If your child/a child you know has/d a brain tumour

[notallrainbows]

If your child/child you know has or had a brain tumour, what were the signs to make you get them checked out? Specifically toddlers who can't tell you how they feel?

I'm worrying for one of my DC due to a few symptoms and will be ringing the doctor Monday to push for tests (admitted to hospital this week and they did nothing) so just wanted to hear from people who have been through it.

How did you know?

Thanks for all the advice I got on this thread, although my DD hasn't had another big seizure she has had quite a few absent seizures and is having her brain scan tomorrow

I hope all goes well

Wishing you all the very best. Hope you get some answers and you worries are alivated. Good luck 👍

You really need to think the best, brain tumours amongst children are very rare.

My dad got an inoperable one [glioblastoma]. With hindsight I've wondered whether slight changes in his personality in the months/year leading up to diagnosis were because of the tumour. Having always been very placid & measured he started to become occasionally bad tempered & irrational. At the time I'd just put this down to his getting older.

Good luck op
My friends child had one that caused no symptoms at all, picked up as part of another health issue.

I'm so glad you saw a doctor today and will keep everything crossed for tomorrow.

This website is very useful. Take care. Hope Monday brings good news

www.headsmart.org.uk/

I hope it goes OK for you tomorrow OP.

Just an anonymous person here hoping you received some answers today. All the best, OP. The waiting and not knowing can be awfully hard to bear.

Hi, thanks everyone. Scan went well and she managed to sit fine to have it done. Results in a few weeks so fingers crossed!

Good luck op. Just so you know my husband had an mri for suspected brain tumour and we were told a few days later it was OK. Call your gp after a few days and explain about the anxiety it causes.

Got everything crossed the results are good

Wishing you the very best of luck.

I don’t want to go into details as it is a child I know, not my child.

The child has a change in personality and was very clingy. Then there was a physical symptom involving movement. The child was taken to the hospital and scanned. They were then taken directly to a specialist hospital and operated on there and then.

Fingers crossed for you

Glad you finally got the scan. We were told that we could go home after the scan but then they suddenly changed their minds and sent us to a ward to wait for the dr, that’s when we knew it was bad news as we shouldn’t have been getting the results straight away. So hopefully it’s nothing too sinister for you xx

🤞

Thank you so much everyone! You're all very kind x

Hoping everything turns out absolutely fine for you, OP

Fingers crossed OP, it must be very worrying.