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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think the doctor just can't leave me like this?

144 replies

beerandwine · 25/11/2018 13:38

I'm suffering from Pvcs and PACs (premature beats) I've had a Holter Monitor but the time I got that it was a good day.
Now I'm having thousands of these a day.
Sometimes every few beats.
I feel my heart pause then a massive thud.
I've had no sleep last night as they were happening every few minutes.
The doctor says they are benign and won't kill me.
I can't live this way.
Today I'm exhausted and the beats are happening all the time.
The doctor gave me beta blockers but I'm sure that's caused more extra beats.
The doctor won't do nothing else.
I don't know what to do now.
My life is not worth living with these.

OP posts:
Lougle · 25/11/2018 16:06

beer do you believe the doctor that these PVCs are not harmful to you? Have you had a decent explanation of what they are?

Coronapop · 25/11/2018 16:06

Is it the same as ectopic beats? When I had those I was advised to avoid coffee and alcohol, and told they were probably anxiety/stress related. I have read that exercise can help. They have definitely reduced now I have a less stressful life.

beerandwine · 25/11/2018 16:06

@Lougle I don't know if I believe the doctor,I'm convinced they've missed something

OP posts:
beerandwine · 25/11/2018 16:07

@Coronapop yeah they are ectopic beats (just a different name for them )

OP posts:
VladmirsPoutine · 25/11/2018 16:08

OP, I don't know why you're getting such a hard time on hear. It's almost as though no-one can be sick unless they have a limb hanging off.

I'm not sure how the solution is but certainly if you instinctively feel like more can be done keep fighting for a solution.

VladmirsPoutine · 25/11/2018 16:08

*here

hippipotamiwantstoloseapound · 25/11/2018 16:08

You do sound highly anxious (understandably).
It sounds like you have got stuck in a vicious circle - worrying about beats causes beats to be more irregular causes worrying about beats which in turn causes beats to be even more irregular which causes further worrying etc...
Go back to the GP. Deal with the anxiety.
Good luck xx

Coronapop · 25/11/2018 16:08

Is it worth asking GP for antidepressants to help with anxiety and stress?

CuriousaboutSamphire · 25/11/2018 16:11

Have you told your GP that? Have you told your GP precisely how much you fear they have missed something?

Your GP needs to know that so they can deal with the root cause, which is, much as you really don't want to hear it, the anxiety you are clearly showing us here!

Tell your GP. They will probably tell you that you have disordered thinking and need to practice some relaxation techniques, maybe CBT and/or a range of other therapies to help you put your PVCs into proper perspective.

Please... don't sit here arguing the toss with random strangers. Make yourself a promise to make an appointment to be more open to your GPs suggestions.

beerandwine · 25/11/2018 16:13

In the last two weeks I've been to the gp 6 times.
Last Friday he said he's explained what they are,and that some people get them more blah blah
I'm thinking of trying hypnotherapy

OP posts:
zebra · 25/11/2018 16:14

I have these too, although not to the extent you are suffering. I had all the tests years ago, and got the same response as you...nothing wrong, have some beta blockers. Mine are definitely anxiety related, I also get them if I'm unwell. Sometimes I have months without them, other times they are so bad they keep me up for nights on end. It's a vicious cycle with the anxiety, because worrying about them will make them worse.

beerandwine · 25/11/2018 16:15

I really don't want to take anti depressants again.
I took them around 4 years ago when I went through a phase of being scared to leave the house.
They made me so tired and felt awful.

OP posts:
Coronapop · 25/11/2018 16:15

It took me years (and several tests) before I finally accepted that they were harmless so I can sympathise with your predicament. Citalopram helped me deal with anxiety and stress. I can honestly say I wish I had tried it sooner.

Bombardier25966 · 25/11/2018 16:15

How about addressing the causes of your stress? Do you have a lot of caring responsibilities?

beerandwine · 25/11/2018 16:16

In June time they went mental then end of July they went away
Then my mum got took in hospital and the exact same day they came back so bad.

OP posts:
beerandwine · 25/11/2018 16:16

At the moment it's impossible for my cause of stress to disappear.

OP posts:
blueskiesandforests · 25/11/2018 16:17

VladmirsPoutine I don't think people mean to give her a hard time, just to help her clarify that she knows the cause, so fixating on wanting more tests won't help her. Her anxiety is clearly very seriously impacting her including causing this physical symptom.

Her anxiety certainly needs treatment - drug or talking or behavioural therapy or something else, I don't know. That's what her doctor needs to help her access, not cardiology.

CuriousaboutSamphire · 25/11/2018 16:20

Vlad that's possibly because some of us have experience with PVCs.

My DF does, I do.

OP has said she doesn't drink alcohol or caffeine and that she has a diagnosis of PVC with no underlying heart condition, as do my DF and I.

My DF has times when he fantasises about all the possible diseases he could have that could cause it. In those times he becomes almost hypochondriac over the smallest of sniffles.

I have always just looked it up and accepted that it will happen every now and then. My SA node has its own little party and forgets to invite me!

It can be very, very scary. But most people manage to relax once it has been explained to them. Especially when you can avoid or reduce all of the triggers.

BuggerOffAndGoodDayToYou · 25/11/2018 16:20

TBH my DH has this. Before he was told what it was and that it’s benign it worried him. Now he’s been checked and told it’s benign he just gets on with it.

There is no cure and no actual “cause”, it's very common too. The dictor has left it like this as there is nothing he can do and nothing he needs to do... it is a benign condition which, one you accept, will cause you no harm.

onlywanttosleep · 25/11/2018 16:20

I always find this website helpful:
www.nomorepanic.co.uk/palpitations

When I start to believe that my symptoms are anxiety related and ignore them they generally go away. It's hard, as it's a real viscous circle but I try to keep telling myself that I'm ok, I'm not ill and I can carry on.
Full of sympathy for you OP but I do think you need to start asking the GP to treat the anxiety not your healthy heart.

megcustard · 25/11/2018 16:24

OP I know how you feel. I also suffer from PVCs and have become cardiophobic as a result. Have had the tests, structurally normal etc etc. Although I have found beta blockers to have reduced them somewhat.

Look up Dr Sanjay Gupta on YouTube and facebook. He is a cardiologist who does a lot of videos about palpitations and their relationship with anxiety.

Wannabeyorkshirelass · 25/11/2018 16:24

I really feel for you OP, because I've been there. And I felt so frustrated with people saying it was anxiety, especially as they often started at times when I wasn't anxious. But you know what? It was anxiety. As soon as I settled my mind to the fact that they were harmless, anxiety related and to be ignored, they went away pretty fast. I get the odd few now, especially if I'm getting sick or the day before my period (no idea what the connection is - maybe dehydration?) but they don't spiral into massive episodes because I notice them and then move on with the day, I don't think 'Oh God here we go again, I'm so scared, what's wrong' like I used to. Best of luck to you. You have to start by believing the doctor.

CuriousaboutSamphire · 25/11/2018 16:25

At the moment it's impossible for my cause of stress to disappear. Would it hep to talk about that?

Not here, but maybe with a counsellor?

I am guessing that if you showed willingness to accept the psychological basis for it your GP would be able to signpost you to someone locally. Maybe something as self centring as yoga, which I find helps me - exercise and relaxation in one.

There will be a therapy that suits you. You just have to take the first step towards allowing the cause of it to be 'all in your head'. Then you can find the thing that eases that cause until you regain the control you said you very recently had.

You have been in control before. Recognise that. You can be so again!

beerandwine · 25/11/2018 16:26

I really wish I could get on with it,I've done it so many times over the years and it's always gone away but this time I'm obsessed.
It's all I think about.
I've had a lovely 2 1/2 hours of nothing and it's been great but I know it will start any minute again.
I live in constant fear.

OP posts:
beerandwine · 25/11/2018 16:27

I'm starting to think I have cardiophobia now too.

OP posts:
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