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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

Labyrinthitis and the Friends Trivia Quiz

28 replies

IfyouseeRitaMoreno · 19/01/2019 18:34

I’ve just realised that my Friends Trivia Quiz thread went to 1000. Thank you so much for cheering me up!

Sorry I didn’t post on it after a few pages but I’ve developed labyrinthitis and can’t focus! It really sucks as I’m sure anyone who has had it knows, and when I’m well I’ll never complain about first world problems again. Hold me to that!

Thanks so much MNers. Xxx

OP posts:
iklboo · 19/01/2019 18:38

Much, much sympathy - I have Ménière's disease which is kind of in the same 'family' as labyrinthitis, but permanent. Hope you're feeling better very soon.

Original poster
IfyouseeRitaMoreno · 19/01/2019 19:19

Ikboo, yes I read about that. And that labyrinthitis can lead to it years later.

Is it constant or does it come and go?

My sympathy to you also. It’s tough to cope with.

OP posts:
iklboo · 19/01/2019 19:21

Is comes and goes - the attacks are less often but I'm taking meds & having steroid injections into my ear every 3 months. Take care.

Original poster
IfyouseeRitaMoreno · 19/01/2019 19:23

Thanks x

OP posts:
JurassicGirl · 19/01/2019 19:27

You have my sympathies!

I had labyrinthitis last year & it was scary how debilitating it was!

I couldn't do anything for 3 weeks & could only drive after about 5 weeks!

I enjoyed reading your Friends thread, hope you feel better soon Smile

TwelveThirtyTwo · 19/01/2019 19:28

I had labrinthytis, worst week of my life! I have every sympathy op.
Luckily mine has never returned.

Original poster
IfyouseeRitaMoreno · 19/01/2019 19:41

Thanks. Yes I’m on my first week and the doc has said between 1 and 6 weeks. Luckily my parents are taking care of me because I seriously don’t know how I would cope on my own.

Such a pretty name for such a hideous thing.

I can just about read Mumsnet with one eye. Two eyes open and it’s woozy. So at least I have mumsnet.

OP posts:
dyslexicbrian · 19/01/2019 20:01

You poor thing. I had it a few years ago and I have never in my life felt so poorly. Now I have hearing difficulties as a result.

Wishing you a speedy recovery.

ThanosSavedMe · 19/01/2019 20:06

Labrynthitis sucks. I’ve had it really bad once then a few small episodes. People who’ve never had it don’t understand. I’ve had comments where people say ‘yeah I get dizzy spells too’

I hope you feel better soon

Blueberryhill123 · 19/01/2019 20:14

I've had labyrinthitus, and it's awful, and I was advised to get stugeron (travel sickness tablets) from the chemist, which I did and they really made me feel so much better almost immediately.

Original poster
IfyouseeRitaMoreno · 19/01/2019 20:42

I’ve been on Prochlorperazine for a couple of days. Doesn’t seem to be helping much but I’ll give it a few more days then maybe try the stugeron.

The only good thing is that it’s lessened my tinnitus.

OP posts:
MrsHandles · 19/01/2019 20:53

Crikey, OP labyrinthitis is the pits, but to have tinnitus as well? I wouldn’t wish that on anyone.

When I had it, my doctor tried a head movement on me (Brandt-Daroff, possibly) within 24 hours I felt so much better, as in I could actually get out of bed and not fall over! It was amazing. I’d highly recommend seeing your GP and asking about it if you can get someone to drive you.

Hope you’re well again soon.

Flibbitygibbit · 19/01/2019 20:54

Try exercises- on YouTube. Brandt Daroff and the Epley manoeuvre. The only thing that works for me . It's awful.

Biggerknickersagain · 19/01/2019 21:01

Sorry you're unwell OP, never experienced labrynthitis but it sounds horrendous! Speedy recovery, and loved the friends thread, I enlisted DDs help as well and she loved it too!

Original poster
IfyouseeRitaMoreno · 19/01/2019 21:08

Brandt Daroff and the Epley manoeuvre.

Ooooh thanks. So much good stuff on YouTube. That’s where I get tinnitus masking videos from.

Ha. I always thought it couldn’t get much worse than tinnitus. How wrong I was!

OP posts:
MrsBertBibby · 19/01/2019 21:22

It 's a bastard. I had a bout years ago, lasted a few weeks.

Then 3 years ago, back it came. Turns out the first round did permanent nerve damage, and I had been compensating without knowing it for years, ignoring the messed up signals from my inner ear. Age, stress, or who knows what made it come back. I was off work and off the road for months, couldn't concentrate, it was absolutely terrifying.

It went again, but has even more recently come back, albeit much more gently, so I can still work and drive. It seems to be here to stay, sadly. It's horrible.

nicoala1 · 19/01/2019 21:24

I have found my fellow travellers at long last!

I had vertigo for years. Then suddenly it stopped about three years ago.

Then I developed Menieres. The difference between the two is immense. And bloody awful too. Really awful as fellow sufferers of Menieres will know already.

The minute my left ear feels full and I get that whooshing, ringing sound I know I am in for a bout. Seriously, have to take to the bed or I would be a danger to myself and everyone around me.

Docs just advised Stemetil for the moment, as they said the period between bouts can diminish. OK, still waiting for that one!

If any Menieres sufferers know of an online support group that would be great. I have obviously googled, but not that much coming up really. Guessing it is rare enough in the general population. But it is SO debilitating.

All the best to you all.

patientzero · 19/01/2019 21:25

Get well soon! Labs is hands down the worst thing that’s ever happened to me and I’ve had it twice.

MrsBertBibby · 19/01/2019 21:31

And people just don't get it. My employers were just awful, (they were arseholes anyway, to be fair) but they clearly didn't believe a thing I said.

Finding you can't do the job you've done for 20 years because of a tiny nerve in your ear is, well, it was devastating. I thought I was going mad.

MarcieBluebell · 19/01/2019 21:35

Also giving you sympathy. It's really awful. Get lots of sleep and rest.

Original poster
IfyouseeRitaMoreno · 19/01/2019 22:39

Nicoala I am a member of Tinnitus Sufferers on Facebook. It is a wealth of information. Some of the people who post also have Ménières so you might want to post on there and see if they can recommend you one.

OP posts:
HoomanMoomin · 19/01/2019 22:57

I have it. It started 3 weeks ago and still have it. I spent 2 nights in hospital and actually asked myself to be allowed home on New Year’s Eve, because I couldn’t stay there anymore.
I almost crawled out of the door.

Today I did my first Pokémon Go session without my DH around since getting ill. I’m still not quite straight on my feet and can’t take care of 4 yo DD myself, but I’m definitely getting better.

nicoala1 · 19/01/2019 23:16

@IfyouseeRitaMoreno

Thank you so much for that. I am not on FB but will get someone I know to do it for me.

I'm on FB avoidance therapy lol!

Thank you again I appreciate it.

KatyaZamolodchikova · 19/01/2019 23:35

I’m a fellow menieres sufferer. I’m in a good period right now, I’ve not had a proper attack for around 18 months, but that’s mostly down to a very excitingly bland low sodium diet I suspect.

I find one of the —many— hard things is outwardly I look totally fine. And it is quite literally all in my head. But totally debilitating.

You have my sympathies OP, hope you’re on the road to recovery.

nicoala1 · 20/01/2019 00:01

@KatyaZamolodchikova

The real issue is as you no doubt know, that Menieres can happen out of the blue. And onlookers think you are drunk or drugged. It can be very embarrassing.

Not to mention the awful feeling that comes with it.

I had my sister and brother help me home from a siblings lunch (no alcohol) a few days ago and I was so worried that everyone in the restaurant thought I was on drink or drugs. It is awful.

Thanks for your post.