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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this may need more urgent attention now?? Medical issue

216 replies

Issue33 · 29/04/2022 20:11

DH is worrying me a bit. He's had a skin issue now for around 2 months. It's like his skin is on fire and it's getting worse. It's itchy all over, he said feels like things crawling over him and he has cracked and scabbed skin in large patches on his arms, legs, tummy and back.

He's been to the doctors twice who keep saying it's eczema (I've got eczema and it looks absolutely nothing like it but I appreciate I'm no doctor!).

He's tried steroid creams, steroid tablets, antibiotics... Nothing is touching it.

He's so miserable tonight, says he feels like he's burning everywhere (he doesn't have a temp though I checked).

Would I be unreasonable to suggest he gets this looked at more urgently now? Maybe even A&E? 111?! Anything! Or do we trust the GP that it's "just" eczema?

OP posts:
UnshakenNeedsStirring · 30/04/2022 19:32

Sounds like scabies. Organic neem oil will help.

Graphista · 30/04/2022 19:33

This sounds very similar to what I was dealing with a couple years ago.

GPS kept saying eczema exacerbated by my being fat (pissed off how much they blame EVERYTHING on being fat!)

During lockdown I finally spoke with a gp that didn't know me on a telephone appointment so he couldn't see/didn't know I was fat. FINALLY got a correct diagnosis -

Intertrigo

It's a weird "dry skin" condition that is actually made much worse by the usual treatments for dry skin (warmth, moisture) as in it needs drying out even further and cooled down. I got the right treatment/advice and within just a few days after suffering so badly for months I'd been in tears with the pain (which felt very much like a burn/scald in the affected areas) I was doing and feeling so much better.

Pisses me off too when gps make a wrong diagnosis and won't reconsider when the treatment clearly isn't working!

You cannot correctly treat anything without an accurate diagnosis

They also seem to put almost EVERY skin issue down to eczema

He's asked about a referral. They seem reluctant

This is because it financially disadvantages gps. They are not part of the nhs they are private sub contractors effectively

A lovely mner advised me recently that apparently what may help motivate getting a referral is when they refuse requests that they record that the patient asked and was refused! I haven't tried it myself yet but I plan to when it's next an issue

I have endo which went undiagnosed for 14 years due to gps fobbing me off and lost 3 babies likely as a result and had other serious issues too. When it was diagnosed via surgery following a mc the surgeon actually told me off for not pursuing a diagnosis! I told her I had bloody tried and not been able to get a referral! She was disgusted at that.

Dd has a genetic disability which again we were fobbed off for many years. Then during an especially bad flare up when I had planned to really push for a referral anyway we happened to see a locum (no financial interest in the practice) she looked at dd with genuine care, checked the history of the issues we had reported noticed some other stuff we didn't realise was linked and referred to specialist. Specialist took one look at dd and knew what was wrong confirmed by various tests. She too was angry and disgusted at how much we were fobbed off...but said it was sadly not uncommon she was quite used to seeing patients where that had been the case. With some patients this meant they ended up wheelchair bound when this could have been avoided or at least delayed.

Just for some temporary relief I would recommend Vaseline.

Sorry but without a dx it's unwise to recommend treatment.

Have you compared it to any rash photos online?

This could be useful.

Once I got my diagnosis I looked up the condition for tips and the images that came up were spot on.

Just in case you haven't considered this has he changed any products he uses that touch his skin or have any got "new improved formula" nonsense going on?

This includes but not limited to:

Laundry detergent
Fabric conditioner,
Cleaning products you use for the bath/shower

The obvious culprits :

Shower gel
Shampoo
Deodorant
Aftershave

Type things

I'm allergic to all fabric conditioner and stain removers and can only use non bio detergent.

Years back I mistakenly picked up a bio detergent and used it (packaging design had changed) have you seen that episode of the Big Bang theory with Leonard and the itchy jumper?

That was me after this incident! Wore a high neck jumper washed in the stuff agony for days!

You can also develop allergies to things you've been fine with for years! Happens to me all the bloody time!

He has been assessed by a doctor and there is nothing urgent or life threatening.

You can't know that Drs make mistakes all the time

A&E doctors will have less experience with dermatology than the GP

Not always

To think this may need more urgent attention now?? Medical issue
shaggiedogz · 30/04/2022 19:34

Hi I’m sorry to hear your husband is suffering. It sounds like he needs to seek urgent advice from another Dr preferable a dermatologist. It sounds like it could be a form of psoriasis. ( I have chronic psoriasis for 30 years ) in the meantime, I suggest he keeps his skin moisturised with something like Epaderm or Hydromol ointment, to stop drying out. Also after bathing bad him self dry not rub with the towel. Best not to use any scented products. Over counter antihistamines should help, and I’d he’s feeling burning I’d try laying cool packs on the skin. Do the lesions look raised, have a silvery / white scale or bleed if slightly rubbed? All signs of psoriasis but there are many treatments. Wishing him all the best. ( I hope it’s ok to private message )

sleepymum50 · 30/04/2022 19:36

I had an unidentified rash a couple of years ago. Mostly on arms and legs and unbelievably itchy. GP prescribed creams etc. The only thing that helped was cold gel packs and cold flannels. At least I could get a bit of sleep.

i feel for your husband, it was a truly miserable time. It went after a while. No idea what it was.

TheGoogleMum · 30/04/2022 19:37

I'd do a walk in centre rather than a and e for thus if it can't wait till Tuesday

Takingshape12 · 30/04/2022 19:38

Absolutely fo not go to A&E. This would be such a waste of resources for an already stretched service. Nothing ousses me off more than the "go strqight to A&E brigade" for things people have been living with for weeks.

It is not there for that.

111 yes, they can advise you and no doubt see an out of hours Dr

toogoodforthisworld · 30/04/2022 19:40

Could it be a reaction to his booster?
Or has he recently had a really bad sore throat? If so the chance of his getting psoriasis is 1 out of 5.. (happened to my daughter ) - the streptococcus bacteria gets into the skin I think. Or it affects the liver.. can’t quite remember.
It does sound more like psoriasis than eczema to me.
good luck - being itchy is sometimes worse than being in pain…

Shona52 · 30/04/2022 19:40

I would be asking for a referral to a dermatologist for a 2nd opinion. Can’t hurt to contact 111 either

Iflyaway · 30/04/2022 19:41

Oh, I feel for your husband. I have a skin condition which was first diagnosed as Lichen Planus but more recently turns out to be PRP. I refuse to take any cortisone-type treatment for it (it thins the skin) and have had light therapy which helped. I'm lucky that I don't have terrible itching with it.

There's a very good FB page on it, with lots of info, although a lot of people from US on it talking about all kinds of medicines for it.

Pityriasis Rubra Pilaris (PRP) | Facebook

Iflyaway · 30/04/2022 19:42

It didn't come up as a link. Just copy and paste into the FB search at the top.

derxa · 30/04/2022 19:48

Issue33 · 29/04/2022 20:21

He's asked about a referral. They seem reluctant to until they've tried this and that. Except nothing is working! NightmareSad

Please don't let them away with this. I know to my own cost. They're not taking him seriously. It's heart breaking.

TennisMum75 · 30/04/2022 19:50

Has your husband has his covid vaccine booster recently? I’ve read about lots of bizarre reactions. Might be worth investigating, although that still won’t reveal the best way to treat it. Has he tried antihistamines?

AnyoneSeenMyPig · 30/04/2022 19:52

When I have have one of my frequent bouts of intense itching I have a hot shower, as hot as I can bear. It really zaps the itch away.

www.houstonchronicle.com/lifestyle/renew-houston/health/article/Why-does-hot-water-ease-intense-itching-16806624.php

derxa · 30/04/2022 19:53

TennisMum75 · 30/04/2022 19:50

Has your husband has his covid vaccine booster recently? I’ve read about lots of bizarre reactions. Might be worth investigating, although that still won’t reveal the best way to treat it. Has he tried antihistamines?

I've literally seen a dermatologist today (catch up clinic) and she agreed I was vaccine injured. She has seen a great deal of severe skin disease due to the vaccines and Covid itself.

Ohsugarhoneyicetea · 30/04/2022 19:53

Psoriasis? Google images the rash is quite distinct. Its not scabies, you would all have it by now and its mainly in between fingers and in fold of skin and you can see the burrows.

ManateeFair · 30/04/2022 19:54

mackthepony · 29/04/2022 20:36

Personally I'd go to a and e

He’s had it for two months. It is neither an accident nor an emergency. Do not go to A&E for things like this.

There a thousand things it could be and pretty much none of them are something that would be treated in A&E. A&E is not there to give a second opinion on a long-term health issue.

OP, it could be eczema, or an allergy, or a fungal infection, or psoriasis, or all sorts of things really - GPs are often very bad at dealing with skin issues. I had psoriasis misdiagnosed as three different things by a GP before I finally got it treated correctly. He hasn’t responded to treatment, so he definitely needs a referral to a dermatologist. Could he see a different GP, perhaps? I really sympathise with your DH because I know how miserable it is, from my psoriasis experience!

EatYourVegetables · 30/04/2022 19:54

Guttate psoriasis? Has anyone in the family had strep recently?

Whatsthestoryboringglory · 30/04/2022 19:58

Ask them to take a skin scraping for fungal infections. Malassezia can get pretty bad (Google for pictures).

TennisMum75 · 30/04/2022 20:04

I know a few people who have developed shingles post Covid jab, including a 15 year old.

Okaaaay · 30/04/2022 20:04

ED probably won’t have easy access to a dermatologist at the weekend (they’re not usually an on call specialty) hence he probably won’t get very far as a walk in until Tuesday.

There are over 3000 skin conditions / variants and GPs are notoriously under trained in dermatology (something like 5 days of training). I would definitely definitely want a dermatologist’s opinion if it is impacting his life to that extent. I agree with other posters that itching / rashes can be secondary to something else so worth getting a second GP option, or paying privately to see a dermatologist, and taking it from there.

Jenasaurus · 30/04/2022 20:05

I had (have this now) started just after lock down, I initially sent a photo to my GP and self treated for scabies, 2 years on I managed to see a dermatologist who diagnosed nodula prurigo and I am awaiting blood tests to find the cause, which like a PP mentioned could be a liver issue, but more than likely lack of vitamin D. I dont have the same nodules that this disease presents as on online images, more like scabs on my back (shoulder area) and buttocks, he has prescribed strong seroid cream and an antihistamine. The itchy has stopped but I have a sort of compulsion to scratch the scabs which doesnt help.

BoffinMum · 30/04/2022 20:07

Until you can see a dermatologist, try the following overnight (advice originally from Dr David Atherton, eczema specialist who deals with truly awful cases).

Layer of Vaseline from brand new tub (you can get Petroleum jelly mixed with a special low dose steroid on prescription if necessary)
Hot wet tubigrip bandage or similar over itchy area
Layer of dry tubigrip bandage or similar over the wet bandage
Dose of Piriton at bedtime

Heals the skin a bit and help things settle.

TennisMum75 · 30/04/2022 20:08

derxa · 30/04/2022 19:53

I've literally seen a dermatologist today (catch up clinic) and she agreed I was vaccine injured. She has seen a great deal of severe skin disease due to the vaccines and Covid itself.

Sorry to hear that. Hope you’re feeling better now. I know a few people who have developed either neurological or autoimmune conditions post Covid jab. Also a few who had shingles.

AMLlucky · 30/04/2022 20:16

3 years ago I had a terrible rash that looked eczema and the gp thought it was an allergic reaction. My skin was swollen and so painful. I was referred to the dermatologist after 2 months of back and forth GP appointments / treatment changes. He ordered blood test and it ended up being leukaemia. Hope you get answers soon x

L0stinCyberspace · 30/04/2022 20:18

Make sure that a neurological cause is ruled out too. Nerve pain can manifest as intense itching, hypersensitivity and crawling feelings. The potential cause of neurological pain can be many - a b vitamin deficiency, autoimmune causes, even pressure on the spinal cord from discs - worth ensuring it is none of these.