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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Parents unable to look after themselves - running out of energy to help

57 replies

dinosaursroar1 · 12/06/2020 11:19

Name changed for this because I wouldn’t want anyone to figure out who I am from previous posts as I know my mum would be mortified if people knew. And sorry - I think this will be a long one.

My mum has a progressively worsening condition which has reduced her mobility - for the past 3-5 years she has been classed as disabled (a blue badge holder) and has extremely limited mobility - she can’t really bend, can’t stand for a prolonged period of time, needs to use a crutch to get to the loo or upstairs etc etc.

Because of this she can’t really clean, struggles with cooking and needs help with getting food shopping and such things. My dad isn’t in perfect health (has a heart condition) but has just become so incredibly lazy. About everything. He refuses to wear underwear - his clothes constantly smell of urine and often have skid marks. No matter how many times my mum and I have begged him to wear underwear because he is ruining clothes he just doesn’t do it. Bottoms are all bleached around the crotch from urine, tops are stained from food because he can’t be bothered to sit upright for meals or at the table so just lounges back and shovels food in, dropping forkfuls on his clothes. Most of his clothes are pretty much ruined. He wears clothes for days on end (which adds to the smell as days of food, sweat, urine building up) - he claims he does this to save on washing. I have asked him so many times to just put on clean clothes each day and that I will come once a week and do their washing but he still doesn’t (I also arranged at the start of the year for someone to do their ironing although that had to stop during lockdown).

Over the past 3-5 years I have cleaned their house countless times, including probably at least twice a year doing two massive deep cleans to try and deal with all the problems but they never keep on top of the most basic things - bathrooms have urine marks all over the floors and walls from my dad, bathroom and bedroom doors also have urine marks on them (he doesn’t wear pyjamas and despite being suggested a number of times can’t be bothered to take a bit of loo roll to dap the end after a wee so I think it’s bits of wee dribbling off on his way back to bed). On my last deep clean I had to spend two hours scrubbing down his bedroom walls because they were covered in urine and blood (cuts on hands from gardening and I’m assuming he’s felt along the wall in the night getting out of bed for the light switch). It’s honestly disgusting and I’m just running out of energy - both physical and emotional to deal with it / him.

My mum is so embarrassed about the state of the house she hasn’t wanted a cleaner. I have scrubbed the house from top to bottom (I took two weeks off work last year and spend 8+ hours every day at their house to get it clean / organised) on a few occasions so then she wouldn’t have that initial embarrassment but then every time it’s done they back out and say “oh, we can keep on top of it now”. I’m only suggesting a cleaner to do the downstairs and have said I would carry on doing the upstairs as would be more manageable then.

I don’t know what to do - I work (albeit self employed and work from home so more flexibility than most I realise) and have an almost one year old DD. DH has a job with long hours and our limited free time is quite precious to us. We have a cleaner for a couple of hours every other week for our own house - we viewed it as buying ourselves some extra free time to spend together. I love my parents but I don’t want to spend hours every week cleaning, especially given how my dad has become - it just feels pointless to clean for someone who has no intention of taking even basic steps like not leaving blood smeared on a wall or not dealing with, as an example, some spilt coffee grounds by just sweeping them onto the kitchen floor.

I do all their food shopping and any other shopping they need (presents for people etc), I do pretty much all their washing (I don’t iron because I loathe it but pre lockdown had sorted someone to do that), if I’m over at theirs at the right time I make their meals for them and I honestly don’t mind doing a bit of cleaning - changing bedding for them or cleaning a bathroom / dusting a room etc but it’s quite a big house and the way they now live means I would either need to spend 3-4 hours every week to just keep the house vaguely hygienic and tidy and that would be after spending hours getting to a starting point again. Plus all the other time for shopping, clothes washing and other bits and bobs.

It feels like no suggestion I make to make things better is acceptable other than me spending hours a week cleaning for them. I know it sounds selfish but I just don’t want to do this when there are other options available - I’m not someone who enjoys cleaning and even if I did cleaning up after someone who won’t do anything to keep a house even a little bit tidy is pretty soul destroying.

There is no issue with affording a cleaner, they are very comfortable and have plenty of disposable income. I feel bad complaining because they are and always have been really good to me and incredibly generous - I guess I feel like I owe them. But I also feel pretty pissed off by now that they won’t just spend £30 or so every couple of weeks to have a cleaner for a couple hours to keep on top of things so I’m not having to do it all. If I try to broach the topic and say things that I think will resonate with them like I don’t want to have to take those hours away from spending time with my DD to clean when we could just hire someone to come do that their answer is just “oh, don’t do it love. We’ll be fine” except, they’re NOT fine. My mum hates the house and because of her disability basically feels trapped in a house that is filthy (unless I’m going and cleaning every week). It’s obvious she’s not happy with it but also refuses to just pull the trigger on getting a cleaner (I would organise this, I just need her to say that it can happen).

I have done everything I can think of to help them, on multiple occasions, but I feel like I must be missing something? I feel like the whole situation is just emptying me of any reserves of energy but I don’t see how I can just leave them to get on with it. I’m starting to think there must be something seriously wrong with my dad because I can’t fathom how he can have turned into this disgusting person who is just always coated in filth and is destroying his home.

It’s just this constant burden that is always at the back of my mind trying to think of how I can fit in doing everything that needs doing and still do the stuff I need to do in my own life. Last Christmas I spent every weekday for all of December either cleaning or shopping for them so the house was nice for Christmas - I was on maternity leave then but there is just no way I can continue doing this level of cleaning long term. It was a pretty miserable Christmas for me, I spent almost a month cleaning, most of the actual day cooking (DH and a cousin did help in the kitchen!) and barely spent any time with my own baby. I obviously haven’t been able to go clean for them the last couple of months because of lockdown and I’m already in tears at the prospect of what will face me and how long it will take to sort out. I just don’t know what to do.

Has anyone had any success in dealing with situations like this? Or if you’ve stopped getting involved how do you deal with the guilt? I can’t not go to the house because they need help with shopping etc but I really don’t want my DD being around an environment that would be so dirty and unhygienic, which is what it would be if I didn’t clean and they won’t get a cleaner.

OP posts:
dinosaursroar1 · 12/06/2020 11:20

Sorry that was ridiculously long - was trying to give an accurate picture Of the situation but have clearly just waffled on forever 🙈

OP posts:
summerfruitsrainbow · 12/06/2020 11:26

Oh op I'm sorry I don't have anything to add just want to bump for you I'm sure someone will be along soon with some good advice x

NotEverythingIsBlackandWhite · 12/06/2020 11:30

What do you actually say to your father? I know you've asked him to wear underwear but have you told him about the problems caused by not wearing it? Does he know about urine and blood on the walls etc and skidmarks on his trousers? Does he know he smells?

sleepismysuperpower1 · 12/06/2020 11:32

I would give them a choice, either they agree to let you sort out a cleaner once or twice a week, or you won't bring dd round anymore because it isn't hygienic. Would your mum feel more comfortable if you did one more big clean before the cleaner came in, so the house wasn't in such a state, and then the cleaner could keep on top of it?
could you also have a read of the article below, that talks about why your dad may be behaving like he is? It also offers some solutions to help with the problem.
www.agingcare.com/articles/elderly-parents-who-wont-shower-or-change-clothes-133877.htm

all the best x

dinosaursroar1 · 12/06/2020 11:35

@noteverythingisblackandwhite he definitely knows. I’ve tried to discuss calmly, I’ve been in tears, I’ve yelled about it. I’ve shown him piles of clothes having to go in the bin because they’ve been so badly stained. It’s like nothing registers. It feels like in his head it’s just nagging over a minor thing, like if you were complaining a toilet seat being left up.

OP posts:
dinosaursroar1 · 12/06/2020 11:36

Thank you @sleepismysuperpower1 - that article actually looks really helpful. Off to go read it properly now

OP posts:
newyearnoeu · 12/06/2020 11:37

I can't really offer any practical advice I'm sorry but just wanted to give you Flowers and reassure you that you're NOT a bad daughter at all and I'm sure you've done so much more than most people would have done in the same situation, particularly with your own family to look after.

You say they have been good to you so you have to repay them but that's not what family is - an obligation with expectation of return benefit. They looked after you when you were little because they loved you and you are doing the same now because you love them...the difference is when they cleaned up after you you were little and didn't know any better and couldn't help yourself! If you had been a teenager rubbing blood and urine all over the house and throwing coffee granules on the floor I'm sure they would have had something to say!

I'm not sure how old they are but could you speak to someone like age UK for advice, or turn to adult social services? It sounds like your dad at least is pretty clinically depressed. Does your mother have consultations in relation to her illness? Could you speak to her doctor privately and raise concerns? Surely it can't be helping her to live in filth?

Clymene · 12/06/2020 11:44

Because they have been kind and generous parents doesn't mean you have to deal with this. You don't have to clean. Your mum needs carers and your dad needs assessing to find out what's wrong with him.

Call the GP, call social services.

CourtneyLurve · 12/06/2020 11:46

What a nightmare, OP. Flowers

I don't think you'd even get a regular cleaner to come in to clean urine and blood like that.

What about downsizing them to a flat? At least then you could contain the mess and it would (hopefully) stop your dad from gardening.

BlueJava · 12/06/2020 11:49

My parents are somewhat similar - they want help but they want only me to help them (I am an only child). The won't accept help from carers, a cleaner, a gardener, just from me. They are late 80s and they don't have the problems your Dad does but DM is unwell and DDad has to look after her. They would like me to do their garden (it is huge - like 2+ hours to mow the lawn with a large petrol mower), they want bedding plants put in (apparently it takes 800 of them to make a "good show"), they like me to go their and do their shopping physically and take to them etc etc. They would like me to travel over and clean their house for them.

I have had to be very firm with them - I live a couple of hours drive away from them which is longer in the summer due to traffic. I have said that if they want help I am happy to do it - but it has to be on my terms. So if it's shopping I will do it - but online and get it delivered. If they want gardening help they need to plan out how they want the garden and I will get a gardener in so that they use hardy plants, not annuals which take a lot of work. Regards cleaning I have said I will organise a cleaner. I have had to be firm and say I can't do all these things for them because I work full time, I have a 1 hour+ commute each way (pre-Covid obv), I have 2 DS and a DP. I have pointed out I don't do these things for ourselves - I have a cleaner, we buy takeaways sometimes to ease things, we have a very low maintance garden by design.

Good luck OP - but you have to spell it out and they have to accept help in the way you are prepared to support them, it cannot be on their terms. I find a phrase i use a lot is "But I don't do that for ourselves I have a cleaner/gardner/whatever". You have to take a stand otherwise I have found your relationships with your other half and kids if you have them can suffer.

Clymene · 12/06/2020 11:49

And if you were their son I bet you fifty quid that your dad wouldn't be expecting you to clean his piss and shit stained clothing either.

If he can garden, he can use the washing machine.

NotEverythingIsBlackandWhite · 12/06/2020 11:49

If nothing you or your mum say gets through to him then I would have a calm talk to him where I explained that, unless they allow you to do one last deep clean and then sort out a cleaner for them, you will not be able to visit with your daughter. It is simply too unhygienic and disgusting for her to be in that environment.

I am wondering whether he is very depressed because of their health situations. It isn't normal not to be bothered by this. (I had a situation where my ils' home was out of control. It was dirty, messy and full of hoarded rubbish but they were actually clean and their clothes were changed frequently and were clean and ironed). Something isn't right.

D1ngledanglers · 12/06/2020 11:52

What about linking a cleaner to something nice happening?
Eg. Cleaner arranged for Tuesday afternoon, but instead of DP staying in whilst cleaner's there, you arrange to take them out. DF needs to shower & change and DM gets a treat as well.
When DF showers / washes, does he get out of breath with his heart condition?
I presume that DP have a wet room & mobility equipment so they manage these tasks safely Eg perching stool, shower chairs & rails as required?
There is also an option of having a washer / dryer toilet for DF such as a Closomat. You could ask for DP to have an Occupational therapy assessment by their council to make sure they have everything they need equipment wise.
Best of luck Flowers

GrumpyHoonMain · 12/06/2020 11:53

Your dad’s behaviour isn’t normal - please speak to his GP because often heart conditions and vascular dementia go hand in hand. Lack of self-care is often one of the earlier symptoms

dinosaursroar1 · 12/06/2020 11:59

Thank you so much for all your replies - sorry for not replying to each of you but I’m really grateful so many really good points and helpful ideas to try to implement

OP posts:
CookieMumsters · 12/06/2020 12:02

Along with the other suggestions (seeing a gp in particular) I would make a big list of all the tasks that need doing, mark up the ones already taken care of (window cleaner for example) and then decide in very clear terms what you can do (e.g. 2 loads of washing a week, 1 trip to the supermarket) and then show them what is left. Ask them how they want to cover it.

Winter2020 · 12/06/2020 12:05

Hi OP,
I'm not suggesting that it is sustainable for you to pay for their cleaner on an ongoing basis but because your financial position sounds quite good could you get them a "present" of a cleaner for maybe a couple of hours a week for 4 weeks. (tell them it is a present, maybe put a card in an envelope)

The hope being that they get used to someone being in their home and helping them and hopefully at the end of the four weeks agree to keep them on. By then this person will have a name and a face (hopefully a kind and friendly one).

I know this won't solve a lot of the problems but might help.

AlexandPea · 12/06/2020 12:07

You sound like a wonderful caring daughter OP. Could you just tell them you’ve organised a trial, arrange a cleaner, introduce them and tell them she’s coming once a week?

If you take all the hassle out of it and are there to talk the cleaner through the jobs and deal with queries, they may accept it. MIL was the same (in that refused help) so we organised everything, and now she’s complaining about missing her cleaner. It may just be fear of the unknown.

dinosaursroar1 · 12/06/2020 12:08

@D1ngledanglers ah, the bathroom! The bathroom has some grab rails me and DH installed for her and one of those over the bath temporary seats you can get but no, it’s pretty non user friendly for someone with mobility problems. My mum does want it changing to just a walk in shower but, like so many things to do with the house, gets into an endless cycle of “I can’t have anyone in to do work, the house is filthy” I clean so we could start a cleaner and then it becomes “oh, what’s the point in getting someone in when everything is so old and tatty and needs ripping out” so I offer to sort out getting the bathroom done and then we’re back to “I can’t have anyone come in, the house in too dirty”. It’s like a neverending cycle. If I had the spare cash I would have just paid someone to come in and do it myself by now. Things aren’t helped by the fact my mum is generally very indecisive so I think the thought of choosing a bathroom feels overwhelming for her. I wish she’d just say to me our budget is X, I want this colour, just sort it out for us. I had hoped that she would gradually come to the conclusion that this might work better, particularly with my DD being born last year I thought maybe the whole first grandchild thing might spur them on a bit but it doesn’t seem to have done the trick. Pre lockdown I was considering just booking for it doing and presenting them with a done deal so maybe I should just do that when things are more back to normal

OP posts:
dinosaursroar1 · 12/06/2020 12:11

@AlexandPea @Winter2020 that’s actually a really good idea to book someone as a trial for a few weeks in the hope they just get used to it as the new status quo. I think I’ve probably been a bit too worried about upsetting them / forcing them into things they don’t want to do (I’m very aware that I verge on the bossy side if I don’t actively rein it in) but I think I probably just need to get stuff sorted for my own sanity!

OP posts:
Floatyboat · 12/06/2020 12:11

Lots of content so hard to address all of it.
Could your dad have dementia? Clarifying that would help. Ultimately it sounds like they need help with daily living beyond what you can deliver. Therefore social services referral would seem appropriate.

Floatyboat · 12/06/2020 12:13

Though actually if your mum and dad would not expect the help maybe social services isn't a good suggestion.

dinosaursroar1 · 12/06/2020 12:18

@GrumpyHoonMain and others who have mentioned dementia / Alzheimer’s. Thank you - It is something I have been worried out - both my dad’s mum and his grandma had dementia in the 80’s so I have worried but thought he was maybe too young (late 60’s). It’s quite difficult to address health issues with him as he’s always been a bit scared of health conditions / being ill and tends to be a bit of a head in the sand type about it. I think I probably need to try and do a bit (probably a lot!) more reading about it and see if I can have a chat to him about it.

OP posts:
Floatyboat · 12/06/2020 12:21

Other than apathy have you noticed any other deterioration in his functioning. Eg short term memory, language skills, orientation, ability to sequence complex tasks, problem solve? And over what time period have you noticed this change?

dinosaursroar1 · 12/06/2020 12:22

@Floatyboat that’s always kind of been my thought, when I have tried to do a bit of research on outside help (as in carers type help). I think if social services did see them they would just put on a laughing, jokey front and say everything was fine, they were just a bit messy, would definitely get themselves sorted and had loads of support from their daughter so would be fine. So I don’t think social services would really follow through with it - they’re so overstretched now I imagine they don’t have the resources to push people who don’t seem to actively want help into accepting it

OP posts:
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