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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if your DC is neurodiverse, did you always 'know'?

64 replies

ZoinksRun · 14/07/2021 07:48

DD is lovely, kind and curious. As my eldest, and with little experience of other people's children I didn't really pick anything up of what babies do at what age. She was early to crawl and walk, late when she started talking.
It was very difficult to settle her into childcare. Once we had three months of settling in sessions at a nursery before I switched to a childminder. The childminder was lovely but did admit she was the most difficult to settle in her twenty years of experience! My dd always was very attached to me, and even now won't let me go to the car (which is on our drive) without her.

The childminder questioned autism at 3 due to my dd putting her hands on her ears a lot. She is very noise sensitive and repeated things over and over (like a script.) Her understanding was good and she got on well with other kids, however she was very distressed when they got upset, often crying for way longer than they did.
Fastfoward to her being six and I'm still not sure. She's been to preschool and school and neither have raised it. She has a care plan for anxiety, which her preschool introduced, and at the time I felt they weren't telling me everything.

School say they don't formally start looking into things until they are 7 (she's 6) but I only know this because a friend is waiting for SENco support from them for her son. I worry that school won't pick this up, as she's not a management issue at all. She finds it very hard to concentrate and often won't stop moving when asked to do tasks, it's like a compulsion to fidget. We often do maths whilst playing so she has something to do with her hands.
I suppose what I want is an answer one way or another. Her godmother thinks she might have ADHD and autism, as she thinks DD is very similar to her sister who has these diagnosis's.
Just wondered if anyone could help me understand whether I should have known or whether this is sometimes a complete shock (not in a bad way) to the parents too.

OP posts:
Hallyup6 · 14/07/2021 10:07

I always knew there was something different about my daughter but wasn't able to put a finger on it. She was excessively shy at birthday parties, never joined in with games and hated people singing Happy Birthday to her. She'd go to Brownies and wouldn't say her promise with the others. She'd hide under tables at activities, although not at school. She never had any real issues at primary school except from being quiet and wouldn't go to collect certificates in assembly. It was only once she hit high school that the differences between her and her peers became hugely apparent. She was diagnosed at 14 as autistic.

Kanaloa · 14/07/2021 10:16

Sort of. When my son was born he was born by emergency c-section and was quite poorly as a baby. He seemed a bit ‘different’ but we put it down to being ill as a baby and maybe developmentally behind because of that.

By the time he was 2/3 it was clear, he didn’t talk while his siblings talked by that age, he wouldn’t play like other kids etc. He also had awful meltdown tantrums that brought me to my knees. It was awful as when I told people I got ‘haha terrible twos!’ Like, no, my older two kids had terrible twos, this is totally different.

When we got the diagnosis everyone kept sympathising and saying I must feel awful. I didn’t, I just felt totally relieved.

Kanaloa · 14/07/2021 10:19

And don’t feel guilty, thinking you ‘should have known.’ There’s no way to know, sometimes children who actually have autism/adhd struggle to get a diagnosis because the actual professionals can’t agree so how could you know!

MrsKrystalStubbs · 14/07/2021 10:59

I knew my DS had ‘issues’ I just didn’t realise that it was autism until he was diagnosed at age 8. He didn’t have any speech or learning issues just lots of odd behaviour that we got used to as he is an only. He is much happier now he is diagnosed. We have done everything privately as he was at an independent school and we didn’t want to wait for the NHS. All the professionals involved were a bit horrified that he hadn’t been diagnosed but we had been living abroad so he slipped through the standard UK system I guess. We have paid for all diagnosis and support ourselves and have just informed our GP who didn’t want to know at all when I initially said I thought there was an issue.

coodawoodashooda · 14/07/2021 11:01

Why do you think your son is happier now pp?

MrsKrystalStubbs · 14/07/2021 11:03

Because he has stopped saying he wants to kill himself. He accepts his diagnosis and can rationalise his behaviour better. He is nearly 10.

Ohhyeahright · 14/07/2021 11:20

Hugs op

UmamiMammy · 14/07/2021 11:23

DS is now 14 and has attended a special school since he was 4. It was obvious by the age of 2 that he had disabilities, he was initially diagnosed with global development delay and had a working diagnosis of autism which was confirmed when he was 3 (assessment process took ages).
He has learning disabilities and will always need support but he is now verbal and out of nappies.
With ds it was very obvious from an early age...........I think it's quite common to miss issues in those for whom it's less obvious as early

MummytoCSJH · 14/07/2021 13:08

Yes, always knew my son had ADHD and he was diagnosed as soon as he turned 6 and medication at 7 (as soon as they were able to age wise, basically). Before that all referrals had been rejected due to his age, even with the doctors saying it was an obvious diagnosis. The symptoms started really early, he could walk and climb really early and barely slept as a young toddler.

wordsareveryunnecessary · 14/07/2021 13:24

Yes. As an adoptive mum I knew from when we met. DS was ten months old.

Monkeytennis97 · 14/07/2021 13:27

I knew at 13 months. DS was dxd at 28 months with autism. He has autism and SLD. The SLD part was obvious too tbh.

Bellend101 · 14/07/2021 15:56

DS has ADHD. I could tell when he was 4 that there was something there. That was when I noticed his behaviour was quite different to that of his peers.

NeonStones · 14/07/2021 16:03

With my DD I started to suspect when she was 6, but before that I thought she was just quite sensitive. It became more and more obvious the older she got until she was diagnosed at 10. My DS I had no idea until he started school and he stopped coping, he got diagnosed faster. I went to the GP to ask for a referral for him due to his behaviour at school. My DD the school referred in the end.

What I found was the older she got, the harder it got for her to cope and the more obvious her difficulties became. It became quite clear she wasn’t just sensitive as the social divide between her and her peers got wider.

Todaytomorrowyesterday · 14/07/2021 16:12

With my eldest we never even realised - her difference and struggles we just assumed nothing different - only now at 18 recently diagnosed very good at masking - she makes sense to us. My husband and I look at each other and many doh moments of never realising (& guilt)

Ironically our younger child showed much more traits especially between ages 2-4 - & a few people questioned it at the time…now a lot older they’ve grown out of those toddler behaviours (which just felt extreme at the time) she is still very spirited but having now gone through diagnoses for my elder she isn’t!
I have a much better understanding of autism especially in girls!

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