AIBU to ask you what these symptoms could suggest?

[DaphneCanDoBetterThanFred]

I will book a gp appointment, but as I have zero patience I wondered if the hive mind of mumsnet had any idea what’s going on with my daft body. Here are all my symptoms - they don’t come and go, it’s like this all the time.

• Muscle pain, like a burning pain even after mild exertion/basic daily activities like doing a supermarket shop or a day at work. All day. Ache and stiffen up at the end of each day, especially if I’ve been working, often to the point where I’m in too much pain to move. I basically just have enough energy to work part time, cook dinner, that’s it.

• ‘Loose’ joints. Not sure how to describe it, but joints seems to slip out of place (not dislocate, I’d imagine that’s much more painful) at the slightest thing, like picking up a book or turning my hand. Or standing up. It’s painful, but not unbearable. This and the muscle pain are most likely linked.

• Fast pulse - low resting pulse is 90, sometimes goes up to 120 even when resting. Blood pressure is low-normal.

• night sweats every night, waking up drenched and feeling like I’m in a very hot bath.

• frequent palpitations, and/or breathing but not feeling like the breath is going in, if that makes any sense.

I was diagnosed with joint Hypermobility syndrome/Hypermobility spectrum disorder a few years ago which explains the joints and possibly the muscle pain to some extent, but not really the rest. So it may be that the muscle pain and joint pain is one thing, and the pulse/palpitations is another.

Anyone out there with any similar symptoms? Or a magical cure? Especially a magical cure that involves cake and naps 😇

Peri Menopausd.

Ask for a blood test.

My money would be on anaemia

Either of the above - maybe both if your periods are heavy or getting closer together

Sounds like it may be two or three things OP, maybe a combination. Can I ask how old you are?

Sounds very menopause to me.

Peri menopause

Over active thyroid?

I did wonder about peri menopause, but I’m only 39..eek!
I’ll defimtiely ask for a blood test in case of anaemia. I had one last year and while it was low-ish,it was ‘normal’, so I’ll get them to compare then vs now to see if it’s dropped.
Not sure about periods as i have the implant and no periods at all. I’ve had the implant for 7/8 years. Come to think of it, I had this pulse/palpitation thing about 10 years ago, then it vanished for a while. Now it’s back with a vengeance, on and off for the last two years but much worse for the last couple of months.

I started with peri at 32

My money would be on anaemia

Yep and a mega lack of B vitamins.

I would prefer anaemia and lack of b vitamins to the peri menopause, I’m nowhere near mentally mature enough to admit I’m that old

Speaking of that, would I be stupid to get iron and vitamin b supplements to see if they help and not go to the gp? I know that sounds ridiculous, but it took so long for them to believe my muscle/joint problems, and tried to put everything down to anxiety. including the muscle and joint problems, but definitely the pulse and palpitations. I’m just worried they’d say it’s all in my head, as usual, and I’ll have waited 2 weeks for an appointment for nothing.

I was just gunna say it sounds hormonal.. I took a contraceptive pill that gave me all your symptoms except the loose joints, which can be explained by your diagnosis anyway. That or b12 deficiency!

I think hyper mobility is linked to increase chance of having autoimmune issues? I think you might need to increase your vit D (low bit D can manifest as random pain) as well as magnesium for your muscles. reduce your inflammation by improving sleep and cutting down on sugar.
I think your breathing is anxiety because you don't feel well.
Try acupuncture to balance your hormones etc. Good luck.

I’m a GP, please go and see your GP with these symptoms. No offence, but with the information you have given, none of the suggestions so far would be on my shortlist.

EDS

...I’d be probably be wanting to rule out autoimmune disease depending on examination findings and further history.

book the appointment and take the vitamins while waiting. It culd be anxiety and/or stress, I would expect you to feel anxious/stressed as well though, do you?

as them to check vitamin d.vague notions that hypermobility can mean low vit d.

hypermobility makes you tireder than non hypermobile people as you have to work harder to stabilise joints.

endocrine issues may be linked to hypermobility and EDS

pots is often linked.

also bladder and bowels.

I would definitely be going to my gp with those symptoms, you won’t be wasting anyone’s time and you need tests done. There are so many possibilities of what this could be and the gp will know which direction to head in, frustrating I know as you want answers now but hang in there and hopefully they’ll have you on the right path very soon!

I had these symptoms, along with tingling and puns and needles, at 39. GP wouldn’t consider my hormones and instead I ended up seeing an orthopaedic consultant and a neurologist. After a year of unnecessary tests, finally an endocrinologist measured my hormone levels and confirmed I had an estrogen deficiency. Was immediately put on HRT to protect my bones and heart.
Sadly not all GPs will consider peri menopause if you’re under 50 or do not have the ‘classic’ symptoms.

Interesting that EDS is mentioned. I never seem to meet all the criteria for that, although I do have a close relative with EDS. My inflammatory markers always come back only slightly out of the normal range, although how ‘normal’ is calculated is always a mystery. Said relative with EDS and fibromyalgia also has relatively ‘normal’ inflammatory markers.

blackeyedsusan absolutely spot on with the fatigue because of joints. POTS does explain some of my symptoms, but again some parts of it don’t match at all. Bladder and bowels all working well, although I do bloat up quite a lot. Didn’t notice until I missed lunch and had a late dinner and realised my usually pot belly was flat. Went from 35 inches to 31. So maybe bowels not working quite as well as I think!

gareth I feel super stressed and anxious, but I’m not worried about anything. I feel stressed because I can feel my heart pounding away, like it would if I was stressed, so my body thinks I’m stressed and my brain picks up on that. It’s horrible.

Reaction to fluoroquinolone antibiotics (e.g. Cipro)?

I'd say EDS as well. Is start taking the supplements you mentioned before and make a gp appointment.

Thanks Phoenix I will do, I’m just being far too impatient, and while most of the gps i see are really good, there’s the odd one or two that think my joint and muscle pain is just me exaggerating regular tiredness which puts me off going with these kind of symptoms. I bloody wish it was regular tiredness!

rufus that’s interesting. I had problems conceiving as I wasn’t producing enough progesterone at the end of my cycle (iirc) so maybe my hormones are all out of whack. I have artificial ones from the implant, which may be masking things possibly?

Thanks to all for all the help and suggestions, everything has been really helpful. If the brain fog lets me, I will update after I’ve been to the gp.