I posted this on the vaccination thread but..
Here's a short story about immunosuppressed me. I merrily went on my way through school, uni, work. Kept getting chest infections and tonsillitis and had lots of blood tests. Doctors said all "normal"
Went to the GP with night sweats. Nice GP did more bloods, and opened every other 50+ blood test I had. Rang me and sent me straight to haematology
I have a condition called autoimmune neutropenia. Usually occurs in children who then grow out of it, I was diagnosed age 31 but likely to have had it for 8 years before that
I kill off my own neutrophils - under 0.5 is classed as severely neutropenic. Mine were 0.3. Neutropenic is what often happens to people on chemo
So once a week I inject a medication called GCSF to stimulate my bone marrow. This gives me a headache, fever, shivering, shaking, vomiting, fainting etc for between 12-36hrs. And I do that EVERY week, usually at night so I can get the worst of it out the way before work
I needed spinal surgery and had to have extra blood tests and be in a side room as I couldn't be on a ward. I go to haematology every 12 weeks for bloods and to get my prescription
People say oh well you should avoid people/groups/concerts etc. I don't get anything for this condition
Imagine suddenly being diagnosed age 31. You have to still work FT. Otherwise who will pay your mortgage and bills? And this isn't for a few short months, it's for life. Would you want to avoid groups of people, bars, clubs, restaurants, public transport, supermarkets... for the rest of your life?
I'm just a normal person that you would pass in the street that suddenly got hit with a diagnosis that even the haematologist was surprised at
But people seem to be "I don't know anyone immunosuppressed/it would never happen to me" like we are all bald sick looking people who wear signs around our necks