The long post I did not manage to get posted the other night, due to Mumsnet glitches.
As an example, I had a voice problem, it was husky and sounded very abnormal, I was finally referred to ENT, after six GP appointments.
Once there I was diagnosed with silent reflux, prescribed with Gaviscon advance, and sent on my merry way.
During this period, I had moved areas and had changed GP as a consequence. I discussed the fact that the Gaviscon advance did not seem to be helping ( a month or so in), the GP told me that I had to follow the treatment protocol for three months before they would review. This was after a good two year period of not having a voice that functioned as it should.
I was working for an NHS trust and had a meeting, where my head of division was present. She heard my voice and got me seen by their top ENT specialist within three days, who diagnosed me with Vocal Dystonia (vocal muscles not functioning as they should, specifically the one on the left hand side).
I got referred on to another ENT specialist, to have botox injected into the vocal chord.
I then saw a neurologist privately for a separate issue, a tingling sensation in my scalp, related to neck problems I have suffered with since the age of sixteen. The neurologist pointed out that the vocal dystonia was a side effect of the medication I was on treat my bi-polar disorder, the medication was acting as dopamine antagonist, effecting my brains ability to communicate with my left vocal chord. I stopped taking the medication (having considered the pros and cons of staying on the medication and continuing with the botox injections) my voice is over ninety percent recovered now.
I did not figure out the problem on my own but at the same time, it should have not taken six GP appointments and four different consultants (three ENT and one neurologist) to figure out a)what the issue was and b)how it could be resolved effectively.
Recently, my partner was suffering with vocal problems. He was referred on the two week wait pathway to ENT and seen in five days (impressed with that).
He was diagnosed with Silent Reflux and prescribed with a three month course of Gavison Advance.
He had a separate infection occurring at the same time, within three days of the second course of antibiotics prescribed for the separate infection, his voice was back to normal.
The ENT consultant, he saw, was a totally different one, to the one I saw, so it comes across to me, that if there are no identifiable polyps and you don't see an ENT person, with the experience of the one I saw on the second occasion, you will be by default, diagnosed with silent reflux.
I have been diagnosed with Fibromyalgia, Bi-polar disorder and PCOS.
From my own reading and research alongside the four occasions of my Free T4 levels being sub-normal with TSH still in normal range, I believe there to be a suggestion that there is something wrong with my HPA axis.
I was also shown to have POTS, with my previous GP, who did the blood pressure test, but despite this being clearly shown through the blood pressure readings he took, it hasn't even ended up on my medical records.
And I have a C-Section, recorded as having been a vaginal birth.
So yes I do think doctors and in particular GP's, do need to listen a bit more and also record things accurately as well.
Long post finally done, off out now to gad about town and get some real life stuff sorted.