Hospital wants to send me home after PPROM. I don’t want to go. Help.

[CatsEye99]

Posting for traffic. My waters broke at home and were bright red, and I was 26 weeks with DCDA twins. I called an ambulance and was rushed to hospital where I had a huge gush of red fluid. I was counselled about preterm birth and given steroid injections. I saw a neonatal doctor who stated the most important thing was to deliver at a hospital with NICU cots.

Despite severe agonising pain, a week has passed and I haven’t given birth. Twins aren’t distressed and my observations are fine.

However I feel incredibly unwell. I keep burning hot and turning red but my temp is not raised. I feel like I have the flu or another illness. I have no energy and can barely move due to pain. Codeine won’t touch it. A midwife told me to have a hot bath which I am sure is contraindicated.

The staff want to send me home. I have stated I do not want to go home due to me living an hour from the hospital and the risk of infection, cord compression, preterm delivery and stillbirth. I do not want to lose my babies. I want to remain in the unit with NICU like the doctor advised.

Can anyone give me any advice? I can’t find any info on this anywhere and feel like the staff are fobbing me off.

Yes they are

Held on longer?! Cats you have been unbelievably brave the past couple of weeks and voicing your concerns fighting for these twins every step of the way! You are amazing ❤️! Sending my love ❤️

Ok fingers crossed they are stable enough to come off it soon. They are both a good size and both had steroids so I am hoping that this helps them.

Thinking of you. Have you managed to hold them yet? Do they have names?

Ask doctor what they would want to do if you were their sister/wife etc and what advice they would be giving if you were. Sometimes shakes them up a bit. If they insist on discharge, tell them you want it in your notes you do not feel safe going home and why. Threat of potential legal action unfortunately sometimes makes your argument take priority.

VivienScott Thread has moved on quite a bit.

Not yet. My partner is with them, I have seen them but we can't get my pain under control so I had to go back.

Both are currently stable but I am cautiously optimistic as I know it can change.

It’s awful not knowing how they will be or if things will turn out okay. The not knowing paired with all the waiting is extremely difficult. Made worse I reckon by not being able to be near them due to your own pain levels. Is there anything specifically wrong or is it a case of everything just working against them? With my daughter she was given 50-50 but we knew exactly why but there was no cure just treatment really.

High blood pressure I think was the issue.

Cats there is nothing I can say other than to send you love and so so many positive wishes for you and your babies. YOU DID EVERYTHING YOU COULD there is not one of us who read this /is reading this who believes you could have done any more. You fought and fought for your children with tenacity and strength and you’re a brilliant mum.
I sincerely hope there’s a serious case review over your care but that is to be done in the future - for now get as much rest as you can and know we are thinking of you xxx

Oh Catseye... Congratulations on their birth , keeping them in my prayers.

Sorry to say this but I would deem the care you received as unacceptable and (as others have said) this needs a serious investigation further down the line/ once you are well enough. (Midwife / NICU Nurse here!)

Those first few weeks when it is hour by hour is the worst. I dreaded it. I didn’t see my 26 weeker till he was well over a day old. Some people like happy stories and I know some people don’t (because my child isn’t yours and one person having a happy ending doesn’t mean anything- I use to find all the cheery stories VERY irritating). But for what it’s worth the 26 weeker who was born 2lbs 2oz is 20 months, caught up size wise and developmentally and other than more chest infections than the average toddler is fine. We took many many many photos and videos and we are glad we did. DS2 loves looking at photos of himself ‘in box’ (incubator!) and how he had ‘mimi’ (milk) in his nose (NG tube). I hope you get to see your babies soon and they are stable enough over the next week for cuddles (it took us about 7 days to get to that point).

CatsEye99 Fingers crossed they keep improving. Don’t worry about updating only do so when you feel able. I hope everything turns around for the better and you get home with your babies soon. Keep strong and accept any support you can get, at a time like this you don’t need any extra stress. I found (once I had to leave my little one) that spending time with her sister was a great distraction almost, gave me something else to focus on.

KoshaMangsho I agree. It took four weeks before I could hold my little girl, she wasn’t premature but had another issue. Even then it wasn’t for long, got to hold her again about four/five weeks later and her stats fell and we had to put her down quickly. The standing there just staring can be the hardest thing to do. I could only manage a short while to begin with before having to walk out again.

Catseye, how are you?? Have they managed to give you something to help with the pain? With the whole of the mumsnet army thinking of twin2 and sending lots of love your way. You 3 are very special. For the way you have fought for the babies is inspirational and amazing. The babies will definitely take after their supermum!! Thinking of you & sending lots of prayers to you all xx

Thinking of you all.



Congratulations catseye.

You are so strong Catseye. my thoughts are with you all

Sending much hugs xxxxx

I will pray for you and your babies Cats. My twins came at 27 weeks and you’ve a tough journey ahead of you but you’ve already shown how strong you are. Lots of love xx

@CatsEye99 no advice but lots of love xx

Lots of love to you all Cats. Your strength is amazing. 

@CatsEye99
Wishing you and your family all the best, with lots of love

Congratulations on your babies. They're well grown, which surely helps them. Fingers firmly crossed, especially for twin II.