would be a 2-3 month wait for an appointment with a consultant neurologist even if we went private. SW here too.