To ask if you'd complain about this?

[accom]

DS is 14, he has adhd, he is on medication but he still is hyperactive at times. The school is fine with him leaving the classroom to go and sit somewhere to calm down as he can't focus. Today, probably because of the heat and him eating sweets (the whole class was given them and he didn't want to be the odd one out so he ate them) he couldn't focus in his last lesson, he asked the teacher (it was a cover teacher so they don't know him) if he could go to his head of year or the learning support room to calm down and he was told no, DS then kept walking around the classroom so ended up getting into trouble. He told the teacher he couldn't do his work but the teacher told him to shut up and stop being disruptive or he’d be given a consequence (c1/c2 etc and c1 is a warning but the rest are detention etc). DS told me he put his head on the desk to try and behave but apparently the teacher didn't like that either and gave him a c and wrote in his planner that he was refusing to do his work.

Would you complain about this or let it go?

@Megasausagehead

Her age is irrelevant if she has a hypo.

Even a grown adult couldn't tell you if they were having a hypo @RedHelenB

But thanks anyway

You're right, they couldn’t. But if they'd told me they were diabetic beforehand I would recognise they were having a hypo.

@Megasausagehead

Her age is irrelevant if she has a hypo.

Even a grown adult couldn't tell you if they were having a hypo @RedHelenB

But thanks anyway

Type 1 diabetic here. Unless a hypo was very severe I'd be surprised if someone couldn't articulate that they were low and needed glucose, and if a hypo were that severe it would be best to call 999 rather than rely on a teacher. I'd echo the comments that a diabetic is ultimately responsible for managing their own condition, with decent medical support of course - diabetics tend to be an expert in their own condition in a way that a teacher/ work colleague etc simply can't replicate. Thankfully with new technologies like the Freestyle Libre being made available on the NHS the condition is becoming easier to manage but it's still a life long undertaking which is typically misunderstood by the general public ("oh, so you can't eat sugar?") and GPs (not well versed in the latest treatment options).

Is ds annoyed?

Tbh this happens with subs. Iv laminated ds pass, and attached it to a string on his bag and stuck it in the pocket so he can forget it.

I'd also be looking at his meds. They should be lasting the whole school day.

This kind of stuff really makes me cross, it is the school's responsibility to ensure staff are aware of any issues within the class they are taking. My DS even has issues with permanent staff as they aren't always informed of his issues.

There seems to be this blind trust in teachers on MN, there definitely are some who never listen to the children or allow them to explain anything. DS has had some awful experiences as well as many fabulous experiences. Having a child with additional needs really highlights the really good teachers and those who don't believe ADHD or autism exist at all!

I would speak to the school so that a spare pass can be kept somewhere. Eg. a second pass that can be easily stuck into the cover of his planner.

When a supply teacher arrives 15 minutes before the start of the day, they might be teaching 150 different students that day. If there's 3 supply teachers in then the cover manager does not realistically have time to tell 3 teachers everything about 450 students, whilst organising cover for the day.

There needs to be something put in place and you're right to speak to the school to ask for something to be put in place though.

@Ajl46

That's nice for you to think on your sole experience.

I have 2 type 1 diabetic children for over 12 years of experience being a human pancreas.

So excuse me if I disagree with you completely when you basically call me a liar!

My DD is not hypo aware to any extent and has sat through a 2 hour test before, unable to pick up a pen or summon help. They noticed when she fell off her chair.

My DS is hypo aware below 3.

Disabled children including diabetics fall under a care plan, the school has a duty of care. Not once in 11 years of school has an ambulance been necessary.

Your diabetes knowledge is rubbish.

And my children refuse the pump and libre. They don't want permanent attachments reminding them that they have a disability.

FFS honestly, call Mr a liar about anything but that! 12 fucking years!

I had to get her from a busstop once with blood sugar of 1.9. She was conscious and cooperative, so no need for an ambulance.

Thank fuck she doesn't have a parent like you.

Oh and her Hbaic is 52.

@RedHelenB a care plan means that she doesn't have to publicly declare her disability every lesson. It is for the school and I to agree the plan, then they follow it.

@Ajl46 and yeah, people putting their tuppence worth in, without being as informed as us, is REALLY, REALLY ANNOYING.

[quote Megasausagehead]@Ajl46

That's nice for you to think on your sole experience.

I have 2 type 1 diabetic children for over 12 years of experience being a human pancreas.

So excuse me if I disagree with you completely when you basically call me a liar!

My DD is not hypo aware to any extent and has sat through a 2 hour test before, unable to pick up a pen or summon help. They noticed when she fell off her chair.

My DS is hypo aware below 3.

Disabled children including diabetics fall under a care plan, the school has a duty of care. Not once in 11 years of school has an ambulance been necessary.

Your diabetes knowledge is rubbish.[/quote]
You're basing your views on your experiences & i'm basing mine on mine. We'll have to beg to differ. You stated that diabetics can't state that they feel hypo. I made the point that many diabetics can state that they feel hypo. I'm sorry if your DC can't, that must be difficult to manage. Luckily now, with things like the freestyle libre, it's easier for someone else to check if needed / alarms can alert people if blood sugar falls out of range. Btw, as an aside, my diabetes knowledge is far from "rubbish."

@Megasausagehead

My DD 15 is diabetic. It is essential sub's are informed of her needs. It isn't her responsibility. The school has a duty of care.

@Ajl46 Nah, this is what I said actually.

All about MY DD.

You are the one comparing yourself to everyone else.

Apologies if I got my threads mixed up. Someone somewhere said that diabetics can't say when they are hypo. This is generally not true. My point is still that ultimately a diabetic has to learn to be responsible for their own condition. Otherwise what happens when they leave school? Out of interest, what happens if the school care plan recommends one course of action but your daughter knows that it's sub-optimal? Can she override it?

@Ajl46

Apologies if I got my threads mixed up. Someone somewhere said that diabetics can't say when they are hypo. This is generally not true. My point is still that ultimately a diabetic has to learn to be responsible for their own condition. Otherwise what happens when they leave school? Out of interest, what happens if the school care plan recommends one course of action but your daughter knows that it's sub-optimal? Can she override it?

She always has her blood testing kit and jelly babies on her. Her insulin is in the office. She has self injected and tested since 7, as has my son.

They test a break and lunch and the results are recorded. They just need people to notice if they act weird in-between.

It was easy when they were young, but the older they get, the more corners they cut. So perversely when their control should be improving, it worsens significantly.

They are both also mid, diabetes denial. They've had it so long that it is a heavy, monotonous burden, that makes them significantly different to non diabetic children.

My 12 yo likes to think if he only sneaks one biscuit, it doesn't count on carb. He is also lying about his tests.

I'm sorry I'm so angry. It has been a very hard slog. My ex was also a poorly controlled, T1D. I called him more ambulances than I ever had nights out. He also wasn't hypo aware.

That is very tough, I am sorry to hear that. Diabetes denial must be so difficult to deal with - teenagers aren't known for their ability to take a long term view on things.

One thing that really irritates me about the treatment options available is the post code lottery of it. If you have a child who struggles with hypo awareness they ought to be offered a flash monitoring system or, preferably, a CGMS (maybe they have & rejected it & if so fair enough, but I have seen a lot of cases where CCGs discourage prescribing). Hope things improve for you. It's a long slog but so worth it and your DC will thank you when they are older.

@Ajl46

I'm hoping to convince them for libre2. But no CCG here on offer. Pumps are an absolute no lol.

Thank you, you too

[quote Megasausagehead]@Ajl46

I'm hoping to convince them for libre2. But no CCG here on offer. Pumps are an absolute no lol.

Thank you, you too [/quote]
I hope you're successful! I've seen quite a few cool stickers to decorate a Libre if that might help... (teenage years are hard enough without having to worry about being attached to medical devices). 💐 to you also xx

I'm sorry your DS had such a bad experience in school. Do you have a copy of the school's own safeguarding policy? I'd start there, then it's nit about complaining, it's about making sure they hold themselves to the standard expected.

If it mentions a physical pass, it needs to be updated to a solution which will work for people whose symptoms include loosing random pieces of paper. A 'ski-pass' type of extendible holder to keep it attached to his bag but out of sight so something that works.

Good luck with getting the standard of schooling you need for your DS

I haven't phoned the school today, but DS has said that he had the same supply teacher in one of his lessons and she moved a few people around (including DS) DS told her he doesn't sit next to other students as he gets distracted and she told him to do his work, DS then moved back to where he was previously sitting and told her he worked better there and she told him to move back (even though he was doing his work) DS said no and she phoned his head of year, his head of year then went and got him out of class and spoke to him and he removed the consequences from yesterday and let him stay in his office until the lesson ended. He also told DS that in September he will write in his planner that he can leave the classroom if he needs too so he won't need to carry a pass around. He also told him that he'll speak to the supply teacher as DS will probably have her again tomorrow.

Hopefully that’s resolved, then OP. So long as he doesn’t lose his planner! It would be nice to have this info on SIMS as well so any new cover teacher can see it without it being your DS’s responsibility to inform them.

Autism denial here. School have been a bit crap generally but the last HoH was really good with sorting out issues. Sadly they have left. We have had two phone calls and several emails to try and sort out an issue.

But the ignorance on this thread is astounding.

give him a pass op, while you cancel the cheque

I hope your son had a better day today OP