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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I need a hand to hold.

567 replies

Troublewaters2021 · 07/03/2021 20:37

My DD8 had a heart transplant a few years ago now, she has been struggling this year on and off after a few good years. She has some changes in her cardiac echo however they said they would unlikely get worse they wasn’t really sure on the significance of the findings.
At 5.45 tonight she went in to perri arrest.
They were amazing and everything had happened so fast, she is stabilised in CICU. No one is allowed in apart from me she looks very peaceful, I am waiting for consultants.
I have been on here a while and sending myself crazy looking at the clock with no one to cry to.
It all happened so fast she was playing in the back and then she came through to say she didn’t feel well. Went to get her some paracetamol and when I came back in she was on the floor.

OP posts:
MayMiracle · 07/03/2021 22:47

Lots of love to you and your dd 💓

Plzholdmyhandforamin · 07/03/2021 22:48

Another handhold from me OP, we are all here for as long as you need us Flowers

I had sepsis 2 years ago, different circumstances to your lovely DD as my infection was in my womb but the antibiotics started to work very quickly. They're able to culture the bacteria and change/administer the antibiotics accordingly. She is in good hands and will be well looked after, especially being on the CICU.

Please make sure you eat and drink, you're bound to be in shock.

Sending you strength x

yuyubooboo · 07/03/2021 22:49

Handhold for you and your lovely DD ThanksCake

fluffynotebook · 07/03/2021 22:51

Hand hold here x

Incogweeto · 07/03/2021 22:53

Sending so much love to you and your sweet baby.

ohwotsits · 07/03/2021 22:54

Your hand is firmly held by us all. Your DD is in my thoughts and prayers. She sounds like such a strong little girl.

CarriesFlower82 · 07/03/2021 22:55

Handhold from me and also sending love, strength and healing vibes. You are in my thoughts xxx

margaritasbythesea · 07/03/2021 22:55

Sending you love and my best wishes x

justasking111 · 07/03/2021 22:56

My neighbour heart transplant patient of 20 years, had this a couple of years ago, happened when they were out shopping. He was back in hospital for a time, then could not drive for a while. Took him a bit to get his strength back, he is now back to fighting form. They never found out what caused it but it has not recurred.

Thinking of you Flowers

Dowser · 07/03/2021 22:57

Aww bless you
I’m so sorry
Here’s a handhold and a hug

MsDogLady · 07/03/2021 22:59

Sending strength and prayers to you and your wonderful, talented girl. 🌻

Dontjudgeme101 · 07/03/2021 23:02

Hand hold 💐

ihearttc · 07/03/2021 23:09

Sending lots of love and hugs. Really hope you get some good news xxx

unchienandalusia · 07/03/2021 23:11

Handhold here too op. We're here with you.

EffYouSeeKaye · 07/03/2021 23:11

Hand hold here Flowers

NoIDontWatchLoveIsland · 07/03/2021 23:13

Take a deep breath OP she is in good hands. Holding yours across the ether.

sage46 · 07/03/2021 23:13

Hand hold x

Bellver888 · 07/03/2021 23:14

The tightest handhold I can give for you and your baby 💐

Cakecakeandmorecake · 07/03/2021 23:14

I’m so sorry OP. Sending you lots of love. Your DD sounds amazing, such a fighter Flowers

Fifipop185 · 07/03/2021 23:14

Sending hugs and a tight hand hold. You're both in my prayers tonight. Come on little one, fight through this. Thanks

Justgorgeous · 07/03/2021 23:15

Sending love, light and positive vibes to you both. You got this.

Cactuslockdown · 07/03/2021 23:17

Sending love and strength to you both OP

Troublewaters2021 · 07/03/2021 23:18

Thank you for your kind words. They are concerned and said that It will be a very rough 24 hours to see how she responds.
We are at a sordid cardiac hospital so know we were in the best hands. I just feel useless. They think it’s linked to the blood infection she had over xmas. That has returned and also spread and caused acute endocarditis.
She is very hot and they are struggling to keep her blood pressure stabilised.
There is no parents sleeping in cicu unfortunately but I’m not leaving her tonight I will sit in the chair.

OP posts:
MrsCalypsoGrant · 07/03/2021 23:18

Sending good wishes & support OP, & a hand to hold tonight 💐

babbaloushka · 07/03/2021 23:19

Hand hold OP, you're there for her. She's got you. Take care of yourself, get some food and drink.