www.alzheimers.org.uk/about-us/news-and-media/facts-media#:~:text=209%2C600%20will%20develop%20dementia%20this,with%20dementia%20in%20the%20UK.
Have been following this thread with interest as have direct experience of caring for someone with dementia, and all the fallout.
I think the main issue I have, aside from the economics, is that according to the link above, 70% of care home residents have dementia of one sort or another, and I was quite shocked by the number of those under 65 who have it too.
Dementia is a degenerative brain disease, it seems like luck of the draw who gets it, and in the later stages, which can go on for years, the sufferer is essentially reduced to a shell being kept alive and requiring not just basic care, but medical intervention such as tube feeding etc.
There are two forms of available funding - one is the means tested LA funding with the 23,000 odd threshold, but there is also CHC which is supposed to release NHS funding for care when the medical needs escalate. This is not well publicised, the focus is all on means testing and assets. And CHC can be applied for whether a person is in residential care or at home as it is allocated supposedly on care needs.
We're starting this latter journey, for my MIL, and my research suggests that getting CHC is incredibly hard because there are grey areas around what is social care and the crossover with medical need. Fortunately the home she is in have triggered the process as obviously due to Covid and her no longer having a scooby who we are for the last year, we haven't been able to see her. She's now bed bound and non-verbal, up to now she has been self funding but her assets are now gone after roughly three years in the home. Prior to that we had her at home with us for 18 months before we could no longer keep her safe and the wolf from the door at the same time.
But back to the point I did have in my head.
It is all very complex when flesh and blood people with complex needs due to advanced age are framed as first and foremost numbers on a balance sheet. Sod the inheritance issue, it's more that it feels like they are being penalised for getting the wrong disease - and also the hardline approach that all families are just after the cash when often the overwhelming feeling is to experience a living grief, plus trying to juggle all the complex admin, keep the person needing care calm, comfortable etc.....which can lead to things like finances ending up in a muddle.
We either strive for a more equitable society or it remains a pay to play scenario.
The funding thresholds mean that those with modest assets lose the lot, while the wealthy have been able to organise themselves financially aren't hit as hard.
It is already accepted that we do have to pay for end of life care, it is a fact.
The fairness of it is another matter entirely, and this needs to be addressed.