Is there no depths PIP will go to...

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Saw this today, shocking. Pip called a lady a 'lying bitch' in her appeal submission. Kind of confirms the DWP attitude really. Horrible.

Sexist as well...

www.theguardian.com/politics/2019/mar/22/dwp-document-refers-to-benefit-claimant-as-lying-bitch?CMP=share_btn_tw&fbclid=IwAR2OcNV34F2dyDS7S15k_aw9nEIMLVii6gfKNN-sskR40sPJJxC9hGuldmo

Mine, was also a renewal. The second time they totally messed up and said opposite to the original. Maybe having the successful original helped.

Yes it is horrible, and he will be entitled to benefits to pay for outside carers as his condition progresses. At the moment he is fine with my mum there to guide him. And thankfully it seems to be progressing fairly slowly. I know people with dementia at his level do live alone, and I find that quite scary actually. He is not safe for example to cook without my mum physically being there, as he will put a pan on and then forget he did it.

If you are both disabled enough to be eligible for PIP, you would have to pay someone to help. And lots of people do that

False. My cousin gets PIP for learning/behavioural difficulties, and his mum gets Carers for him. She also gets PIP as she had very bad arthritis and needs loads of meds throughout the day, has had three hip replacements before the age of 40, needs crutches when it's very bad and even a wheelchair at times.

I actually don't understand how you can be entitled to PIP and actually look after kids, without paying for help. There are plenty of parents who are disabled who have kids and take care of them well. But to get PIP, you need to be unable to do a number of very basic things.

*has very bad...

Okay I understand if one has learning difficulties and the other has physical issues. That makes sense that they could look after each other.

Yes, or the one who has learning difficulties is looked after by the one with physical issues; and the one with physical issues is looked after by a third person who comes in (to do housework, prep food, help bathe).

As someone said above, the benefits are assessed on the help that a person needs, not the help they actually get or who provides that help.

Yes I know how PIP works. But someone would be being pretty neglected if they did not get the help that PIP says everyone needs.

Did any one read this fully?

towards the bottom

A DWP spokesperson said it had not yet been able to verify the document, adding: “We do not comment on leaked documents. We expect the highest level of professionalism from our staff and any behaviour like this would be completely unacceptable. We would always take action where serious or gross misconduct was proven.”

I'd always wait for the full and real version to be published after an investigation rather than an unsubstantiated prank

Ah yes the "big boy done it and run away" defence.

Yeah sure, words on a page mean nothing!

You can click and see the appeal papers on Rightsnet...do you mean it might not be real?

Let's read between the lines.

A DWP spokesperson said it had not yet been able to verify the document wisnae us, adding: “We do not comment on leaked documents and anyway even if it was us we only talk about private documents not the ones shown to the public, how dare you show us up?. We expect the highest level of professionalism from our staff and any behaviour like this would be completely unacceptable if we done it which of course we didn't. We would always take action where serious or gross misconduct was proven and you totes can't prove this was us not a big boy that run away and anyway we won't talk about it now because you showed people and we could have maybe come to some agreement if you had talked to us first but instead there will have to be an enquiry, sometimes with sanctions, hope you enjoy that you lying bitch.”

Carers allowance and DLA combined make a big difference to anyone who is on a lower income.

I agree it makes a big difference to people on a low income but Carers' Allowance is £64.60 a week which, if providing the minimum requirement of 35hrs p/wk of care, equates to £1.84 an hour. If providing 24/7 care which is the reality for many carers then it's 38p an hour.

It's estimated that carers save the government £132 billion per year, enough to fund the whole NHS for an entire year so £1.84/38p an hour is a bit of a kick in the teeth.

Yes carers are not being paid.

And you can get carers allowance if you provide a minimum of 35 hours a week. Lots of people need carers who do not need 24 hours care. And I have been a carer.

As a poster on Rightsnet pointed out, "Nice try chaps, but it isn’t a leaked document is it?"

www.rightsnet.org.uk/forums/viewthread/14271/P15

It's the DWP's official response, which they will have sent to both the Tribunal (which is open to the public and run by HM Courts & Tribunals Service), and the applicant (who is free to share it with whom she likes).

But someone would be being pretty neglected if they did not get the help that PIP says everyone needs.

I don't know anyone who gets all the help that PIP says they need.

£145 a week doesn't go far when you are paying for a cleaner, meals (like a Wiltshire farm foods type company), taxis everywhere they need to go plus any extras like extra heating etc.

The other anomoly in a couple set up is that if one works and the other is unable too because of their health then a child they have would allow them to get help toward childcare costs.
However, if the working parent then dies leaving the child in the care of their sick/disabled parent there is no help toward childcare, even though it was previously accepted that the other parent was too unwell to be a full time carer to the child. You can't get a lot of nursery or childminder hours squeezed out of their PIP.

Unless the scanned document itself is fake.

But given the context (put up by a disability rights advisor on a professional forum where they have apparently posted for some years), I'd be surprised.

I don't get the help I need and get high rate care/low mobility (should be high but too scared to appeal).

My council expect me to use my PIP to cover the shortfall in rent and won't allow me to apply for discretionary housing payments as they say it's more expensive for me to live where I do due to disability (true) and PIP is to cover that (untrue). I'm expected to pay now for physio, again, as I get PIP. I was supposed to attend a mental health recovery course - cost was more for those getting pip as it was deemed to be for that, the activities at the nearest mind are more expensive if you have pip as its deemed to be for that. I have to pay for incontienece pads as well (the NHS one per day is useless, and doesn't meet my needs) plus other things not on the NHS that are expensive and not care.

When I had an assesssment by social services for direct payments I was deemed to only need what I was deemed to have available to contribute (my dla award at the time). The finance department refused to accept things like topping up rent, even though they were the ones who said I must use it to top my rent up.

Basically there are many any extra expenses to being disabled and though pip helps it doesn't cover even close to all of those needs.

that’s shocking. But how can you be a full time carer for somebody else while being so disabled you qualify for PIP yourself?

that is not really that hard to understand? what do you think would happen if you became disabled and have a disabled child???

My friend gets PIP for a disability/illness and has a child with severe learning difficulties/ASD. Child gets DLA and friend therefore CA. What else is she supposed to do? There is no state/NHS/social services helping out.

some people just have it fucking tough by being disabled themselves and having to care for a disabled persons too. What do people think would happen? A magic caring fairy appearing in those families???? seriously, some people have really sheltered lifes!

Honestly I think a lot of people think help will magically appear. Before I was in the position I currently am (I'll spare you the details) I never thought it would be like this.

I wasn't exactly in "caring fairy" land but I didn't expect to be told to hand over what is to me a lot of money to pay for help which I don't have because of needing to pay for other needs. At the very least I expected that I have no choice but to pay for some things out of my pip and that to be taken into consideration but it simply isn't. That's not to say if I handed it over I'd get all the help I'm going to need in the future either.

My last assesssment made repeated mention of family/friends/community and the care they provided and if not then I needed to get them involved (my family were abusive but not jailed - the recommendation was mediation!) friends were why the assessment as they couldn't cope with seeing me struggling so made contact they simply couldn't provide the help I needed. "Community" referred to my religious community who again couldn't help.

I get PIP and have a child with asd. I also get carers allowance for him. My disabilities are mental and physical. Life is really tough! My sons needs are complex and there is Only Me! I have no choice but to care for him. I love him so much but bloody hell, it never ends!
I recently had a pip assessment and the health care ‘professional’ lied on my report, constantly! I put in a formal complaint to the assessment people and got a letter the other day Agreeing with me! They have contacted DWP to let them know the report did not take into account my mental and physical problems and asked them to reconsider the descriptors as they got it wrong. Always complain to the IAS as well as the dwp would be my advise.
As to the carers allowance, I have no choice but to do the best I can to care for my son. Xx

flying They pay for help.

I actually don't understand how you can be entitled to PIP and actually look after kids, without paying for help.
Really Claire you just can’t fathom how I can’t walk but can look after my dc without paid help!
This thread is an eye opener.

They pay for help.

PIP doesn't cover the cost of the help many, many people need.

If two people need help with a multitude of things they'll simply have to prioritise what they can pay for and then they just muddle through themselves with the rest.