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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

... to offer some insight into being a wheelchair/mobility scooter user?

72 replies

WiddlinDiddlin · 06/06/2019 17:32

Following the thread that was deleted about scooters, I thought that perhaps there are some things that simply do not occur to those who don't use wheelchairs/powerchairs/scooters or do not know someone who does..

Do feel free to ask questions or offer thoughts, I can only speak for myself and close friends here!

Look down!

Wheelchair users and scooter users are lower down than you, if you look over your shoulder you won't see us (particularly chair users) so if you hear a voice saying 'excuse me' consider turning/looking down, that'd be ace.

Otherwise what tends to happen is I am not heard, the person steps back, hits their ankles on my wheels or footplate and sits on my lap - this is mortifying for them and painful for us both.

Look before you change lanes!

When walking along, before you suddenly stop, step out etc, look down/behind you please.

Power chairs and scooters don't have brakes as such, they stop when the user releases the accelerator and the motor stops turning the wheels - this is rarely instantaneous and even less so on a slope.
On a narrow pavement or path (and a path can appear wide but due to the surface or camber or obstacles it may not actually all be useable to the scooter or chair user), we can't go around you and you stop faster than we do, even if we are moving at under 4mph (my scooter is set to 2.5mph on pavements!).

If the alternative to hitting you is coming off a kerb, we are going to hit you, because coming off a kerb at an angle in almost all chairs and scooters is going to mean the machine tipping over and falling into traffic/off the pavement and believe me when I say, Im going to take your ankles out before I throw myself into traffic!

Don't have your headphones in whilst walking along - the pavements are for more than just pedestrians and wheelchairs and scooters make less noise and are less flexible in their movement than you are.
We do say 'excuse me', sometimes we will use the silly piddly 'bip bip' horn but its very quiet (I am planning a thoroughly illegal billion decibel klaxon for my next power chair!) - if you have rendered yourself deaf through using headphones you could be in for a surprise, particularly if you stop suddenly whilst unaware of what is behind you!

Manual chair users ONLY have their hands for brakes - this means if I've just completed a hard push and my hands are out in front of me, it is going to take me a couple of seconds to get my hands back on the wheels to stop - if it's wet my stopped distance is greater still.

Whilst it might sound sensible to say 'well move more slowly' the fact is with my arms/shoulders as my source of power, I need to build up momentum to counteract camber (yeah those flat pavements aren't actually flat, at all!) and to get up hills - once I've slowed down because you have decided to step in front of me and move at a snails pace, I've lost that momentum and can't get up the hill or, it's going to cause me a lot more effort and pain.

Doorways!

Sometimes, help is appreciated, but be aware I may need more room than you think and if your feet are in the way, it's going to hurt... Ask, and if the answer is 'no thankyou' then give the person space.

For a manual chair user opening a heavy door that opens towards me, I have to roll back and swing the door at the same time - if you are crowded behind me, I'm going to hit you, if I move so slowly to take your presence into account, I don't have the momentum to open the heavy door - so if the answer to 'can i help' is 'no thankyou' you can still be helpful by giving me the space to open the door!

Power chair users won't need to roll back so swiftly as the weight of their chair will out weight the door, but they still need space and cannot look behind them whilst at the same time trying to look forward and manage the door.

If double doors need opening, often the wheelchair user can hold one door open whilst you open the other, you rarely need to hold BOTH doors and most people really don't like trying to get under your armpit and try to avoid your feet whilst you try to lean over and do both doors at once!

Disabled toilets!

Whats on the floor goes on our wheels, which goes on our hands- manual chair users are rarely fond of child pee and toilet water all over the floor so if you have used the changing facilities in the disabled loo, be a sweetie and wipe the floor after you?!

Disabled toilet doors open outwards - manual chair users need to shove the heavy door HARD so it opens and they can roll out, pushing gently means the door weight pushes the chair back.

Do NOT stand outside a disabled toilet within range of the door, they are heavy, will knock a child flying and will hurt an adult. Certainly do not let your child lean up against the door if you don't want them to hear a ton of swear words and be sent flying when I struggle to get out!

Going down a nice smooth slope in a manual chair can be a ton of fun - please do not glare disapprovingly as I take my hands off the wheels and scream WHEEEEEE or POWERRRRRRR... we all get our kicks where we can!

Not all chair users are unable to stand/walk - I think this one IS becoming more widely understood now, in fact MOST chair users CAN stand briefly and many can walk v short distances. Please don't look surprised when I stand to reach something off a high shelf!

Oooh and, I appreciate people keeping toddlers out of the way, I really hate running them over as they make a lot of noise and mess in the wheels.... but you don't have to shout at them angrily and apologise to me for their mere existance several feet away, I'd rather kids WEREN'T terrified of looking at or even existing, within range of a wheelchair user.. we don't generally bite!
I do come across a lot of kids who stare, and for smalls thats fine, I don't mind and I am not offended, I might smile and wave or pull a silly face even - but SO many of them are shouted at, because I assume the parent is embarrassed that their child has looked at me... there is no need :) I won't burst into flames!

OP posts:
PerkingFaintly · 07/06/2019 19:50

Since it's like a scooter convention in hereGrin, can I be really cheeky and lure you knowledgeable folk to my sad, unanswered thread?

I need to know about covers for the controls in the rain.

Rivetting topic, I know!

www.mumsnet.com/Talk/_chat/3604678-Anybody-got-a-rain-cover-for-mobility-scooter

MadCatEnthusiast · 07/06/2019 19:50

Ohhh the invisible person thing is so real. This happens EVERYWHERE.
How can people be so rude to your face? I've had my own GP do that to me let alone shop assistants.

"Can you move the wheelchair (i'm still in it) please?" I don't think my friends have the strength to move my 300kg wheelchair.

SilverySurfer · 07/06/2019 20:20

PerkingFaintly riveting indeed Grin I have posted on your thread.

Stinkycatbreath · 07/06/2019 20:39

Brilliant tips Widdlin we are super wheelchair aware in our house but you highlight some very good points. My son naturally watches people in wheelchairs I have a professional interest but know not to stare just coz I've never seen a particular EPIOC model before.
The people I work with advised that they would rather people with children come and say hello rather than shout at their child for looking. It makes all tbe wrong associations. Would you be offended if I approached you with a two year old boy and said hi?
I always try to explain that people get around in lots of different ways , some people walk, move around on their bottom on the floor or use a wheelchair or scooter. What would you as a wheelchair user advise me to say? We need to talk to each other about these things.😀

MadCatEnthusiast · 07/06/2019 20:46

Would you be offended if I approached you with a two year old boy and said hi?

Nope I wouldn't as it's with good intentions. It's better than having kids afraid or discouraged from interacting with w/c users!

BatShite · 07/06/2019 20:48

What an fantastic and helpful post. Its been a while since I was confined to a chair luckily, but I agree with all of it personally. This bit though

I do come across a lot of kids who stare, and for smalls thats fine, I don't mind and I am not offended, I might smile and wave or pull a silly face even - but SO many of them are shouted at, because I assume the parent is embarrassed that their child has looked at me... there is no need smile I won't burst into flames!

While I would imagine its true for many (and it was true for me, I didn't mind at all) I have came across 2 wheelchair users who were very offended that my kids looked at them. One told me that I should teach them some manners while deathstaring me then glaring at the kids as she spoke. I was unaware that a 2 and a 4 year old looking at someone and smiling but maybe looking a bit..intensey as they are not used to seeing people in wheelchairs really, was them not having manners. I did apologize. The other..well they were I think just either having a horrific day or were a general arsehole, as they asked my daughter to move out of the way (fine obviously) and then pretty much growled at her as she didn't say sorry and just moved, then glared at my son (1 at the time and in a pram!) and said something along the lines of 'stop staring, I don't have 2 heads, have you never seen someone in a wheelchair before'

Of course, you get twats who in chairs aswell as twats who aren't though. But yeah, from my experience/memory I have only seen 3 people who are in wheelchairs in the past few years in our local town (I don't go much further than that due to illness) and only one didn't mind young kids looking. If I count myself, then thats another though I guess. I cannot for the life of me understand why people would berate a young child for looking at someone/something they don't usually see Hmm

I would definitely second the 'don't be shocked we can stand and move a bit' too. I once got a mouthful off someone on a bus as she had moved from the disabled space for me, then I had issues getting my chair in right (was still very new to it at that stage) so stood up, pushed it in and just sat on the seat next to it rather than hold up the bus any longer. Apparently I was a massive fraud and should be ashamed of myself and if I can stand and walk 2 steps, I shouldn't be 'pretending' I need a wheelchair, and 'I shouldn't have moved for that fucking bitch'. Which was lovely.

BatShite · 07/06/2019 20:53

Oh I forgot my main gripe about being in a wheelchair. The way the general public, along with staff members wherever you are will speak to your partner/friend(or anyone who is with you who is not in a chair) instead of you. As if having mobility issues means you cannot think for yourself. That annoyed me a lot and I used to rage about it constantly. You would think in this day and age, people, and especially people who are at work, would not do this. But it was so common a few years back and imagine it has not changed much.

So, please if you have a query or are serving me, look at me rather than whoever is with me. I am more than capable of having a conversation and paying for my items or ordering my meal myself. My husband is not my carer, and I have no other 'problems' besides mobility. That may sometimes be the case with others, but please do not assume.

nonevernotever · 07/06/2019 20:55

Fantastic post thanks - I've learnt so much and hope lots of others are reading too

PerkingFaintly · 07/06/2019 21:10

Grin Thank you, Silvery et al.

WiddlinDiddlin · 08/06/2019 01:40

I certainly wouldn't be offended if a parent approached with a small child and asked if they could say hi, as long as I'm obviously not busy or having a total nightmare of course.

But yes you'll get some folk who are UTTER arseholes and I feel for them because tbh, I think they probably make life SO much harder for themselves simply by having a shit attitude - if you go around expecting everyone to be a cuntyfucker.. chances are, they are going to be!

Most people get that im approachable, ive usually got a funny teeshirt on (I have one with the wheelchair symbol that says 'Im only in it for the parking' and another that has the wheelchair symbol.. and a set of stairs that says 'AHH CRAP' under it)... and that tends to crack a smile for most folk and makes me seem approachable!

I think for those with kids who are staring, a casual and happy 'Ooops sorry we haven't seen many wheelchair users yet' or 'we've not quite got 'don't stare' cracked just yet' is a good opening for 'can he/she say hi' ... it won't entirely rule out bumhole grumpyfuckers but its a good opener I think.

OP posts:
WiddlinDiddlin · 10/06/2019 22:41

Adding another I have just thought of!

Restaurants - ask wheelchair users if they would like a chair removed or would they like to transfer to a chair - don't assume either though.. ask.

Do NOT.. offer wheelchair user to sit on the end of a booth table where they are then sat in the aisle/thoroughfare - we dont like being kicked or waiting staff dropping food on us.. (also sitting on the end of a table feels horrid anyway).

Also don't offer us high bar type seats, the tables are at wheelchair user chin height and only those in powerchairs that lift could use those.

If I can, I book and ask that a chair is removed so i can wheel up to the table, but both the above have happened to me in the past.

Diners, if a wheelchair user needs you to move to get past, please don't huff, hutch your chair up half an inch then look REALLY pissy at being asked to stand and tuck your chair in... just stand up first time round, its easier for everyone (though I wish places wouldn't have so many tables a wheelchair user just can't get through I understand bums on seats is money).

OP posts:
SimplySteveRedux · 10/06/2019 22:43

Brilliant thread.

SimplySteveRedux · 10/06/2019 22:46

Please look around once in a while instead of being immersed in your phone and winding up banging into me, then daring to insinuate it's my fault.

Bacardi101 · 10/06/2019 22:51

I love this thread! I’m a manual wheelchair user and don’t mind it at all when little ones come over I have two myself! But I hate and I mean really really hate it when someone comes over and pats me on the head! Why? Why?! WHY would you do this 😂 please if you think you won’t be able to stop yourself doing this put your hands in your pocket and walk in the other direction!
And please do not ask me if I want a race! I’ve more than likely been up since 6 with the kids and finished work for the day and I’m shattered so honestly I don’t want to have a race 🙄😂

manicinsomniac · 10/06/2019 23:20

This is really interesting, thanks.

I'm so shocked to read that scooters don't have brakes - is there a logical/useful reason for that that I'm not understanding? It just seems so needlessly dangerous. I thought all vehicles had brakes. Something as big as a scooter, I would have expected to have an emergency dead stop button or something.

SargeantAngua · 11/06/2019 07:41

As a scooter user, thanks for posting this (I didn't see the post that got deleted, that might be a good thing)

Pavement parking/parking over dropped curbs/complete lack of dropped curbs are major causes of frustration in my life!

I enjoy smiling at small children who see my scooter as a source of fascination though, and sometimes get complimented on my maneuvering in tight spaces - apparently my technique of reversing into the tiny lift in our block of flats, while opening the door to the lift, and ending up neatly parked inside, is rather impressive Grin I've had to leave the scooter downstairs a couple of times and DP had 'fun' trying to repeat the manoeuvre!

Whizzing down hills in your chair sounds like fun! DP and I sometimes come up with challenges for me to try when we're out and about, and we've thoroughly tested the off road capabilities of my little boot scooter!!

I was very embarrassed to run over someone's foot in the supermarket checkout queue last week though when he let me go in front of him as I only had 1 thing. I was flustered and looking at the checkout assistant, he didn't step far enough backwards... Blush

SargeantAngua · 11/06/2019 08:00

manicinsomniac the lack of brakes I guess is simplicity. I sometimes wish for one though. Once nearly hit a small child (long story, honestly not my fault, but terrifying), and also on really steep slopes it can sometimes not stop, which is disconcerting! It's not common, but has happened a couple of times.

I found the transition from healthy bike rider to ill scooter rider tricky at first too - bicycle stops when you grip the lever, scooter stops when you let go... when you panic your first time in a busy supermarket and get confused it's possible to run over your partner's foot and ram them into the shelves...

I'm a generally very safe an capable scooterer, honestly!

LittleFairywren · 11/06/2019 08:06

Really eye opening thread thank you.

Ladymargarethall · 11/06/2019 08:29

Thank you for the thread.
DD has just started using a scooter. She has a Motability car, but the scooter gives her the opportunity to go out in the fresh air. She has also started to use supermarket scooters instead of using the trolley as a walking frame, because now she can visit the whole store instead of planning a trip to one area.
A man in Asda said 'Oh great. Now we have to share the shop with them.' looking in her direction (and completely disregarding his own three unruly children).
Good job I wasn't there or I would have said 'Did you mean to be so rude?' Grin

my2bundles · 11/06/2019 08:50

Great thread. Just wanted to add on about oversized buggy used by children with various dis abilities. One of my children used one untill age 8. Due to various behaviour as a result of autism my child couldn't tolerate people standing directly in front of the buggy resulting in my child kicking out. Someone once told my child off for kicking even tho they stood directly above, giving no space and it was obviously causing distress. Please if you see a child in one of the oversize buggy give them space, don't crowd them.

YesQueen · 11/06/2019 09:06

Fab thread. I'm not a wheelchair user but I had spinal surgery and had to walk a lot to stop scar tissue and relearn how to use one of my legs
Now the obvious place is a smooth, flat shopping centre! Plus it's less boring. But the amount of people that don't look where they're going and slam into you, and often really hurt me because it would jolt my back. I felt very very vulnerable around people for ages, some are just oblivious

WiddlinDiddlin · 12/06/2019 02:26

@manicinsomniac

Some scooters have an emergency brake lever designed for use if the scooters motor braking fails, ie you take your hand off the lever for 'go' and it continues to roll down a hill/starts to roll backwards.

Because they are hand controlled ie, pull the lever on the left towards you to go/push the lever on the right (its the same lever just the other end) away from you to go - reverse this to go in reverse, let go to stop...

Having another brake is basically superfluous - you'd already have to let go of the lever to grab the brake lever... so you wouldn't stop any faster and you couldn't have a brake system the way a bike does, as then you'd either be asking the scooter to go forward or reverse AND stop at the same time which would knacker the motor.

Once the motor is not engaged, scooter wheels do not 'free wheel' like bike or motorcycle wheels do.

@my2bundles thats a really good point, people do it to wheelchair users too - we already have to look up and mostly I know I don't mind... but when someone stands to close and you look up and they are looming over you.. thats really horrid - it certainly causes me stress when someones in my space and I can't get them out of it!

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