Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel as though ADHD & Sensitivity Rejection Dysphoria may push me over the edge?

66 replies

FeelingPeeledRaw · 20/09/2021 23:36

So I have ADHD, with a side-ordering of Sensitivity Rejection Dysphoria. In practice what that means is I sometimes get carried away with speaking very frankly about stuff, and then feeling disproportionately hurt and peeled raw emotionally if someone implies I was "too much" in some way. I have spent many years trying to rein in my impulsivity, but it also has very serious side effects. My mother killed herself partly because of the combination of those 2 same conditions, and they actually drove me to a very serious suicide attempt 10 years ago, from which I'm still suffering physical health effects. Anyway I joined a new messaging group based on being the parent of my DC who has a hobby. Don't want to out myself, but think like a hobby-based group of parents. Today I was feeling a bit overwhelmed by the demands of the thing around which the group is based (think: challenging hobby requiring lots of time, input etc.) And so I did post a couple of posts on the group mentioning both my ADHD and that I was struggling. A couple of people responded with helpful suggestions and I put it from my mind. Then logged back in later and saw that 4 people had left the group. Now it is a huge group, and many people leave periodically. But I'm also not blind to the fact that maybe me mentioning ADHD/struggling was viewed negatively by those people....which is fair enough. But in addition to that I received a pm from a stranger in the group. She was trying to be kind - that really was her only intention - and said to me that maybe I should not overshare stuff in a group of strangers (she didn't say "like ADHD" but that's what I took from it). I take her point and the kindness with which it was intended. But....but....it still hurt me and made me feel so ashamed of myself. Like I'm this idiotic loser who can't function in normal social situations. I was so shocked that a total stranger had - even for kindness-based reasons, and it definitely was kindness - basically felt confident enough to know definitively what is correct behaviour and message me to tell me....and yet again I obviously didn't know what was correct social behaviour and messed up. I felt so shocked and winded from it. All those feelings of being alien and different that fed into my suicide attempt years ago peered their heads around a door I was desperately trying to slam shut.
I responded back that I was trying to accept my condition and to speak about it normally, in the same way that other people would speak about any everyday stuff. Also responded that I had only posted a couple of things - a total time of maybe 10 minutes....thinking if ppl didn't want to read, then they scroll past? Finally I made the point that if someone saw my posts and thought anything outside the range of reactions from "don't care/scroll past" to "hmmm...brave to be open about a condition that is often shrouded in shame" then maybe I wasn't the one with the problem? So as not to drip-feed, I had a very unstable childhood, passed around relatives, many different schools etc. So shame and self-loathing at myself for being the cause of that with my behaviour (when I actually genuinely wasn't: the adults in my life had their own serious issues) has been such a defining feature in my life. I was shocked at the spiral in which I found myself from these events that somebody else would be able to brush off with "folks don't always see eye-to-eye but just forget it!". Can anyone impart a bit of wisdom or sense of proportion my way? Or tell me ways in which they learned to check their impulsivity especially if they have ADHD? Side-note: even now I feel scared to post this here. Even though this is anonymous; folk say all sorts of stuff on here etc. I still feel even the same creeping shame I had as a reaction to a message that was surely meant to be kind....

OP posts:
Starrynight468 · 21/09/2021 08:27

I would advise you to find a therapeutic life story worker to deal with your childhood trauma. It's a lovely piece of work over 6 to 9 months which will help you piece together why you are like you are and accept yourself. There's a book by Richard Rose on his model of it if you can't find a therapist but I would advise finding a practitioner (one trained in the Rose model).

What is lovely about therapeutic life story work is you really get to understand and then comprehend why we are the way we are. A small example of this is the behaviour tree - you can draw the leaves and put in your behaviours and traits, then draw the roots and put in what has happened to you in your past, then draw the trunk (you can add branches for things that have helped you if you want too) and then draw the grass over the roots. The grass symbolises what you or others have used to cover up your roots. It's a lovely way to understand and accept why we behave the way we do.

Starrynight468 · 21/09/2021 08:34

Also, the person who text you had poor social skills whether she was being kind or not. Texting someone who you barely know and telling them that they're in the wrong about something, no matter how kindly is poor social skills.

I also struggle with poor social skills. I get so excited and interrupt people. I also over share and feel rejected after. I've learnt how to rein myself in better as I've got older and practised being conscious about what I say. I sometimes write things down, questions, thoughts and opinions when I'm in meetings so I don't just blurt out. It can be done but you're also you and my friends love me even with my poor social skills. Its a running joke. I hope you can find people who accept you as you are in your personal life.

Tal45 · 21/09/2021 11:53

Wow OP I'd never heard of Sensitivity Rejection Dysphoria but it really rings a lot of bells with me (and actually a lot of people in my family where asd/dyspraxia/dyslexia are also common) - so a big thank you for 'over sharing' on here!!

I really don't think anyone should tell you that you are over sharing, it's just an opinion and not up to them to push their opinions on you without being asked. I find that well meaning people often see people with adhd/asd as being like a 5 year old that needs parenting and looking after - it's so patronising.

FeelingPeeledRaw · 21/09/2021 12:06

You guys have all been amazing...at the risk of playing the same record over again, I just want to reiterate how grateful I am to every person who responded on this thread. The combination of compassion & emotional support, alongside sensible advice about considering the time/place/audience, and then the signposting to Facebook groups/other sources of support makes me feel like a community helped to patch me up: my skin is firmly back in place and my skeleton doesn't feel like it's visible anymore Flowers !!

@Starrynight468 I'm going to read up on this, and see if it's similar to what my counsellor is doing with me via the fortnightly zooms - she seems to be focussing on something similar, as she has asked me to take her through pretty much my life from a young age, but |I willnow google exactly the method you have mentioned and see if this is something she is aware of.

@Siameasy of course I'm not a professional, but what you are describing - " I can feel completely humiliated by something another would find mildly unpleasant" - does sounds like it may be Sensitivity Rejection Dysphoria, and as it is a condition that is often comorbid with ADHD then your suspicion that you may have ADHD could be valid. My heart goes out to you that your experiences with PN anxiety have left you in a place where you feel scared to discuss getting help with your GP Sad . If there is any way you could find a road through this, I would really urge you to try. It is hard enough to deal with ADHD & SRD even while being medicated. The idea of doing it untreated, unmedicated and unsupported sounds like Dark Blue Hell, and no one should have to put up with that.

I wonder if as a first step I could signpost you to some articles for you to read around, so that you may feel better "armed" with knowledge if you do decide to follow this up? I am going to put some links in the post below, as there have been a couple of people on the thread who seemed as though they would benefit from this

OP posts:
FeelingPeeledRaw · 21/09/2021 12:25

Flowers RESOURCES FOR PEOPLE WHO ARE STRUGGLING WITH ADHD/SRD Flowers

These resources were recommended to me by the psychiatrist at the clinic where I was assessed and diagnosed with ADHD/SRD, and I want to pass them on in case they help anyone else.

The Additude Website: a really comprehensive library of articles about all aspects of ADHD in both adults and children:
www.additudemag.com/

Living and coping with Adult ADHD: www.additudemag.com/category/manage-adhd-life/

Sensitivity Rejection Dysphoria: these articles really helped me -

  1. An overview:
www.additudemag.com/rejection-sensitive-dysphoria-and-adhd/
  1. Specific to women & girls:
www.additudemag.com/rejection-sensitivity-women-adhd/
  1. Other people's experiences described:
www.additudemag.com/rsd-rejection-sensitive-dysphoria-experiences/

Books:

  1. Taking Charge of Adult ADHD:
www.amazon.co.uk/Taking-Charge-Adult-Russell-Barkley/dp/1606233386/?tag=mumsnetforu03-21
  1. The Mindfulness Prescription for Adult ADHD: An 8-Step Program:
www.amazon.co.uk/Mindfulness-Prescription-Adult-ADHD-Strengthening-ebook/dp/B0085FGGMI/?tag=mumsnetforu03-21
  1. Order from Chaos: The Everyday Grind of Staying Organized with Adult ADHD:
www.amazon.co.uk/Order-Chaos-Everyday-Staying-Organized-ebook/dp/B08TK4RFN4/?tag=mumsnetforu03-21

Sending you all the wishes and good vibes and love in the world

OP posts:
thelegohooverer · 21/09/2021 12:45

I’ve not been diagnosed. I’m concentrating my efforts on getting ds assessed for now but I definitely have a lot of traits.

Thank you for sharing those resources. Can I also suggest a couple that you might find helpful? Emotional First Aid by Guy Winch is a great book for dealing with difficult emotions. He has a ted talk which only takes a few minutes. It helped me enormously to learn what not to do with my bad experiences, and ways to get through.

Another one to check out on ted talks is Brene Brown. She has a lot to say about shame and picking yourself up again (and again and again).

Ormally · 21/09/2021 12:46

RSD...still the thing that makes me feel 6 years old. I have been ok with navigating most of the combination of neuro stuff but don't feel as if I have got any kind of a handle on that.
Along with the resources you have given, which I will look at, I had Tracy Otsuka's podcast - ADHD for Smart Ass Women - recommended too.

I think it may be worth viewing social media as something that has its own set of 'rules' - and it's a place where mob mentality in all its strands is still allowed to stand. Everything is also only in a visual format (not sure if that matters, but it seems to be a thing that bothers me sometimes). The book 'So you've been publicly shamed?' was something that really unpacked some of the features of this for me (e.g. the types of shaming that are especially effective if you happen to be a woman or found out for various other transgressions, which also have pre-Internet precedents that legislation in real life attempts to keep more in check).

Siameasy · 21/09/2021 12:58

Thanks Feelingpeeled you sound like a really decent person and I think what’s hard about RSD is that I really strive to be authentic at all times and thus I meet rejection quite often compared to someone who say is happy to go along with the crowd.
I read somewhere that ADHD sufferers experience far more rejection/criticism (due to usually being considered “weird”) than NTs PLUS it hurts them MORE
The main goal is to accept oneself-my Dad criticised my brother and I a LOT - for me it was he hated my laugh🙄. Dont worry it hasn’t stopped me being crazy
My brother is dyslexic interestingly.

Hungry675tf · 21/09/2021 13:03

I just wanted to say thank you OP for sharing your story. I have no diagnosis but have been pondering ADHD for a while. The description of RSD is so relatable, right down to the skin and the shame, and the ideation without depression. The shame to the core of my being over something so slight. I thought it was because I lacked resilience, and maybe that is partly true.

I'm going to read all the links you posted. Thanks for helping and I hope you have a better day today Flowers

Muttly · 21/09/2021 13:19

I don’t have ADHD but your second diagnosis rings a lot of bells for me.

I also had a tricky childhood so think my oversharing is to do with that

Me too and I suspect the oversharing has a lot to do with processing this. I have had fantastic therapy but I still find I slip back when I get rejected/abandoned so OP you are not alone.

I try to be kind to myself as I try to remind myself I am only learning in what is an incredibly tough situation and I am doing my best. I think self compassion is probably something you might benefit from cultivating too, because you have enough coming at you without berating yourself from other people’s perspective which is likely to come from very limited understanding of trauma.

I don’t think dismissing that woman’s text is the answer here. She might be giving you some help to teach you another step in your journey of learning but if you are going to take on what she says you need to do so from a perspective of I am only learning this stuff so I couldn’t be expected to know better rather than berating yourself.

ChangeOfMNScenery · 21/09/2021 13:23

I tried to quote one or two posters but decided to keep reading and wow! Let's just say i can't possibly quote everything. I could've written what most of you wrote. I actually just said one or two things posted here to someone/people a few days ago.

Well done OP for starting this thread. You're brave and awesome. Flowers

I'm also autistic with RSD (and many others) and MN has brought it out of me immensely. I've also learned to manage it better online because of MN, so not all bad. Real life is a nightmare so I avoid any possible, potential situation. This means I avoid people most of the time.

I wrote a longer post but kept editing and ended up just deleting it because I felt I was rambling. Just want to chime with support for you. You're not alone.Flowers

withgraceinmyheart · 21/09/2021 14:02

Hi OP, I’m so sorry you’re struggling so much. It sounds like you could do with some support, but I agree with others that a parents WhatsApp group might not be the best place to find it. I think people joining a group like that would expect it to be about practicalities to do with the hobby, sharing lifts, second hand uniform etc. They might not be in a place to give you what you need.

MilesOfSand · 21/09/2021 16:32

@FeelingPeeledRaw can I point out the obvious and say that by what you might call oversharing (I don’t call it that) and starting this thread you’ve started a lovely, life affirming conversation that has helped more people. So here’s to oversharing! WineBrew

FateHasRedesignedMost · 21/09/2021 16:59

It’s good you’re having therapy.

Maybe discuss over-sharing tendencies with your therapist.

It’s one thing to talk about your ADHD and struggles with your MH in an appropriate, supportive environment.

But as the lady kindly pointed out, a hobby group isn’t the best place to share personal issues like this. Partly because it’s not what the group is for, also it puts you in a vulnerable position (and makes you feel embarrassed and inappropriate when people leave or someone messages you to kindly remind you not to over-share) and partly because it can bring other people in the group down or make them very uncomfortable. They may be struggling with their own mental health issues, or psychological problems, or physical health issues, and this hobby group is their escapism. They may start reading your posts without realising how far off topic you’d strayed. Scrolling past isn’t always an option.

Imagine you were admin for a group that was about gardening, but someone started sharing details of their mental health struggles. Would you not politely remind them this isn’t what the group is for?

PrinceRogersNelson · 21/09/2021 17:36

@FateHasRedesignedMost you might not have meant to but that is a very shaming post.

ArthurApples · 21/09/2021 17:42

I deal with it by not being in group chats, or group pages, limiting social media to basic photos of family and pets and my garden shared for relatives that live miles away, no opinions, no sharing feelings or struggles in public. I try and control damage by limiting my interactions in situations where I can't see people face to face and try and better judge all the social cues I'm terrible at that always lead me ending up dying of shame and alienating myself further, because I've done it again, said the wrong thing. You don't know who you might upset, it can set people off just as bad as you are feeling in the moment. Cultivate privacy, its so important, gives you more control. Also stopping drinking has helped hugely. That's the sort of tactics that have helped me check my boundaries and try and think of others first.
So you've made a mistake, totally depends on what you said but it was in the wrong place. Its not helpful to your child. So how can you stop it happening again? Join a support group, post in the right places, write the messages to vent but don't send them. Post on here. I understand the extreme rejection feelings hugely, but the only way to manage it is to better manage your actions, which feels impossible. You can live with it better, protect yourself better. Sounds daft but starting to think about how I'm going to have to model good behaviour for my child growing up has checked me, I can't carry on getting it wrong because I have to be a healthy role model, thats been hugely motivating. Get your medication right, see if any other therapeutic support you might not have explored might be helpful, treat it like a full time job, its an enormous effort to control and you can do it, it can be improved. Best wishes OP, see it as an opportunity.

ArthurApples · 21/09/2021 17:43

I agree with you @FateHasRedesignedMost

FateHasRedesignedMost · 21/09/2021 19:02

FateHasRedesignedMost you might not have meant to but that is a very shaming post

In what way is it ‘shaming’? It wasn’t supposed to be.

I think posters saying ignore the lady (who kindly tried to guide OP in the right direction on the hobby group) are not being particularly helpful to OP.

Many people feel shame and embarrassment if they feel they’ve over-shared inappropriately. And people over-share for all sorts of reasons.

Over-sharing personal details of your mental health struggles, in a group not designed to discuss mental health and not moderated by MH professionals, can attract the wrong sort of attention, or unpleasant comments, and put the poster in a vulnerable or awkward position.

I think the lady was right to point out the group etiquette to OP, privately, to save OP further distress had she continued to post there.

Starrynight468 · 21/09/2021 21:55

If the lady who text had any decent social skills herself and felt worried for OP then the right thing to have done would have been to text OP and ask if she fancied a coffee or a chat and then speak to her about her concerns. Texting someone, no matter how kindly meant, is not a way to convey concern as emotion is often taken the wrong way in a text.

If I was in a group with an over sharer (I'm also an oversharer) who was sharing things that others left the group because of (although we don't know that for a fact) then I wouldn't text that person and tell them what they've done wrong. It's just as bad social skills as OPs (and mine OP so don't take what I've said personally).

ArthurApples · 22/09/2021 07:41

Thats what you would do though Starry, I wouldn't, but its perfectly reasonable, polite and discreet to text someone in those circumstances, kind to reach out in a message and explain. Offering to meet up with someone you don't know, to talk about something like this face to face potentially increases the upset and anxiety for the OP, surely? Most people wouldn't want to get more involved in a difficult time in the life of a parent they don't know in a kids hobby group, unless you're already friends?
You're totally right that nobody knows that group numbers have gone down because of what OP has said, and honestly without knowing what was shared its hard to say. I don't mean I want to know word for word either, boundaries work both ways.

FuckingFabulous · 22/09/2021 08:28

My husband has ADHD and is a massive oversharer. He would definitely understand the feeling of shame and confusion over thinking he was in a place of kindred spirits and supportive people, only to be admonished (however kindly) for thinking it was appropriate to share. He also blurts out what he's thinking if he thinks it's nice, so will say things like "I like your dress, Claire, it really shows off your figure" because he's heard me say similar so it's fine in his mind. He doesn't understand the unwritten rules over what's an appropriate comment from whom and he often gets so excited to make a friend that he's overwhelming. My heart hurts for him often

FateHasRedesignedMost · 22/09/2021 09:29

If the lady who text had any decent social skills herself and felt worried for OP then the right thing to have done would have been to text OP and ask if she fancied a coffee or a chat and then speak to her about her concerns. Texting someone, no matter how kindly meant, is not a way to convey concern as emotion is often taken the wrong way in a text

I don’t think OP misinterpreted the kind intentions of the lady, she mentions multiple times it was a kind message.

Inviting someone you’ve never met for coffee, in order to tell them they’ve over shared in a kids activity group, sounds like a recipe for disaster! Face to face could be very embarrassing and upsetting for OP, more so than a private message.

And that’s assuming they both want to meet up, live near each other (OP said it’s a massive group). Not everyone has time or energy to meet a stranger for coffee to impart some kindly advice. And who knows, maybe the lady has her own MH problems, and meeting a stranger could be overwhelming.

When I worked in MH we often had to tell patients not to over-share, as people do it a lot when manic, psychotic, or have conditions such as ASD or ADHD. This was to protect their privacy and dignity, prevent them from giving personal detail they may regret later, and also to stop them accidentally triggering other patients. Eg in a therapeutic activity group it isn’t appropriate to share thoughts of self harm and suicide with others, or talk about your symptoms in depth, as it may trigger anxiety/panic/anger/awkwardness in others.

Helping people learn social etiquette appropriate to different situations is a key part of most therapy.

FeelingPeeledRaw · 22/09/2021 16:07

Hi guys! Much better day today. It is difficult because I didn't want to out myself in case anyone from the group was on here, so I wasn't able to really specify what type of group it was. So I used "hobby group" to come close....but that is so general that it has then that has led to convos in this thread about whether a hobby group was the right place to share stuff, with people making the valid point that it may not have been. It's not exactly a hobby group, but I still think it's a good analogy so I'm sticking with it.

I spoke to my counsellor today via zoom, and I'll give you her take on it: she believes the stuff I shared was NOT out of place in this group, because I mentioned that I was struggling with stuff that was specific to the nature of the group we are in. However I did also say I was struggling because my ADHD makes me feel overwhelmed....so maybe it was the saying of having ADHD that the lady felt was oversharing....I don't know. But I don't think it was only that (although I genuinely did yesterday) and I don't want to do her a disservice. I think it was the fact that I shared stuff about my living space (we are seriously overcrowded in our flat - 2 adults and a kid share 1 bedroom, another older kid has another bedroom.) So imagine something along the lines of "I'm finding the demands of this hobby hard, my ADHD means I find extra demands on my brain stressful, plus the fact that we are so overcrowded means that I have nowhere to put the kit for this hobby." So for some people in that group it was perfectly reasonable, and for some people who felt that the group was for sharing less emotional things (e.g. "My kid left their hobby-related bag of stuff at the hobby-place - has anyone seen it?") it was not reasonable. But whether it was or wasn't reasonable, the fact that I overshare is an issue for me, so I will continue to work on it. One thing that is really important to me is that nobody in this thread comes down hard on this woman because you never know who is on Mumsnet and I will say again that she meant to be kind, and maybe you could speak to other people in the group and some will agree with her, some won't. But seeing as I have decided to go with "she was being kind" it would be really hypocritical of me to tell her by message that I accept she was trying to be kind (I did tell her that) and then imply the opposite on here. My counsellor's take on it was that the woman shouldn't have messaged me. BUT my counsellor is only a human being with an opinion, and this woman was not part of our zoom meeting, so was not able to defend herself or provide her own context to my counsellor. I heard that phrase somewhere once: he's not here to defend himself and it comes into my head frequently both when I am on here, and just generally.

But there has been a great solution: the hobby group has split in 2, with me hosting an offshoot where people are allowed to chat, ask for support, share their life stories etc. Already pretty much as many people as are on the original have joined the offshoot, so that is validating :-) And now the original will remain for things like lost property, "the venue has changed" etc etc. So everyone is happy :-)

Thank you for all the support and for the resources shared on here by others

OP posts:
thelegohooverer · 22/09/2021 16:16

That’s a great outcome.

Your username is so evocative - it’s exactly how I’ve felt at times.

User5490453456 · 22/09/2021 16:25

Same here, ADHD with RSD. I found the best way to mitigate RSD in relation to online drama (posts, replies from strangers, follows/unfollows) is to forcibly put time and distance between it and reward or distract yourself with a positive source of hyperfocus. I like the environmental stimulation of driving around sunset listening to music, or walking through nature, or the busy stimulus inside shops. So go do whatever it takes to get your mind off the negative RSD trigger.

If I manage to ignore or leave a topic alone for 3 days it bothers me far less, and after a week it's virtually forgotten (and definitely forgotten for NT people who make up the majority of users in a typical online group). Of course it may help to analyse whether your reply might have been fitting or not but there will never be a clear answer. There will always be smart-arse individuals who think their opinion is valid because it goes against the grain. And because you're aware of RSD, you know your emotional response is skewed anyway so there's no point overthinking it.

I read the phrase "cancel and continue" somewhere many years ago and found it useful. Some situations won't have a clear cut resolution and you will feel crap about it. But the best option in light of ADHD/ASD is just to drop it and move on.