AIBU to ask you what these symptoms could suggest?

[DaphneCanDoBetterThanFred]

I will book a gp appointment, but as I have zero patience I wondered if the hive mind of mumsnet had any idea what’s going on with my daft body. Here are all my symptoms - they don’t come and go, it’s like this all the time.

• Muscle pain, like a burning pain even after mild exertion/basic daily activities like doing a supermarket shop or a day at work. All day. Ache and stiffen up at the end of each day, especially if I’ve been working, often to the point where I’m in too much pain to move. I basically just have enough energy to work part time, cook dinner, that’s it.

• ‘Loose’ joints. Not sure how to describe it, but joints seems to slip out of place (not dislocate, I’d imagine that’s much more painful) at the slightest thing, like picking up a book or turning my hand. Or standing up. It’s painful, but not unbearable. This and the muscle pain are most likely linked.

• Fast pulse - low resting pulse is 90, sometimes goes up to 120 even when resting. Blood pressure is low-normal.

• night sweats every night, waking up drenched and feeling like I’m in a very hot bath.

• frequent palpitations, and/or breathing but not feeling like the breath is going in, if that makes any sense.

I was diagnosed with joint Hypermobility syndrome/Hypermobility spectrum disorder a few years ago which explains the joints and possibly the muscle pain to some extent, but not really the rest. So it may be that the muscle pain and joint pain is one thing, and the pulse/palpitations is another.

Anyone out there with any similar symptoms? Or a magical cure? Especially a magical cure that involves cake and naps 😇

Look "joint hypermobility syndrome" what you've described sounds exactly like me and that's what I have been diagnosed with. It's one thing to have joint hypermobility but there is a syndrome which is associated with anxiety, fast pulse, low blood pressure,bowel problems. It can really affect people's life's! It sounds as though you're suffering from anxiety? Mention to your GP, I really struggled with it and always thought it was due to my "JHMS ". Sending lots of good vibes your way, xx

I see you mentioned brain fog also, I suffered from this too and it's mentioned on websites about hypermobility syndrome. I remember reading it and thinking" oh my goodness finally I see why I'm like this"

I think you’ve normalised what seem like pretty life-limiting symptoms.

Anything that has you in debilitating pain most days is unlikely to be solved with a supermarket vitamin pack, right?

I think you’re hoping it’s nothing, rather than truly listening to your body. Since you live somewhere with access to moderate cost, quality medical assistance then use it.

Now take your Mumsnet typing finger and put it on your phone keypad. Make the appointment. I prescribe a lot less 🤔, and a lot more 🏃🏻‍♀️.

Come back and let us know how it goes, by all means.

I would echo the auto immune suggestions but I’m not a doctor, purely based on the fact that I’m going through the joy of just being diagnosed with one. I understand the tiredness and anxiety symptoms very well. I dragged myself to the gp and was open and honest about how much it’s affected my life and long story short after tests it’s been confirmed and treatment has started and I feel so much better so whatever I should causing it the quicker it’s diagnosed and treated the better for you, please do keep us updated wishing you well.

@skittles the OP has said she will be making an appt.

Hi many of us which have eds have all the symptoms you have written, fast palpitations are common with dysautonomia usually pots but there are other, stomach problems are also really common. Many secondary conditions come alongside eds m. There are two websites which might really help, HMSA and EDSUk.
X

See your GP, the night sweats and pain make me worry you have lymphoma.