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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Why is this not national news? DNRs being forced on ASD, LD patients

124 replies

calpolatdawn · 27/04/2020 13:40

www.google.com/amp/s/www.bbc.co.uk/news/amp/uk-england-somerset-52217868 www.hsj.co.uk/coronavirus/unprecedented-number-of-dnr-orders-for-learning-disabilities-patients/7027480.article horrendous human rights abuses and disability discrimination. Where is the outrage? where are the tv journalists grilling the evil individuals responsible here? where are the think pieces written by self titled experts? where is the reassurance for families with loved ones in care that it hasnt been slipped in? nowhere because nobody cares, im sick of the way ASD adults held in seculsions cells wasnt apparently worthy any real news coverage either, when it comes to "diversity ' the most vulnerable of us all come dead last and im sick of, AIBU?

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Dyrne · 27/04/2020 13:47

YANBU to be upset about the instances of it happening; but YABU to say it’s not been news. It was all over the news earlier this month and all the major charities released some sort of statement condemning it. The government also addressed it and said it shouldn’t be happening. The high profile instances have resulted in an immediate retraction and apology.

calpolatdawn · 27/04/2020 13:52

ive not seen much tv news coverage of it. at all, and the people responsible should be named and shamed.

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Chloemol · 27/04/2020 14:01

It’s was all over the news a couple of weeks ago. They were asked about it at the daily briefing and they said it should not be happening.

Bibijayne · 27/04/2020 14:03

YANBU to be upset and rightly concerned. But I've seen this and similar stories all over the news.

Dyrne · 27/04/2020 14:08

A quick google of “DNR Coronavirus” shows articles from all the major news outlets (BBC, Sky, Guardian, Independent etc). They’re mostly from the first week in April, which is when this all came out.

NoMorePoliticsPlease · 27/04/2020 14:14

I dont comment on this but one thing I will say is that there have been a lot of threads recently where people have talked about people being "forced " to sign DNR
It has been very very clear that people think DNR means that a person receives no treatment and is allowed to die.
In fact it means that if a persons heart stops you dont jump on them and break their ribs in an attampt to get it started again. Big difference

calpolatdawn · 27/04/2020 14:17

ive worked in care im aware of what a DNR is, to stick that in someone's medical records ands stating the reason as autism is indefensible.

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IHaveAMagicBean · 27/04/2020 14:17

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calpolatdawn · 27/04/2020 14:18

i must have missed most of that ive seen it only on twitter

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SoupDragon · 27/04/2020 14:18

The blanket mail suggesting it is totally out of order but where does it say they are being "forced"?

calpolatdawn · 27/04/2020 14:20

MagicBean, what on earth does marathons have to do with making someone's life more worthy? the mother thing makes a slight difference, my sibling is severely ASD and doesnt need her 'arse wiping' but does need life long care. and even if she did, its a horrible disabilist post.

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Clevererthanyou · 27/04/2020 14:21

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Mulhollandmagoo · 27/04/2020 14:24

It was all over the news in the earlier stages of the pandemic, the government were asked about it in one of the daily briefings and they condemned it! But I do agree, those behind it are genuinely disgusting people and shouldn't be involved in any aspects of caring for people, it made me really sad

Imboredinthehouse · 27/04/2020 14:24

It’s also been discussed here.

www.mumsnet.com/Talk/coronavirus/3866559-disabled-people-were-to-be-denied-ventilators?pg=2

pussycatinboots · 27/04/2020 14:29

As far as I am aware, there isn't any "rationing" of care at the mo...

x2boys · 27/04/2020 14:35

It won't be quite a simple as that @IHaveAMagicBean lots of people with severe disabilities have a good quality of life and have as much right to ICU treatment as anyone,my son has severe autism and learning disabilities but he's a healthy happy child and needs a much right to and ICU bed should he ever need one as anyone ,it should be based on weather ICU treatment would benefit the person and early due to my sons complex disabilities I know lots of children who are profoundly disabled with life limiting conditions where it might not be in their best interest ,s to receive resuscitation etc and if we are going down the who.is more worthy of ICU care should we be treating criminals ?We should of course

Humphriescushion · 27/04/2020 14:38

I saw that article calpol and thought the same. Is appalling.

Savingshoes · 27/04/2020 14:45

Thank goodness for politicians like Lord Shinkwin.

Ponoka7 · 27/04/2020 14:46

I think we've all got to wake up and realise that the government saw this as an opportunity to get rid of the percentage of the chaff.

It's why the score chart for hospital admissions changed, it's now been put back to what it was because of the outrage.

When care homes were asked about in Parliament in March by both Corbyn and a local MP for here in Liverpool, they were fobbed off.

The directives all come from the top.

There's always been clinical decisions made like this, but on an individual basis, not a blanket decision for everyone in that category.

Ponoka7 · 27/04/2020 14:49

SoupDragon they are being forced in the sense that the families, carers etc aren't being consulted or particularly challenged.

Did we need another bit of proof that under a Tory government disabled people don't matter?

OmgThereAreNoPlanesAboveMeNow · 27/04/2020 14:51

There was a very interesting thread discussing DNR where people talked about its lasting effects. Physical and psychological.
One thing someone said there was that it is NOT pretty and easy as in movies. It's gruelling. It can cause lifelong issues.

Lockheart · 27/04/2020 14:55

Just because you weren't paying attention doesn't mean it didn't make the news. It was huge news - several weeks ago. There's no point complaining that noone is talking about it if you're not going to pay attention to what is being talked about.

Amanduh · 27/04/2020 14:57

I think we've all got to wake up and realise that the government saw this as an opportunity to get rid of the percentage of the chaff.

What a pile of absolute bollocks.

psychomath · 27/04/2020 14:57

Apart from the fact that MagicBean's post is disgusting, that's also not what a DNR order means. If you have a situation where you have to ration care then you have to do that whether or not a DNR order is in place for one patient, because you can't magic specialist medical equipment out of thin air. If a patient has a DNR order set up they won't be given CPR regardless of availability of personnel/equipment, because it's not considered to be in the their best interests - or in the case of coronavirus infection it may be because the risk to the medical workers administering the CPR outweighs the potential benefit to the patient. For example if they are very elderly or frail and their body is unlikely to withstand a resuscitation attempt, it may be considered not worth the risk of causing the patient great physical damage or for paramedics to have to come into contact with their bodily fluids. That has absolutely nothing to do with the patient needing a carer to help with day to day living Hmm

psychomath · 27/04/2020 15:00

I think we've all got to wake up and realise that the government saw this as an opportunity to get rid of the percentage of the chaff.

Why on earth would the government be involved in signing DNR orders? It's done by clinicians.

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