Sorry this will be long, it’s a rant and asking advice:-
I had enhanced care for 3 years,my diagnosis is:- bipolar, fibromyalgia, hyper mobility syndrome, heart murmur, b12 deficiency, and back problems (car accident awaiting surgery) I take 31 tablets a day.
When I had my FTF I was hypomanic. But I can remember a lot of my interview. I wouldn’t allow dp to stay after he got me in the shower and clean pj’s on, because I was ‘fine, I can manage this, it will be great!’ How she laughs now! But that’s the joy of heading towards a manic episode!
Anyway. I have to get my mandatory reconsideration in by next Thursday. So any tips will be most welcome. I should highlight that there was a number of ‘lies’ in my assessment feedback. I take care of my own meds, my own finances etc- we never spoke about them. I was an ‘intellect’ Pmsl I’m sorry just because I’m educated and
have a degree, am I not supposed to be unwell? There’s loads more that I won’t add or it will turn this into an essay.
But question I was asked several times:- how many days have your back been bad in the last 6 months? Umm it’s pain 24/7 the worst pain is when it goes into spasm. Well how many days has that happened? I have no idea as I have not kept a journal. The second question: how many days has your bipolar affected you? Ummm no idea I haven’t kept a journal. I wasn’t aware I should be daly recording all these things, no ones ever mentioned that.
So she said ‘but I need to write down a number’ I said whatever number I give will
be a lie, because I can’t tell you. So
I don’t know what she wrote.
One last thing she wanted to know when I passed out, lost control of my leg, the sudden jerks of my body, the headaches and so on. Which of my diagnosis caused each one. I said it could be any or several and also side effects of meds, but I don’t know. But she kept pushing me for one. So I asked my GP last week, he said we have no idea, it could be any of your diagnosis, a side effect of meds or a side effect from combining your meds, we just don’t know.
But what is pissing me off. I have a very supportive partner, supportive ex-partner, an 18 year old son, and a 14 year old son. They are all supporting me to write this mandatory reconsideration. Because I have brain fog from fibro, I have bipolar episodes that makes it difficult for me to remember things. But what about those individuals who don’t have family, who don’t have access to the internet, who can’t get out and about for help, who don’t have the mental capacity to fight. They are the ones who will open those letters and their hearts will sink. They’ll put it on the side and accept it. Those are the people that I really feel for, and I’m working hard to put this together with support. How are others supposed to manage?