Thank you to all who's commented so what it is, we currently live on the top floor of a tower block I have three kids.
When I first accepted this flat I loved it I still do, but now my daughter's needs have become apparent it's no longer suitable.
She has a neurological condition which this flat makes it impossible to live in anymore.
We are bidding for a 3 bed but the band I'm in there is 300 people ahead of me.
I've had supporting letters from my housing manager,My Gp discussing my mental health and how the flat isn't suitable for her anymore and the local counsellor and The MP.
The school wrote a huge letter on how it was unsafe as she has no awareness of safety of herself or others and danger.
I can't go into it to much as there are things that have happened that a few people are aware of and would be able to identify me from this.
The letter the school wrote included an occasion on where my DD quite possibly could have injured someone severely due to finding an awful object she was able to get from a kitchen! At school!
I'm tired now so tired of fighting the council.
They have all of this information and letters my DD is fully supported by a 1-1 at school and I do it at home to protect her and my sons.
They're is no space to divide rooms or have her in with me as my own issue prevents this so they are all in the one room together, she doesn't sleep none of us have slept through in years. She is 6 years old so still very young.
The council refused to award us medical priority to move and I appealed they said nope, I then spoke to someone else from the housing who then got a physiatrist involved who awarded us Band A with medical priority 1,
we was 2nd for a house.
I then recieve a call yesterday telling me it was a mistake and no priority should of been awarded at all, until I can supply more reports or info but I don't have anything else to give other than what I have given.
I do not know what else to do I am absolutely petrified they will take this band a away which the woman said they are looking to do.
My daughter walks along my windowsills and doesn't get down without a fight she wakes in the night still.
it's 235ft up on the air, I have window restrictors on however you can still get a small person out of that gap I have bad anxiety because of the intrusive thoughts I get about her falling from the windows, the council have already said there isn't no more they can add on, I've been in therapy since 2018 for stress and anxiety.
She is in receipt of High rate DLA I receive carers, the only downfall is she isn't officially diagnosed, however the school has treated her and her Gp like she is from day one of reception.
We have been fighting CAMHS to see her since she was 4 she still is waiting to be seen but we are now working with another agency who work alongside Camhs who also confirm they would diagnose the condition and it's severe.
Please if anyone has any knowledge on what else I can do please feel free to message me or anything, I don't want them to take my banding away.
I need this bedroom for my daughter sooner rather than later.
Sorry this is so long.
I feel like I've wrote maybe too much and maybe identified myself now.