If your child/a child you know has/d a brain tumour

[notallrainbows]

If your child/child you know has or had a brain tumour, what were the signs to make you get them checked out? Specifically toddlers who can't tell you how they feel?

I'm worrying for one of my DC due to a few symptoms and will be ringing the doctor Monday to push for tests (admitted to hospital this week and they did nothing) so just wanted to hear from people who have been through it.

How did you know?

Did she have a high temperature when she had the seizures? What did they think was the cause?

When you see the GP, please tell them that you are specifically worried about a brain tumour and the reasons why are a. b. c. If the GP knows this upfront, you can spend more of the consultation planning management/referrals. Good luck and I hope it turns out to be something innocent.

My little sister started off with random bouts of vomiting, then complaining of headaches. Eventually she was hysterically crying over the pain in her head almost every day. She was 3 and a half, able to say her head hurt but not much else. It went on for months. Our mum made it clear to the GP that she was worried about brain tumours and they eventually referred her to neurology. It was the worst outcome for us unfortunately, she had cancer. She beat it though. Then got it again when she was 13 and has beat it all over again. She's amazing.

I hope you get answers for your little one OP and hope its nothing serious. Just keep pushing

How long ago did she have her MMR vaccine?

Mmr is usually given 12-13 months so I assume OPs child is protected but it’s good to mention especially if she’s having a lot of appts/is already unwell as she won’t pick up anything nasty that could make things worse at an already clearly worrying time

Thanks everyone. Rang 111 this morning and got an emergency GP appointment. Told her I suspected brain tumour and we've been sent to the children's unit at our local hospital. Just waiting to see doctor. Fingers crossed it's soon

There are many causes of seizures and brain tumours only amount for a very small percentage.

I doubt you will be given an MRI immediately with those symptoms but they should have told you what they thought may be triggering the seizures; not eating can trigger seizures.

Has she had a fever?

No no fever or temperature at all

I’m glad you’re getting medical attention. There are many causes for her symptoms, so please try not to panic. Hopefully you’ll start to get answers. Hope the lil one is ok.

Fingers crossed for good news for you.

Hope all ok, glad you’re getting sorted

Hope you are ok OP.

Have they done a set of neuro obs?

I really hope you get an answer soon (and that it isn't the one you fear).

My child had an inoperable/ untreatable type of brain tumour. With hindsight, there were a few very subtle things, but honestly until the day she was diagnosed, you'd never have known she was living with something so serious.
If I look back on photos, in the 3 or 4 months pre diagnosis, about 1 in every 10 photos had a very slightly lopsided smile. But unless you were neurotic, zooming in on every photo, you'd never have looked at the pictures and thought anything of it - kids pull funny faces all the time.
There were some behavioral changes - really crazy tantrums, but she was 4. What 4 year old doesn't have a tantrum? Again, I didn't witness this tantrum and automatically think it was a brain tumour.
Some stumbling, but again, she was a ball of energy and often falling.
I'm not sure I'm actually helping here, I guess I just came on to say that for me anyway, the 'signs' were so subtle. They certainly weren't indicative of something so terrible.
Def get your child checked out if it would make you feel better, but please don't assume the worst.
Wishing you all the best X

My beautiful boy was 9 when he was diagnosed with medulloblastoma (a brain tumour). The only symptom he had was constant random vomiting. We did realise later that he had complained on and off of headaches and on a couple of occasions he had told me he felt wobbly.

The GP treated him for constipation for about 6 weeks before he was diagnosed. During those 6 weeks he had blood tests which were all normal.

Hope you are ok op. I’m actually on a two week week wait for an urgent mri although I don’t think it’s a brain tumour at all. Everyone has been amazing with me so I hope you are having the same treatment with your wee one now xx

Glad you’re getting medical attention for her OP.

Just lost MIL to multiple brain tumours. She had sinus pain, headaches and issues with her eyes which prompted her to go to the doctor.

I hope all has gone well at the hospital, OP.

Hope she's ok OP and it isn't anything sinister

I am very worried by OP's silence. I hope all is ok.

Hope everything is ok OP

Thanks so much everyone!
We're home and the minute and have been told not to worry too much but she will be having an EEG soon, thanks all!

I think that’s a good sign, if they were really concerned they wouldn’t be letting you home, hope you get some answers soon xx

You didn’t answer me about the date of her last vaccination. But seizures do occur more often in the 4 weeks after the MMR.

So that is one alternative explanation (if her MMR was recent)

She had her MMR vaccine around 1, she's not 16 months old.