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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to make a complaint about my partner's GP or will it just make things worse?

95 replies

Theloftmonster · 27/11/2019 20:23

I really don't know what to do for the best.

My partner has been under the same GP for years. To start with DP thought the GP was great, he was young, enthusiastic and DP felt he was really listened to. Years have passed and the GP is now one of the partners at the surgery.

DP had a motorbike accident in his early 20s. He broke many bones in his body including his knee. He has suffered pain in his knee ever since and, with age, this has become much worse. Around 15 years ago the GP started prescribing Co-codamol for the pain, DP has been taking it ever since. DP also suffers from anxiety and depression, he has been on the same antidepressants for years also.

A couple of years ago DP went to the GP with a bulge in his lower abdomen, he was in a fair bit of pain. The GP said that he couldn't feel anything but finally agreed to refer DP to the local hospital. When DP was seen at the hospital the consultant was concerned enough to mark his case as urgent because the hernia was so progressed he was worried about strangulation. DP was operated on within three weeks.

A while later DP complained of pain in one of his legs. The GP again was dismissive but DP was finally diagnosed (by a different GP in the surgery) as having cellulitis and was prescribed antibiotics, the pain was still there and so he was given a second course. DP still felt pain but again the GP was dismissive.

DP struggled on but after about a year his hip became very painful. He again went to the GP who reluctantly sent him to the cottage hospital. The x-rays showed that there was an issue with the hip and DP started on cortisone injections in the hip. The first injection worked fantastically but the relief was shortlived. The second injection did nothing to help. DP again went to the GP and had an appointment where a young female trainee doctor sat in. DP came back from the appointment in absolute pieces. DP says that the doctor basically said that DP was a pain-killer addict and DP felt humiliated. His mental health nosedived, it was awful seeing him in that state, he could barely motivate himself to get out of bed for weeks. His mood slowly improved, he went back to work, even though he was in significant pain. He refused to go back to the GP because of the way the last appointment had made him feel.

Finally I persuaded DP to see a female doctor at the surgery that I had found particularly empathetic, she referred DP to the hospital. The pain continued to increase, by now DP needed crutches to walk. He reluctantly went back to the doctor and they agreed to write to the hospital to see if it could be expedited. Nothing happened. DP rang the doctors every month or so, finally an appointment came through. By now DP was more or less bedridden because the pain was excruciating. DP was finally diagnosed stronger pain relief (the surgery wouldn't send anyone out to see him but then prescribed oramorph and later on tramadol over the phone). Each time he needs a repeat prescription he has to ring the surgery and is made to feel like an addict trying to get free drugs.

At the hospital they x-rayed the hip again. As the doctor looked at the x-ray, called in a colleague for a second opinion and said that the difference between the x-ray at the cottage hospital and the x-ray they had just taken showed a massive deterioration which should not have happened in that time frame. The doctor referred DP for urgent tests and said that the consultant would do the hip replacement himself. We got a phone call on the way home for the hospital to book the CT scan. Over the next month DP had blood tests, bone density scan and a MRI scan. Every one we saw commented on how much pain DP was obviously in and were very sympathetic. Still the GP surgery have refused to put his painkillers on repeat so he needs to ring up each time and plead his case. This has massively affected his mental health as he feels like he is marked as an addict and not believed.

We got the results about a couple of weeks ago. DP has been diagnosed with Avascular Necrosis. The blood supply to his hip had been cut off some how and the bone has basically died. His hip joint has crumbled, he is now mostly bedridden, occupational health has given him a wheelchair, crutches, a raised toilet seat etc. DP is having his first operation this week where they are taking samples to see if there is an infection that has caused the necrosis and to clean out the socket. After that, assuming there is no infection to treat, he needs at the very minimum, a full hip replacement. The muscles in his legs have withered away, he has been told he is going to need a shedload of physio after the operations to be able to walk again, let alone do anything else. DP is 51.

DP still has to ring the surgery each time he needs more painkillers and it really affects his mood, his depression and anxiety has worsened considerably.

It really feels that DP's GP has made a judgement that DP is some sort of addict when all he is doing is trying to control the pain he is in. I feel that the GP has allowed his opinion of DP to cloud his judgement and this has meant that DP didn't get the treatment he needed until things got to breaking point both physically and mentally and, even now, DP is still having to constantly justify himself.

DP is worried that if we complain about the GPs attitude that it will only get worse, I think that something needs to be said. DP is the shell of the person he used to be. I am willing to do the complaining for him so he doesn't have that extra stress. WIBU to complain? If so is it the practice manager we speak to? To complicate things I think the GP is the head guy.

Sorry it is so long!!

OP posts:
EightiesBaby · 27/11/2019 21:25

Definitely get a solicitor and write to the British medical board and the body that represents UK G.P's copy by them into your complaint letter.

AnyFucker · 27/11/2019 21:31

How many steroid injections did he have in the hip and how close together were they ?

Jimdandy · 27/11/2019 21:32

Don’t just complain sounds like medical negligence to me!!

SeaViewBliss · 27/11/2019 21:45

I work in Primary Care and deal with a lot of ridiculous complaints. Your DHs history would have me very worried and I think you have to take this up with a medical negligence solicitor. It is still quite common for people with chronic pain to be labelled as a pain killer addict.

You’re absolutely right. You can deal with the complaint as long as you accompany it with a letter signed by your DH saying he is happy for you to correspond on his behalf.

Also, be ready for the practice to invite you in to discuss it. This isn’t a bad thing per se but you need to be prepared and able to keep a lid on your emotions which I don’t imagine is easy when your DH has been treated so poorly. Take legal advice before you do anything is my suggestion.

I’m so sorry your DH has had such a hard time.

Theloftmonster · 27/11/2019 21:46

At the moment they don't know what caused the Avascular Necrosis so proving any negligence would be difficult. Also we haven't got the energy for that. We are still waiting for a PIP assessment, 6 months into the claim. We are having to remortgage to pay for our boiler repaired/rotten windows (almost falling out of the frame) and to lengthen the term to the max which will half our monthly repayments. We will lose the house otherwise. I am working full time in a stressful job, I have a teenager, I am doing everything in the house, I am trying to cope with balancing all that with DPs hospital appointments. Also, nothing compared with DP, but I have a few health issues myself, I need to have a prolapse repairs but I am going to have to delay my operation as the recovery will be impossible with DP needing physical care. I am also a witness in a historical sex abuse case, a really nasty piece of work who had a position of authority over girls for a period of 25 years. During this time DP also lost a parent so is still grieving for that too. Yes, I do realise that my life sounds like Eastenders, if it wasn't happening to me I would scream troll Sad.

I really haven't got the fight for a medical negligence case right now. I just want the GP or one of his colleagues to actually look at DPs condition with fresh, unbiased eyes, and give us a bloody break. DP dreads having to ring the doctor for painkillers, it affects his mood for days. I am hanging on by my fingertips to my sanity right now but I can't break because DP and DC need me too much.

OP posts:
Theloftmonster · 27/11/2019 21:51

@AnyFucker

I think two injections about 8 weeks apart. He also had a weird reaction a week or so after the first injection. It is too identifying to put what the reaction was but it was visually extremely worrying. It resulted in about 3-4 nights in hospital, three consultants having a look and no actual diagnosis or reason for what had happened. One consultant was approx in his 60s and said he hadn't seen anything like it.

OP posts:
curlykaren · 27/11/2019 21:56

Your life sounds very stressful OP. If you really just want to sort out the situation with the painkiller prescription get the consultant to arrange that he or pain clinic does your husbands script. Then get PALS to support you changing his GP. You can complain to them without it becoming a whole 'thing'. As someone recently involved in a legal case that went on for over 6 years, I can't say I'd recommend it.

HereForTheHelp · 27/11/2019 21:59

I would complain. I offer my biggest sympathies to your DP.

I have bursitis in my hip, physio can't do anything and the only thing that helps the pain is co-codamol. The amount of young doctors who've outrightly said ' you don't need this' after having met me for 5 minutes is insane.

Luckily there's a few female GP's who know me and don't make me feel like addict when I ring to put my prescription request. We've tried other painkillers, I've tried water therapy, needles, everything. I'm not addicted, if I go a couple days without them if I've ran out, I don't have any side effects except that I'm in pain!

Painkiller patients really need more visibility and understanding. Sometimes long use of painkillers is the only way these patients can carry on living relatively normal lives

Theloftmonster · 27/11/2019 22:05

You would have hoped that, after dismissing DP about the hernia and being proved wrong, that he might re-evaluate the way he looked at DP. Unfortunately I hoped for too much. The sad thing was that DP said that he was a really great GP when he was young and keen. It seems that experience has made him cynical and I really feel that it is clouding his judgement. I also wonder if he is like this with other patients.

OP posts:
RuthW · 27/11/2019 22:08

Your partner needs to complain, not you. We can't take complaints from third parties as we can't discuss and information with anyone but the patient without their permission.

Veterinari · 27/11/2019 22:13

@Theloftmonster
intra-articular steroid injection of the hip carries a significant risk of AVN of the femoral head and should be used cautiously
www.frontiersin.org/10.3389/conf.fendo.2011.02.00042/event_abstract

This combined with your other concerns would warrant speaking to a solicitor. I totally appreciate you not having the energy right now but your DH could well be disabled for life and financially, pursuing this may be worth it in the long term

AnneElliott · 27/11/2019 22:13

Definitely complain to the practice and I agree legal advice is worth getting.

Theloftmonster · 27/11/2019 22:15

@HereForTheHelp Flowers I really didn't understand just how much chronic pain destroys people until I saw my DP going through it.

The first GP who took DP seriously was the female GP at the surgery that has been wonderful to me. She is fab, when I was going through my lowest times she actually cared about me, she told me to make sure I found at least half an hour a day to do something that made me happy. I will be sad to move practices because she is a wonderful GP and I trust her. I don't do trust easily.

OP posts:
lynzpynz · 27/11/2019 22:16

It's crazy that;

  1. You have an issue
  2. Instead of investigating the root cause of the issue you are given something to manage the symptoms.
  3. You are then made to feel like shit for continuing to take the thing you've been given to manage your symptoms whilst being denied appropriate, timely investigation into the root cause!

I got called into surgery for my complaint initially, took a citizens advice bureau rep with me. GP surgery shat themselves quite frankly. They changed procedures as a result of my initial complaints (before claim followed a year later when I felt able). You want CAPA - corrective and preventative actions.

Sending hugs for the shitty roller-coaster you are currently on, it will get better, hang in there all of you Flowers

beelzeboob · 27/11/2019 22:17

People saying there is a case for medical negligence are looking with the benefit of hindsight. The GP is probably following guidelines. I doubt anyone would suspect avascular necrosis without a recent trauma history, and this is probably a highly unusual case.
Op I definitely think you should complain though about the GP’s attitude

Theloftmonster · 27/11/2019 22:23

@Theloftmonster bloody hell. It would make sense. How did you hear about that? Do you have medical knowledge on this sort of thing. The reaction he had from the injection was not in the hip area but was extremely dramatic and physically obvious. It subsided and he was discharged from hospital but they didn't identify the cause. They considered infection and allergic reaction but said neither fit with the symptoms.

OP posts:
Theloftmonster · 27/11/2019 22:25

Sorry the above post was meant for @Veterinari

OP posts:
itsAlmostXmas · 27/11/2019 22:32

Agree with PPs to complain and get DH to out in writing that you can be his contact for the complaint as you are supporting him.

You both have a lot to desk with so I really hope that for both of you physical health improves soon Thanks

Check if either of you have legal cover through insurance policies or work benefits should you find the strength for a negligence claim

Graphista · 27/11/2019 22:33

It does sound as though you're both having a horrendous time of it.

Yes you can and should complain about the gp not being proactive in identifying the cause of the problem - and issue that's something of a soapbox of mine too.

But I think you also need to understand, acknowledge and accept that he may be addicted AS WELL AS being in genuine physical pain the 2 aren't mutually exclusive

The meds' you're talking about are opiates, are highly addictive and in the case of the Tramadol that's a controlled drug (it's the one I get) and actually can't be dispensed as a repeat medication due to the way it's regulated.

It's a complex set of circumstances.

It's definitely worth speaking to the practice, having concerns addressed and stating your expectations on future treatment that's not unreasonable at all, but I think it's entirely possible you may discover that dp is also addicted and that may need to be addressed too.

Personally I think codeine isn't taken nearly as seriously as it should be and in the Uk we've been very slow to address pain relief addiction.

Aside from the obvious dependency can also mean the painkillers aren't working very well on the physical pain.

SheOfManyNames · 27/11/2019 22:45

The first thing I would do is to change surgery, or named doctor if he otherwise like the surgery/other doctors there.
You can make a complaint on his behalf, but I think he needs to authorise you to do this. The surgery should have a PALS or similar service, and details should be on their website if they have one, and they should be able to advise how you can do this.

Yetanotherwinter · 27/11/2019 22:46

I think you’re right to be very concerned about his long term use of painkillers. He probably is addicted to them. Anyone would be after so many years. They should have been sorting the source of the pain rather than giving out cocodamol year in, year out. Having had two hip arthroscopies I can totally understand that his pain is horrendous. Has he been referred to the pain clinic. I actually think it’s right that they won’t put very strong painkillers on repeat prescription. Medication like tramadol and oramorph are extremely addictive so they should be offering support and help to find some alternative way of managing his pain. Best of luck with his ongoing hip treatment.

StripeyTopRedLips · 27/11/2019 22:58

OrangeSwoosh

Some people sadly have no other choice but to be reliant on long term painkillers to function. It’s not what anyone would choose for themselves, to be in such a position, but there’s isn’t always a way to resolve the issue causing the pain and so it’s not uncommon that the only appropriate course of treatment is pain relief long term.

So much misunderstanding around the use of painkillers from people who don’t know much about them beyond headlines in newspapers about addiction (this not aimed at you OrangeSwoosh), even if somebody is physically dependent on them it doesn’t mean prescribing and taking them as directed is harmful, you can be physically dependent on many types of medications and their use still justified as the benefits outweigh the risks/harms. There are many scenarios in which someone can be prescribed long term dependence-promoting medications and that is the best thing for them (and generally a last resort).

pinkoneblueone · 27/11/2019 23:03

Complain and ask to change doctors or even surgeries. This is horrific for your husband to go through all this I am so sorry and which him a speedy and comfortable recovery.

StripeyTopRedLips · 27/11/2019 23:04

And to add: there is a difference between being ‘addicted’ in the sense of having a substance use disorder, and ‘addicted’ in the sense of being physically dependent and requiring a taper to safely withdraw. Far too many people don’t realise this and it leads to chronic pain patients being labelled as addicts by people who don’t have a thorough enough understanding of chronic pain, addiction, and dependence. OP’s DH will almost certainly be physically dependent at this point but as long as he takes them as prescribed if there’s nothing else/more to be done to address the cause of the pain then long term pain relief is potentially the lesser of evils and may be the only thing enabling him to live a semi normal life or have periods of somewhat relief. It’s hard to fully understand for people who’ve never lived with severe, long term, hopeless chronic pain.

Please do support him in complaining if he wishes to.

Userzzzzz · 28/11/2019 08:37

I think it’s really hard emotionally to complain and I don’t know why. Possibly fear of worse treatment in the future, being labelled etc. I have a letter written up for my daughter after some shitty hospital treatment but I’ve not sent it even though I know I should. In your case though, it really warrants a complaint. The post made me so sad for you and your DP.