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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel really afraid?

116 replies

SpidersareTapdancing · 18/04/2022 12:17

I got a taxi to a&e this morning( no ambulances), because I had a heart rate of 180. Straight in for an ecg which confirmed it. Then directly into resus.

I was in resus for 6 hours and they had to use adenosine to reset my rhythm. That was horrendous as I felt like I was dying during it (I know that's normal)

Then about an hour later I went back into super ventricular tachycardia so had to have cardio version.

Then it settled, still sinus tachycardia but not svt anymore and I was told to come back if It happened again because there were no beds.

They also did some bloods and told me my thyroid hormone was 105 so extremely toxic. The dr couldn't find the medication I was prescribed because there wasn't any in the hospital (not even in the emergency drug cupboard)

So I've been given some propranolol and I have to go back tomorrow to get carbimazole? Apparently it's my thyroid hormone causing the svt and palpitations?

Aibu to feel scared it's going to do it again and there will still be no beds, no medication to stop it happening ?

OP posts:
QuestionableMouse · 18/04/2022 12:20

No idea about the medical side of things but I can understand how scared you are. Can you get comfy and watch something to give yourself a bit of distraction? Maybe pack a bag, just in case?

SpidersareTapdancing · 18/04/2022 12:25

Packing a bag makes sense thank you. I can't decide if its rubbish or good I also work there so know a lot of the staff 🤦‍♀️

OP posts:
madroid · 18/04/2022 12:26

It might be that you need to go to a different hospital. Or ring OOH and explain and ask for advice.

It's simply not good enough that they haven't got the drug you need. They need to track it down and get it brought to you. Demand action and proper treatment. That is what they are there for and what they get paid to do. I'm really angry on your behalf.

Mamamia7962 · 18/04/2022 12:28

Try not to worry OP, if they thought it was life threatening they wouldn't have sent you home.

KarmaStar · 18/04/2022 12:50

If another hospital near I'd seriously consider going,but I know nothing about your condition so if it's better for you to rest at home,please do so and try your best not to worry,try the four second breathing in,holding,out,holding,to help relax.
Hope you get treated asap.🌈

SpidersareTapdancing · 18/04/2022 12:54

They said they wanted to keep me in but there were no beds and I was taking up a bed in resus and because there was no medication for my thyroid (that I didn't know I had an issue with) I should go home.

I've lost 2 stone in 3 weeks is that my thyroid too?

OP posts:
Squiff70 · 18/04/2022 13:01

Holy moly! You could be having a thyroid storm! This happened to me and I spent 5 weeks in ICU in an induced coma. Please please go back or call 999 and insist on proper treatment. This is REALLY dangerous 😳

Goldijobsandthe3bears · 18/04/2022 13:06

Wow, what a scary experience. Listen to @Squiff70 as sounds like they have been there before, hospitals can and do send people home that they shouldn’t

catfunk · 18/04/2022 13:13

If you've genuinely lost 2 stone in 3 weeks on top of the tachycardia I'd be going straight back to hospital. Something is very wrong.

JuneOsborne · 18/04/2022 13:17

Go back. Or to a different hospital. Sending you home because they don't have the right drugs or a bed is dangerous!

I have experienced an issue with the hospital pharmacy not having the drugs needed, and they sent for the drugs from another hospital.

I don't think you're receiving the treatment you need and you might not feel well enough to fight for it. Is there anyone that can advocate for you?

Justkeeppedaling · 18/04/2022 13:18

2 stone in 3 weeks?!!!
Have you been eating, anything?

If that's right you need to be seen.

Ludo19 · 18/04/2022 13:21

I went down to 7st after having a missed overactive thyroid. When diagnosed my level was 139. I was sweating and made me lose loads of weight and even miscarried the child I was carrying. I was on Carbimazole like a stop and block system and beta blockers as my heart rate was so fast. I eventually had a total thyroidectomy as my levels couldn't be controlled by meds alone.

Imnotavetbut · 18/04/2022 13:29

@SpidersareTapdancing I have experience of this and it makes you feel dreadful. Hyperthyroidism sends your body into overdrive so alongside the tachycardia you feel hyper vigilant, shaky and on edge, as well as the weight loss and loose bowels. I was also very sweaty and couldn't relax at all. It was like being on drugs but without the fun part! I ended up walking into my GP and refusing to leave until they did something because I actually thought I was losing my mind. Can you go to another hospital at all? You really have my sympathies, it is awful and you can't rationalise things because you're physically so unwell. The good news is that it can be treated but in your position I wouldn't be happy with being left to it until tomorrow.

SpidersareTapdancing · 18/04/2022 13:30

No I've been eating loads! I'm starving all the time. Right I am going to go back to another hospital. DH will have to drive me as no ambulance is available for 3 hours, I'm not priority.

Thank you!

OP posts:
SpidersareTapdancing · 18/04/2022 13:34

I've been telling my gp there is something wrong with me for months but she keeps saying it's all due to my weight and that fat people don't get hyperthyroidism, I just need to lose weight and that will get rid of my anxiety, sweating and high heart rate.

When I told her on Tuesday I'd lost a lot of weight she said that it was a good start Hmm.

Thank you for your support though

OP posts:
BitOutOfPractice · 18/04/2022 13:35

Good luck OP. Is your OH able to advocate for you?

Squiff70 · 18/04/2022 13:42

Your GP isn't fit to practice!

I'm so glad you're going to a different hospital. Ask the doctors, nurses or anyone who will listen if this could be a thyroid storm (medical term is thyrotoxic crisis). If it is, you need urgent, life-saving treatment as thyroid storms are fatal if not treated aggressively. I'm sorry if that scares you but you need to know how serious this might be, potentially. The rapid and dramatic weight loss is another sign and the fact that you've needed treatment to reset your heart rate in resus should set alarm bells ringing for any doctor treating you.

You may also trigger red flag for sepsis.

Please update when you can but above all else, make them listen to you and ask if this could be a storm.

newbiename · 18/04/2022 13:46

Hope you get the correct treatment.
When you feel better please complain about the GP.

Newhorizon21 · 18/04/2022 14:46

Your experiences yesterday sound terrifying, I hope you're feeling better today.

Elevated, toxic thyroid concentrations can cause SVT & rapid weight loss. The informatIon section is helpful www.btf-thyroid.org/

Propranol is a recognised treatment, even when you start carbimazole it can take time for your condition to be managed, SVT could recur during this time. Return to the emergency department if you experience these symptoms again, the team followed the recommended treatment protocols.

What did the hospital say about being seen in outpatients by an endocrinologist?

www.winchesterhospital.org/health-library/article?id=19613

www.nhs.uk/medicines/carbimazole

WingingItSince1973 · 18/04/2022 14:48

Thank goodness you're going to a different hospital. All the best. Hope you get sorted quickly xxx

SpidersareTapdancing · 18/04/2022 15:38

I went to a hospital about 40 mins away, I'm being admitted, I'm having a thyroid storm. I've never had any problems with my thyroid before.

I'm currently in resus but the medication they've given me has made my heart stop being so fast. I feel clearer than I have in days

OP posts:
SilverDoe · 18/04/2022 15:46

Goodness me that is terrifying, I'm so glad you were persistent and sought treatment

Beelezebub · 18/04/2022 15:56

@SpidersareTapdancing

I went to a hospital about 40 mins away, I'm being admitted, I'm having a thyroid storm. I've never had any problems with my thyroid before.

I'm currently in resus but the medication they've given me has made my heart stop being so fast. I feel clearer than I have in days

When this is over, if you can, consider making formal complaints against the GP and the first hospital. Both of them have failed you shockingly.
BusterGonad · 18/04/2022 15:57

What a scary thread. Well done for going back to hospital Op. I hope you feel better soon.

Imnotavetbut · 18/04/2022 16:15

Phew, relieved you're getting sorted OP. And I echo others, when you're better I'd be following up the poor medical advice and treatment you've had from both the GP and the other hospital.