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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask you to diagnose what the hell is wrong with me because I'm at my wit's end.

104 replies

Welcometotherock · 12/04/2019 12:05

Hospital appointment today. I've had symptoms for five years.

Joint pain, bladder and bowel issues, headaches, blurred vision, dizziness, intermittent weakness (feels like a minor stroke, can't lift a kettle, numbness, dragging leg behind me.
In constant pain, falling.

Been to the GP and hospital and told it's not arthritis, not muscle based.
Neurology last time told me that they was broken eye persuits and issues with rotation of joints but no known reason.

Seen today , a two minute appointment which told me there was no neurological signs at all (even though two weeks ago was told there was)

Only interested in my anxiety tablet (I had these issues way before anxiety)

And discharged me on my memory way to carry on with the lack of any qualify of life I currently have.

What the hell do I do next Sad

OP posts:
Mummaofmytribe · 17/04/2019 07:02

I would seriously to get in with another GP. You need someone who's going to actively work to help you, not dismiss you.
I'm experiencing many symptoms you describe. I still don't have a diagnosis and am so sick of feeling like this. Sometimes I get scared that I'll never be well again.
The difference in my case is that my GP has been sending me for test after test. Each time I see him I seem to apologise for bothering him so much. He told me it's his job, that I'm definitely not bothering him, and we'll keep going until we know what's wrong.
He's a bit mystified as all his initial suspicions have come back ok but he is now widening the net as he puts it. I have faith in him to keep referring me to specialists and using me as a pin cushion for blood tests. He knows I'm not a hypochondriac and he wants to help.
You need a doctor like this!

Fretfulparent · 17/04/2019 22:49

www.ncbi.nlm.nih.gov/pmc/articles/PMC2815011/
Do not underestimate the effect of a very premature menopause. Please ask your GP to review your need for HRT

Fiveandme · 18/04/2019 05:12

I’d get your back checked, I was basically ignored for years by doctors because all the tests they done came back clear ... ms etc ,it turned out I had disc degenerate disease and I’d a lot of discs gone in my cervical and lumbar spine , my first symptoms came on at 16 and started with hip and leg pain , they couldn’t figure out why,then my right arm kept loosing power and I so many other symptoms but no doctor thought to check my spine because I was too young for back problems and even at 25 when I got my first back spasms it was ignored,at 31 I finally got a new doctor in my gps to take me seriously and send me for lots of tests, within a year I has spinal fusion and was fixed after a long recovery, it may not be that but worth checking

Ihatehashtags · 18/04/2019 08:38

I’d say it’s some type of auto immune disease or that plus something like ehlers Danos syndrome.

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