Did you know that the NHS is about to share all your medical records without your consent?

[DontDrinkDontSmokeWhatDoIDo]

Sharing a post from elsewhere.

Did you know? Do you trust them?

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This has not been widely publicised.

At the moment, you have to specifically give your express permission for your GP to share your medical records with a third party.

From 1st July, all your past, present and future records will be routinely shared with a new service - NHS Digital.

Your GP's system will share all your medical information with NHS Digital - including your NHS Number and postcode.

NHS Digital will take all information, and use it for research, analysis, health policies, information on demographics, locations etc and to share with third parties (but not marketing or insurance, apparently).

They will use a system to anonymise your NHS identification, but reserve the right to de-anonymise it if they need to.

Your GP service will be adding a statement to their surgery to state that your data is shared with NHS Digital.

YOU HAVE UNTIL 23rd JUNE TO OPT OUT.

Article in FT explaining:
<a class="break-all" href="http://go.mumsnet.com/?xs=1&id=470X1554755&url=www.ft.com/content/9fee812f-6975-49ce-915c-aeb25d3dd748?fbclid=IwAR1bTPMveMOWmvz831XJ9M0QlAH_-ijZkcRe02lh5HTqGlUmQTBzlNPHp5U" target="blank">http://go.mumsnet.com/?xs=1&id=470X1554755&url=www.ft.com/content/9fee812f-6975-49ce-915c-aeb25d3dd748?fbclid=IwAR1bTPMveMOWmvz831XJ9M0QlAH-ijZkcRe02lh5HTqGlUmQTBzlNPHp5U

Website explaining in detail how to opt out for GP data sharing and NHS Digital data sharing (different data and processes).

https://medconfidential.org/how-to-opt-out/?fbclid=IwAR0VSAIiDnULoWSo5Z4vKqzvmLGXdiXr4chrC3ALdeYMVpTLxdeqVoyZG_o

Have you considered that it is mainly for patients' benefits? That the main reason for it is the sharing of information between healthcare providers. So that when you get a mri somewhere, your consultant knows the results as soon as released. That your GP will know right away what medication you've been prescribed in A&E? That if you opt to be treated to a hospital in a different county because of shorter waiting list, but then gets transferred back to your local hospital, they won't have to repeat all your tests because they'll have access to them directly?

I can think of lots of ways in which this is a fantastic idea and long overdue, not least of which is safeguarding abused children who get bounced from one trust to another, patterns going unnoticed as the info about their injuries is never collated in one place.

Alternate thread title: did you know the NHS is about to share your medical details with...itself?? 😂

Yes - it's been known about for months and I opted out last year.

I don't have an objection per se to the sharing within the NHS but I have a very strong objection to my data being shared to commercial companies

Imagine the sort of research that can be done with access to that dataset! It might be revolutionary

Mythbuster about this from the NHS:

digital.nhs.uk/services/national-data-opt-out/mythbusting-social-media-posts

Surely our NHS data already is anonymised and shared because otherwise how would people be able to report statistics on prevalence of illnesses, births etc?

So YABU for thinking they haven’t been doing this already.

At least this time it will also serve a useful purpose on an individual level by easier sharing of scans, tests etc.

@vivainsomnia

Have you considered that it is mainly for patients' benefits? That the main reason for it is the sharing of information between healthcare providers. So that when you get a mri somewhere, your consultant knows the results as soon as released. That your GP will know right away what medication you've been prescribed in A&E? That if you opt to be treated to a hospital in a different county because of shorter waiting list, but then gets transferred back to your local hospital, they won't have to repeat all your tests because they'll have access to them directly?

I think this was meant to happen years ago AFAIK it does When I've bern in, they take the NHS number and they know what the GP knows

But that isn't what this is about. I find it y confusing but whatever I have misunderstood, it doesn't say "we will make sure any hospital in England has the relevant info in case you are admitted".

If that is what they are trying to say, it's a cock up pf epic proportions.

Thanks for sharing that @Gladioli23 - I thought the “date to opt out” in particular looked like bollocks (as due to GDPR surely you can refuse data sharing at any point anyway?), glad to see I was right!

I hope you don't have a clubcard, nectar card, credit card, any other loyalty card or social media then. You wouldn't believe your data that is already floating around...

So the NHS is sharing our data with the NHS? I'm not seeing the problem

@tiredanddangerous

So the NHS is sharing our data with the NHS? I'm not seeing the problem

How did anyone get that from the FT article?

I hope you don't have a clubcard, nectar card, credit card, any other loyalty card or social media then. You wouldn't believe your data that is already floating around...

This. Totally. Comparison sites ealing in travel insurance will probably already be selling way more detail about me than this🙄.

Id heard about it a while ago. If it means medical breakthroughs can happen quicker and easier its definitely a good thing. I've yet to hear one verifiable negative to the scheme, every article if read telling you to opt out fails to contain one decent reason why.

@Dyrne

Surely our NHS data already is anonymised and shared because otherwise how would people be able to report statistics on prevalence of illnesses, births etc?

So YABU for thinking they haven’t been doing this already.

At least this time it will also serve a useful purpose on an individual level by easier sharing of scans, tests etc.

That is 100% not what it will deliver, @Dyrne - did you think it would?

It's not a distributed ledger.

@DontDrinkDontSmokeWhatDoIDo Fair enough, it isn’t the system I was thinking of (a shame!)

So what is your actual issue with this?

That the NHS are sharing data to enable better tracking and management of illness and enable better research of disease; something which they’re doing already?

@LadyPoison

Yes - it's been known about for months and I opted out last year.

I don't have an objection per se to the sharing within the NHS but I have a very strong objection to my data being shared to commercial companies

I agree.

I opted out of something last year, but all this opt in, opt out lark, I have forgotten what I am in, and what I am out of!

You could have just joined on that other active thread...

You're a perfect example of my concerns, @Dyrne .

You thought that their aims were something they were not and made your sweeping statement based on your assumption.

At the very least, what they are doing is collecting massively sensitive data, and subjecting it to an entirely reversible 'anonymisation' process.

I do not trust any one organisation to do and store this securely and successfully on a national scale, let alone the NHS.

www.mumsnet.com/Talk/am_i_being_unreasonable/4258306-To-think-this-is-out-of-order-from-the-NHS

There's already an active thread in AIBU so YABU to repeat half truths.

I explain my reasons on the other thread but your data isn't going to be sold, it's going to be used for research and planning purposes so YOUR future health and care needs can be planned for. Aging population? That's dementia services your area needs. Certain ethnicities? That's diabetes services your area needs. High birth rate? That's school places your area needs. Without this data people who plan YOUR services FOR YOU will just be blind guessing. Not even educated guessing! Opt out if you want but when services are overwhelmed in your area it'll be because planners didn't have the data to make the case for extra funding.

Thank you SO MUCH FOR SHARING THIS.

This is data being shared with commercial organisations. Once it’s been shared you can’t get it back.

Everyone should read surveillance capitalism.

m.youtube.com/watch?v=QL4bz3QXWEo

@BecauseMyRingBurnsSheila - I didn't see the other thread, thank you for highlighting.

I haven't posted any 'half-truths'. Whether you agree with my perspective is a different matter.

The hoops I have to jump through in my daily job to get access to NHS data are multiple. Say what you want about it and other organisations but NHS data is incredibly secure and they DO NOT hand it over to just anyone.

@DontDrinkDontSmokeWhatDoIDo well then thank fuck you were here to plaster a half-arsed copy and paste from social media (which was also wrong btw); which to be honest already made me file this thread under the sorts of bollocks fb posts you see along the lines of “I do NOT give my CONSENT for Facebook to use my DATA…”

Why couldn’t you have just posted something sensible to begin with?

@BecauseMyRingBurnsSheila

The hoops I have to jump through in my daily job to get access to NHS data are multiple. Say what you want about it and other organisations but NHS data is incredibly secure and they DO NOT hand it over to just anyone.

They are making it appear as if they want to.

@DontDrinkDontSmokeWhatDoIDo

@BecauseMyRingBurnsSheila - I didn't see the other thread, thank you for highlighting.

I haven't posted any 'half-truths'. Whether you agree with my perspective is a different matter.

The half truth is there's a proposed change to how the data is shared. The rest is hyperbolic, scaremongering nonsense.