To want a normal functioning thyroid

[boohooyoutoo]

I know I'm not being unreasonable I guess but I've reposted here as the other boards don't seem to get any traction.

I miscarried due to thyroid issue which has gone undetected for many years.

Since diagnosed a few months ago as severely overactive, I've had meds but they gave me too much at 200mg or originally carbimazole but as I informed them last month I'm planning on starting a family they switched me to Propyltjiouracil.

200ng has now made me underactive thyroid And I feel like this is never ending.

My meds have now been dropped to 25mg instead of 200mg under doctors advice and I haven't had a blood test to see if rectified but feel I'm still not myself and know the levels aren't right.

Any advice shall I just conceive anyway? If not how long should I wait and how much 'trial and error' am I likely to go through?

Any doctors our there or non doctors that have had a similar issue I'd really appreciate advice 💓

I haven't had issues with conxieving as my thyroid issues came after having the kids but just wanted to show thyroid support. Have you been diagnosed with grave disease? I have hashimotos and know it's a bitch

You’ll get excellent advice on the thyroid boards of Health Unlocked. Helped me through my thyroid issues.

I have Hashimoto’s, which was diagnosed after having my first son. I had no problems conceiving, and didn’t have problems conceiving the second time, even after diagnosis.

I will say that pregnancy evened out all my hormonal issues, and the problems exploded during the postpartum period, and also when I stopped breastfeeding when my children were around eighteen months. My thyroid swung so much between hypo and hyper states, that I decided to skip having a third child.

Having a thyroid condition certainly isn’t a barrier to having a successful pregnancy, but you do sound like you’re in the middle of a huge flare, and I would try and get that under control first before TTC.

Have you had covid or been ill as maybe it's irritated and might settle down.

@Keepdistance I haven't had covid

@stopgap I know deep down waiting is the right thing to do. However, it's just annoying because the miscarriage was couple years ago and I keep having flares. Appreciate I've only been medicated a few months but it's just frustrating and I want to know if my next test does say normal what should I do after that or how long would I need to wait

@Sideorderofchips I have not had a braves disease diagnosis. Or the other long name you mention. I'm just fed up - I'm at an age now where I need to get on with it and this is holding me back

@Livingmagicallyagain thank you x

I've just been diagnosed a couple of months ago as hypothyroid but now my meds have tipped me the other way so reducing on them. Generally I feel okay, but a bit 'off'. Just wanted to send you my sympathy Op and hope it works out okay for you. It's a real bitch I know and you just carry on looking absolutely fine to everyone. Thanks to pp for the link, I'll have a look.

I lost two babies and was borderline under active. When I lost the second Dr decided to start me on levothyroxine I waited about three months before trying and went full term. Apparently thyroid can play a big part in miscarrying maybe someone medical will be around soon. Take care x

I have an under active thyroid it's important to get it in the "normal " range before and during pregnancy or you are at increased risk of miscarriage I'm sorry but you are best speaking to your doctor keep asking them and bear in mind it can take 6-8 weeks for any dosage change to take any effect I'm so sorry you are going through this a lot of gps don't take it very seriously xx

I have an under active thyroid and it was only discovered after three miscarriages, I was on (and still am) levothyroxine. I was also placed on prednisolone with my next pregnancy due to my TSH levels being borderline at the time. As PP I was actually then fine during pregnancy but it went off the charts postpartum and were still playing around with my dose to try and get it right. Good luck OP - I’d push to get your dose/meds right.

Were you on 200mg of carbimazole? If so thats a huge dose and I'm not surprised your now on 25mg. Most people are on between 5 - 40mg.

Sorry just realised/remembered - I was on the prednisolone due to high thyroid antibodies; TSH levels were borderline in pregnancy and that’s what the levothyroxine took care of.

Thanks so much these responses are hugely helpful

@user675761 no I was on 200mg of propythouracil then they dropped me to 50mg which is what I'm on now. Carbimazole o was on 40 mg I think

I feel you OP. I was diagnosed with graves 10 years ago after having my daughter, went into remission for a while after a couple of years of meds, then came back with a vengeance about 5 years ago. Since then I’ve had times of it being ‘normal’ but more recently it has been ridiculous, my TSH going from 0.12 to 25 in the space of 6 weeks. I miscarried last year and believe it was caused by my thyroid. Was under control for a few months at the beginning of this year and then spiralled again. My thyroid is very inflamed and almost ‘burnt away’ so I will have to be on levothyroxin for the rest of my life, but getting the dose right seems impossible. I’ve been trying for baby number two for 7 years with no success, time is no longer on my side but for IVF obviously I need to have optimum levels. Not just that, it affects every part of my daily life, I’ve gained weight, I’m exhausted all the time, it makes my depression and anxiety worse. When my thyroid was very under active I was strongly advised to stop TTC until it levelled, but my GP or endocrinologist haven’t advised recently that we should stop despite my flare ups. All I could advise is listen to your body and recognise the signs of either hyper/hypo, luckily I have a fab GP who is very supportive because many don’t seem to take it seriously or realise the impact it has on your health and every part of your life. You have my sympathies

I have a thyroid autoimmune condition and eventually lost my thyroid to cancer.

I would not TTC until your thyroid levels are stable for at least 6 months, and honestly, I would wait a year if it were me (and it was -‘d I did) because thyroid levels can have a huge impact on fetal development.

[quote boohooyoutoo]@user675761 no I was on 200mg of propythouracil then they dropped me to 50mg which is what I'm on now. Carbimazole o was on 40 mg I think [/quote]
oh good I thought that dose was a bit high for carbimazole!

With thyroid issues they can take along time to sort. I was diagnosed with graves disease 5 years ago and it felt like forever trying to get my dose right. When they did get the dose right they would then try and wean me off the meds but everytime my thyroid went overactive again.
In the end I had to choose a definitive treatment surgery or RAI. I chose surgery and now battle with a underactive thyroid!!
With a overactive thyroid you should be referred to a endocrinologist.
for you as I know what a tough journey it can be.

@Terrace58 I didn't know the development could be impacted too. Thanks for that. I am so sad and feel deflated. I'm so grateful for your responses and would rather honesty so appreciate it but the responses make me worried about the future

@user675761 I'm under the endocrongologist but they are Effin useless. Disgraceful actually they kept me on the wrong dose which made the thyroid go under active and now getting a blood test is like almost impossible

Just to reassure you, I have a wonderful 11 yo who is extremely intelligent and her health issues are asthma and anxiety, both of which run in our family so we’re pretty much inevitable and have nothing to do with my thyroid.

[quote boohooyoutoo]@user675761 I'm under the endocrongologist but they are Effin useless. Disgraceful actually they kept me on the wrong dose which made the thyroid go under active and now getting a blood test is like almost impossible [/quote]
How often do you see them? You should be having a blood test before every appointment.

@user675761 I have left them three voicemails in the past week just to get the plastic bag you need in order to get the blood test. The last blood test no one updated me about results so I again had to chase them down. There is Boone in the department except a voicemail which they take a week to respond to

[quote boohooyoutoo]@user675761 I have left them three voicemails in the past week just to get the plastic bag you need in order to get the blood test. The last blood test no one updated me about results so I again had to chase them down. There is Boone in the department except a voicemail which they take a week to respond to [/quote]
I feel for you it sounds a nightmare, can your GP give you a blood form/bag?