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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel really afraid?

116 replies

SpidersareTapdancing · 18/04/2022 12:17

I got a taxi to a&e this morning( no ambulances), because I had a heart rate of 180. Straight in for an ecg which confirmed it. Then directly into resus.

I was in resus for 6 hours and they had to use adenosine to reset my rhythm. That was horrendous as I felt like I was dying during it (I know that's normal)

Then about an hour later I went back into super ventricular tachycardia so had to have cardio version.

Then it settled, still sinus tachycardia but not svt anymore and I was told to come back if It happened again because there were no beds.

They also did some bloods and told me my thyroid hormone was 105 so extremely toxic. The dr couldn't find the medication I was prescribed because there wasn't any in the hospital (not even in the emergency drug cupboard)

So I've been given some propranolol and I have to go back tomorrow to get carbimazole? Apparently it's my thyroid hormone causing the svt and palpitations?

Aibu to feel scared it's going to do it again and there will still be no beds, no medication to stop it happening ?

OP posts:
Bettyboopawoop · 18/04/2022 23:05

You may also find levels that maybe up like like liver levels ect don't let that worry you or stress you out they usually sort themselves out.

Shitandhills · 18/04/2022 23:06

@Fluffycloudland77 GPs work bloody hard under huge amounts of pressure. They are expected to do more and more and more with less and less and less time and support to do it, so it's no wonder things sometimes get missed - they are forced to cut corners simply to get through the workload. And there aren't many professions where you can be criminally prosecuted for making a mistake at work. Can you imagine how stressful that is? It sounds like the OP was failed by her GP and the hospital in this situation, and she should definitely raise a complaint, but to describe all GPs as 'letting the side down' is deeply unfair and counterproductive.

Squiff70 · 18/04/2022 23:09

@SpidersareTapdancing honestly I'm just so glad you've got help and are receiving treatment. I'm pleased to have been some help to you and am glad I clicked on your thread and was able to contribute towards you getting the right treatment (and I'm sorry if I scared you earlier but I recognised your symptoms from personal experience and alarm bells were deafening for me so I knew I needed to be drastic in that moment!).

I'm so shocked the previous hospital discharged you knowing you were facing a very serious illness and possibly worse, and that for months your GP didn't take you seriously when you kept telling her something was wrong. To practically congratulate you on dramatic and alarmingly fast weight loss when she should have been questioning WHY is very worrying to say the least. As a doctor it's her job to take people's concerns seriously and vitally, to start putting pieces of the jigsaw puzzle together to get a clearer picture of what might be going on. I'm not medically trained and I know most GPs aren't specialists in a particular field but she should not have missed this. It could have cost you your life.

Just rest up. I'll keep checking back to see how you are FlowersBear

Bettyboopawoop · 18/04/2022 23:16

I cannot believe they diddnt think to transfer you to another hospital!!! When this is over op you really need to seriously complain, imagine you had not come on here? And thought perhaps you were being dramatic or something? It could have had devestating consequence.

Ishacoco · 18/04/2022 23:16

Well done Squiff70 👏👏👏👏👏

OP - hope you're feeling better soon and that they get a treatment plan in place swiftly.

Catcrazy83 · 18/04/2022 23:21

What a scary situation, I can’t believe the 1st hospital sent you home. Terrifying! Glad you are now being looked after.

Sodullincomparison · 18/04/2022 23:22

Glad to hear you’re getting the right treatment OP and hope you get some sleep and rest tonight.

@Squiff70 Well done! 👏

When people comment “why ask strangers on the internet?” on posts, this is why! Personal experience can give insight and information and support.

Wideawakeandconfused · 18/04/2022 23:29

Good luck keep us posted.

I was diagnosed with hyperthyroidism in December after after covid. Never had any known thyroid issues but it seems to have been simmering away without me knowing. My reading were off the chart; lost 2 stone, eating like crazy and could stand without feeling sick. I literally stopped doing anything for 6 weeks until the Carbimazole and beta blockers started working. But it’s only now, Mid April I feel like I can start exercising again. My anxiety is still high as my heart rate is still high but it’s getting better. One odd side affect is vertigo which has resulted in me not being able to drive on motorways yet as I get too dizzy. Hoping that goes soon.

DomesticatedZombie · 18/04/2022 23:29

@GreenClock

Bravo to *@Squiff70* who might’ve saved your life tonight.

I’m not a “make a complaint” merchant usually but I think that in this case, it’s merited.

I hope you start to feel much better soon.

Hear, hear. Well done, Squiff. So glad you're getting proper care, OP. Hope you feel better soon. Flowers
Spudina · 18/04/2022 23:30

Hi OP. You could use the Valsalva manoeuvre to get your heart rate down whilst you are awaiting proper help. I’ve seen it done and it can be effective. There are good explanations of you Google.

Silkierabbit · 18/04/2022 23:35

Glad you went back and got it sorted. Its really scary how bad the hospitals are at the moment. I am doing chemo at the moment and there was an patient urgently needing a bed and no beds available anywhere in the hospital and you could hear staff discussing if they could find a bit of corridor. Not an all suitable for anyone but esp not to a very vulnerable patient. Staff are doing their best but I insisted I went on safest chemo for risks as no way I want to end up in A&E atm. I would complain and also message MP as funding is where a lot of the issues lie.

Squiff70 · 18/04/2022 23:35

@Sodullincomparison

Glad to hear you’re getting the right treatment OP and hope you get some sleep and rest tonight.

@Squiff70 Well done! 👏

When people comment “why ask strangers on the internet?” on posts, this is why! Personal experience can give insight and information and support.

Absolutely. I just had this conversation with DP who told me 'well done' also. The way I see it, this is what Mumsnet is for. People come here every minute of every day with something they need help or support with, or asking for advice. More often than not, somebody with experience or knowledge in that particular subject is right on hand to offer guidance. It's what MN is all about and is why I don't see it as the 'nest of vipers' its often made out to be (although I agree it has its moments!). MN has wonderful community spirit of women (and men) of all ages, experiences, walks of life etc and I love that we are so free to both give and receive advice when we need it most. Some of the most terrifying but ultimately heartwarming threads I've come across have been related to domestic violence, where somebody is either frightened and needs help to escape their situation, or those who are suffering abuse and may not realise it at the time until those who've lived through it offer gentle practical advice, resulting in the OP getting to a place of safety and away from potential/further harm.

It's good to know with all the bad happening in the world that people can come together on forums like this and lives are improved as an indirect or direct result.

SofiaSoFar · 18/04/2022 23:39

@Spudina

Hi OP. You could use the Valsalva manoeuvre to get your heart rate down whilst you are awaiting proper help. I’ve seen it done and it can be effective. There are good explanations of you Google.
OP is in hospital.
LoveSpringDaffs · 18/04/2022 23:40

Jesus Christ. Glad @Squiff70 was around, clicked on your thread & was dramatic! (I must apologise for my thoughts squiff)

Great you're getting done proper treatment now.

It's so true though,sadly, if you're overweight they don't see past that at all, it's like there couldn't possibly be anything wrong that 'losing weight' wouldn't be the answer to! And thus the congratulations on your dramatic weight loss.🙇🏻‍♀️🙇🏻‍♀️🙇🏻‍♀️

I hope you manage some sleep tonight & continue to feel better. It's good to be in a safe place! X

EveryFlightBeginsWithAFall · 18/04/2022 23:49

That sounds frightening! Glad you went to another hospital

PrincessRamone · 18/04/2022 23:54

don't automatically be pushed into having radio iodene treatment or thyroid removal, do your homework first, if you have Graves dieasese it's fifty fifty chance of remission with meds.

I second this!

I hope you feel better soon OP. The carbimozole works really well when it kicks in. I was on it for 4 years, with a fantastic endocrinologist, gradually reducing the dose from 60 to 5 and then it was reversed.

(I also was initially congratulated for my weight loss Hmm).

Well done @Squiff70!!!

Squiff70 · 18/04/2022 23:59

Carbomazole isn't the only medication for an overactive thyroid. If it doesn't suit you, there is another you could try called Propylthiouracil (or just PTU for short). There are other treatment options too but an endocrinologist will talk you through all your options when you're well enough to be able to process it all.

Squiff70 · 19/04/2022 00:00

*Carbimazole, sorry!

Artich0kedUp · 19/04/2022 00:08

There are some papers linking thyroid issues with both covid and covid vaccines. Worth mentioning to the doctors perhaps, if the onset of symptoms was after a recent bout of covid or after a vaccine.

Squiff70 · 19/04/2022 00:28

@Artich0kedUp

There are some papers linking thyroid issues with both covid and covid vaccines. Worth mentioning to the doctors perhaps, if the onset of symptoms was after a recent bout of covid or after a vaccine.
I'd be cautious with claims like these (papers) at the moment. The vast majority of people have had Covid, Covid vaccines or both. Therefore any illnesses or conditions discovered in an individual may just be co-incodence and may have happened anyway had Covid-19 never existed or spread the way it has. I'm by no means saying there's not a link, but I'd say probably not evidence to suggest there is at this time either.
Squiff70 · 19/04/2022 00:29

*probably not ENOUGH evidence.

Sorry about typos tonight. Tired. Sleep!

Thekormachameleon · 19/04/2022 00:30

@SpidersareTapdancing just so you know, I've just seen your post on FB - just wanted to let you know in case you have any privacy issues

Fraaahnces · 19/04/2022 00:53

You poor thing! I’ve been exactly where you are and had a similar insensitive comment from my doctor. It was her actually overdosing me on Thyroxine that caused the bloody problem. She was reading my results incorrectly. Next time I knew my thyroid levels had dropped too low because I kept falling asleep and had dry skin, alopecia and was freezing and it kept dropping, I refuted her very rude assertion that I “sat on the couch all day eating bonbons” and her reply to that was a patronizing, “Which one of us went to med school?” I took my results straight into the doctor in the next room and asked him to check and was admitted into hospital that day. Quite sure she was trying to kill me. Turns out I had several undiagnosed autoimmune diseases also.

Lismoa · 19/04/2022 00:53

I'm really sorry to hijack this thread but there seem to be a lot of people who know about this stuff on here-

I have been having heart palpitations for a while. Went to GP and they did an ECG and said everything was fine. I've been getting really bad anxiety so put it down to that.
I was just on holiday and while away I had them come on really strong and thought I might pass out. Someone gave me sugar water and it calmed down so I thought it was anxiety or maybe a panic attack (although I don't get these usually). I went to the doctor while abroad anyway and they took my bloods. I received the blood work via email after Id come home and it has flagged me up as having a vitamin d deficiency and my TSH levels as being too high. However I can't make sense of the levels. My GP was closed today but I will contact them again tomorrow. Is there anyone on here that might be able to help me make sense of them though so I'm not sitting up all night worrying?

To feel really afraid?
Xpologog · 19/04/2022 01:08

You should never have been sent home.
UK medics are notoriously blasé about thyroids.
You will also find knowledge and support on Health Unlocked.
Hopefully you’ll get the right meds/dosage now. Hope you feel better soon.

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