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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel as though ADHD & Sensitivity Rejection Dysphoria may push me over the edge?

66 replies

FeelingPeeledRaw · 20/09/2021 23:36

So I have ADHD, with a side-ordering of Sensitivity Rejection Dysphoria. In practice what that means is I sometimes get carried away with speaking very frankly about stuff, and then feeling disproportionately hurt and peeled raw emotionally if someone implies I was "too much" in some way. I have spent many years trying to rein in my impulsivity, but it also has very serious side effects. My mother killed herself partly because of the combination of those 2 same conditions, and they actually drove me to a very serious suicide attempt 10 years ago, from which I'm still suffering physical health effects. Anyway I joined a new messaging group based on being the parent of my DC who has a hobby. Don't want to out myself, but think like a hobby-based group of parents. Today I was feeling a bit overwhelmed by the demands of the thing around which the group is based (think: challenging hobby requiring lots of time, input etc.) And so I did post a couple of posts on the group mentioning both my ADHD and that I was struggling. A couple of people responded with helpful suggestions and I put it from my mind. Then logged back in later and saw that 4 people had left the group. Now it is a huge group, and many people leave periodically. But I'm also not blind to the fact that maybe me mentioning ADHD/struggling was viewed negatively by those people....which is fair enough. But in addition to that I received a pm from a stranger in the group. She was trying to be kind - that really was her only intention - and said to me that maybe I should not overshare stuff in a group of strangers (she didn't say "like ADHD" but that's what I took from it). I take her point and the kindness with which it was intended. But....but....it still hurt me and made me feel so ashamed of myself. Like I'm this idiotic loser who can't function in normal social situations. I was so shocked that a total stranger had - even for kindness-based reasons, and it definitely was kindness - basically felt confident enough to know definitively what is correct behaviour and message me to tell me....and yet again I obviously didn't know what was correct social behaviour and messed up. I felt so shocked and winded from it. All those feelings of being alien and different that fed into my suicide attempt years ago peered their heads around a door I was desperately trying to slam shut.
I responded back that I was trying to accept my condition and to speak about it normally, in the same way that other people would speak about any everyday stuff. Also responded that I had only posted a couple of things - a total time of maybe 10 minutes....thinking if ppl didn't want to read, then they scroll past? Finally I made the point that if someone saw my posts and thought anything outside the range of reactions from "don't care/scroll past" to "hmmm...brave to be open about a condition that is often shrouded in shame" then maybe I wasn't the one with the problem? So as not to drip-feed, I had a very unstable childhood, passed around relatives, many different schools etc. So shame and self-loathing at myself for being the cause of that with my behaviour (when I actually genuinely wasn't: the adults in my life had their own serious issues) has been such a defining feature in my life. I was shocked at the spiral in which I found myself from these events that somebody else would be able to brush off with "folks don't always see eye-to-eye but just forget it!". Can anyone impart a bit of wisdom or sense of proportion my way? Or tell me ways in which they learned to check their impulsivity especially if they have ADHD? Side-note: even now I feel scared to post this here. Even though this is anonymous; folk say all sorts of stuff on here etc. I still feel even the same creeping shame I had as a reaction to a message that was surely meant to be kind....

OP posts:
ChangeOfMNScenery · 22/09/2021 16:36

Well done OP. I have to say how brave (and I don't mean this in a patronising way at all - it would take bravery on my part if I were you) you were to start this new group and advertise it on the original group. I can only imagine how nervous you may have been doing that (I know I would be). Then how exhilarating and validating, as you said, it must have felt to get so many people joining the new group. Must be such a relief to know you're not the only one who's happy to have a support subgroup. It's wonderful.

I know this may sound really over the top to some people but they don't realise how some people like us tend to feel intensely about every single detail of every action. It can be draining. So, to me, all those things deserve mentioning.

About the woman who messaged you, I didnt comment on her because I believed you. You mentioned a few times throughout your OP that you know she was being kind. I know I'd also highlight it that much and defend the person if I believed the same about them.

Well done and I'm pleased for the outcome.

ittakes2 · 22/09/2021 17:01

Thanks OP this post is really helpful. I have diagnosed OCD and I think ADD. I was diagnosed with OCD in my late 40s and there is really no reason to tell people except....my daughter was diagnosed with OCD a few years ago but she doesn't want anyone to know. I have started mentioning my OCD more to others outside my family because I want to be a role model for my daughter and change the world she lives in so she does not feel ashamed of her condition.
You are absolutely right - there is no reason why you can't mention your ADHD and its not oversharing because its not something to be ashamed of and the more people like you who have the guts to stand up and be counted will help make the world a better place for your children. You are brave and you are a hero.

SparklingLime · 22/09/2021 17:03

Thank you for this thread, @FeelingPeeledRaw. Can I ask which clinic/psychiatrist you had your assessment with?

FeelingPeeledRaw · 22/09/2021 20:22

@SparklingLime

Thank you for this thread, *@FeelingPeeledRaw*. Can I ask which clinic/psychiatrist you had your assessment with?
I really would like to, but I just can't because it's local to the fairly small town where I live. I find it really hard to say no, but my partner would never forgive me if I outed myself that much, and I have to respect his wishes. But to get the appointment, I Googled "ADHD adult assessment" and my town, and then made sure I read reviews etc. Also I made sure they were willing to do a "joint prescribing" program with my NHS GP, as not all private places are and if they aren't then the medication costs become prohibitive on a monthly basis. Also had to make sure my GP accepted that too, as not all GPs will do a joint prescription if you go private. It was a huge costs (done via a loan) but worth it.
OP posts:
SparklingLime · 22/09/2021 20:28

I totally understand, OP. Didn’t occur to me! Thanks for your advice Smile

FeelingPeeledRaw · 22/09/2021 20:51

@SparklingLime

I totally understand, OP. Didn’t occur to me! Thanks for your advice Smile
No, I know you weren't thinking of that intentionally Flowers Smile. My partner is just worried about these things. I really hope you get a resolution - sending you all the good wishes in the world! xxx
OP posts:
FeelingPeeledRaw · 22/09/2021 20:53

@ittakes2

Thanks OP this post is really helpful. I have diagnosed OCD and I think ADD. I was diagnosed with OCD in my late 40s and there is really no reason to tell people except....my daughter was diagnosed with OCD a few years ago but she doesn't want anyone to know. I have started mentioning my OCD more to others outside my family because I want to be a role model for my daughter and change the world she lives in so she does not feel ashamed of her condition. You are absolutely right - there is no reason why you can't mention your ADHD and its not oversharing because its not something to be ashamed of and the more people like you who have the guts to stand up and be counted will help make the world a better place for your children. You are brave and you are a hero.
Now you've made me cry!!! But in a good way!!! I'm not either of those things, but it was a lovely thing of you to say Flowers
OP posts:
FeelingPeeledRaw · 22/09/2021 20:57

The thank yous are for all of the rest of you too - such a kind bunch of responses and I'm so grateful because - as you've probably guessed - I can really suffer if I think I have done or said something wrong! Sometimes the SRD makes me so tense in my back from my muscles clenching in stress that my partner has to get a wooden spoon and actually stick it into different parts of my back to "un-knot" them!!!

OP posts:
maddening · 22/09/2021 21:27

I doubt it was because of you x

Smorethanthis · 22/09/2021 21:43

Thanks for sharing this. I had a terrible day and it was fairly similar.... but reading this made me feel better.
Don't stop being you.

WhoIsPepeSilva · 22/09/2021 23:06

Flowers because some of what you have written really resonates with me. It's horrible to put yourself out there and be cut down, sometimes quite cruelly, and be left feeling the way you do. It stays with you and sometimes ambushes you unexpectedly and you feel that emotional crash all over again.

I'm sorry I can't offer any advice, just a gentle virtual hand hold from someone who feels a bit similar.

midlander88 · 22/09/2021 23:59

You sound like you've had a very similar life experience to me. I don't have any advice because I still struggle with intense and disproportionate rejection dysphoria too, but I just thought I'd comment to say you're definitely not the only one! I think it's really brave that you put that stuff in the group chat. There's a difference between dominating a chat by fishing for attention and simply saying something honest about yourself personally - if it's meant to be a group for turning acquaintances into friends then your messages (which don't sound too overshary to me) should be perfectly acceptable behaviour! Just don't bother with the folks who disappeared!

I do think that the woman who messaged you privately was out of order, it's just none of her business.

You've obviously already made great progress in realising that your childhood and the long term emotional damage it caused to you wasn't your fault. Keep going SmileFlowers

One thing that's really helped me this year is just reading through the AIBU posts and seeing how many people are out there not letting people push them around and sticking up for themselves.

WTF475878237NC · 23/09/2021 03:03

Hi OP,

Had you been assessed by a clinical psychologist I'm wondering if you would have come away with a deeper understanding of how childhood trauma has impacted on what the psychiatric profession term RSD and what to do about it. If you find yourself in the position to afford it in the future, clinical psychology (doctoral level training) sessions might be useful to consolidate your own self reflection and suggest further directions of travel for living well with the difficulties you have.

SaltySheepdog · 23/09/2021 03:29

Hi op I’m similar. I recommend writing your feelings down somewhere (a diary?) and sit on them for 48 hours before sharing. Before sharing weigh up how well you know the person, how supportive they are and if they have time/energy to deal with your baggage.

FeelingPeeledRaw · 23/09/2021 11:30

@WTF475878237NC

Hi OP,

Had you been assessed by a clinical psychologist I'm wondering if you would have come away with a deeper understanding of how childhood trauma has impacted on what the psychiatric profession term RSD and what to do about it. If you find yourself in the position to afford it in the future, clinical psychology (doctoral level training) sessions might be useful to consolidate your own self reflection and suggest further directions of travel for living well with the difficulties you have.

Hi there

I have been assessed by a clinical psychologist - that is what I said upthread: we took out a loan and went private for my ADHD & the comorbid SRD assessment, and I am still under their care, albeit with a joint prescribing plan through NHS GP. Is this what you meant? Apologies of I've misunderstood Smile. I also pay to have fortnightly Zoom counselling sessions via a CBT therapist....

OP posts:
duvet · 26/04/2023 12:23

I know this is an old thread but I have read through your posts and much of what people have shared is what my teen DD is experiencing and it is causing her a lot of issues. She is studying a BTEC at college and goes to various groups in her spare time. She is very sociable but because of the RSD and oversharing it is causing issues with her peers, and tutors because she takes things so hard, she walks out, goes off crying. Peers are finding these instances too much and get tired of trying to reassure her. She gets put off tutors when they're just giving constructive criticism this hinders her learning. This issue seems to have become much worse recently and even with me who she confides in a lot, if I dont have the right expression on my face or say just the right thing -she over-reacts to the point that I'm anxious now analysing everything I say to her.
The other issue is that when someone does give her attention she latches onto them straight away, sending multiple texts and getting fixated. These usually badly due to the person not giving her enough attention. She has had CAHms to help with some of these issues,and we've read books & youtube. I'd like to get her some kind of help but not sure what, but also spent all money on a private diagnosis and counselling is also expensive. I feel for her so much she is so down with it. If anyone has any other tips I'm grateful.

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