To call the out of hours with suspected endometriosis pain?

[Jellyjumpers]

I am unsure if I need medical input or can wait. I had endometriosis removed from my bowel at the end of last year and a coil fitted. For the last few months I have had sciatica and pain in the left hand side of my stomach. Gp thinks this is ibs but I am not convinced

I am bleeding today and have worked from home because I wanted to be able to access a hot water bottle. I have taken the antispasmodics the gp suggested but an still in a lot of pain. I do not know if I should call the ooh as felt ferry verry faint when I went to the toilet or if I should manage at home and look for a routine gp appointment.

I’m so glad you’ve got a referral. Hopefully your painkillers will make day to day more manageable until you get seen.
Do you know who you’ll get referred to? As you’ve previously had bowl endo it might be best to be seen at a BSGE accredited centre. They usually have a multidisciplinary approach to endo.
There seems to be a few in London. I believe you can ask your GP to refer you there.

www.bsge.org.uk/centre/

Mefenamic acid is great similar to diclofenic but also makes your bleed lighter and cramps less X

I’m so pleased you’ve got a referral. I know what pp are saying about codiene being contraindicated in some patients with IBS but that’s more if you have constipation- and you can always take laxatives if you need. I hope you slept better.

I got no sympathy from one female GP - I said I was in agony on 60mg codiene 4 times a day and she refused to give me anything else! Never went back. DH saw her a while later and agreed her bedside manner wasn’t great! However it was a different female GP who finally did help me, I always try to see her now.

Sounds like they’re finally listening to you OP.
Even if you’ve had ablation previously (burning it out), it can come back. Excision is the best way for removal of endo.
Nancy’s Nook group on Facebook has loads of information about the condition- I’ve found that health care professionals simply don’t know enough or maybe don’t have the time to fully explain all the details about it - I learned loads doing my own research after getting nowhere with previous gynaes, hence why I found an excision expert instead.

Thanks while the gp said it was burnt out I am sure the surgeon said that he used cut it out.

I’d ask for a copy of the notes tbh

Amitriptyline is best taken two to three hours before going to bed to avoid the daytime tiredness - best of luck to you with the new referral :)

Yes I previously tried to take the medication as early as possible in the evening, as it makes work difficult.

Once I see the consultant I plan to discuss exactly what happened in the surgery. I don't know if the letter is not very clear as a couple of drs think I have had an overy removed when actually it was a cyst.

Do you think the gynae will suggest another lap? If things can be managed with painkillers that do not cause too many side affects, I think I would prefer to do this rather than surgery