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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think I might have ADHD?

27 replies

AlexaShutUp · 15/08/2018 23:48

I have been wondering about this for a few years. Every time I read the descriptions of the characteristics of adults with ADHD, I think they are describing me. I really struggle to concentrate, I'm very easily distracted and organisation is a major challenge for me. I fidget a lot and I have to try really hard not to interrupt people. I find it incredibly hard to get started on tasks, even when they're really important, and I often struggle to see them through. I've done a few online tests over the years, and they all say I'm likely to have moderate to severe ADHD. If I do, it would explain a lot.

The thing is, though, I have been pretty successful despite my difficulties. I did really well in academia, despite struggling tremendously. I have had a very successful career. Deep down, though, I have always known that I could achieve so much more if only I didn't have these difficulties. I have developed coping strategies...and covering strategies. I honestly doubt that anyone else would ever believe I had a problem, except perhaps my husband and my daughter, who have seen how I struggle. And maybe my mum, but I think she is like me too, so perhaps she thinks it's just normal.

I really do struggle. I have spent so much of my life wondering what's wrong with me, trying to work out why I can't just get my act together. It isn't for want of trying, I just can't do it!

I have wondered at times if it's worth pursuing a diagnosis, but I'm not sure what good it would do. It would give me a reason why, but it wouldn't change the daily struggle. I don't want to take medication, even if it's offered. And I have already developed all of the self help strategies that I can think of, so what would be the point?

Do you think IABU to keep wondering about this? Will it make any difference if I know or don't know? Do you think I'm just trying to find reasons/excuses for my bad habits?

OP posts:
Stupomax · 16/08/2018 03:42

I have wondered at times if it's worth pursuing a diagnosis, but I'm not sure what good it would do. It would give me a reason why, but it wouldn't change the daily struggle. I don't want to take medication, even if it's offered. And I have already developed all of the self help strategies that I can think of, so what would be the point?

Meds can make a huge difference. Perhaps you could talk to a doctor about the options instead of just writing them off without really understanding them.

There are many diagnoses available - it's not just 'ADHD' or 'not ADHD'. You might have other processing disorders for example, which a psychologist might be able to help you to tackle and either resolve or work out coping strategies, or refer you on to the relevant specialist.

If you do have ADHD, then there are many more coping strategies they can help you to discover and develop.

Or you could just struggle on yourself, wondering how much more you could have achieved.

Personally I'd pursue the diagnosis and be open-minded about the next steps.

Stupomax · 16/08/2018 03:44

BTW to answer your question - you sound very much like a friend of mine who was diagnosed with ADHD in her 40s. The diagnosis and meds have been life changing for her. I don't think you're just finding excuses for bad habits, and I do think your achievements so far are really impressive given that you sound like you do have ADHD.

AlexaShutUp · 16/08/2018 07:57

Thank you Stupomax. It's really interesting to hear about your friend.

If I did want to investigate this further and pursue a possible diagnosis, how would I even go about doing this? Do you go to your GP? I feel like she might just laugh if I rock up and say I think I have ADHD at this stage in my life.

I think the problem is, a part of me feels like a fraud because I've done pretty well despite my difficulties, so how can I really argue that there is a problem? Also, I sometimes think that everyone struggles with organisation and stuff, it's just that most people are much more self-disciplined than I am. I'm curious, does everyone read the descriptions and think, yeah, that sounds like me?

Also, I remember having major problems with organisation and getting started when I was a teenager, but I can't really remember what it was like at primary school. I know that was pretty well behaved most of the time, so I must have had some impulse control, but I did get told off for talking too much and my parents used to complain about my constant fidgeting. I also had terrible trouble sleeping as a child - not sure if that's related.

The other thing is, although I'm really easily distracted, I did sometimes get totally absorbed in games/books as well when I was younger, so I was able to concentrate for long periods at times. Very occasionally, I still get like that, where I'm totally focused on what I'm doing, so obviously, I can concentrate sometimes. Yet on a day to day level, my mind is all over the place.

I don't know, deep down, I feel like something isn't right and that I struggle with basic stuff much more than other people do. However, the other little voice in my head keeps telling me that I'm just lacking in self discipline and that I could get myself sorted out if I really put my mind to it. It's really messed with my self esteem over the years.

OP posts:
serbska · 16/08/2018 08:04

I think you will struggle to get a diagnosis via your GP as one of the criteria is that it is haveing a negative impact on your life, and you have developed coping strategies to mask/cope.

There is quite a lot of information about how to start the ball rolling privately, and then about shared care should you obtain a diagnosis.

You need to provide evidence of your difficulties going back to childhood - school reports, testimony from your mum etc.

My friend has just obtained an adult diagnosis privately and under shared care with her GP now and it’s been life changing for her. Like you she is outwardly successful but that is because she has had to mask mask mask.

aadduk.org/faq/

AlexaShutUp · 16/08/2018 08:29

Just a few examples of some of the things I struggle with:

  • Often, I start my day at work with a to-do list and I get absolutely nothing on it done. I am constantly distracted by other people and other tasks, and I start lots of things without finishing them. Often, I get really stressed about the stuff that I haven't done but I still don't do it. I tend to avoid some tasks that need me to really focus because I know I'll just sit and look at the screen and achieve nothing.
  • In meetings, my mind often wanders off on tangents and I suddenly realise I'm not listening properly. Sometimes, I feel like I go off on tangents when I'm talking too, and I have to pull myself back to the topic at hand.
  • If I have to ask someone for directions, I find it almost impossible to process what they tell me if it's more than, say, go straight and turn left. It just doesn't compute in my brain.
  • A couple of years ago, I had to pay a £1000 fine for late filing of my income tax return. I knew the fine was building up, and the actual process was really easy, but somehow I just couldn't get started with it. No other reason.
  • When I was studying (as a teenager and more recently as an adult), I would try to start assignments early but I could never make any progress on them and would just sit and stare at the page/screen for hours. I always found that I just couldn't focus until the time pressure kicked in, and then typically, I'd pull an all-nighter to get the work done.
  • My house is a mess. I do really try to tidy it up but find it really hard to stay on task. DH does a lot but the only way I can manage my share is by getting my teenage daughter to help me by keeping me company and gently reminding me what I'm supposed to be doing - she is fab and knows how to "manage" me better than anyone.
  • Sometimes, I find I'm constantly in search of new stimuli - checking emails and other updates, checking MN, checking dd's school portal, checking my lottery ticket numbers. I'm always looking for something fresh. This activity often really distracts me from whatever it is that I'm supposed to be doing. It's like an addiction, I can't stop.
  • I really wanted to listen to audio books on Alexa but I find I can't follow the story as I constantly tune in and out.

I'd be interested to know what people think about the above examples. Is this stuff normal? Am I just lazy/disorganised with a bad procrastination habit? Or is there something else?

OP posts:
Really2018 · 16/08/2018 08:56

I'm going through the same thought process atm OP. I broke down at work a few days ago and admitted to both myself and work that I wasn't coping. The simplest things are difficult for me, and I forever feel like a failure and a fraud. I want to start things, pay attention and get on with them, but I can't, and I'm constantly battling between knowing that something's not right and feeling like I'm just looking for excuses to justify my laziness and procrastination habits. Like you I have functioned, managed, and somehow survived academics, although my results have been forever mediocre.

From tests I know that I have a very high IQ (not bragging, it's relevant) and I believe that it has helped mask my issues as I was able, at least in early life, to coast through education.

The older I get, the more I struggle, as my jobs (and I change them frequently) get more and more independent and busy. I feel completely overwhelmed, don't know where to start, get introduced to people and can't remember two seconds later what their name was. I've paid thousands of pounds of fines and debt even though I had the funds to pay in good time, I am unable to focus on most things and have 31 tabs open on my smartphone at once to keep up with my brain, and now I'm unable to run the projects I'm meant to be running because something is just short circuiting.

I remember my doctor suggesting I had ADHD as a child when I was going through my memories of life, but my mother just dismissed it as an excuse 'bad parents' used for their badly behaved offspring.

I'm at the end of my thether and I feel like I've been exposed now that I've admitted to work that I have problems. I feel like I'm doomed to be a failure and will never be able to be my best self (whomever that is). I'm going to the GP on Friday to ask about a diagnosis, but at this point I feel the damage has been done. Sorry to be so miserable Sad

CathyEarnshawsGhost · 16/08/2018 12:30

Alexa and Really, you have both described me to a T. I have been convinced I have ADHD for a few years but not sure what I would achieve from a diagnosis or how seriously I would be taken - I can just imagine the GP's face when I explain that although I have been successful in life, I could have been a world beater if it had been picked up and acted on earlier!

I think a large part of the problem for me is that I function best when kept busy, without having to stay focused for too long. High school was perfect for me - not having to concentrate on one thing for more than an hour at a time.

I'm also messy and disorganised - but others (except for DH) don't see that. If I know others are visiting, I blitz clean/tidy my house (although cannot motivate myself to keep on top of it generally). Colleagues often think I'm really organised but it's just coping strategies. I'm good at storing bits of information so can I wing things quite well and am quite an outgoing person so the performance aspect of this doesn't deter me. I also make really visible attempts to physically organise things (elaborate filing systems etc), but in reality, things are often just stuffed into drawers etc.

When we was younger, I was also really respectful fearful of authority, so although I could be a bit of a chatterer (primary school reports are so funny to read), I was also a bit of a goodie-two-shoes.

I can get quite obsessive about new interests so know that I do have the ability to stay focused when it suits me, but interest always wains.

I completely get you with audio books (I have to read whilst listening).

I get you with processing multiple things at once (I'm currently off for the summer holidays and will probably achieve less in that time than others will in a week). I often think my life is like a patchwork quilt: I can envisage the whole thing but can't make a start on the first square as that is detracting me from the fifth, and so on.

Guacamole2506 · 16/08/2018 13:24

OP I’ve been wondering about ADHD myself. I could have written your post myself. I could be given a million things to do at work some days but i’ll spend all day doing pointless tasks whilst allowing myself to get stressed about tasks that I need to do but can’t find any motivation to start.

scrivette · 16/08/2018 13:34

You all sound exactly like me! Are others not really like it then?

AlexaShutUp · 16/08/2018 13:50

Are others not really like it then?

That's what I don't really know. Maybe it's not adhd and it's just normal, but other people always seem so much better at it than I am. Maybe they're just good at masking it though.

OP posts:
Gnomesoftheglaaxy · 16/08/2018 13:54

I'm exactly the same, your most recent post especially is me. Every single bit. It's a pain and I've been labeled chaotic, disorganized and a chronic underachiever my whole life.

ADHD was discussed with a mental health worker at my GP surgery but waiting times for referrals would be massive and a very long process. I wouldn't take medication anyway and not sure what good another label would do.

It has affected my life but I've kind of accepted it as the way I am and Tbh I think it's just somewhere along the wide spectrum of normal

whosafraidofabigduckfart · 16/08/2018 14:12

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Leatherboundanddown · 16/08/2018 14:28

I relate with every single thing on this thread. I know I have it too.

Been thinking for a couple of years maybe I should search for a diagnosis but not sure what the point is.

I do all of the things you all do. I am also very well educated, to post grad level. Managed that by being bright and an information storer but every single deadline in my life has been completed the night before or right up to a deadline. I can't change that.

I will have hyperactivity in my medical record as my mum REALLY struggled with me as a child. I think it was terribly hard then though to get any sort of diagnosis.

Leatherboundanddown · 16/08/2018 14:29

My friends know me as the most organised person ever but this is only because I HAVE to be. I'm a planner but that is just so that life doesn't fall apart.

Seeingadistance · 16/08/2018 14:34

I have to go out soon, but will come back to this thread.

Everything the OP says resonates with me, and I've also wondered if I have some form of ADD or ADHD. I'm 50 now and have a good career, but I struggle with self-management and I am always, always working to the very sharpest edge of deadlines.

Gromance02 · 16/08/2018 14:41

I think I am exactly the same OP. The irony is that I haven't read the thread properly as I can't concentrate but I've got the jist. I think I use alcohol to self medicate. It stops my mind fluttering around all of the time. I am almost frightened to get a diagnosis as I will be so angry at what I could have achieved had this been diagnosed 30 years ago and wonder what I could have done with my life.

MrsDarcyIwish · 16/08/2018 14:59

Another one here nodding along and mentally ticking the same boxes ...

I feel like a fraud and a failure as my coping strategies mask things to everyone except dh and my dc, and get so cross with myself for not being more 'together'.

Things actually seem to be getting worse in middle age for some reason.

The need for constant mental stimulation, the procrastination / inability to get started and follow through unless under pressure...argh!!!

And yes, I can get totally absorbed in some things but the mundane/domestic/pragmatic??? Simultaneously bores me and makes me feel guilty/panicky so I avoid it until I have no choice. The thing is, if I could only get on and do these annoying things, I would be free to move on, but because I don't/can't, my mental space is polluted by them.

It drives me crazy yet I can't seem to change???

Like you I wonder if it's normal or if there is something like ADHD behind it. And if so, would a diagnosis be possible/worth it. I actually think my gp would see me as a time-wasting attention seeker if I brought this up. Maybe I'm just a born over-thinker.

Would be interested to read about others who have been diagnosed and how it changed their life.

Cath2907 · 16/08/2018 15:01

My sister has ADHD and was recently diagnosed as an adult (she is 36). Initially the GP wasn't keen on sending her for assessment (if you decide to go the medicated route they are costly and sometimes seen as unnecessary as you are obviously "coping" so well already!) My DS had to discuss her daily life struggles and my parents and I also wrote a statement. My DS is a police officer so holds down a job.
My DS has the following:

  • She can't finish anything
  • She can NEVER find her car keys (to the extent of missing vital appointments due to not finding her keys) even though she has as hook to put them on!
  • When she was pregnant (she only found at 25 weeks) she'd lost her maternity notes within the first 3 weeks.
  • She comes to my house and when she leaves I pick up all the stuff she left behind and forgot so I can take it all round to her next time I see her.
  • When she began revising for her GCSEs we discovered she had not notes, not one, not a single book or piece of paper. 2 whole years in school and she knew nothing and had nothing to show. She is very bright and we home tutored her to pass but it was honestly as if she hadn't attended a single school lesson in 2 years. She didn't do A-levels - it was never going to happen for her. It is a shame as I am pretty damn smart but she is exceptional. Without being so her ADHD would have made it impossible for her to pass as "normal" with work for all these years.
Basically she is like a whirlwind of chaos. She was diagnosed with ADHD and despite having said she wouldn't try medication she did try it. She finds it really useful for work. It helps her start things and maintain her focus. My DN has also been diagnosed with ADHD.
Cath2907 · 16/08/2018 15:04

Oh and yes - difficulty sleeping can be related. Neither my DS nor my DN sleep well.

whosafraidofabigduckfart · 16/08/2018 17:16

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Message withdrawn at poster's request.

Nannyplumshairstyle · 16/08/2018 17:26

you are me!
I went to the drs about this when I was doing my degree as an adult and she was very very reluctant to refer me.
I think it all comes down to money in the end.
If I ever came into some money I would pay to get a diagnosis because I really think my life would improve if I could take medicine for it.

whosafraidofabigduckfart · 16/08/2018 17:57

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Message withdrawn at poster's request.

junebirthdaygirl · 16/08/2018 18:19

A lot of those symptoms eg disorganisation/ bad time management etc are also symptoms of dyspraxia.

KateGrey · 16/08/2018 18:46

Two of my children have asd and ADHD. I’ve always known something isn’t quick NT about me. When I was younger very impulsive, I’d say and do whatever I wanted.
Had to focus very hard
Issues with following through on simple things just because
Difficulty with focus
Restless
Very easily bored - work, life
Fidget
I struggle to follow conversation if a lot is going on
I dislike a lot of noise
Hate being grabbed at
Sensory eater

My mum when I was younger described me as “challenging”

I also find I suffer with depression and anxiety. I just haven’t been sure what to do about it.

TittyFahLaEtcetera · 17/08/2018 03:47

I have found my people!

Seriously, I can relate to every post here. I am 36, bright (WAIS tested IQ of 142), was suspected to be dyslexic from a young age but despite repeat testing (hence knowing my IQ) nothing was ever concluded. So I was taught dyslexia coping skills and those, with a combination of masking have seen me through.

I was always thought to have loads of potential, but I procrastinate and never really live up to expectations. If I have deadlines set by an authority figure I can mostly scrape by (though I've missed/forgottrn/been too late for many appointments and have had to learn the hard way), I have the To Do list that never gets completed. My flat is a tip, because I'm so exhausted by being capable and organised all day at work I can't actually function by the time I get home. I'm a single parent and I suspect DS has ADHD too (he has ASD already), so you can imagine the state we live in!

This bit really resonated too: When we was younger, I was also really respectful fearful of authority, so although I could be a bit of a chatterer (primary school reports are so funny to read), I was also a bit of a goodie-two-shoes.

For as long as I can remember, i have been unable to focus on one thing at a time unless I'm hyperfocused. As a child I read and watched tv at the same time, rapidly switching between the two, sonetimes drawing as well. As I got older I progressed to teaching myself crafts to keep my hands busy, so now I watch tv and knit, crochet or cross stitch - sometimes switching between projects in the space of a 30 minute programme!

Part of my job is making how to guides and eye catching information. I'm told I'm very good at it. I go by what would grab my attention and how I would like instructions broken down because when other people send stuff I often miss instructions as they're not clear to me and I make lots of silly mistakes. People think i'm trained in graphic design, but i just pay attdntion to what works for me and how my eyes scan a page and place the info where my eyes fall.

Similarly to that, I teach myself a lot of complicated and probably unnecessary things. I need the stimulus of learning something new. Once it becomes repetitive and I know how to do it I get bored. So I've taught myself the aforementioned crafts, all my artistic skills are self taught because I used to doss during art at school but still came out with an A in GCSE art. I've taught myself how to professionally cut and dye my own hair to the point that people ask for my hairdressers card because they love my hair (wouldn't dream of doing someone elses!), nail art, how to build computers, how to fix phones, how to code websites, how to cook elaborate meals etc. I've got no interest in doing these things professionally, though I get told I "should" a lot. I just learn them, then seek the next skill to learn.

And because I spend all my time doing this, I can't run my actual life. I'm always late, my home is a cluttered mess, I get a lot of "Final warnings" and LOVE direct debits as otherwise I forget to/put off pay(ing) bills. If i sit down with nothing to do i will often fall deeply asleep within minutes as I'm so exhausted all the time. It often takes 2 or 3 attempts to leave my house each day as I forget so much stuff, if it's major stuff I even turn back for it if I'm not too far away yet. I zone out frequently at work, am late for meetings, fidget all through meetings because my body is screaming at me to get up and move around (usually end up colouring in the coffee cup from the coffee I bought that made me late), in the office I get caught up in and butt into others conversations, get so bored and distracted, start jotting down ideas or doodling in my notebook, often jump up to nosey out of the window and envy those who seem to be able to sit down and focus for hours at a time and do a decent days work. I feel like a fraud because I have two modes - breakneck speed for about 30 minutes or zone out for ages. I still get through a lot of stuff, but if I could work consistently I think I'd get more done. I have high anxiety and often feel I'm going to be fired/disowned by family due to being a massive disappointment.

I told my parents last week I though I had this, when discussing that I thought DS has it and DM saying he's just like me as a kid and not to label and thinking all ADHD is hyperactivity. I think DS and I have Inattentive type ADHD. Anyway, DF was more supportive and we went through some of the sample questionnaires online and I score moderately. Reading profiles of adult women with ADHD and how they presented as children, DM is now convinced and pushing me to get diagnosed. Ironically, because DM has told me to put it on my to do list, I'm now procrastinating picking up the phone and making a GP appointment to get the ball rolling!

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