To ask for a handhold?

[GoJetterGirl]

Hello all,

GoJetterBoy after 2 years of fighting has finally lost the energy to fight, I’m currently sat with him in hospital, having come in a few days earlier for pain management.

I really need a handhold right now...

I am at a loss as to what to say. Your inner strength is astounding and your lovely son has been blessed to have you as his Mummy. I hope you are snuggled up close to him right now and that he is comfortable in your arms.
Love never dies he will always be your boy and in your life. God bless you both.

My heart is literally breaking for you x

I'm trying to find the words I want to write through my tears reading this very special thread.

Your son sounds like a wonderful little boy. You sound like an amazing mother. Nothing will ever break that special bond you have. Nothing. You will be his mother until the end of time.

I feel honoured to be reading about your love for eachother. For you to be sharing such a fabulous little boy with us. Thank you. My heart Is aching for you both to be going through this. I'm so very sorry. xx

Hand holding @GoJetterGirl

I remember those times on the ward, the nights are the hardest. Everything is amplified.

Against the odds, my girl survived her cancer. Several of her friends didn't. She's now a funny, fearless, beautiful 12 year old. Some things like this thread bring the memories back so clearly like it was yesterday.

We are here for you, to give you strength, and love, and support.

I was pregnant just as my daughter was diagnosed. My youngest son was born whilst she was on treatment. Like your Gojetter, he has chocolate button eyes. He is 8, and he loves to tell stories too.

Are @GoJetterBoy's brown eyes mischievous? Do they twinkle when he's watching TV and imagining himself joining in an adventure?

That's really where he's going off to. Off with Ubercorn, exploring more geographical delights. But always knowing where you are. Because, you know, that's the best hope for us all as parents. To raise kids who have a secure and lovely nest, and a strong pair of wings to flee it.

Life is cruel and unfair to make you face that moment prematurely now. But you are, and will always be his amazing mummy. And wow, what a job you have and are doing!

Keep telling stories. And hugs. And just be with him.

It will be OK in the end. And if it is not OK, its not the end.

Xxxxx

Another handhold here. To be loved is the greatest gift, your son will know he is loved unconditionally and safe with you. This is the hardest journey and you are there with him. That is everything and that is love. Your love for each other will last beyond the unfair number of days you have had together. Xxx

We are all here for you both. 💚

Here’s a handhold from another mother holding tears back while reading this thread. Another person reading about your amazing little boy and wanting to send you my strength and love to get you through this difficult night.

I wish I could do so much more for you and your gorgeous boy

Wishing you and the boy every strength to face the road ahead.
I’m sure his clickon heaven wings are waiting. It’s too soon, but your love shines through.

Just want to send all the love possible. Keep talking about your gorgeous boy, he sounds like an absolute delight and a very special person ❤️

Another early post,

DS had a slight coughing fit which distressed him, so we have him some meds to settle down, am currently sat nursing a tea wish it was gin

More about DS-
His favourite colour is Pink,
He is so so cheeky
Favourite game- minecraft, but he will give you a run for your money on Mario Kart /forza7
He loves sitting with his baby brother to watch baby club, and younger DS also shares his love for Go Jetters
He’s PEG fed, but his favourite food was yoghurt- specifically, toffee, peach or strawberry

I love sharing stories about DS, it’s bringing me a lot of peace to remember back to easier times when he could do more

For PPs who have offered help, Thank you, we are currently in the Midlands, I’m being really well supported by @AdmiralCLingus

Your boy sounds so gorgeous. So inquisitive and so loving and generous.
My little girl is 7 - currently on chemo and we’re in with a temperature spike.
It’s so unfair. I’m so sorry you’re going through this. But I’m glad you and your son have such an amazing love for one another. Hold on to that.

Sending you much love, what a heart breaking time, but your stories of your most wonderful DS are so lovely. What a gift you have given him to surround him with love and joy every moment; what gifts he has given you with his life and his love and those chocolate-y eyes. Thinking of you both xxx

@chinateapot are you in B?

I hope that your little girl feels better soon, one of the frustrations of chemo for me was the spike between each round and half the time never being able to identify a solid reason why

We’re up in Leeds. This time I have the horrible feeling that I’ve given her something - I had an admission about 10 days ago with pneumonia.
Chemo is rubbish. Cancer is dreadful. I’m so sorry for what you’re going through - wish I had a magic wand

@glueandstick DS’ favourite episode is Stone Henge, he wanted to go visit it, but we ran out of time

It’ll have to be a virtual GoJetterGirl. So easy to imagine him asking lots of questions and being cheeky from your posts.

I like the Stone Henge episode - it makes me smile. Those squishy geo ball thingies must be bloody strong to hold up one of those massive bits of stone! I think it’s lovely that the imaginings and creations of a group of people have been responsible for so many smiles. And it sounds like there have been a lot of smiles in your home - lots of love and lots of happiness.

I’ve got a Mario fan here, he can beat me at Mario Kart pretty easily (being beaten by a 4 year old is pretty embarrassing!) - does your ds have a favourite track?

Temp spike!

Arrgghh... Forgotten those. We would be all set to come home after being cleared for discharge and then a final check... Temp spike. Nooooooo!

We were Midlands @GOJETTERGIRL. (N). Seems long time ago now. We're on late effects now.

Drink your tea. You'll need the energy. Could be a long, long time.

How's your little, little youngest boy doing?

I can't sleep, and have more experience of end of life care than I'd like (as a family member).

Top up your reserves whilst you can op.

Drink.
Eat a little
Keep warm
Sleep

Xxxxx

I'm rubbish at knowing what to say but your bread has really touched me.

Your love for your son will be such a comfort for him and it's lovely to hear all about your special boy.

I've just googled Go Jetters - they look like cute jumping beams!! Which one is Go Jetter Boy's favourite?!

Wishing you both strength and calm. Xx

Sorry about dreadful typo in my post. Thread not bread of course......!

I hope you're managing to rest, OP. And that you're not experiencing the 3:00am despair - everything is so amplified in the quiet of the night.

I am praying for you both; that your son has a peaceful journey back to the arms of the Lord, and that you feel his love all around you, until you meet again.

Hand held.

I remember earlier posts and am so sad for you now.

Who is your son's favorite Mario Cart character if he has one?
I can manage to play on the switch but not much else.

He sounds like an amazing boy and a lovely son. Sending you both lots of strength and love.