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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To buy B12 injections online?

46 replies

TigersRoll · 25/04/2019 15:42

Finally found out the reason for my chronic fatigue and lethargy. I’m ferritin and folate deficient as well as borderline B12 deficient.

I feel like absolute shit. So tired I can barely function.

GP won’t give me b12 injections.

AIBU to order them myself online? I can self administer

OP posts:
PointlessUsername · 25/04/2019 15:45

I am in the same boat.

Have been diagnosed with pernicous anemia and 3 monthly injection do nothing.

Madratlady · 25/04/2019 15:45

Yabvu

Somewhereovertheroad · 25/04/2019 15:47

Yes, for several reasons not least of which is the reason he won't prescribe them and the cause of the deficiency.

TheQueef · 25/04/2019 15:48

Tempting but don't risk it.
Unless you have a legit sour ce?

dirtystinkyrats · 25/04/2019 15:48

Have you tried taking high dose tablets for a while to show you can't absorb it?

WiddlinDiddlin · 25/04/2019 15:54

Yes I do it.

For those saying no.. no GP is going to prescribe B12 jabs on a weekly basis for self adminstration as it goes against their guidelines and is likely to land them in the shit.

I know, because mine did.. and eventually, did. On his advice, I now get my B12 from Dubai (I have a friend who goes there, alternatively id buy it in France) and do it myself and I just inform my drs that this is what I am doing so they know if/when they order tests.

Not had an issue doing it, as long as your Drs know so that they dont order pointless tests.

Somewhereovertheroad · 25/04/2019 15:56

It's poorly absorbed in the stomach but you can buy Sublingual (under the tongue) tablets

Eliza9919 · 25/04/2019 15:56

I wouldn't inject anything I bought online. You don't know what's in it.

TigersRoll · 25/04/2019 15:57

@WiddlinDiddlin How often do you inject? Do you feel better after doing it?

OP posts:
Eliza9919 · 25/04/2019 15:57

Disclaimer - I wouldn't inject anything anyway.

CaptainJaneway62 · 25/04/2019 16:10

@TigersRoll

I have pm'd you with some info!

Dontgiveamonkeys1350 · 25/04/2019 16:14

You don’t have to wait three months. My doctor did it every other month as I needed it. I would check and see another doctor

Lonecatwithkitten · 25/04/2019 16:36

I have mine on a flexible prescription I am allowed up to 12 vials a year to use when I feel symptoms starting.
Self injection is not for the faint hearted it needs to be by deep I/m injection so at least an inch long needle into a muscle belly. You have to take care of you use the thigh to avoid the sciatic nerve.
I am a vet so was allowed to do it, but my GP said I was a braver woman than her.

dirtystinkyrats · 25/04/2019 16:37

If you search on Facebook there is a group full of crazy people who will advise you how to self inject, where to get supplies from etc. Personally I don't and wouldn't self inject, and in my case injections are the only thing that works.

You could also research getting the more accurate private B12 blood test. I thought about getting that, however now Im on 3 monthly injections I'm only getting symptoms for a couple of weeks every 3 months so not really worth the cost or effort.

barcodescanner · 25/04/2019 16:45

I've been self injecting for the last month. I order them from Germany. The difference in how I have been is amazing already.
I can't believe I have wasted 2 and a half years fighting doctors to get them more often.
You need to get the first one done in a clinic in case of rare allergic reaction but then go for it.

Join a support group on FB, all you need to know about cofactor is there as well as trusted websites to buy from.

Dontgiveamonkeys1350 · 25/04/2019 16:53

One doctor did tell me that the injections are supposed to last six months. I actually laughed out loud when she told me that. Not a chance. I can feel it about a week or two before I’m due to go. And sometimes I don’t feel any benefit from them at all. They always really hurt though !!!

ItsLikeRainOnYourWeddingDay · 25/04/2019 16:53

Are you addressing the folate deficiency?

Also you can't be ferritin deficient. You can be iron deficient which uses up your stored iron which is another term for ferritin.

Work on those two first as they are the main causes of your exhaustion. A borderline b12 result is not causing this.

SnowyAlpsandPeaks · 25/04/2019 17:01

I’m on three monthly, but have had the loading doses a few times as I was so unwell. No worries I have my jab am good for about a week then down I go again🤷🏻‍♀️

MrsCasares · 25/04/2019 17:06

How are you getting rid of the needles if you self inject?

breakfastpizza · 25/04/2019 17:08

As long as you're comfortable self-injecting, go for it. You can buy B12 vials and syringes over the counter at most chemists in Canada. Ridiculous how rationed it is over here.

Treesthemovie · 25/04/2019 17:09

Tiredness and lethargy can be caused by things other than a b12 deficiency. I'd rule out other causes before injecting myself with b12

Treesthemovie · 25/04/2019 17:10

Also hope all these people injecting themselves are disposing of the needles properly, not just in the bin.

YesQueen · 25/04/2019 17:10

@MrsCasares I inject a drug (not self prescribed though) and the chemist or hospital will give me a sharps box

handslikecowstits · 25/04/2019 17:12

I've sent you some information via PM, OP. I hope you find it useful. (Relates to a good doctor. Noting weird.)

bellinisurge · 25/04/2019 17:13

I have MS and get monthly jabs prescribed as a kind of "not sure what else to do about your MS fatigue " kind of way.

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